Any advice on losing nose hair?
Added by pauline vargas on December 31, 2011 at 6:00pm — 1 Comment
I saw a newspaper article about this organization for cancer patients called Look Good...Feel Better. (I think that's a good motto for us, too!)
They have some very nice explanations about tying scarves on this page. Just click on the various "scarf" topics:
Added by Mary on December 31, 2011 at 5:39pm — No Comments
So much pain
So much tears
even after 4 days
im still in shock.
Why him? Why now?
I remember his bright huge smile
Those big warm teddy hugs
That big old laugh.
I hope your looking over me
as I write this poem
As I type.
I hope your healthy now.
I hope your safe & warm now.
Wait for us , you hear?
I love you.
I love you uncle Terrall.
Rest In Peace.
Added by x3Awesome'TTx3 on December 30, 2011 at 1:24am — 2 Comments
hi hope everybody had a good Christmas.im posting this blog to see if anyone has any good ideas.i love tattoos and i was wanting to have another done but i like them to represent things in my life,i was trying to think of something to represent alopecia as it has been a struggle and had a big impact in my life...in a way iv learnt a lot about myself through losing my hair. any ideas anyone has would be greatly appreciated thanx x
I am asking any of you who have decided to give speeches to schools or classes...what questions usually come up? What information do you include in your presentations? I am thinking of doing this, as an alopecian since 1963 and as a teacher now...I think I can help.
Added by Tallgirl on December 28, 2011 at 6:00pm — 3 Comments
I was in town today, hitting the post-chrissie sales with my dad. I wore one of my pretty triangle scarves. We stopped for coffee and sat outside. Amoung the many people walking past was a family with a little girl in a pink dress who kept staring at me. Little Girl said the best thing ever. "Is that a pirate?".
Then she walked into a post. Which was only funny because she wasn't hurt.
But I love that, the kid logic. Scarf = Pirate. Completely awesome.
Added by Georgia Gardner on December 27, 2011 at 11:30pm — 7 Comments
As of now I know that I have spots of hair loss, around my ear, and on my side burns and have medication for it, but unsure of what else could happen and why this happened to me. Ive had this for 2 months now. I don't go out anymore, I find it extremely hard to keep this off my mind and very insecure about myself. I only wish I knew how i got this and how I can resolve this.
Added by Navee on December 27, 2011 at 11:23am — 12 Comments
My best friend called me earlier today to let me know that her husband noticed a video on MSNBC that talked about Alopecia. He thought I might want to see it. I found it, and I thought I would share with you all. It mostly talks about Alopecia Areata, and it tells a young girl's story. It also mentions an organization that helps young children with hair loss from medical reasons. I think it aired on the TODAY Show recently, but I don't know when. Here is the link to view it...…Continue
Added by Alliegator on December 27, 2011 at 1:50am — 6 Comments
New group for women and men for women who do not mind men with hair loss
Added by LilyBell*Murphy'sLawLuvsMe on December 25, 2011 at 5:38pm — 1 Comment
I like to wish my alpoecia family a very Merry Christmas . I hope you got you want this year.
Added by Tamika Joseph on December 25, 2011 at 3:53pm — 2 Comments
In the following link, you can find a forum of Iranian discussion about AA in Farsi:
All the best,
I discovered a new word today: Calvous — lacking all or most of the hair on the head; bald!
Added by Dominique Cleopatra on December 23, 2011 at 3:42am — 3 Comments
A small moan: Anyone who read/reads my last blog post would see I dyed my wig a much darker colour then it was previously.
Out of everyone in work, only one person has noticed and commented on it, and she only works in the canteen, not really I spend a lot of time with.
I don’t know if they all know it’s a wig and don’t know what to say, or if they just do not take half as much notice to hair as I thought they might.
It’s in some ways upsetting, making me more…Continue
Added by KFlame on December 21, 2011 at 6:18pm — 9 Comments
When I first was diagnosed with Alopecia 6 years ago besides crying every time i looked at myself in the mirror, I shut everyone out of my life. I stopped going out because i was self conscious and stopped talking to my friends and family because I felt they wouldn't understand. When I was diagnosed there weren't really any support groups that I was aware of so I felt like I had to go through it alone. I didn't even tell my family until much later.
Having a conversation with one of my…Continue
Added by Marieca on December 21, 2011 at 3:30am — 10 Comments
So....my 11 year old daughter lost ALL of her hair in the last month and a half or so. We only have a half wig now (a flash) b/c everything else takes so long to order. She has been wearing that to school since after Thanksgiving and hasn't had any major issues. When she originally got it, she had hair on the back of her head to blend w/the hair on the flash piece. Now, she doesn't. So if the hair moves at all you can see the bald spots on her scalp. So....today at school a kid asked if they…Continue
Added by Jenn on December 20, 2011 at 10:30pm — 8 Comments
On the NAAF feed on Facebook this morning there is a fantastic picture of the Disney princesses sans hair. It made me smile and got me thinking...
I was watching Shrek the other night with my kids. It was the movie with the princesses (Sleeping Beauty, Snow White, Cinderella...Shrek II perhaps?) The main villainess turns out to be Rapunzel coupled with that Nasty Prince Charming. As Shrek and Fiona conquer all things evil including the dubious Rapunzel and Charming, what should happen…Continue
Added by Jennifer Krahn on December 20, 2011 at 11:30am — 3 Comments
Hello all! It's been a while since I've been on last. I recently went to a dermatologist. Didn't go to well but I asked the doctor if there were any support groups in our area. There are some but an hour or 2 away. The doctor suggested I start one in our community. I would appreciate some advice here please. What do I do? How do I do this?
Please and Thank you :D
I just wanted to start off by saying I wish everyone a very Merry Christmas.
Looking back on the year pass, I amaze myself by how genuinely happy I have been. Yes I still have bad days but dont we all? And yes I still have hair memories. But how can you not when you see commercial after commercial with hair flipping all over the place. We definitely need to see some fabulous bald ladies in commercials. But during those moments I just rub my smooth head and I feel better.…Continue
Added by Bald and Fabulous AKA Terri on December 19, 2011 at 9:20pm — No Comments
My 16 month old has been diagnosed with Alopecia, so I am talking to everyone who knows anything about this problem. Someone mentioned if this could be related to Radon Gas, and If I ever have tested my house for Radon. So I went first thing today morning and got a Radon Test Kit which takes about 2 weeks to get results, and I am growing impatient to figure out if it could be related. Has anyone who suffering from Alopecia looked into Radon gas in their house or work place?
Added by Gaurav Batra on December 18, 2011 at 1:00pm — 4 Comments
Well I decided I wanted to dye my ‘human hair’ wig yesterday, for a Christmas boost. I had done it before and it has become a bit of an addiction, why buy a new colour when I can boost this one just a little more… I always worry though. Just before I start thinking, what if all the hair falls off, and then what? But I do it anyhow.
Now I have read a number of times, always go for a shade lighter then you want, and never leave it in for the full time.
The first time I dyed my hair…