March 2009 Blog Posts (104)

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I would like a little advice from others

Hi, I am Kayla

I have been taking the Cortisone shots going on 4 years that means alot of shots for actually no

purpose what so ever. I have had alot of new growth I just get frustrated because as soon as

I see the new growth it just all falls back out! Most of you knowin the area's where you take the shots

you get dents in your head or I do anyways. My head looks like I dont know what ..and



What I would like a little advice on is .. Should I continue the shots or… Continue

Added by Kayla Adkins on March 27, 2009 at 1:51pm — 9 Comments

Wigs

Been looking at different wigs on the internet. Can any one offer me any advise as to what kind of wig to buy. Have 4 bald spots and just want to cover them with a wig, when I go to work. I do not know the diference between synthetic and monofilament. Can not spend a thousand dollars...but would like the wig to look natural. Would appreciate any imput. Thank You

Added by Katie on March 26, 2009 at 10:55pm — 3 Comments

GOOD DAY!!!

today is such a good day for me. its good because it was cloudy and almost raining, i love the rain. its good because i kept my hair down today in a small headband, and even though i looked like i lost a ton of hair, i was glad i had the hair i did. i didnt loose my self today. i read awesome comments and i saw how good a wig can look. i decided if this cream im using doesnt help and i loose even more hair. i will go bald and beautiful.



no this deccison was not something i just made… Continue

Added by lauren on March 26, 2009 at 9:45pm — 1 Comment

MORE SPOTS

Just got home from work...noticed my hair seemed thinner in the back. Sure as shit 2 more bald spots. Now I have 2 on the top side and 2 more in the back. Hard enough to cover up the first 2. Is this ever going to end! Now I have gray color roots ( because I am afraid to color my hair ) and 4 bald spots! Life sure does suck!

Added by Katie on March 26, 2009 at 7:15pm — 3 Comments

A bald Mii

Last night, I created a Mii on the Wii - Bald! Call it sneak peak of what I might look like without any hair. It was actually quite fun to create the avatar. Plus, my Mii kicked ass.

Added by Paula on March 26, 2009 at 12:30pm — 2 Comments

the significant other

So my boyfriend of 5 months asked me if I want him to monitor my patches. I didn't know what to say. I don't understand my hesitation, but I haven't shown him the patches yet. I had no problems showing my parents, and I don't think I'd have a problem showing someone if they asked to see them....but him. It scares me. It scares me that it'll make him think less of me somehow. It scares me that it might scare him away, that it will make it more of a 'reality' for him and that seeing it as opposed… Continue

Added by Michelle on March 26, 2009 at 12:03pm — 4 Comments

Just wondering if any one has seen a endocrinologist for treatment of alopecia areata?

Just wondering if any one has seen a endocrinologist for treatment of alopecia areata?

Added by Katie on March 26, 2009 at 10:20am — 1 Comment

One step forward, two steps backward...the cycle continues

Just when I thought I was making great progress (can we say, 75% growth on my head!!), I have been reminded once again of just how unpredictable AA really is -- and it gets more devastating each time. Yesterday, my beloved asked me what I was doing to my eyebrows. I went and looked in the mirror, only to see that my eyebrows are falling out again! Even as I type this, I feel my eyes getting irritated around my lash line (a sure signal that I'm about to lose them again too), and this time the… Continue

Added by kastababy on March 26, 2009 at 7:26am — 1 Comment

i'm tired of being upset by this already

it's been two weeks-ish since finding the patch. i've stopped making my husband photograph it everyday (how manic was that) and i am trying really hard to focus on the fact that i am very lucky to be otherwise healthy and able bodied. i've ramped up my yoga and meditation, making them daily practices rather than sporadic as they were...but everytime my head itches i feel a tinge of panic... is it a new patch? every time that i run my fingers through my hair and get more than a couple strands my… Continue

Added by Jodi on March 26, 2009 at 2:22am — 4 Comments

story

i really dont know what to write. its late...so my brain is all fuzzy.



ill start here:



i went on a little vacation with my family. it was good. i went with my mom, dad, sisters, and grandparents.

while i was getting ready my grandmother(nonna; in italian) saw my hair loss .lets just say it was evident that she was affected by it. she got rly quite. than she asked me how it was doing? i told her i was losing more. she said " thats okay, if i have to sell my house to… Continue

Added by lauren on March 26, 2009 at 1:17am — 3 Comments

Eyebrows re-touched...

Had my eyebrows re-touched yesterday. Had them done darker since they are tending to fade a lot faster.



I got the courage to ask about eyeliner. Dawn showed me how it would be done by drawing with eyeliner pencil and have to say it was very uncomfortable. I don't wear eyeliner that close to the inside of my eye.



But wearing eyeliner is becoming more uncomfortable and it runs into my eyes and then I can't see.



I got to see Ken on the 21st in Vegas and we spent… Continue

Added by Tnabugg on March 26, 2009 at 12:15am — 1 Comment

Messing with my emotions

So the past 4 months have been such a roller coaster of emotions. I have been so upset that I have to go through this with so many important things coming up in my life, like my wedding. Then I feel blessed that it is not something more serious to my health. Lately I have been feeling better and starting to accept my hair loss, and almost having faith that it is growing back. I have stopped all medical treatments after being put on prednisone and absolutely hating it. I am letting my body do… Continue

Added by ErinMichele on March 25, 2009 at 8:59pm — 4 Comments

A funny bit on 30 Rock

We all could use a laugh, right? This isn't strictly about alopecia areata, but...close enough.



A few nights ago, the TV show 30 Rock the self-obsessed actress, Jenna (played by Jane Krakowski) was donating her hair in order to gain some much-needed publicity. They showed her on the Today show being interviewed by Meredith Viera. Viera asks her about donating her hair to Locks of Love. Jenna responds that Locks of Love wouldn't accept her hair because it's "way too processed for sick… Continue

Added by Mary on March 25, 2009 at 3:36pm — 6 Comments

box of rocks, box of chocolates, it's all good

you know even in the worst of the situations, something always good comes out of it, whether we are bald for the rest of our lives or our hair grows back, the words i have always stuck by "everything happens for a reason" well i believe me getting AA is a real good learning process, i have studied a lot on it since i got it and i keep educating myself, my dermatologist asked me if i was in the medical profession when i came in the first time cause i knew so much, i think i impressed myself just… Continue

Added by Paul on March 25, 2009 at 3:00pm — 4 Comments

Pregnancy... 24 weeks and hair is regrowing

I've had no hair for about a year now. My hair started to fall out after I was pregnant with my son who was born in december 2006. In the summer of 2007 I had really big, hairless patches on my head and in mai 2008 I was completely bald. My eyebrows are gone and I've got almost no body hair!



Before I got pregnant I had white, thin fuzzy hair on the top of my head. I sometimes dyed my hair darker which made me feel better since it looked like I had more hair. Now I'm 24 weeks… Continue

Added by Zoe on March 25, 2009 at 9:29am — 5 Comments

Wigs, Eye brows and eyelashes??

I'm becoming more and more curious about what it would feel like to be able to tackle the world as a person with hair, rather than without.. I have done some research on wigs, and have found a company called whitecliffe in manchester uk, they seem to have a product that is very tempting and seems to have some good reports, they have a a website if anyone wishes to take a look.. ( just type in whitecliffe wigs manchester). I guess i will also need some eyelashes and eyebrows too, ( wish they… Continue

Added by stefan williams on March 25, 2009 at 6:29am — No Comments

Finding out I had alopecia areata

I can remember when I was 9, My mom was brushing my hair She looked at me and ask Kayla has anyone been pulling your hair at school I replied

No mom why would you ask that she looked at me and said. I think we should see a doctor and see whats going on I went to the family doctor he said umm let's see he took a look and said nothing to worry about I was like great then 3 months passed I noticed a bald spot on top of my head I said mom this isn't normal so I went back and they sent me to a… Continue

Added by Kayla Adkins on March 24, 2009 at 5:14pm — 4 Comments

A day of many firsts

I held another support group meeting on the first day of spring, March 20th. It was nice to see some old faces and even some new ones. Although we were a little tight on space, it didn't seem to matter too much as everyone seemed quite comfortable with each other. All of my youngest members came, one who's head looks just like mine and is the biggest sweetheart, one who's hair has actually come back in and refuses to let his mom cut it and our junior role model who's video we watched of her… Continue

Added by Carol on March 24, 2009 at 3:14pm — 5 Comments

Eyebrow and eyelash products

Any suggestions for eyebrow and eyelash products that look great without going to tatoos? Looking for products other than pencils and powders. Thanks, Nanci

Added by Andrea Wasserman on March 24, 2009 at 1:05pm — 1 Comment

and so it goes...

It happened again, and why am I surprised? I'm currently collecting data for my dissertation and last week was faced with difficulties that are not research-related but alopecia-related. Something research supervisors can't really prepare you for...



I'm developing a career counseling group to motivate unmotivated high school students to engage in career exploration. During one of the group sessions last week while exploring each participants' individual strengths and characteristics,… Continue

Added by Emily on March 24, 2009 at 11:13am — 5 Comments

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