Featured Blog Posts – November 2009 Archive (87)

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Are there any good wigs out there that are not Vacuum?

Hi there ya'll! Question, is there anyone on here that has had a good experience with any wig that is not a vacuum wig? I am still receiving treatments and still have 2/3 of my hair, so I'm not ready yet to shave my head. On the other hand, am willing to buy a wig that is not a vacuum wig, but still looks really close to one for now. Has anyone had a good experience with any other kinds of wigs other than the vacuum?? Thanks for any feedback!! Melissa

Added by Melissa Harris on November 10, 2009 at 4:23pm — 6 Comments

Dyeing Hair After Alopecia

My mom has had alopecia for the past year and her hair is now starting to grow in. Her only problem is that it's growing in grey, she by no means wants to be picky as any hair is hair to her now, however, she is not ready to face the signs of aging. We are trying to explore our options, and were wondering if dying the hair would make it fall out again or what? We really have no idea and neither does her doctor so any help is greatly appreciated!

Added by Stacey Ringham on November 10, 2009 at 1:27am — 2 Comments

Alopecia totalis :(

Im 26 yr old guy....I have alopecia for 6+years.....Nw doctors saying it is alopecia totallis.........I lost my eyebrows and hairs throughout the body...But i am not totally bald now....partially hair is exist in head (around 60% in head) .....Is there any possible to regain my natural hair in full head and eyebrows as well ? .....Or not possible ??.....Can someone suggest me....I was totally depressed bcoz of this problem.....

Added by jebaraj on November 9, 2009 at 11:23pm — 1 Comment

Locker Room Discussion

Good morning fellow AW'ers! I have a quick story to share: this morning while I was in the gym locker room the lady next to me asked if I was undergoing chemotherapy. (I don't wear my wig at the gym, just a baseball cap over my bald head, and I'm certainly not shy about going bald in the locker room.) I smiled and said that no, I don't have cancer, but I have alopecia. She said "Oh" and then I realized that she probably didn't know what alopecia was! I forget that alopecia is a somewhat unknown… Continue

Added by Natalie on November 9, 2009 at 11:00am — 4 Comments

To biospy or not

I sent this response along to one someone questioning "To biospy or not" ... I think as part of my own therapy to heal from some of the the emotional pain of my Alopecia, it would be helpful to keep some of my responses in "A personal blog" as well, it will help me look back to see the progress that I plan to make from an emotional level. I need the support now more than ever and if I chose to ignore everything I'm feeling, about my condition, (which for me, of course is impossible because the… Continue

Added by Sue Helaine on November 9, 2009 at 4:28am — No Comments

I will miss you Brandy

One of my best alopecia friend from AW passed away in July. A friend of hers told me that today.

I will miss our conversations Brandy.

Your friend, Roger.

Added by Roger on November 9, 2009 at 4:02am — 6 Comments

So proud!

I just want to say how proud we are of our son Nathan. He's probably at about 30% hair loss at the moment, or a little more, and rarely does he leave the house unless he's got a hat (which he now wears at school all the time) or a bandana (thanks to Canteen, we help both them and us at the same time). However, last Friday, I noticed that he was playing with the kids at an after school club that I help run, and there was no sign of either hat nor bandana to be seen. But there he was, confident… Continue

Added by Judith on November 9, 2009 at 12:41am — 1 Comment

How to compliment someone with alopecia?

As a non-alopecian, I'm curious: If people would like to compliment your "look," how would you like them to do so? I mean, if it's specifically your "hairstyle" or lack thereof that they like, what's the best for them to tell you this without offending or upsetting you?

Added by rj, Co-founder on November 6, 2009 at 11:21pm — 13 Comments

Fashion Statement --- arrrrgggghhhh

I had to go to the hospital the other day, as it turns out, I have H1N1, getting through it and almost back to 100%. But something that happened while I was there really got to me. The nurse asked me if my bald head was, `Just a fashion statement`. That really bothered me. I didn`t say anything at the time but, I think I should have. I do shave my head, mainly because I had so many patches that it was almost all gone, but certainly not because I am some fashionista. I didn`t shave my head to be… Continue

Added by Tenille Gee on November 6, 2009 at 8:52pm — 7 Comments

Trying alternatives

I dont know why but this whole blog thing intimidates me. It is as if, if I blog then everyone will know this dark secret I keep. Maybe this is the road to dealing with my AA(which has been a long one). I fortunately have been able to hide my spots for 4 years and coming up to my half year it is starting to show, and I mean everywhere. Any angle I take a peak in the back and can see a spot smiling at me. Even in the front it is as if I have this receding hairline that people pretend not to… Continue

Added by Rachael on November 6, 2009 at 8:00pm — 5 Comments

Counselling

hey has anyone ever been to see a counsellor about there alopecia, i feel im findin it hard to cope with and cant talk to anyone about how i really feel, would this be better for me, not sure i can do it yet tho,

Added by lynne on November 6, 2009 at 4:53pm — 9 Comments

Two Alopecians walk into a doctor's office...

Sounds like a bad comedian's joke - "Two Alopecians walk into a bar...." But, for the first time, I actually found myself in public place with an Alopecian I didn't know.



We first saw each other in the Lab part of the hospital (I was in for a blood test). I thought he might have Alopecia. He was about my age, very fit looking, and very bald with an all-over-his-head tan. If he had eyebrows, they weren't very dark. I was, as usual, sitting there bald. Neither one of us said… Continue

Added by Mary on November 6, 2009 at 10:43am — 6 Comments

I am bald and loved!

I am engaged! Don't know why I feel the need to post this. My boyfriend proposed to me last night! YAY!

Added by Lyndsey Pitchford on November 6, 2009 at 7:19am — 8 Comments

Funny comment by my husband!

Hi Ya'll!



Just wanted to share this story, I put on a wig and when my husband got home, he told me that it looks like a helmet. I was upset at first but then he said no like a helmet that is hair! I couldn't help but laugh but then I took it off thinking is that what people are thinking when they see me? That I look like a helmet head??!! Anyone else have and experience like this one??? Now I don't know if I will ever wear it again!! Don't know if I should laugh or… Continue

Added by Melissa Harris on November 5, 2009 at 6:15pm — 6 Comments

First Day Out with a Wig

So on Tuesday, my aunt gave me a few wigs she had on hand and I ordered 2 more...one that will like like my real hair and one that is totally not, lol! I'm not ready to invest in an expensive wig until I know the nature of this, though at this rate it will be gone by Christmas. Yesterday, I spent most of the day with my mom getting her glasses and whatnot, and I wore this all day with fairly good results. Here are a before and after shot.



Before:…

Continue

Added by Andrea on November 5, 2009 at 12:49pm — 8 Comments

Face of Adversity

Remember 39 years of Grief & Sadness, as we all know.

I too would hide after all my long hair fell out at 14 years of age.

I would wear scarves, synthetic wigs & cry about the discomfort.

The itch, heat & the pain.

Feeling Anger, Hurt & Sadness.

Because perception & insult didn't allow me to be myself.

I would hide....hide & fear being seen.

Fear ridicule, fear judgment &… Continue

Added by MiNAH on November 5, 2009 at 1:00am — 4 Comments

My friend wrote about me and my alopecia!

One of my close friends wrote a bit about me for one of her classes. It means so much to me and I want to share it with you all!!





Lillie Laraque



JLS- Feature Writing



The Bald and the Beautiful



She gets out of bed, brushes her teeth, and washes her face. She goes into her room and picks out her clothes for the day, finally putting on a bright top, bubbled-out skirt, and designer sandals on her trim form. She frames her green eyes with eyeliner,… Continue

Added by Camille Reinecker on November 4, 2009 at 11:37pm — 7 Comments

Support groups

hey guys not sure if anyone can help, but i was on the alopecia awareness website and there was a bit that says they would help u start up a support group in ur area,

i would love to do this as i could get support aswell as helpin other people goin thro the same thing, i sent an email to the address it had but i havent heard anything bak, does anyone know how i can get the support to get this started, i have friends who are willing to help, and one is a trained counsellor which would be… Continue

Added by lynne on November 4, 2009 at 4:43pm — 1 Comment

Brows and lashes?

my son's eyelashes and brows have started to come back slowly but haven't darkened in color. any comments? his doctor said they would come back but now I am doubtful, hair is re-growing on his head but it is in patches, and is turning dark so that makes me wonder about his brows and lashes even more, thanks for any help

Added by rebecca finlaw on November 4, 2009 at 9:41am — 1 Comment

Reliability!

Just as you start to get used to your current form of alopecia it changes.



I have had nearly twelve months now with AU. Not a hair anywhere other than the fact that I still have to shave my chin now and then. Even then the hair on my chin is now much finer than it used to be. I’ve had no eyebrows, no eyelashes not anything.



The last couple of weeks though I’ve noticed that I’ve got a few eyelashes come back and the front section of my head has started to have hairs grow… Continue

Added by Ray on November 4, 2009 at 6:10am — 8 Comments

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