March 2009 Blog Posts (104)

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Shall we expose the Insensitives? Educate them?

Okay...two blog posts in one weekend on rude women in stores who comment on children, and on bosses and co-workers who (doctors, yet!) exposing an alopecian in front of staff...I have to say something. These insensitive people need to be held up as poor examples so they can know what they do to others, then be educated in empathy and medical facts. Others in town need to recognize and help them in our behalf if we are shy. We would be doing them a service if we can get them to STOP hurting… Continue

Added by Tallgirl on March 8, 2009 at 1:50pm — No Comments

Shave It Off?

my hair is starting to look like a mohawk and i think if i should just shave it off? if you guys have suggestions just comment or message me because i am getting a wig and i don't know if i should just cut it short or just shave it? ow well i'll let you guys decide on that.

Added by Aja Eliazar on March 7, 2009 at 9:48pm — 6 Comments

i need a group hug

hi all,

this is my first time blogging too. so on friday i was having a very good day at work when the tables turned. we were all coming back from lunch when my boss looks at me and says in front of everyone "hey pat, do you know the first time i realized that your hair is not really yours?" so with everyone looking i stopped him dead in his next ignorant tracks. I said to him "dont you think that is a private matter and that what you said maybe embarrasing to me? And what makes you think… Continue

Added by Pat on March 7, 2009 at 8:15pm — 13 Comments

Worried Mom

Hi, this is my first time on this website. My son was diagnosed with AA when he was 3, he is now 5. It started like everyone else, patchy baldness that has progressivly spread all over his head. He seems to be on kind of a cycle, he begins losing his hair in the late fall each year and it all grows back each summer, does anyone else have this and is this normal with AA? He has very blonde hair, but he has patches in different areas of head that grow in dark brown and very course. He doesn't… Continue

Added by Traci on March 7, 2009 at 6:37pm — 1 Comment

How I feel today

This is the first time that I am posting a blog on this website. I was recently diagnosed with Alopecia and I am trying to cope with it. I have my good days where it doesn't even cross my mind and then I have my bad days where I cry. Today is a good day. I currently have three bald spots in my head (and I just noticed the third one the other day) and I think that I am going bald around the edges of my hairline. I wear wigs everyday and I think they look great. The only problem that I truly have… Continue

Added by Alicia Dickson on March 7, 2009 at 12:21pm — 3 Comments

wandering thoughts and a lil cry

every so often i have a cry

i just had a cry after thoughts of treatments came into my head

my last treatment was acupunture about 3 years ago. it didnt work

but i've had some body hair grow about 8 months ago. it hasnt fallen out, but it hasnt grown further.

i still consider myself to have AU

anywho

i was crying because i was reading the side effects of sulfasalazine which can be harsh.

i remember i've read articles about other even harsher drugs some take to… Continue

Added by Alison on March 7, 2009 at 8:22am — 3 Comments

Passing it on to a new generation.

For those of you who do not know me,I have 2 beautiful boys,Mason who is my oldest at the age of 21 months,and Porter who is my youngest at 6 weeks.This blog is about my oldest,Mason.

I was told that alopecia was not hereditary , and I had hoped for boys it wasn't.I noticed a spot on the back of Mason's head about 5 months ago.It was smooth and round,about the size of a toonie.I was sure right away.I showed it to my fiance right away.He told me it was nothing,that it was just probably just… Continue

Added by Sarah McIntosh on March 7, 2009 at 1:50am — 3 Comments

confrence

ok might be jinxed for confrence now im not sure if im going to be able to go. with my broke shoulder i wont be working for three months so money might be an issuse not so much confrene fee or traveling cuz im close by but the four days in the hotel room might be the stoper. i got a twin bed room maybe if i got a room mate i might could do it. every thing is still up in the air right now. time will tell i guess. sure do want to meet and hang out with you guys. if any one wants to room up let me… Continue

Added by brian kirchman on March 6, 2009 at 8:56pm — 2 Comments

Report and photos from my first bald scuba diving trip!

Hi everyone,



I just posted a bunch of photos on my page from my recent trip to the Cayman Islands and Florida. Please take a look. (There's also a recent one of me performing with my band, which I posted because it shows me wearing one of the Turkish scarves from my video.)



We dove on Little Cayman Island in the Caribbean for 9 days, then snorkeled with the manatees in Florida and toured the Everglades. I got some great underwater video (that's the camera I'm carrying in… Continue

Added by Mary on March 6, 2009 at 6:26pm — 5 Comments

Wig Suggestions

Hi all, I have a request. At risk of sounding stupid, I need suggestions on Human Hair Wigs. I currently wear a New Freedom Vacuum piece that needs some repairs. Since it is the only one I have, I have been searching the internet for places that have Human Hair wigs farely inexpensive. I prefer Human Hair but the dilema (sp) comes to what types of caps. I don't know one cap from another. They have lace fronts, etc. I wear mine all the time when out in public. I don't even know how to determine… Continue

Added by Mary Sarra on March 6, 2009 at 2:26pm — 2 Comments

The wig ponytail

I know I can't be the only one who misses ponytails. Normally, wigs and ponytails just look rediculous. But- here's my solution to the wig ponytail...…



Continue

Added by Rachel on March 5, 2009 at 6:53pm — 9 Comments

Two weeks or more in!!!!!!!

I have been fully AU now for just over a couple of weeks and I’ve become used to the new me. It really is great now that I’ve gone through that awful period when the hair is falling out.



I’ve had lots of support and kind comments from people on the alopecia websites I use and also from family and friends who know what has been going on. It has had its’ moments of humour though!!!!



Only last week as I was getting changed at the gym/sports hall I bumped into a friend who… Continue

Added by Ray on March 5, 2009 at 1:00pm — No Comments

NAAF Conferences

I just want to say something about the NAAF conferences. Yes they can be expesive but they are worth the cost. Plus it is a medical expense that can be written off your taxes. I read some one post that said read the brochure thatyou see what you get there is nothing there. which is completly false. I would think some one wanting to give support to women with alopecia would encourge other ways to meet people. The Conference is the most amazing experience of my life and im glad i get to go every… Continue

Added by Jennifer on March 4, 2009 at 5:26pm — 5 Comments

Natalies Story..

Hi, am Natalie i am new to this, never used anything like this before so not sure what it will be like. I am 14 years old, and i was diagnosed with Alopecia when i was 10, my first signs were; the usual bald patch the size of a 50pence piece on the back of my head. Then the patch started to get larger i was none the wiser and didn’t think anything of this i thought i had just pulled out by accident or something. But it did start to spread to the whole underside of my head, so i decided to… Continue

Added by Natalie. on March 4, 2009 at 3:05pm — 6 Comments

Just want to give you all a update...Went back to see the dermatologist. Located in Madison Wisconsin, supposedly the best we have in Wisconsin. 2 residents came in to see me before the doctor came i…

Just want to give you all a update...Went back to see the dermatologist. Located in Madison Wisconsin, supposedly the best we have in Wisconsin. 2 residents came in to see me before the doctor came in. The dermatologist was in and out in less then 5 mins. I told her that the 2 bald patches have gotten bigger and I have pain and itching, also the patches that she had injected 6 weeks ago now have sunk in and still no hair growth! She told me the reason that my scalp has sunk in was due to the… Continue

Added by Katie on March 4, 2009 at 12:22pm — No Comments

My hair is coming back

My name is John and I've had AA for almost 2 years now. I lost 75% of the hair on my head, all my eyebrows, facial hair, eyelashes and even my nose hair (I really didn't complain about that). I took the injections in the effected areas and applied the foam and creams my dermatologist had suggested but nothing worked...not even a little bit. I stopped doing anything about it for about 8 months assuming that nothing was going to work. After all my eyelashes fell out I decided to see another… Continue

Added by John N. on March 4, 2009 at 8:24am — 5 Comments

Sticks & Stones

Sticks and Stones may break our bones but You can never hurt us.
You know who you are and we saw what you did.
Mean people suck.

Jeffrey

Added by JeffreySF on March 4, 2009 at 2:51am — 3 Comments

new spot

well found tge start of a new spot at the end of my part. Well this I will contribute to the amount of stress I have had for the pass few weeks. First is school work and test have just been adding up (thank god spring break is only a few days away), then everything between finding housing for next year (because i did get accepted to pitt main), and figuring out how I am going to pay for it. Well one good bit of information may be that I should be able to return to my internship at cutco… Continue

Added by Danielle on March 4, 2009 at 12:00am — 1 Comment

Looking for support

I really hope to find people that I can talk to about alopecia. I am newly diagnosed and I dont know what to expect other than hair loss. Why does it happen? What are the chances of losing all of my hair? If there is anyone out there that is willing to take some time to help me out, I would really appreciate it. I am alone and dont really have anyone that can relate to me.

Thank you so much!

Julie

Added by julie on March 3, 2009 at 11:59pm — 8 Comments

New blogger :)

Hey everyone!

Im new to this whole blogging thing, but thought i would give it a go! I have just discovered Alopecia world, its brilliant! Ive never known anyone else who suffers from alopecia so its great to see how many people are like me! I first got alopecia at the age of 11, it started as a small circular patch at the nape of my neck the summer before i started high school. This stress of high school led to the patch getting bigger until it was about 4 fingerlengths wide. I tried a… Continue

Added by Becca Dey on March 3, 2009 at 4:57pm — 3 Comments

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