Featured Blog Posts – July 2009 Archive (63)

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Now according to Dr. Oz.....I have a brain tumor?????????

I know today's Oprah show was a rerun, God knows I had several people tell me months ago the revelation that my hair loss was caused by a brain tumor!!!!!!! I finally caught the episode where the infamous Dr. Oz scared the livin' crap outta this poor lady, telling her that her hairloss (oh, by the way, I'd give the world to have what she had) that she could possibly have a brain tumor causing it...........NOW....anything is possible in this crazy world, but he highly recommended her having a… Continue

Added by brenda kay on July 21, 2009 at 11:08am — 16 Comments

My First Anniversary with Alopecia & My First Blog...Fast Forward Second Anniversary

Hello Friends,



It has been a wonderful year indeed. Unexpected and unpredictable.



It was an unusually warm and clear summer night in San Francisco. A night full of laughter and celebration with friends. It was July 4th 2007.



After the smoke and embers cleared I awoke and went off to work. But there was a suprise waiting for me. Something different. A small circle on my head appeared before me. I thought what is this? Had an ember of my Independence fallen upon… Continue

Added by JeffreySF on July 20, 2009 at 8:00pm — 14 Comments

coeliac, underactive thyroid and alopecia

hi i am new to this blog but i was wondering if anyone out there has alopecia areata, coeliac disease and underactive thyroid disease too as well as psorisis of the scalp. It burns and itches, two patches one bigger than the other, tried 2 lots of scalp injections they did not work. i have had this for about 18 months now, is there any hope for me to be normal again.

Added by jean wolvey on July 20, 2009 at 4:57pm — 5 Comments

My first visit to the dermatologist

I went to the dermatologist today and here's what happened...



He asked where and when my hair loss patches occurred



He asked if there was any family history of:-

- alopecia - my mum had an issue for a short period of time when she was 16 (50+ years ago) but full regrowth occurred after it was treated with some cream and has never reoccurred

- thyroid problems - none that I'm aware of and I'm sure that I was tested for this by my GP and there was no… Continue

Added by Robert on July 20, 2009 at 8:30am — 9 Comments

Just downright lonely

Many things have changed in my life over the last month been trying to take it all in stride. Picked up the synthetic wig I ordered yesterday & was very disappointed. When I put it on, it looks totally fake...want nothing to do with it, just want my hair back. Can talk to my husband, close friends and family yet they will never completely understand although they try...



On top of all the above, I'm really ready to make some positive changes in my life. Chill out on drinking, eat… Continue

Added by Dana on July 17, 2009 at 1:08am — 5 Comments

Oily head??

Can anyone help , the last couple of weeks my head has been really oily under my wig , is strange!
Kirstie

Added by Kirstie on July 16, 2009 at 7:13pm — 2 Comments

Everyone is beautiful today, absolutely stunning!

Lately everywhere I go someone has given me a compliment on how beautiful I look bald. It’s a nice unexpected change. I believe that it is because I made a choice to walk out the door with a smile on my face every day. I haven’t been asked if I had cancer for some time now and I definitely believe that it is because I wear my bald head and I don’t let it wear me. If you catch my drift? I own it! And today when I went out to lunch I had 2 women come up to me separately and tell me that I was… Continue

Added by Camille Reinecker on July 16, 2009 at 6:00pm — 1 Comment

Stupid Hats

Am I the only one who gets compliments on wearing hats all the time. Whenever I take my daughter to school, or go somewhere before I do my workout and shower. I just throw on a hat. I looks like ugly strands of hair underneath a hat. I look in the mirror and want to BREAK it. I hate hate hate wearing hats. I have to wear them at the river, camping, when its windy. Then...... I gets compliments. Other mommys at school, or whatever. They say, "you always look so cute with your hats all the time.… Continue

Added by Jennifer on July 15, 2009 at 12:08pm — 13 Comments

Bye Bye, Eyebrows

Within the past 4 days I have noticed that my eyebrows are quickly disappearing from my face. This is hitting me a little bit harder than I thought. You see, when I finally shaved my head this past April and got a beautiful new wig, I felt like a brand new person! After finally reaching the stage of acceptance those few months ago, I have been the happiest and healthiest I have felt in ages!



I believe that alopecia is the most empowering thing that has ever happened to me. I had a… Continue

Added by Natalie on July 15, 2009 at 10:46am — 3 Comments

Sorry it's so long!

Hi Everyone!



I haven't been on here in soooo long!! I have been really busy....



Updates:



Well, my hair (my 2 spots) have completely grown in, and I stopped using the lotions/creams months ago. I haven't seen the derm in a looong time, because I don't think I need to anymore. No more new spots have occured. I am tempted to get excited that my alopecia areata was a one-time stressed induced event, but I am not going that route yet. Every once in awhile I get… Continue

Added by Amy on July 15, 2009 at 9:04am — 4 Comments

Hair Dye?

I really want to dye my hair but I don't know if it will make my alopecia worse and I don't want to try it without some input. What do you think.

Added by Rayne on July 15, 2009 at 1:52am — 2 Comments

HELP

Ok... so I thought I could handle this.... cant handle this....... Iwant to be free to walk around just as I am BALD... why is it such a big deal... and why do i do things to my self to make it worse... I am eating like a cow.... locked away isolation is killing me.......... I need HOPE. I need FAITH I NEED SUPPORT... any newyorkers out there? I am in Stanen Island.......

Added by jayne c on July 14, 2009 at 10:38pm — 2 Comments

eyelashes

totally gutted, i have just noticed 2nite that on 1 eye my eyelashes r thinnin out in the middle, dont know wat to do, i have found it hard not havin any eyebrows, my hair on my head is still growin but other parts r still fallen out, how confusing is this alopecia, so pissed off now, thot i was gonna keep them but it was to gd to be true,

goin to collect my wigs 2moro so hopefully the fringe s long enough to hide, i hate this hairloss its bloody awful to deal with, im really tired and… Continue

Added by lynne on July 14, 2009 at 5:50pm — 10 Comments

Getting sympathetic looks is one thing...

but having a card posted through your door is another. A mother of a boy I used to go to school with posted a card through my door this morning saying the family was thinking and praying for me and that God would heal me. I'm assuming she has seen me out and about in a headscarve but still most people know I have alopecia. I don't know what to say as it looks like she thinks I have cancer or something but it would be rude if I tried to correct her and she'd actually known I had alopecia. I'm… Continue

Added by Lyndsey Pitchford on July 14, 2009 at 4:07pm — 6 Comments

If I were my brows and lashes...where would I be??

They're gone, except for the odd random lash or brow. I miss the brows especially. Since January of this year I have pretty much lost every hair on my body. Everything below the waist, I say so long and farewell...but for everything above the neck...ouch...this hurts. I have two great wigs and my GI Jane look, but wondering if anyone has the name of any brands of eyeliner or brow pencils that don't erase when you waterski, jog etc. Life keeps going...and is going well, hair or no hair. More… Continue

Added by Jennifer Krahn on July 13, 2009 at 7:23pm — 7 Comments

I don't think I Can

Now that my deadline is fast approaching I'm nervous and don't think I can go out without my wig. If I can't go out on Sunday I am going to feel like a big failure. Awwww what do I do.

Added by Roslyn on July 13, 2009 at 7:01pm — 11 Comments

Biopsy

Hi Everyone, I saw my new Dermatologist yesterday, I really liked her. She ordered a boat load of blood test, thyroid, ANA (autoimmune) CBC, the works, depending on the blood test results she may do a scalp biopsy.

Has anyone had one? If so what can I expect?

She also wrote out a RX for Betamethasone Valerate (the spell alert came on for that one, lol) lotion, twice a day.

If you have used this, how did it do for you?

I am getting to the point I'm really tired of trying… Continue

Added by Pamela Rosse on July 11, 2009 at 6:23pm — 5 Comments

My second sighting of someone like me

I've been busy with getting my house in order for a party I'm throwing on the 18th of this month..



Last night, I was in a super Wal-mart taking back an unbella stand and as I was looking around.. I passed by this young boy who just happened to be bald and no eyelashes, eyebrows and he was just watching the tv screen that was showing the current cartoon dvd release..



I wasn't sure to approach him or not.. the don't talk to strangers thing.. maybe hes… Continue

Added by Tnabugg on July 11, 2009 at 3:14pm — 7 Comments

kinda confused

I went to the dermalologist yesterday to get more cortisone shots and he told me that my scalp was too thin and he could not do any more shots until my head heals. He said it would take it about 2 years to heal. He took a complete blood count and everything was good. Does anyone use clobetosol propionate gel, 0.05%? Will that also make my scalp thin and I dont know if I should continue to use it if my scalp is already too thin! I need help!

Added by Misty Boggs on July 10, 2009 at 1:25pm — 2 Comments

I finally did it!

On July 7th I shaved my head. I waited until my husband and son left the house to go fishing and I did it. I dont know what made me finally decide to do it. I thought it was going to be very emotional for me but it wasnt. I didnt shed one tear. I didnt even feel sad. I actually felt relief and freedom. I was glad what was left was gone. I looked at my bald self and smiled. I bundled up my hair and told it "I loved you." I placed it under the bathroom sink. I just could not throw it away, I… Continue

Added by Pat on July 8, 2009 at 11:16pm — 6 Comments

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