Featured Blog Posts – November 2009 Archive (87)

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A very reaction-y kind of day today

I've been going out bald in public for ooh, about three weeks now and have had a variety of responses from strangers. Going out for dinner in a very arty venue - nobody bats an eyelid. Sitting behind a small child on the bus - slack jawed staring, although in a very innocent, curious way. Walking through town with a friend on a Saturday night - being told by an utterly plastered man than he admired my individuality. Wandering through Primark - people looking and then trying not to look and… Continue

Added by Cal on November 16, 2009 at 1:55pm — 11 Comments

Hair Care OCD?

So I was in the shower and thought about this as I was scrubbing my hair. Have you become a bit obsessive about your hair/scalp care?



On days divisible by 4 I wash my hair with a coal tar based shampoo. I've been using it for over 10 years because I have dandruff from hell. I've had it since I was born and had no hair back then either ;-) I really scrub it to because I figure a healthy, stimulated scalp has a better chance of regrowth. If I lose all my hair I will still scrub the… Continue

Added by Andrea on November 16, 2009 at 12:57pm — 3 Comments

I hate alopecia

why does this have to happen all over again. i have been having regrowth for 6 months, now is happening all over again. i have my hope up too high for this condition. i also hate the fact that people are blaming me for causing my hair loss. i am soooooooo devastating now.

Added by Carol Yuen on November 16, 2009 at 5:38am — 7 Comments

Trying It On For Size

I've been working in my current job for about a month now (a part-time, temporary position) and wearing my wig everyday. I'm really starting to remember why I never wanted to do this to myself again. I look in the mirror and I can't see myself anymore. I see this person trying to pretend to be something she's not. I think the main problem for me is that the wig just looks so completely fake. I feel like I should be going out trick-or-treating when I wear it. I've just spent the past couple of… Continue

Added by Kathie Nietenhoefer on November 15, 2009 at 9:02am — 3 Comments

Wanting a child but just diagnosed with AA, is it hereditary?

Hi Everyone, my husband and I were hoping to have another child but I was just diagnosed with Alopecia in July 2009. Does anyone by any chance know if having Alopecia effect the baby? I've heard some talk that it might be hereditary. Any of you out there with Alopecia have children and did your child have Alopecia, if so at what age? Any information or input would be super helpful. Even to tell me that you have Alopecia and your children do not have AA would even be better :)



Thanks… Continue

Added by M. Luk on November 14, 2009 at 9:19am — 18 Comments

When I got alopecia areata

I had Alopecia Areata since I was 2 years old. I loved it ever since and no one has ever made fun of me because of it. It is a common diease and it is not cancer. I make many friends with it and they know about it. I have many friends on Alopecia World but they are much older than me. I wear knitted hats, Bandanas, wigs and speaking of wigs I have a new one comeing right now and it is made of real hair that people donated to a founation!! I saw the movie and people love to donate thier hair for… Continue

Added by Jordyn Charthern on November 13, 2009 at 9:07pm — 7 Comments

Hopeless

Hey all,

I am having a very difficult time right now. As alot of you know...I was diagnosed as having hypothyroidism march 08 by a doctor that considers normal range lower than most for whatever reason. At the time, I had no symptoms of thyroid problems but went on the medication per his recommendations. Nine months later, hell begin so to speak....major hair loss, severe muscles aches, freezing cold all the time and frequent infections. I went to an acupuncturist and herbal therapist… Continue

Added by Donna DeHoog on November 13, 2009 at 5:36pm — 12 Comments

Here Goes

OMG where do I start. I am a fifty four year old African America woman. All my life I have been under the impression that a woman’s hair is her glory. My hair lost started several years ago. I got a biopsy and found out I had alopecia but was in denial. I and have worn braids (extensions) for 17 years. Prior to that I had perms straight and curly. I have also worn wigs when I had bad hair days. The onset of my hair loss started with my scalp becoming tender and the hair in the crown of my head… Continue

Added by Diane Holland on November 13, 2009 at 3:29pm — 2 Comments

To Good to Be True

It's been a while since i posted my last blog regarding my regrowth. I've waited patiently and was excited about every little progress made. My eyelashed grew back- YAY! My eyebrows are back-Yes! My head of hair-Ugh! It was up to about 70% regrowth and now I'm sorry to say it's all starting to fall out again. I knew in my mind this probably was not going to be long term, but somehow I was hoping it would be. Although I am a dissapointed I understand this is what to expect with this condition.… Continue

Added by Marisol on November 13, 2009 at 3:11pm — 2 Comments

New shedding

Definitely losing quite a bit of hair again. I knew it was coming out as I've been picking it off my clothes etc and feeling that I might be exposing naked scalp during the day but looking at the pictures I posted a few months back, I can see how much I have been losing. Eek - I hope it slows down soon because I haven't got myself sorted for a new prescription yet and I don't want to hit the Christmas party season with a whole load of hair missing and wigs that are a bit passed their… Continue

Added by Erica on November 13, 2009 at 5:24am — 3 Comments

Haven't posted in a bit

Well I'm happy to say that Jordyn has a Alopecia World page now..so add her as your friend. She is on here also looking for girls her age that she can relate too. We are happy to say she is soo excited and cannot wait for the arrival of her LOL wig. We are also looking for girls or boys in our area that have alopecia. This seems to be a difficult feat. I have yet to find anyone close to our area. I work at the hospital here and I met a mom not too long ago, she brought her son in for labwork… Continue

Added by Jess (Jordyn's Mom) on November 12, 2009 at 10:07am — 1 Comment

I've been neglecting you all

I know it's been months, literally, since I've even logged on to Alopecia World, and I'm so ashamed of myself.



I switched to the night shift at work, which has been crazy.



As soon as I got adjusted to that, I found out I am pregnant. I'm due in January, and spend most of my free computer time researching baby-related stuff.



My hair grew back this summer, likely from the hormones and prenatal vitamins. I really thought I'd be wearing a wig for the rest of my… Continue

Added by Stephanie on November 11, 2009 at 11:39pm — 5 Comments

My Daughter...

My daughter, Mikayla, has what started out as Alopecia Areata, but looks as if it is progressing towards Totallis. She is dealing with it very well...much stronger than I probably would. She is in the 7th grade this year, and this is her first year of public school, and a fairly large one at that. She's always been at a smaller private school. She is involved in the band, and LOVES school. She is currently wearing a synthetic wig, because she is not comfortable enough to go "natural", and we… Continue

Added by Matt (Mikayla's Dad) on November 11, 2009 at 3:46pm — 2 Comments

I'm still around

I've not posted on here for a while as just been busy working and keeping my head down. I have been for numerous tests lately as it was thought I might have had Lupus (runs in family and also causes hairloss) but no they think I have fibromyalgia/ME but there is damage to my muscles so dunno what's going on. As for the hair well I have one or two strands on one eyebrow, a few lashes on the other and not much else. I just dont care anymore...ok that's a lie but I just have to get on with… Continue

Added by elaine on November 11, 2009 at 2:42pm — No Comments

Greetings!

I am new here on this website but I am NOT new to Alopecia. I have been diagnosed with autoimmune Alopecia. I have pretty much had it all my life but it got really bad my Junior and Senior years in high school....which you could imagine was rough.



I have been completely bald now for 12 years with some hair on my body and limbs....which is funny because I have more on my body and none on my head. I have 1.5 eyebrows right now but one eyebrow is growing back thanks to the good ole… Continue

Added by Eric Dane Mattson on November 11, 2009 at 12:12pm — No Comments

Bye Bye Brows

Since I began regrowing eyebrows and lashes at the beginning of 2009 (after being AU for about a year), I've been telling myself not to get too emotionally attached to them. Though they never grew in completely, it's been really nice to have my bio-looking brows again, and all my friends have noticed and commented. The brows are visible in the Bald Lady Drumming photos I put up in August.



But now, the signs are clear: I haven't had to pluck areas underneath the brows for a few weeks,… Continue

Added by Mary on November 11, 2009 at 11:18am — 15 Comments

Aprendiendo

¡¡Voy a escribir mi primer post!!
Tengo FAGA o AGA o alopécia androgenética, cada vez tengo menos y más fino, a veces uso productos como nanogen para disimularlos, pero ya estoy harta, pica y voy manchando la almohada...
Estoy harta de probar productos y ni el minoxidil me funciona...
¡¡Pero soy muy feliz eh!!
Estoy esperando una bonita peluca de pelo natural, será la primera que use, tengo un poco de miedo y no sé cómo voy a explicar mi cambio pero ¡lo haré!

Added by Kat on November 11, 2009 at 3:37am — 1 Comment

Biopsy

I just read Sue Helaine's blog post, "To Biopsy or not" and was so inspired. Thought I would share my own story because through sharing and story we heal.



I didn't even know there was a biopsy. So, that's how my tale begins!



Confusion:

I started noticing serious changes in my hair 3 years ago. I remember getting out of my friend's hot tub, the hair on the nape of my neck was wet from the bubbles. I went in the bathroom, looked in the mirror and had my first serious… Continue

Added by Alicia Duncan on November 10, 2009 at 11:09pm — 1 Comment

Consultation Nightmare

First, I am so thankful that I have been connected with Alopecia World. I have so much background information and insights that today, which could have been a little disheartening, turned out to be Just Another Day.



So, I went to a local Hair Spa (I know, I know) that specializes in Reprieve Hair. (smaller filler-type hair systems). I had never seen one. I didn't think I would be a candidate but I wanted to start small and work up. I won't go into long details but the person there… Continue

Added by Alicia Duncan on November 10, 2009 at 9:40pm — 1 Comment

Been a while

I havent been on here in probably the last year..Alot has happened. After all the stuff i dealt with with my molar pregnancy and chemo, a month later, i found out I was PREGNANT!! :) I had my beautiful baby girl August 20th. She is my world. She changed the way I look at myself and the world. My alopecia is not what defines me. I am an amazing mother, girlfriend, daughter, granddaughter regardless of my alopecia! I have beyond happy with my life!! My little girl Peyton Faith has made my life so… Continue

Added by Chelsea McGee on November 10, 2009 at 4:38pm — No Comments

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