Featured Blog Posts – January 2013 Archive (20)


When people stare I makes me so sad and stressed I learned to ignore it but when your a bald girl with patches all over your head it gets hard. I wish I had the alopecia where your hair doesn't grow.because I get so use to my hair I get happy and excited.not that many people stare.but then it grows then falls out again I always wonder why me?

Added by Mercedes Maria Butler on January 27, 2013 at 3:51pm — 8 Comments

Is there a comfortable wig?

I have had alopecia for over a year now. I am a healthcare professional and encounter patients throughout my 12 hour shift each day. I spend the day assuring my patients that I am not sick and keep the moment light with a short explanation of AU. I have tried wigs and the most aggravating part that I cannot seem to get past, is how the hair feels against my face or when it gets in my eye. The wigs I have worn are synthetic and I was wondering if the real hair wigs felt this way. It feels…


Added by april on January 26, 2013 at 12:00am — 6 Comments

Me and AU

I have lived with Alopecia Universalis since I was two years old. Without this disease, I probably would be a completely different person. I consider myself a little stronger, more compassionate, and less judgmental because of AU.

I am scared to show everyone who I really am though. I have hid underneath a wig for almost 13 years now. I'm not afraid to not have my hair on around my close friends and family, but I am very scared to walk out without it. I am trying to build up…


Added by Catherine on January 25, 2013 at 11:35pm — 6 Comments

It is okay to replace what's missing

When we can't see: glasses or contacts.

When we need a lift: bra.

When our teeth break or get strange: braces, caps, whitening, bridges.

When a heart fails: stent.

When arches drop: shoe inserts.

To cover nakedness: clothing.

To not be animals: toilets, deodorant, condoms, houses, sweet scents.

To improve color: make-up.

So...why stress over wearing anything new on a head? Seriously! You've already agreed to the inventions of humans, so why not one…


Added by Tallgirl on January 23, 2013 at 12:30pm — 5 Comments


Today my son in law turned up unexpected with a friend and because I only shaved my head 3 days ago I didn't run and hide I was proud to just stay as I was in all my bald glory. This is who I am and I have no shame about the way I look love me the way I am because I am still the same person. I thought I would never feel proud of being with out my golden main but you know what I feel ok if people see me like this now. And actually my beautiful son in law loves my hair this short I challenged…


Added by Annette on January 22, 2013 at 6:30am — 5 Comments

College life - Black sheep

So over the past 6 weeks I have been off college. During that time My alopecia has started and taken over.. to the point where I have had to shave my head. Its tough, crazy tough to get your head around and come to terms with. It takes time, support and self confidence. But I have done it. I have come to terms with my alopecia and the fact that I have no control over it. I don't mind that I have bald patches or that I have had to shave my head, that's me and I am PROUD to be who I am. But…


Added by Ella on January 21, 2013 at 8:30pm — 4 Comments

Big step

So after much thought I finally shaved my head ahhhh feels so much better and looks a whole lot better no scagally bits its all nice and even now a little cold but I can sneak in with the humans I don't look like something out of a horror movie should have done it weeks ago. New start!!!!!!

Added by Annette on January 19, 2013 at 2:30am — 2 Comments

Just want to express my anxiety

Hello all. As the title says I just want to express my anxiety to those who would understand most. I personally know no one with this condition and as supportive as everyone I love is, there is a part of me that feels they do not fully understand. My wonderful girlfriend and I are expecting a baby girl in early April. We are very excited and look forword to raising a child with all of our Love. My anxiety arises from a fear of passing along my Alopecia Areata and/or its related conditions,…


Added by RonaldStone on January 18, 2013 at 11:30pm — 5 Comments

Just joined Alopecia World

Hello. I feel so happy to have found this site. My Androgenic Alopecia is worsening to the point I went to a wig shop today. I am scared and feel so alone. Looking for advice and struggling with acceptance.

Added by Missy on January 16, 2013 at 4:30pm — 12 Comments

Five years already?

I lost all of my hair shortly before my first year of high school and now, here I am today with short hair. Sure, it is falling out again but who would have thought that after four years of treatment with no results that without anything, hair would grow? It amazes me. Anyways, as I was thinking about my one year anniversary with hair, I started thinking about what I am going to do once I have lost it again and what my new college friends, who know but do not understand Alopecia, will do in…


Added by Megan Bry on January 16, 2013 at 1:33pm — 2 Comments

To shave or not to shave

Not sure if anyone else has been through this. You only have very sparce hair but you try to hang on to the little bit you are still sporting on your head. After loosing 95% of my hair in just 11 weeks I am now growing new hair all over my head but I still am clinging to the very few long bits I have. Why is that ? you know it look awful but you just keep hanging on to it, what the hair fairy is going to come while your alseep an put it all back LOL I don't think so some how so why do I keep…


Added by Annette on January 16, 2013 at 2:40am — 3 Comments

The Bald Mannequin Project!

Tired of seeing all those bald mannequins in the clothing stores and windows and thinking "Why do the fashion world and advertising media think FAKE bald women are so beautiful, but never use REAL bald women?" Maybe we can change that.


Step 1: Go to the mall to one of the many stores featuring bald mannequins. BE BALD (very important step).

Step 2: Put on the same outfit that the mannequin is wearing, or stay in your own fashionable…


Added by Mary on January 15, 2013 at 5:55pm — 7 Comments

My 5th anniversary of the woman I am now - thanks to being bald!

January 30 will be 5 years since the day I took control of my fast-departing hair, and shaved my head. Universalis followed shortly. I'd like to share what I've learned, and how being bald has affected me. Here's a photo taken on January 30, 2008, shortly after I shaved my head.

I began going out in public bald only a few months after shaving. I took "baby steps" to…


Added by Mary on January 15, 2013 at 2:00pm — 13 Comments

Regrowth possibilities

Question on hair regrowth. No hair for two n half years. Yesterday my husband found 6 hairs on the side of my head and some of my eyebrows are coming back. I was so excited. On closer inspection my sister found an area on the top with several black hairs. I have no hair on my entire body, but the ones mentioned above. My thyroid is finally leveled. What are the chances that all my hair will come back?

Added by zeida on January 14, 2013 at 5:58pm — 2 Comments

Where are the friends now?

I have noticed that after I have told people I have known for years about my AA they just don't bother with me anymore it's like I have a virus they are going to catch of me. I feel so alone at times I try to be my bubbly self when I am around people as to not be a burdan are they scared of me or what. I am not sure if anyone else has had this happen but it is very hurtfull it just makes you feel so rejected from sociaty like I'm a lepper or something. And if I hear one more comment it's…


Added by Annette on January 12, 2013 at 7:00pm — 5 Comments

Dairy free/gluten free

I've decided to try a dairy and gluten free diet(or at least cut them out considerably). I'm a big believer that your diet has a lot to do with the way your body reacts to an already existing problem. I'm mostly trying to cut out inflammatories because even before AA appeared in my life I've always had skin problems (rashes, itchiness, dryness) that I believe are connected to my diet. If it doesn't help my AA at least I'll be healthier! My question is for anyone who has tried a diet like…


Added by Katelyn on January 9, 2013 at 6:30pm — 16 Comments

Just want to ask

I am a little confused when you start to lose your hair does it come out in clumps or small amounts I had only 2 small circles then my hair was falling from everywhere I still have about 10 percent of my hair but now it seems to be growing back. It has been about 10 or 11 weeks from when it first started so if anyone can answer I would appreciate some feed back.

Added by Annette on January 8, 2013 at 7:04am — 11 Comments

Bullies in school

I have a 5 year old. And she is a bully. She does have a big heart... but she picks on me about not having hair. I can take it because I am pushing 40. But there are too many kids that didn't have the blessing of growing up "normal".

I would like to bring in some people for show and tell to explain the difference to her. I live in southwest Michigan. She doesn't understand that she has alopecia too.

I just want to stop her from being the bully that she is and realize that her…


Added by Vintino on January 3, 2013 at 11:30pm — 3 Comments

Not alone

A girl stares into her bathroom mirror and doesn't recognize the face she sees. Putting up her hood she hopes that the covering will bring back some form of recognition. Next she tries a hat followed by jewelry, make-up, a scarf. Nothing she places in the reflection can help her to give the girl in the mirror a name. Who is this girl? When did she lose the ability to recognize herself? Is that girl in the mirror really her? She watched tears slowly run the the cheeks of that girl, the one in…


Added by Natasha Gehrke on January 3, 2013 at 11:30am — 4 Comments

2012: Heartbreak, hairloss and tremendous adventure

It's the year which so many deemed to be our last, 2012 the year the world ends. Strangely it seemed, at many points of the year, my world did end or change unthinkably. There were certainly points; specific, small little parts of 2012 that I wished the world had ended.

Like every year it began with a crash of fireworks and over rated celebrations, and despite the rumours it ended too, in a somewhat similar fashion and for me, on the complete other side of the world from where mine…


Added by Kate on January 1, 2013 at 2:30am — No Comments

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