Sigh... I've just been looking around on line for wig ideas. I learned which suppliers the local hair places use and look through the catalogues on line. But what I don't ever understand are the price differences. It could be the same brand of wig but the long hair lengths cost less then the required shorter length. Do I buy long then go to a decent hair dresser to cut it? Do I keep looking for a decent priced short length. Man they are so expensive in the UK. I'm also a bit worried about on…

Its February 2012. At the end of February 2011 I realized after seeing a photo of myself, that my alopecia was beyond repair; not enough hair on my head to "cover" the spots as I had been doing the past 18 years. I went to my hairdresser, who was instrumental in fixing what hair I had left throughout the years to shave off what was left of my hair.

That happened on March 5th. Its almost a whole year. I've grown a great deal. I have had many realizations, some good, some horrible.…

Hello Everyone,

I recently purchased a Freedom Wig, and although the ordering process was very positive, I am not happy with the density of the wig. I ordered light density, and I regret that I did not order light/medium density, as I personally feel that the wig does not have enough hair. Freedom has informed me that if I wanted extra hair added, I would have to pay for it, but I have not heard back as to how much they would charge me. My Rep and Freedom have also encouraged me to…

Tomorrow I've decided that I'm going to transition from my beautiful long curly wig to my short dark straight hair that has been slowly growing back over the last few months. I'm so scared. I hope to think that this is the end of it all (my dermatologist has said my recovery was good) but what if it comes back? It was easy enough to transition to a wig as nobody noticed, but I'm so worried the hair I have now will fall out then I wouldn't know what to do! It would be embarrasing for me to…

Occasionally I receive an email from someone saying that they wished they had my strength to handle alopecia -- as if I woke up one day without my hair and was immediately ok with it. As most members here would attest, that is hardly ever the case. Where I am today is probably where many of you will be tomorrow.

I wrote the following in response to one such email and thought that other members that are new to alopecia or struggling may benefit from it too:

You would be…

Experimental Induction of Alopecia Areata-Like Hair Loss in C3H/HeJ Mice Using Full-Thickness Skin Grafts

Kevin J McElwee, Dawnalyn Boggess, Lloyd E King Jr* and John P Sundberg

The Jackson Laboratory, Bar Harbor, Maine, U.S.A.

*Division of Dermatology, Vanderbilt University, Nashville, Tennessee, U.S.A.

Correspondence: Dr John P. Sundberg, The Jackson Laboratory, 600 Main Street, Bar Harbor, ME 04609

Received 31 March 1998; Revised 16 June 1998; Accepted 24…

So I'm having lunch with a few of my girlfriends sharing little anecdotes about our lives, as you do, when one starts to tell what happened at work. Now she's a nurse in an aged care facility and one old gentleman who has dementia has started doing strange things like peeing in corners of the room etc and he happens to wear a toupee. The toupee is getting more and more ragged looking and the nurses had been plotting on how to take it off him as he's pretty attached to it [no pun intended].…

It has taken 32 years to come to the realization this is who I am and will continue to be. I suppose, deep down inside, I wanted to know there was a way to reverse my hair loss.

I started out with AA when I was a young teen. Moved to AT in my later teens. I was very fortunate to meet the love of my life and marry him even with no hair - who would have thought. We live in a society where women are viewed on the surface - "women's beauty is in her hair...." I went on a very strict diet…

Have you guys heard of alopeciapalooza? Anyone going or considering going?...we are going again this year*last year was our first year* and it was soooo awesome! I really hope to see more of your smiling faces there in August!!!

Katelyn Kelley

10/12/11

Alopecia

Alopecia is an auto immune system disease that there isn’t a lot of information about. The only symptom is losing your hair. Example the hair on your head or even all the hair on your body falls out. There is no known cause. And there isn’t much that you can do about it once you have it. You can go and get injections into your head were you are losing hair. But there is a chance that your hair will not respond to it and you keep losing it.…

Four years ago today I took back my life by shaving my head smooth. In my first photos on my page, you can see what my hair looked like the night before, and what I looked like right after shaving.

Four years. I wish I knew on January 30, 2008 what I know now:

1. I am still me.

2. It's okay to be bald in public - people don't run away screaming at the sight of a bald woman.

3. I can still feel beautiful and feminine without any hair.

4. Life will go on and…

Women have asked me where I get the Turkish scarves that are lightweight cotton and have handmade edging. I demonstrated these in my video "Alternatives to Wearing a Wig". The person I bought the scarves in that video from in 2008 is no longer in business.

There are a number of sellers online, and I recently found a new supplier on eBay. She's a woman in Istanbul, Turkey, so the scarves took a little longer to reach me. But, the price was very reasonable compared to others I've bought…

I met a woman today who's grand daughter was just diagnosed with alopecia universalis. The same disease I've had for over twenty years. Her grand daughter is just six years old, and lost all of her hair over her entire body within weeks. She said they were able to get her a human hair wig from 'locks of love', but that the child is still pretty affected by her ailment. I advised her to just let her little grand daughter know that she was beautiful and incredible despite being bald. I told…

Hi everyone,
I was wondering if anyone has worn the Peggy Knight Cool solutions wig and what you think of it. I am looking into this and any feedback would be great.
Thank you,
Jill

A Mouse Model of Clonal CD8+ T Lymphocyte-Mediated Alopecia Areata Progressing to Alopecia Universalis

Rajshekhar Alli*, Phuong Nguyen*, Kelli Boyd*,†, John P. Sundberg‡ and Terrence L. Geiger*

+ Author Affiliations

*Department of Pathology, St. Jude Children’s Research Hospital, Memphis, TN 38105;

†Department of Pathology, Vanderbilt University, Nashville, TN 37232; and

‡The Jackson Laboratory, Bar Harbor, ME 04609

Address correspondence and reprint requests…

http://www.clickondetroit.com/news/Michigan-cancer-survivor-s-long-hair-leads-to-suspension/-/1719418/8542334/-/mxa9df/-/index.html

I am 20 years old and have had alopecia areata since I was 4 years old. It never really affected me all that much until about 6 months ago, when the spots became harder and harder to cover with my existing hair, and more and more hair was falling out. I am currently almost bald, I have a few synthetic wigs but they are so itchy I would rather wear a hat. In less than a week I am shaving off what is left of my hair and getting a real hair wig. I know that I barely have any hair left but the…

For the last 9 months I've been living in denial that my alopecia may be getting worse, progressing from Areata to totalis or universal (These are the 3 my Dr and many dermatologists have told me my case could progress to)

Maybe I should restart. I've been away because my lovely son has become mobile (crawling and assisted crawling) and most of my day is chasing him around, making sure cupboards are locked and what not. It's a wild ride! For those who have read my posts before and…

“Please Don’t”

Just for now,

Please don’t tell me that “its just hair” because it is much more than that.

Please don’t tell me that “hopefully it will grow back” because that doesn’t matter right now.

Please don’t tell me I look pretty without, because I do not believe you.

Please don’t tell me that “you thought you noticed something different about me”, because I'm already self-conscience enough.

Please don’t tell me you knew I was wearing hair that’s not my…