Featured Blog Posts – October 2008 Archive (85)

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UGGGHHHHH!! Just having an emotional day and needing to vent.

If I had a dollar for each time someone has told me that at least my son doesn't have cancer or some life-threating situation going on so "what's the big deal". They say, "gee he's a boy and the bald look is in so he'll be fine". I'm sorry but my 9 year old son is emotionally hurting and so am I. My son loved his hair. In fact, hair has been is security blanket since he was born. When he's wanting to relax he plays with my hair or even his own. I know that even if he gets his hair back (75%… Continue

Added by Margie on October 9, 2008 at 1:29am — 10 Comments

What goes around comes around...

I found this postcard today, which spurred this blog post!



I'm new to AT. In May, I went for a routine hair cut and color, but this was anything but... For years, I've wanted to donate to Locks of Love. I've always had long hair, and I've never had the guts to cut it short. I was bored, and my hair was long enough, so I figured, what the heck, I'll donate it. So I did, and I left feeling WONDERFUL! I loved the short cut, and I was getting compliments left and… Continue

Added by Reen on October 8, 2008 at 6:53pm — 7 Comments

Calling all Comedians!

My daughter, Rachel, is 10 and has had alopecia for about 10 months now. She is almost completely bald at this point. She does not wear a wig or any headcoverings though she has both. She has been dealing with this so incredibly well that she is an inspiration to all who know her. Today, however, after more than a month of keeping this to herself she told me that on the first day of school this year (which was the only time she has worn a wig to school), the kids were teasing each other and… Continue

Added by Betsy Rachel's Mom on October 8, 2008 at 5:59pm — 1 Comment

Hair transplant????

Just a question to throw out there..... I saw Oprah yesterday and the were talking about hair transplants and how they have improved over the years. Does anyone know if they are ever used for AA? Can someone else donate hair for say a family member? Is it not effective because the patients immune system would attackor reject the hair if Alopecia is not in a remission? Thank You.

Added by Mom on October 8, 2008 at 1:05pm — 3 Comments

I got called beautiful!

I'm someone for whom self-esteem has always been a battle, even more now with AT. I'm someone who firmly believes in function over fashion, so wearing a wig all the time simply isn't my top priority. I have better things to worry about than if it's on right and such. I have been trying to wear my wig more, but I just have a tough time because to ME, it looks fake and weird. A few nights ago, my family and I went out to dinner at Outback, and as we went to "check in" the hostess asked me "How… Continue

Added by Reen on October 8, 2008 at 11:56am — 2 Comments

tattoo help!

well, i am a tattoo person as you can see from my pics and i would like to get a new tatt to mark this period in my life. if it was breast cancer i would have a really cool pink ribbon drawn and that would be that tatt, but is there anything like that for alopecia? is there any kind of symbol? if not, any ideas would be great.

Added by Jenn on October 8, 2008 at 11:32am — 8 Comments

I had a wig fitting today, an in-home consultation, what a tremendous relief it is to try on wigs in the comfort of your own home. I must have tried on about 10 wigs-synthetic and human hair wigs-non…

I had a wig fitting today, an in-home consultation, what a tremendous relief it is to try on wigs in the comfort of your own home. I must have tried on about 10 wigs-synthetic and human hair wigs-none of them felt right. So the stylist offered to come back again tomorrow with one she thought I would like...so I agreed. I'm hoping she's right. I can't stand this anymore. I practically don't have any hair left and have been wearing hats all the time. I just want to get this over with and find a… Continue

Added by Esther on October 7, 2008 at 11:29pm — 8 Comments

Being comfortable with Alopecia.

Every day I came on the website and read blogs of people who are dealing with alopecia and it hurts me to know that we can't all be comfortable with Alopecia, go bald, and be accepeted! I know it is an emotional roller coaster but we can all get through it!



I know, for me, it was a big struggle at first but I think I came to terms with it fairly quick. I have now gone without wearing a wig over an entire year straight. I used to wear it out sometimes and then sometimes not and… Continue

Added by Brianne on October 7, 2008 at 5:16pm — 6 Comments

doctor's visit

well i went to see the doc this morning and i got more of the injections. i have some spots that are not even attempting to put out hair and then some other spots that are growing like crazy. i have to say that i am extremely emotional today and i have started losing hair in a very private spot. that has plunged me into an extreme crazy frezy. it makes me think that this is not going to get better even though the doc says that she is very optimistic about complete regrowth. i snapped at a lady… Continue

Added by Jenn on October 7, 2008 at 12:05pm — 6 Comments

Can Hair fall more quickly when you start wearing a wig?

Hello I just have a question, I have noticed that my hair is falling quicker and the parts where I still have hair you can really see scalp, I believe that it has been happening due to my recent lace wig.. It is just a guess.. Has anybody experienced that before?

Added by Grace on October 6, 2008 at 10:00pm — 8 Comments

The Nonchalance of Dermatologists/Doctors

Is it me or is there an increasing nonchalance of dermatologists and doctors when it comes to Alopecia. I have taken my daughter to nearly a dozen dermatologists and doctors across the state of North Carolina. I have yet to meet a dermatologist/doctor who seems to be genuinely interested in her condition. They diagnose her, give her a prescription for clobetasol or protopic, and then say come back in 3 months. 3 months!!!! I pray she still has hair in 3 months! One even had the nerve to ask me… Continue

Added by Kayreyn on October 6, 2008 at 8:37pm — 9 Comments

Going through a bad"patch" in my life

At the moment I`m in one of those depressive states and I think my sense of humour and pride just help me to manage through the day. I just cannot get myself to feel better.I feel so unmotivated and this is worrying me.I always managed to find something to keep me going such as study/work or developing a new interest and those blessed affirmations used in NLP......it`s just not working:(

And believe it or not I sometimes found offensive the joie de vivre and egocenticism of certain… Continue

Added by baldiegirl on October 6, 2008 at 5:00pm — 4 Comments

Depressing date with the dermatologist

I had hung such hopes on today... not that I thought we'd walk away with a "cure" or anything, but I thought at least we'd have a definitive diagnosis and confirmation for all the research I've done. Or find something out that I'd not even heard of... I'm one of those people with just enough medical knowledge to be truly dangerous. ;-) But I know it, and I know I'm not a doctor...



We started off with the Nurse Practitioner, since we'd have had to wait another MONTH to see the… Continue

Added by theantichick (Shannon's Mom) on October 6, 2008 at 5:00pm — 3 Comments

teaching and learning

Ok. So I haven't been on here in a really long time, and am feeling a) out of the loop, and b) embarrassed that I can get so wrapped up in some aspects of life that I forget about other aspects, like connecting with people here. I actually find I think about this site a lot, and about all of the amazing people who are sharing their stories, supporting one another, and celebrating their differences. Part of what's keeping me so busy these days is that I'm teaching a course for the first time in… Continue

Added by Emily on October 6, 2008 at 4:14pm — 2 Comments

Hoping for a "Happy Ending" Story

Hello Alopecia World! I'm a new member and I posted this question in the children with alopecia forum section earlier. This is my first post and my first blog, just hoping to hear some response:



Hi,

I'm a new member here and desperately need to hear a "happy ending" story. I am the mother of a 4 year old who was recently diagnosed with alopecia areata. It seems as though I spend every waking moment, fighting back tears, looking for an answer for her, trying to find a cure,… Continue

Added by Kayreyn on October 5, 2008 at 6:43pm — 4 Comments

I haven't cried this much in forever

Joe jokes with me that when I find something to obsess over, I put my heart into it. And he's probably right.



I find myself drawn to Alopecia World, eager to see what other people have to say about something I've spent most of my life trying to hide from the world. I'm OK with me and the hand I've been dealt, but such a huge part of me just wants to have hair long enough to put in a ponytail.



I look at pages in this community of beautiful, strong women so confident in… Continue

Added by Stephanie on October 4, 2008 at 12:56am — 5 Comments

When hair loss is not the problem

Cheryl Carvery I recently read an article that describes alopecia as "a cruel disease that leaves men and women feeling ashamed" as a result of losing their hair.

It was an article about Helen King, a wife and mother of two who has alopecia universalis, which means she has lost all the hair on her body. This happened to her after she had several bouts with alopecia areata, which is the loss of head…

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Added by rj, Co-founder on October 3, 2008 at 11:30am — 2 Comments

My Alopecia Universalis and NAAF

Early in 2006, I considered myself a tough-minded businessman, having recently opened my fourth retail sports memorabilia store in the San Francisco Bay Area. My life changed drastically at the age of thirty eight, when in the span of six weeks, I lost every hair on my body. Eyebrows, eyelashes, a full head of hair - all gone. The beginnings of my experience with Alopecia Universalis sent me into a deep depression. There were many tearful moments. One such moment occurred when I looked into the… Continue

Added by Matt on October 3, 2008 at 11:00am — 6 Comments

inspired

wow! that is all i can say to this site and everyone that has contacted me. i have been reading so many of your stories and i am truely inspired. i want to be like everyone of you and i am tired of hearing myself whine about this. i know that i will have good and bad days but i just want to get to the point that my hair is the least most important thing in my world. why do i constantly have to dwell on this and what does that say about me? there are so many things that i am interested in and so… Continue

Added by Jenn on October 3, 2008 at 10:58am — 4 Comments

Telling a six year old

When I return to my hometown to see my family, I generally spend a lot of my time without my wig on. My parents live on a farm and have no air conditioning, so it's about 900 degrees hotter in the summer than anywhere else in the world.



Most people are used to seeing me without my hair and have little to say about it.



Except my oldest nephew. Ethen is at that inquisitive age where he wants to know the reason for everything. Why my eyes are grey or why Uncle Joe spikes his… Continue

Added by Stephanie on October 2, 2008 at 10:37pm — 7 Comments

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