I have had alopecia for over a year now. I am a healthcare professional and encounter patients throughout my 12 hour shift each day. I spend the day assuring my patients that I am not sick and keep the moment light with a short explanation of AU. I have tried wigs and the most aggravating part that I cannot seem to get past, is how the hair feels against my face or when it gets in my eye. The wigs I have worn are synthetic and I was wondering if the real hair wigs felt this way. It feels…Continue
I have lived with Alopecia Universalis since I was two years old. Without this disease, I probably would be a completely different person. I consider myself a little stronger, more compassionate, and less judgmental because of AU.
I am scared to show everyone who I really am though. I have hid underneath a wig for almost 13 years now. I'm not afraid to not have my hair on around my close friends and family, but I am very scared to walk out without it. I am trying to build up…Continue
When we can't see: glasses or contacts.
When we need a lift: bra.
When our teeth break or get strange: braces, caps, whitening, bridges.
When a heart fails: stent.
When arches drop: shoe inserts.
To cover nakedness: clothing.
To not be animals: toilets, deodorant, condoms, houses, sweet scents.
To improve color: make-up.
So...why stress over wearing anything new on a head? Seriously! You've already agreed to the inventions of humans, so why not one…Continue
Today my son in law turned up unexpected with a friend and because I only shaved my head 3 days ago I didn't run and hide I was proud to just stay as I was in all my bald glory. This is who I am and I have no shame about the way I look love me the way I am because I am still the same person. I thought I would never feel proud of being with out my golden main but you know what I feel ok if people see me like this now. And actually my beautiful son in law loves my hair this short I challenged…Continue
So over the past 6 weeks I have been off college. During that time My alopecia has started and taken over.. to the point where I have had to shave my head. Its tough, crazy tough to get your head around and come to terms with. It takes time, support and self confidence. But I have done it. I have come to terms with my alopecia and the fact that I have no control over it. I don't mind that I have bald patches or that I have had to shave my head, that's me and I am PROUD to be who I am. But…Continue
So after much thought I finally shaved my head ahhhh feels so much better and looks a whole lot better no scagally bits its all nice and even now a little cold but I can sneak in with the humans I don't look like something out of a horror movie should have done it weeks ago. New start!!!!!!
Hello all. As the title says I just want to express my anxiety to those who would understand most. I personally know no one with this condition and as supportive as everyone I love is, there is a part of me that feels they do not fully understand. My wonderful girlfriend and I are expecting a baby girl in early April. We are very excited and look forword to raising a child with all of our Love. My anxiety arises from a fear of passing along my Alopecia Areata and/or its related conditions,…Continue
Hello. I feel so happy to have found this site. My Androgenic Alopecia is worsening to the point I went to a wig shop today. I am scared and feel so alone. Looking for advice and struggling with acceptance.
I lost all of my hair shortly before my first year of high school and now, here I am today with short hair. Sure, it is falling out again but who would have thought that after four years of treatment with no results that without anything, hair would grow? It amazes me. Anyways, as I was thinking about my one year anniversary with hair, I started thinking about what I am going to do once I have lost it again and what my new college friends, who know but do not understand Alopecia, will do in…Continue
Not sure if anyone else has been through this. You only have very sparce hair but you try to hang on to the little bit you are still sporting on your head. After loosing 95% of my hair in just 11 weeks I am now growing new hair all over my head but I still am clinging to the very few long bits I have. Why is that ? you know it look awful but you just keep hanging on to it, what the hair fairy is going to come while your alseep an put it all back LOL I don't think so some how so why do I keep…Continue
Tired of seeing all those bald mannequins in the clothing stores and windows and thinking "Why do the fashion world and advertising media think FAKE bald women are so beautiful, but never use REAL bald women?" Maybe we can change that.
THIS IS THE START OF A REVOLUTION!
Step 1: Go to the mall to one of the many stores featuring bald mannequins. BE BALD (very important step).
Step 2: Put on the same outfit that the mannequin is wearing, or stay in your own fashionable…Continue
January 30 will be 5 years since the day I took control of my fast-departing hair, and shaved my head. Universalis followed shortly. I'd like to share what I've learned, and how being bald has affected me. Here's a photo taken on January 30, 2008, shortly after I shaved my head.
I began going out in public bald only a few months after shaving. I took "baby steps" to…Continue
I have noticed that after I have told people I have known for years about my AA they just don't bother with me anymore it's like I have a virus they are going to catch of me. I feel so alone at times I try to be my bubbly self when I am around people as to not be a burdan are they scared of me or what. I am not sure if anyone else has had this happen but it is very hurtfull it just makes you feel so rejected from sociaty like I'm a lepper or something. And if I hear one more comment it's…Continue
I've decided to try a dairy and gluten free diet(or at least cut them out considerably). I'm a big believer that your diet has a lot to do with the way your body reacts to an already existing problem. I'm mostly trying to cut out inflammatories because even before AA appeared in my life I've always had skin problems (rashes, itchiness, dryness) that I believe are connected to my diet. If it doesn't help my AA at least I'll be healthier! My question is for anyone who has tried a diet like…Continue
I am a little confused when you start to lose your hair does it come out in clumps or small amounts I had only 2 small circles then my hair was falling from everywhere I still have about 10 percent of my hair but now it seems to be growing back. It has been about 10 or 11 weeks from when it first started so if anyone can answer I would appreciate some feed back.
I have a 5 year old. And she is a bully. She does have a big heart... but she picks on me about not having hair. I can take it because I am pushing 40. But there are too many kids that didn't have the blessing of growing up "normal".
I would like to bring in some people for show and tell to explain the difference to her. I live in southwest Michigan. She doesn't understand that she has alopecia too.
I just want to stop her from being the bully that she is and realize that her…Continue
A girl stares into her bathroom mirror and doesn't recognize the face she sees. Putting up her hood she hopes that the covering will bring back some form of recognition. Next she tries a hat followed by jewelry, make-up, a scarf. Nothing she places in the reflection can help her to give the girl in the mirror a name. Who is this girl? When did she lose the ability to recognize herself? Is that girl in the mirror really her? She watched tears slowly run the the cheeks of that girl, the one in…Continue
It's the year which so many deemed to be our last, 2012 the year the world ends. Strangely it seemed, at many points of the year, my world did end or change unthinkably. There were certainly points; specific, small little parts of 2012 that I wished the world had ended.
Like every year it began with a crash of fireworks and over rated celebrations, and despite the rumours it ended too, in a somewhat similar fashion and for me, on the complete other side of the world from where mine…
Added by Kate on January 1, 2013 at 2:30am — No Comments