It's so funny how God works - everything has its own time and only He knows when the time is right. God comes along and says "OK, you're ready to receive this change and grow." I don't always want these changes. And sometimes, I have been praying for them for years and wondered why they were taking so long to happen. My journey from AA to AU started at four. Bald spots and thinning were a part of my life pretty much every spring of my childhood. I had no idea though, that ALL the hair on my… Continue
Added by Kelly on April 26, 2008 at 5:00pm —
My daughter was just diagnosed with Alopecia and I can see it is going to be devastating. I am supportive since I have it myself, but I understand how a female might feel a lot different. If anyone would like to be a pen pal for encouragement I would be so appreciative!
Added by John on April 25, 2008 at 3:11pm —
For a lot of people, the condition Alopecia Areata Multilocularis (AA) means nothing.
Two years ago Lisa Goodman was amongst those who hadn’t heard the term before but in February 2006 she was diagnosed with the condition, which affects around 1 per cent of Australians.
AA is a non-contagious autoimmune disorder in which the body attacks its own hair follicles and suppresses or stops hair growth.
At first Lisa started losing hair at the back of her head and had a bald spot the… Continue
Added by Goody on April 21, 2008 at 11:41pm —
I'm the type of alopecian that likes to wear wigs in the winter and put them away in the summer. Now that the weather is getting nicer, the wigs are getting worn less often (though many of my girlfriends have wanted to borrow some - the joy of different hairstyles).
It seems like every year I struggle with the "reentry" back into bald beauty. Being a bald woman, many people assume that I am going through cancer treatment - I have a standard line about alopecia when this happens. Most… Continue
Added by Ellen on April 20, 2008 at 11:04pm —
If there's any good thing living with alopecia can do for you, it's make you more sensitive and responsive to the support needs of other human beings. Like most, if not all, of life's challenges, coping with alopecia calls attention to the very human need for acceptance, affirmation, and other forms vital emotional assistance. It's yet another reminder that it is not good for humans to be alone, isolated and insulated from the embrace and encouragement of those around… Continue
Added by rj, Co-founder on April 17, 2008 at 11:00am —
I was about 9 or 10( gr.5)when my hair started falling out. I am now 18. It was and still is very hard dealing with it. I have an under active thyroid so im pretty sure my Alopecia is caused by that because I've read places that thyroid problems can be the cause of Alopecia.In elementary school I got made fun of a lot. My mom even talked to my teacher and explained my condition so the teacher could talk the the class about it one day when I was not there, but they still made fun of me even… Continue
Added by Sarah on April 17, 2008 at 2:39am —
I keep seeing all of these adds to cure alopecia or baldness and it got me to thinking about if there was a legit cure and I could have all of my air back if I would be able to do it.I always had to tell myself that there was nothing wrong with being bald and being bald just adds some new flavours to the world but if a cure came and I took it would it be saying that I do think there is something wrong with being bald and if I took it.This left me feeling very conflicted.I started thinking about… Continue
Added by Sarah McIntosh on April 16, 2008 at 8:52pm —
I just clicked on the "members section" and could barely believe that there are over 700 members on this site!!!! Who knew there were so many people with some form of Alopecia!? I know the stats say about 2% of the population is afflicted by it, but I never knew anyone else with it while I was growing up. I wish the internet was around when I was a kid, I sure could have used this type of support when I first was diagnosed. It feels so good to be with such good company :-D
Added by Orbit on April 16, 2008 at 6:13pm —
When I see a beautiful woman that has alopecia, that keeps me going. I am newly diagnosed with AU and at this point, I just don't want it to be noticable, I want to cover it up. I'm sure someday I will accept it..and I don't look bad bald. I have seen a bunch of women here that are beautiful and it gives me hope that maybe I can look like me again. In many of your pics, I can't even tell that you have alopecia! Not that I'm saying people should hide it...but for me, right now, I need to. So if… Continue
Added by Lee on April 16, 2008 at 2:46am —
I need a laugh today and maybe you do too. Some days I wish I didn’t have the bald thing going on and some days I don’t mind it at all. How ever I feel about it I think that a person should be able to see humor in any situation. When Brittney Spears shaved her head a magazine was on our break room table with her on the front. I picked it up to have a look at the story and someone that works in our building came in the break room and said “Well Donna I think you should shave your head bald just… Continue
Added by Donna Evans on April 15, 2008 at 9:45pm —
To me focusing our energies on getting to a place of self-acceptance is where the real cure is. I really don't want my self-confidence to be attached to my hair, my weight, my skin color... I don't want to go through my life with the false idea that only when all circumstances are totally lined up in my favor can I feel confident. Alopecia is probably only one of the curve balls that will be thrown at me in my lifetime.
We now have the awesome opportunity to really find… Continue
Added by Cheryl, Co-founder on April 15, 2008 at 12:37pm —
I have had some questions concerning my family history with Alopecia. I have an aunt who has had hair loss since her youth. She is in her 70's now and years ago she told me that they never heard of alopecia and she never thought to go see a dermatologist back then. She has been wearing wigs for many years and I just assume her hair loss is alopecia related although she never pursued a diagnosis and just dealt with it all these years. I have a cousin who has alopecia areata. She was diagnosed… Continue
Added by Dina on April 14, 2008 at 4:20pm —
As you can read in my first posting it was very hard for me to put on the wig and be brave enough to go in public for the first time. It was so traumatic and I doubt my mind has fully recovered in the almost 2 years that have past. I really would like a new hair style but I can’t bring myself to make the change because I don’t want to draw attention to myself again. My second wig was a much better fit and only cut slightly different than my first and just a shade lighter so people didn’t really… Continue
Added by Donna Evans on April 13, 2008 at 11:36pm —
Recently, within the forums here on Alopecia World, a discussion has been raised in regard to the issue of creating another word besides "bald" to describe us. It has turned out to be a most vigorous discussion, with many opinions being voiced both in favor of and against it. Apparently, the word "bald" really hits a nerve with us alopecians, and I am no exception. In one of the replies to this discussion, it was suggested that we come up with "a better word for which we can describe ourselves… Continue
Added by kastababy on April 13, 2008 at 10:21pm —
When I was a kid my mom would wash my hair in the kitchen sink. Once when I was 6 to 8 years old (I can’t remember the exact age.) my mom found a little nickel sized bald spot on my head. Thinking it was odd she took me to the doctor. They didn’t know much but they did call it Alopecia Areata. They said most kids grow out of it but a few grow up and lose all the hair they have…and oh and by the way… no known cause and no known cure. SUPER! The word BALD was introduced to me as a child and it… Continue
Added by Donna Evans on April 11, 2008 at 12:30pm —
Hello to everyone on this site. I am a single mom to the best little girl, Peyhton. She is about to turn 7 years old next month! I am starting his page for my beautiful little girl!
She was diagnosed about 3 years ago with Alopecia. It began when the fighting with her father and his then new gf(now wife)started and they began putting her in the middle of our grown up problems. It comes and goes in waves. It is just in spots on her head, but at times they have been small&few,… Continue
Added by Peyhton's mama on April 10, 2008 at 7:00pm —
After reading what some of ya'll had said about your experinces with the first time you shaved your head, I decided to do it. On this past Friday after work I had an appoinment with one of my wig stylists to put my hair up in an up-do for a party I was going to. I took my best friend Brittany who was in town from Ohio with me. We were sitting around laughing & enjoying a martini while Cheryl & Angela were styling my wig. I looked over and say the razor sitting on Cheryl's counter. She… Continue
Added by Tiffany on April 8, 2008 at 7:20pm —
I have had many people ask how my tattoo procedure went so I just wanted to post a quick blog to let everyone know how it went! My tattoo experience was great!!!! Jeffery Segal, who did the tattoos was absolutely wonderful! He is so talented! There was very little pain involved because he uses Novocain to numb the area. I had both my eyebrows and lash line done. With the eyebrows there was no swelling or pain at all and the eyes were not swollen just a little puffy the… Continue
Added by Nicole on April 8, 2008 at 9:30am —
After a long time I´m back :). Back too work. I have been home for a long time now, since nov 2007, for my Alopeci and for me health. After I had me diagnos about Alopeci, I did go down, my self-confidence where in the bottom.
After I had been talking too otheras who had Alopeci, I understand that the disease were something I shuld líve with the rest of me life. Now I have a lot of friends who has the same as I have and thats feels good.
All the children and there parents is so… Continue
Added by Karina on April 7, 2008 at 6:53am —
So, I’ve been thinking for some time. I’ve had AU for just about 5 years now and I’m a sophomore in college. For now, I wear a bandana practically everywhere I go. When I’m at home or in my apartment (at school), I will go around bald because it is more comfortable and I know my family/roommates don’t mind. For a while, when people would come over, the first thing I would think would be to cover up. I’ve slowly come out of that, and will let them see me without anything covering my head. (But… Continue
Added by Kristen Ridenhour on April 6, 2008 at 4:19pm —