Featured Blog Posts – August 2009 Archive (63)

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Just some random thoughts

I am a resent member to Alopecia World. Since joining I have visited the site everyday, read blogs, and joined some groups. I am in total amazement with this entire "world". I have suffered with alopecia for 21 years. It is funny as I sit in in front of the computer trying to get my thoughts out, I am overwhelmed with all that I have wanted to express about my life with alopecia for all of those 21 years. I don't want to bore anyone, but I guess if you don't want to read you don't have to.… Continue

Added by Kris Fenchel on August 14, 2009 at 10:36am — 5 Comments

What a busy week!

I've just spent the week travelling and meeting with cancer and alopecia patients in London. Yesterday I worked at Kings College hospital, in Lodon and saw 6 lovely ladies, who are undergoing treatment for cancer, who I helped with finding great wigs for them. I love hosting my wig clinics, you meet the most incredible and inspirational people.



On Wednesday I met a beautiful young lady called Kym from London who is eight and has alopecia. Kym was extremely brave and took her scarf… Continue

Added by Michelle Chapman on August 14, 2009 at 6:26am — No Comments

Administrative Law Judge - Cranial Prosthesis Coverage Appeals Presentation, Monday, August 10, 2009, Update

Hello Everyone, well Monday has come & gone & along with it my appeals presentation before the Administrative Law Judge.

A brief explanation,I am retired from the County of Riverside, after fighting for a Administrative Law Judge awarded me my medicare benefits. With the County I have insurance, I signed my medicare rights/coverage over to my current insurance, Secure Horizons.

When I lost all my hair in January my Dermatologist wrote out a request for a cranial prosthesis,… Continue

Added by Pamela Rosse on August 13, 2009 at 9:00pm — 10 Comments

Reasons for Alopecia

Hello everyone,

I have had alopecia universalis for only six months.. I shaved my head five months ago. I have no hair anywhere on my body... Doctors around here are somewhat clueless.. they have never seen anything like this. They say it is caused by stress. Is this what the rest of you are told too? Yes, I have stress in my life, but who doesn't??? I don't feel that my stress is that high to cause such a dramatic outcome. From what I understand, there is really no cause or cure for this.… Continue

Added by Linda on August 13, 2009 at 7:17am — 6 Comments

Wigged out on a sailing trip...

Hello, lovely ladies!



I just spent the past 10 days sailing the British Virgin Islands with my guy. What a wonderful time. We sailed in heavy winds, snorkeled around beautiful reefs, and visited little beach side bars – and I did it ALL in my wigs!



I brought two basic synthetic wigs, the kind you can buy online (Noriko, Aspen, etc.) They are not custom made (but I usually have them thinned out a little and perhaps have the bangs cut.) One was pretty short and razor cut,… Continue

Added by Marie on August 12, 2009 at 8:17pm — 24 Comments

Joseph Paris Opinions

Hello to all the beautiful people on alopeciaworld <3



I received a call from Joseph Paris about his products yesterday and I am pretty much convinced to buy a wig from him.

Currently, I'm buying a $2000 (Canadian) or so human hair, lace front prosthetic. They last about a year (often requiring a $500 repair) because I tend to be a little harsh on my hair (I guess lol). I'm pretty happy with it, but I hate the tape-- it tends to pull my skin so hard that it comes off, and I… Continue

Added by Laura Lee on August 12, 2009 at 11:30am — 1 Comment

Getting ready for the school year

School starts in 2 weeks for my 10 year old. His journey with aa began last summer. At the begining of the school year a "health" assembly was held where the nurse explained to all the kids what AA is and Casey was given permission to wear a hat. THAT WAS THE BEST DECISION EVER!!! The school and kids have been fantastic (except for just a couple of situations). Casey did wear a hat all year and it wasn't until the beginning of summer that he moved to AT (no hair, eye lashes or eye brows). With… Continue

Added by Margie on August 12, 2009 at 2:19am — 4 Comments

Hairs growing back

in 1999 i guess i abused my body somwhat with over eating weight gain poweders creatine dha hormone pills ect,, all in attempt to become huge power lifter/bodybuilder, didnt really work instead one day in 1999 i bacame violently ill waking up one morning at 3.00am with fainting spell violent diarhea heart palipitations cold sweats and numbness in finger tips after this episode i could never eat the same again i went from 212 lbs to about 160 lbs in about 1 month couldnt eat anything with out… Continue

Added by George Ortiz on August 11, 2009 at 8:09pm — 5 Comments

research???

So, I was searching the web today and I couldnt find any new developments in alopecia research. Maybe i just suck really bad at searching the web but it upset me. there are no new findings and it makes me feel like nobody cares about it. if people do get grants to research on it shouldnt there be updates or something online. i would think it would be news worthy.



so this is half venting and the other half is a question...



has anyone heard anything new… Continue

Added by Camille Reinecker on August 11, 2009 at 7:19pm — 8 Comments

Trouble with other peoples acceptance

I have never really known anyone else with alopecia and i guess its really hard.
Whats even harder though is dates, most people said they would go on a date with me if one thing, i had hair.
Im not comfortable with wearing wigs and i want people to like me for me and not just my hair. How can i get people to accept me for ME?



And no...even though i have had this for 13 years i still wish i had hair...guess i cant accept it

Added by Ashley on August 11, 2009 at 5:00pm — 5 Comments

what do you all think

I would like some opinions please...I just recently got AA in May and I went from long thick hair to lots of huge bald spots....I attached a pic..(and there are many more spots that arent showing)...do you all think this is severe AA and do you think most of may fall out?...also I'm tired of trying to cover the spots all the time, at what point would you all get a wig or cut it off....what is your all… Continue

Added by Casee on August 11, 2009 at 10:08am — 6 Comments

To an alopecia artist

Hi my name is Tasha im 24 year old mother of two. my eldest daughter Sierra5 have alopecia areata. I am looking to create a newletter to be sent some with all the children in her school. instead of putting a picture of an actual person with alopecia or a picture of her, I thought it would be nice to have an animated drawing of some children playing happily. I think it will catch more eyes and interest to create better awareness. Unfortanatly i stuggle with stick figures. Drawing doesnt come… Continue

Added by Tasha Dingler on August 10, 2009 at 10:40am — 3 Comments

stepping out of my comfort zone

so i joined a gym. i need to get healthy and fit as well as focus on myself more. so i thought i would join a gym, something i never ever thought i would do. in fact i use to fear it.

i was scared when i joined. i looked at a womans only one first, it was beautiful!!!

but expensive and no one i knew goes their, nothing would push me to go.

so i joined the one all my friends goto, way cheaper and got 5 personal training sessions to help me on my way.

i went and got a cap, a… Continue

Added by Alison on August 8, 2009 at 3:27pm — 9 Comments

going swimming?

Hi all,



I've never posted a blog on here before, but I've become increasingly desperate for contact with fellow alopecians (I so hate that word), so I'm going to try to get on here more often. (PS. You all are beautiful -- every last one of you! Just scanning the pictures gives me so much more confidence in myself.)



So my question is this: what do those of you with some, but not all, of your hair do when you go to the pool? We're taking our kids to the pool next week and I… Continue

Added by Carrie on August 7, 2009 at 4:38pm — 5 Comments

A Poem: Fuzzy Wuzzy was a Bear.

Fuzzy Wuzzy was a bear, and Fuzzy Wuzzy liked his hair.

But then one day he tripped and fell, into a pool of woman's Nair.

Now Fuzzy Wuzzy -- once so fair, was Fuzzy Wuzzy who had no hair.



So Fuzzy Wuzzy went on a tear, or sat around in his underwear.

Either way he didn't dare, go out in public without his hair.



So Fuzzy Wuzzy was a bear and Fuzzy Wuzzy had no hair.

And try as might he could not care, about anything other than his hair.

So everyday… Continue

Added by John Killion on August 6, 2009 at 10:48am — 12 Comments

Bad day turned to bad couple weeks

After having been bald for more than 6 years you would think that I would finally have accepted my hair loss but apparently I haven't (even though I thought I had). As some of you guys know I recently graduated high school and in a few weeks I will be starting college. All of these milestones have released a whole rush of bad feelings and thoughts towards my alopecia that I had thought were almost completely gone, which has really freaked me out. I guess it started on the day of my college… Continue

Added by Dielle on August 6, 2009 at 1:30am — 4 Comments

It's hard to hold it together sometimes

A few weeks ago I went to a neighborhood Bunco. I was excited. It would be nice to hang out with everyone all in one place since we were all scattered during the summer. I tried to fix my hair as best as I could. I've come to peace with wearing barrettes, even though at the age of 37, I wish I didn't have to. I'm not trying to be younger than my age....but lately I've been having less confidence in looking the way I do and how my peers view it. Only a few know. OK, none really. If I go without… Continue

Added by Georgie on August 5, 2009 at 3:34pm — 7 Comments

Early morning encouragement!

I really like working in the hotel industry, because there's never a dull moment on my job -- and sometimes I get inspired and encouragement from the most unlikely sources.



For example, my hotel houses layover crews from Delta Airlines. A lot of the pilots and flight attendants come in on the same flights pretty regularly, so the opportunity is there to get to know them. And as always, the opportunity is always there to educate them about alopecia.



The past three mornings,… Continue

Added by kastababy on August 4, 2009 at 9:35am — 3 Comments

Annoyed at my head right now

So I am heading to a music festival in BC this weekend, which is very exciting! It's a very open and accepting environment, people wear crazy costumes, go naked or whatever...



I had mentioned long ago that I would go bald the whole weekend because it would be easier and people would probably not blink an eye at a bald chick there. My friends are not going to let me take my wig (except my bright pink one!)



Which is all good and well, except that I have a lot of regrowth on… Continue

Added by Karina Louise on August 3, 2009 at 11:50pm — 2 Comments

Need Help With Wig Alternatives, Please :)

So I was diagnosed with Alopecia Aerata this month. My hair is falling out pretty fast. Every time I shower, I get 1/2 a weeks hair in the drain and on the comb. It's falling out in plugs and clumps. I'm a nurse and I wear my hair in a short pony all the time. I'm having a hard time hiding the bald spots. I'm low maintenance and I've never "dressed" my head before, but now I need some quick solutions! Can you please lead the way....thank you!

p.s. I love looking at all your pictures! It… Continue

Added by Karen on August 3, 2009 at 11:24pm — 8 Comments

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