September 2011 Blog Posts (77)

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Back to square one :/

I just need a bit of a vent!



I thought my hair was growing so well, not total regrowth, but at a fairly unnoticeable areate stage. But just lately it seems to be falling out everywhere!



I've booked to see a specialist at the hospital, but thats not until December!



I guess I more worried that now I have to tell people all over again, as Ive just moved back to uni, new people, new circumstances.



I don't want to be trapped in the 'hiding it' phase again,… Continue

Added by Lizzie on September 30, 2011 at 12:00pm — 4 Comments

Lost an eyebrow, but still gaining hair and painful lymph nodes

I was sitting at my desk on wednesday when I looked down and saw what I thought were a bunch of eyelashes on my desk... my eyelashes shed a lot, but they have never been completely missing. I grabbed my mirror out of my purse and saw that I lost half of my left eyebrow, on my work desk. I have NEVER had it happen that fast before. My hair on my head fell out in spots in months, not all at one time. But apparently I rubbed my eyebrow the wrong way, because it was right in front of me on my desk!… Continue

Added by Tamara on September 30, 2011 at 10:30am — 9 Comments

Optimism counts :)

Back in May, I had an incredible experience. I was selected as a representative of my school to apply to the Minerva Learn to Lead conference for 24 girls from around BC. I applied, and got it!

At the conference, we engaged in numerous leadership activities, but on the first night we were made to say one thing that had shaped us in the past ten years. We went around my table, and I honestly completely forgot about Alopecia. I came up with some other random thing I'd done, and didn't even… Continue

Added by Heather on September 30, 2011 at 1:30am — 1 Comment

Paranoid much?

I went to church today for choir rehearsal, and once again I left Hannah the wig at home, I wore a beautiful "I love Jesus" scarf instead. One of the members who has no idea about my Alopecia, was staring at my head. I nearly had a heart attack, because I thought he was able to notice my Alopecia, because my scarf was practically hugging my scalp, it was so tight. He then said to me, you have a pretty scarf, and I jumped back as he said it, because he reached over to touch it. I don't know why,… Continue

Added by Elizabeth on September 28, 2011 at 11:36pm — 9 Comments

Blogging?!

Bahaha I'm new at this.... So i'll just start being awesome. As per usual.



first off, I had an awesome day, and I got to see my bestie, whose an upperclassman. Fail. Yee, I'm a Freshman. So much fun, being in an enviourment where people ask you "OMGEE DO YEW HAZ TEH CANCURZ?" My response is usually no, but when I'm feeling extra-sassy, I usually respond with "no, a bunch of freaking unicorns took my hair to purify the world. Derp." And the preppy idiots just bounce off like the… Continue

Added by YuuriBoo on September 28, 2011 at 5:27pm — No Comments

Mother Nature

As a young girl, I was robbed of a good childhood, as a young adult I was robbed of being a young adult having to fend for myself with bills, rent,job etc,then mother nature gave me this wonderful man who is now my husband, whom I adore, 3 beautiful children.

For the past few years Mother nature took my hair, leaving me going to crisis centers, came down with PTSD, social anxiety disorder,depression and feeling all alone.

Having been through all this i've learned to accept who I am,… Continue

Added by Lisa-Lynn Marini on September 28, 2011 at 7:22am — 2 Comments

Dear Diary - Day 1

Wednesday 28 September 2011

Dear Diary,



It has been great since i have been getting all the support i need form Mrs Careswell and Miss Ballentine. Im glad that some of my friends are learning to accept me for who i am.



3 Reasons why i like being bald.



1. I can take my wig off when it gets hot

2. I can have any type of hair i want

3. It has changed me.



Im scared that i will never get a boyfriend because of my wig. I think that no one… Continue

Added by Lucky1000 on September 28, 2011 at 12:52am — 5 Comments

Face control

So I almost got denied entrance to a club in Russia the other day because of a thing called face control. I've got 3 girls with me, diamonds on my wrist, dressed to the T with a US passport. The bouncer takes one look at me and says sorry buddy I can't let you in because of FACE CONTROL. After he realized the girls weren't coming in without me, and a harsh look from my girlfriend to some other people sitting there, probably the admins. They waved me into the club. What a putz, the bouncer was.… Continue

Added by Alex on September 27, 2011 at 5:30pm — 5 Comments

Stress?

hi im new on this site,i came across it by accident while googling alopicia. iv developed alopicia areata while i was halfway through my 3rd pregnancy,the 2 patches fully grew back after a year but now im geting more patches appearing. i have had a pretty stressfull life over the last year or so and im wondering if the patches have came from the stress or if they just hapened to arrive at the same time.

has anyone else had alopicia that they think has arrived from stress directly? any… Continue

Added by laura on September 27, 2011 at 11:00am — 3 Comments

New to this!

Hello and WOW! I discovered this site purely by accident and have spent some time reading through so many brave peoples stories. My name is Leon , from Cape Town ,South Africa and am the only person (up and until now) who I knew had this curse/blessing.Well obviously I know others have it but have never heard or read their stories.So thank you for this place to share. I refer to it as both blessing and curse because while it surely did affect me as a child ( since 13) and I had to fight my way… Continue

Added by LeonJ on September 27, 2011 at 8:30am — 2 Comments

Losing my eyebrows

I lost most of my hair end of February beginning of March of this year, 2011. In the past month I have begun to lose my eyebrows. I am losing them at break-neck speed. Its incredible. When I go out,when I have a gig (I'm a musician) I have to beef them up, pencil/draw in.



I'm finding it incredible how fast they're going. Anyone out there have any info on if they grow back? I didn't think I'd lose them because they stayed intact. All part of the disease. I've learned to pencil in well… Continue

Added by Lili Añel (aka Eulalia) on September 26, 2011 at 2:00pm — 2 Comments

Regrowth and wigs

Anyone out there wear a freedom wig or vacuum piece that still has hair to shave? I would love to wear something that I don't have to glue/tape but am worried that regrowth will compromise the vacuum.

Added by Beemarie on September 26, 2011 at 11:00am — 2 Comments

I'm not alone

A few days ago, I confided in the members of my fellow worship team at church about my Alopecia, and they could not have been more supportive. What really touched my heart so deeply was how God managed to take care of the things that concerned me the most, people's reactions. The worship leader of the church instructed the members of the choir that if anyone in the church asks what is wrong with me, they should respond, "God is healing her", and that nothing else should be mentioned. Everyone… Continue

Added by Elizabeth on September 24, 2011 at 11:30pm — No Comments

A thank you to Paula Young

Thanks for finally making a wig with some nice length to it in a PETITE cap size. The Chantel is SO my new favorite hair!! Frames my face well, I think.
Chantel Wig

Added by Laura Adams on September 24, 2011 at 1:09am — No Comments

Trusting in God

A few days ago, as I was combing my hair, tears started to fill my eyes, because I saw the strands of hair again, getting tangled up in my comb, and also littering my bedroom floor. It's hard not to get angry at even my hair strands for falling out. My hair piece gets the best treatment, I lovingly run my fingers through it's strands, while my God given hair, get's tossed around, without any attention. I have realized that I've let Alopecia make me a bitter woman. A friend of mine, while I was… Continue

Added by Elizabeth on September 23, 2011 at 10:30pm — 8 Comments

Finally shaved my head

It has been several years since I posted. I check in once a month because it reminds me that I am not alone. I have worn wigs or weaves full time for the last two to three years. I finally shaved my head today and that is why I am posting. It feels freeing but I am not ready to let the world see me like this and don't know that I ever will. Even though I have come along way I am not there yet. I must say that I am grateful that there are so many options for women with this condition. I have… Continue

Added by Diane Holland on September 23, 2011 at 10:00pm — 2 Comments

Your opinion of support groups

Do you think support groups are helpful and what do you expect of them?

Added by PC on September 23, 2011 at 1:00am — 2 Comments

Alopecia and surgery

Hi, I’m Diane. Well, I’m slowly coming to terms with my Alopecia. I have Alopecia Areata with 3 bald spots. I’ve decided that I will probably never be able to accept going bald and I will never be one of you brave woman that go without a wig. I could never see myself as pretty or beautiful without my hair! My best friends and I used to joke all the time about me being vain and about how my hair always had to look perfect (even in a rainstorm or water park LOL). Now I would be happy to have a… Continue

Added by FANCY1024 on September 22, 2011 at 10:30pm — 6 Comments

Thank you, Alopecia World!

Just when I think I'm getting somewhere - that I'm ok with this losing hair malarky, I'm over being upset, life goes on, I've accepted it now, etc etc - it seems another bout of anguish comes from no where!

I hadn't cried for ages - even when I realised just recently that during my blissful mini break from obsessive daily checking (while I'd happily convinced myself that having just one bald patch meant I must only have a mild case of alopecia, and therefore it would all be over and… Continue

Added by AJ on September 22, 2011 at 7:30pm — 6 Comments

The morale is not any more there

Today I am bad, both months, a new disease adds in the others, since June it is a sarcoidose and the syndrome of laufgren I have not realized my alopecia, then the other disease yet moreover, I cannot it any more, my morale is in zero, I find help(assistant) or nobody who is in the same situation as me how make you? To have the air(sight) so happy in spite of the disease:-(

Added by coccinelle on September 22, 2011 at 8:16am — No Comments

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