Featured Blog Posts – February 2009 Archive (60)

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Inspiration

I wrote this when I was in a dark place and it helped me a lot, hopefully it might help someone here too x



I used to know a little girl

Folks always used to stare

They wondered bout the little girl

The one who had no hair



She tried so hard to fit right in

Like them she tried to be

Kids laughed and joked and taunted

But her hurt they could not see



She never let her feelings show

She kept them locked away

This carried on… Continue

Added by Donna on February 18, 2009 at 6:30pm — 8 Comments

Interview on Hack

Hey All,

I recently did an interview for an Australian radio station Triple J about my experiences of having alopecia, and about choosing not to wear a wig.

You can listen to it (and see some photos) at: http://www.abc.net.au/triplej/hack/notes/s1706065.htm

Thought it'd be a great way to get some more exposure for the condition!

Cheers!

-Dominique

Added by Dominique on February 18, 2009 at 5:01pm — No Comments

Waiting game!

Have you ever felt like you were ahead of the game and were waiting for everyone around you to catch up??? I'm still waiting to hear if I got that sales position - they had to run it through all the monkeys running the show too! I'm organizing a camp for Canadians with alopecia this summer and before I can even think about getting registration forms written up, I'm waiting for the campground to send my information package. I've done just about everything I can do with everything and I'm waiting… Continue

Added by Carol on February 18, 2009 at 12:02pm — 2 Comments

An alopecia wake-up call

Okay, so for those of you who read my blog posts regularly or who talk to me pretty frequently, you know that my boyfriend has had some adjustment issues with my AA. While he has been really good about asking questions and trying to make me feel as comfortable as possible, every once in a while we hit a bump in the road -- and rather than run from the issue, we face it head-on and move on. I think it shows what kind of person he really is, to accept the challenges that come with having an… Continue

Added by kastababy on February 18, 2009 at 11:14am — 6 Comments

1st day here

ok so I am not so good at writting but i thought i would give it a shot. Well I just stumbled across this website earlier today...(wasting time instead of studying) but so far I have meet some very nice ppl. well not much else i think I should probably call it a night.

Added by Danielle on February 17, 2009 at 11:30pm — 1 Comment

and the tears fall

been a while since i cried bout alopecia actually.

i just watched gail porters doco. wow what a tear jerker.

brave i love and hate that word...

i cried when i saw that she was on the way to see her family

i cried when she saw her mum and her brother

i cried when she saw the other woman bald too, and in the dermatologists office.

the word disease, memories, tears flooded.



aww it is a test, when does it end no one knows. but i'm sure your gonna pass with… Continue

Added by Alison on February 17, 2009 at 5:48am — 2 Comments

So where does this leave me.....?

I'm 25 and was diagnosed with Alopecia Areata 1 week ago, guess I'm just going to use this to think about how I feel about all this, my fears, my worries, my amazing friends, brilliant family and ever so supportive boyfriend. The first experience I had of Alopecia was when I was around 16, my cousin introduced me to her boyfriend, and explained to me, why he had no eyelashes and no eyebrows etc, I remember thinking to myself, WOW He's so brave! I also remember thinking about how I would feel if… Continue

Added by Natalie on February 17, 2009 at 4:35am — 5 Comments

Gail Porter story

Just finished watching the videos on the website - thank you for putting these on.... I too was caught off guard for this very candid and honest account of Gail's experience with Alopecia. I guess 8 years on for me and watching someone else dealing with the "process" nearly reduced me to tears on a number of occassions - however it also showed me how far I have come. I was saddened with the what the Dermatologist told her (thankful that he was honest) - my situation is very similiar to hers -… Continue

Added by Angela Jackman on February 16, 2009 at 11:00pm — No Comments

Full lace Wig Search...Very frustrating and discouraging... :-(

I am having a very lets say hard time finding a full lace wig that i can afford. I'm a second year college student whose only source of income at the point is work study and undependable refund checks. I don't want to bother my mother with it because she's getting married in 3 months so all her time and energy has went into paying for her wedding. I mean every site i visit just makes me get more discouraged. I kind of wanted a full lace wig before my 20th birthday which is in 4 weeks but… Continue

Added by Montoya Grant on February 16, 2009 at 9:47pm — 3 Comments

Gail Porter's video caught me off guard

I just finished watching the Gail Porter documentary "Laid Bare", and must say that I found myself unexpectedly vulnerable. This video really touched a deep place in me. So, I felt a need to get my feelings out.



I was watching her facial expressions, reactions, body language, and it mirrored a lot of thing that I have felt during my journey.



I remember, playing it “strong” and then the…

Continue

Added by Cheryl, Co-founder on February 16, 2009 at 6:30pm — 3 Comments

Watch Gail Porter documentary on AlopeciaWorld.com

You can now watch BBC's entire documentary about Gail Porter and her bout with alopecia here on AlopeciaWorld.com.

This poignant documentary follows her life as she comes to terms with living with alopecia universalis (total loss of all body hair).

To see all five parts, simple go to the "Video" section of Alopecia World or click this link.

Enjoy!

Added by rj, Co-founder on February 16, 2009 at 5:00pm — 1 Comment

Life After (or WITH) Alopecia? (Please respond!)

Hi everyone!

I'm handling my female pattern baldness a lot better than I used to handle it. I believe once again that I'm worthy of love and fun. But every now and so often I catch myself thinking "I better enjoy this while I can. If I am ever bald, I won't have this." This is mostly true of dates and relationships with guys. I know my girl friends are there for me and with me no matter what. They think wigs are cool, so this would only be an "exciting" condition to them. Guys, on the… Continue

Added by Alexandra on February 15, 2009 at 9:38pm — 6 Comments

VERY FRUSTRATED!! Maybe someone can help.

Ok here's the deal....





I found a great hair piece that really feels comfortable and looks great...BUT... it was very, very, very expensive! Since I am a single mom and have hardly any money, this was a big deal!



I am trying soooo hard to keep this hair piece in good condition cause it will be awhile before i can get a new one.



So here's the problem......My lifestyle wasn't designed to have a wig on my head. I love to go hiking, bike riding, swimming, to… Continue

Added by Laura on February 15, 2009 at 9:27pm — 7 Comments

Lack of Emotion

I shave my head now and then. I let my hair get about half an inch long and then save it mainly because I’m lazy. Well, I have noticed that a little patch of hair is growing in. I have been deciding between shaving it off or seeing what the little hairs will do. You’d think that would make me happy but I don’t really have any emotions about it. That started me soul searching about it. I came up with 3 reasons for my lack of emotion. Number one would be that it would be silly for me to get… Continue

Added by Donna Evans on February 15, 2009 at 12:00pm — 2 Comments

Humbled by reality: when Alopecia is the only sense of normality

Growing up, I had everything: friends, sports, a family, and or course, hair. Then one day life took a down spiral out of nowhere. I went from having a close family to having many relatives die, my parents go through a bitter divorce, and going into a depression in which I isolated all of my friends away from me. Then I lost my hair. I felt the end was near. I didn't know what I had, I just knew that one more thing in life was leaving me beyond my control. A few years pass, I'm a 2 sport… Continue

Added by baldmatt55 on February 12, 2009 at 12:50pm — 2 Comments

White Fuzz and Such

My spot in the back has a whole bunch of white fuzz...finally. I know this is the beginning of growth, because this is what my 1st spot did before it started sprouting some hair :-) I can't see it, and I just started working the 3pm-3am shift at work so my husband hasn't had a chance to tell me what's goin on back there, but I can feel it. Feels fluffy, and it itches like HELL. So this is good. Bad news for my body...I am winning the war against myself...haha.



No new spots. 1st spot… Continue

Added by Amy on February 12, 2009 at 11:23am — No Comments

Alopecia World According to Jeffrey

The question has been asked. Why do I love Alopecia World?



Turn your calendar back to March, 2008.

I was into my 8th month of my Alopecia Journey and feeling kinda, well... you know...blah.

I had been searching the web for information, and lo and behold it's Alopecia World!

I joined immediatly and created a profile, put up the wallpaper, put up some pictures, added some music and started inviting people over to chat and get to know one another.



Turn the page… Continue

Added by JeffreySF on February 11, 2009 at 10:25pm — 5 Comments

There's LOVE In Belonging...

I love Alopecia World because there’s nothing like belonging… I’ve been given the power to take back my life by interacting with the strong and caring people on this site. There aren’t words that are adequate enough to describe how important AW has been to me. Thank you alopecia family and Happy Valentine's Day!

Added by Galena on February 11, 2009 at 11:47am — 5 Comments

Happy Valentines Day Alopecia World Members

The warm and friendly spirit of Alopecia World welcomed me like a gracious host. I am new to this site but I feel a shared sisterhood, truly like I am among family members. Even though I have worn wigs and gotten weaves I have always felt alien to other women with normal healthy hair. It is so nice to be among others who have experienced my frustration, allowing me to feel accepted and to know that its okay, I am not alone. I pray that we can all be a comfort, help and inspiration to each other… Continue

Added by JoDeanna on February 11, 2009 at 7:15am — 3 Comments

Tell us why you love Alopecia World

Valentine’s Day is this Saturday and what better way to celebrate than with an Alopecia World love fest?

Sweet nothings, heartfelt odes or just a good old-fashioned top ten list, we want to read your love letter to Alopecia World.

All you have to do is write a blog about how Alopecia World stole your heart and tag it “iloveaw” (one word without the quotation marks). You can then search on the "iloveaw"…

Continue

Added by Alopecia World on February 11, 2009 at 5:30am — 1 Comment

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