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Soooo, I'm back on the cortisone shots...

Met with my new dermatologist yesterday. Of course he highly recommended coritisone shots (don't they all) - man those suck. Along with those, he wants me to get some Rogaine, T-Gel shampoo and he also gave me this stuff in a tube I'm supposed to put on my spots for 5-10 minutes then wash off, which might cause some irritation and discomfort he warns me. All in all, just a fun and fabulous trip to the dermo. Not to mention he had this chick in there assisting him, which I was not expecting and… Continue

Added by eva on June 3, 2009 at 2:59pm — 3 Comments

NAAF Conference

I really wish I could attend the NAAF Conference this year.Has anyone gone that can tell me how its been in the past?

Added by Joseph Adams Jr on June 3, 2009 at 9:57am — 10 Comments

Thank you for your comments

Thanks to everyone for your comments. I am VERY proud of Alieena. From day one when we first found out I had a sit down with her and pretty much told her honey, you are very special and no one can change that, and I have explained to her in great detail what it is she has and that it might be a forever thing, and I have told her time and again when she starts getting a little down about her missing hair that she had to be strong and remember she is beautiful and that God made her special. I… Continue

Added by Jennifer and Alieena on June 3, 2009 at 9:45am — 1 Comment

today was the day

yes today was the day i finally accepted me alopecia and all i was so suprised at school 2day that i didnt care what people said and being upsessed with wondering if my bald spots were showing(:i dont know how it happened or how but im loving it

Added by Nikki Mans on June 2, 2009 at 8:20pm — 3 Comments

Thoughts of selfishness

June 2, 2009



Just after I went to the Dr to basically confirm what I already knew, I started to really look around the intar-web on Alopecia. Started to feel that Woe is me wash over me. The more I read about AA/AU/AB/AT, the more I thought that maybe I should be at odds with who or what gave me this! I was really pumped up and mad.



I thought I had it bad when my facial hair went. I could feel the burning/tingling at each attack site. Watching the hair… Continue

Added by WyldCard on June 2, 2009 at 7:29pm — 3 Comments

new wig very excited and nervous!!!!!

well got the call from my dermatologist 2day, goin to look for my wig next week, very excited and nervous to, not used to havin hair for 2months now, also i think hair on other parts of my body are lookin thinner than usual, so very worried about that, not sure i could cope with losin all my hair, i still have hair growin on my head tho which makes me think its a good sign but then again u just dont know wat can happen, still not dealin with the hairloss very well, i put on a brave face most… Continue

Added by lynne on June 2, 2009 at 6:06pm — 2 Comments

Cortizone Shots....???

What's the concensus on cortizone shots for alopecia areata??? I was having them done from about October 2008 - January 2009. I stopped because of money issues and because I wasn't convinced they were helping. But now, it's June and my alopecia has gotten quite a bit worse. I have an appointment to see a dermatologist tomorrow, but I wanted to get some feedback on the shots before I started getting them again...



Anyone have any words for me? I would really appreciate them... Thank… Continue

Added by eva on June 1, 2009 at 4:51pm — 12 Comments

Cruel to the unknown. but why?

Ok ok, same old question with still not a good enough answer. Why are people ignorant to the unknown? And let me rephrase that I dont mean ignorant to be mean but what I really mean is why do people have to be so cruel? Let me tell you I am a strong person with a very stubborn personality when it comes to my daughter, but what mother isn't? Here are a few of our daily bumps and Im sure you all will agree with me on this. Alieenas AA is getting better but at the same time getting worse. The… Continue

Added by Jennifer and Alieena on June 1, 2009 at 4:42pm — 5 Comments

Wig help please

So im 16 years old and i finally decided that i want a wig. Im having trouble finding a place to get one. Can some one give me some advice were to getr one. I have a wig already but i didnt really get to pick it out. my mom and the wig lady basically picked it out and ignored what i said on it. I really dont like that wig either.

Added by lauren on May 31, 2009 at 9:30pm — 4 Comments

<b>acceptance</b>

Hi :)



This past week I have come to realize;



a. I HAVE ALOPECIA AREATA

b. Yes, my hair (Or lack of rather) looks odd

c. I DON'T CARE!!



It has taken me a very long time to say that. when I was 6-10 all I wanted to do was keep my hair, then it fell out. 10-16 I just wanted to fit in with a natural looking wig and have no questions asked, it didn't work. 16 upto now I've kind of been a in a bit of a void, not really sure if I was comfortable… Continue

Added by Lizzie on May 31, 2009 at 6:41pm — 3 Comments

Depression

This is really hard for me to go thru without my husband to hold me hand. See he was turned into immigration and deported 5 months ago. I didnt start losing my hair until about 3 weeks ago. I still see him everyday on webcam and i can hear his voice thru conference call. But its not the same, I cant touch him, he cant hold me the way I need him to. He cant kiss me on my head and tell me that everything is going to be alright. All I want now is to sleep and only wake up when my passports get… Continue

Added by Kristen Viveros on May 31, 2009 at 10:08am — 2 Comments

I am loosing my eyebrows!

I am totally freaking out now. I just noticed this morning that my eyebrows are falling out! i knew it would come to this but its happening so fast. I have been crying all day.

Added by Kristen Viveros on May 30, 2009 at 4:31pm — 15 Comments

I DID IT!

Wow, I am feeling great! I just got back from participating in a Cops for Cancer event and yep... I have shaved my head. Well, it's a very close buzz, not razored. And I love it! It feels great to have shed that ugly, thin, flat, good-for-nothing bio hair. :)

Added by Tawny on May 30, 2009 at 4:28pm — 3 Comments

need answers!!

well ive now had hairloss for about 7wks now, and i would like to know if any1 has had problems with there scalp and head while losin there hair,
i have suffered pains in my head on both sides, and also had some headaches, my head is itchy and im still quite tired, has any1 else suffered these or different side affects of hairloss, will be grateful of any comments, thanks,

Added by lynne on May 30, 2009 at 4:11pm — 10 Comments

The Greatest Love of All

I have been listening to alot of Whitney Houston lately, mainly because I feel like I wanted to sing on top of my lungs and Whitney Houston songs are quite fun to sing along to don't you think? haha



I came across the song "Greatest Love of All" and I am sure all of you must have heard of it. It is a classic. When I was young I used to sing it on Karaoke (yes, we asians love our karaoke!) Before you get any ideas, no I can't sing to save my life but it feels good to burst out in song… Continue

Added by Salmezan on May 28, 2009 at 6:42pm — 2 Comments

New Pictures Added

Hi Everyone,



It's been a busy couple weeks and I haven't been on AW in a while. But I thought I'd share a few pictures of the "new me" wearing my wig. We visited some friends this weekend whom we haven't seen since before my daughter was born and they didn't even notice anything different. (of course he's a guy, with sons, LOL)



But I got through the weekend being outdoors quite a bit and even did some canoeing. I am SO happy with my wig, but now I am getting excited,… Continue

Added by Tawny on May 27, 2009 at 10:36pm — 2 Comments

i love this site!!!

i joined this site a few days ago and im already feeling more confident about myself!! i walk to school not caring about all the mean comments people will say to me. everyone here is so understanding and kind.my bff, nicole, tries to help me but she just doesnt understand what i am going through(not that she doesnt give good advice or anything) and special thanks to mary!! i will be on this site almost everyday but not this weekand cause i am going camping(: with nicole. THANK YOU

Added by Nikki Mans on May 27, 2009 at 5:19pm — No Comments

A moment to be proud of!

A few days ago I met up with Margaret, a fellow alopecian who lives in the same area as me. I am originally from Brunei, a small country on Borneo Island, South-East Asia. For those of you who don't know where that is, well it is near Singapore and Malaysia :) I have been diagnosed with Alopecia Universallis since I was 9 months old. My parents took me to see numerous specialists over the years but nothing could be done. However I did start to grow hair at the age of 4, patchy ones at first,… Continue

Added by Salmezan on May 27, 2009 at 1:18pm — 2 Comments

Scientists identify gene that may explain hair loss

I just came across this Reuters article and had to share it. I believe this could be the start of something truly wonderful.





Scientists identify gene that may explain hair loss

Tue May 26, 2009 2:39am IST



HONG KONG (Reuters) - Researchers in Japan have identified a gene that appears to determine cyclical hair loss in mice and believe it may also be responsible for hair loss, or alopecia, in people.



In a report published in the Proceedings of the… Continue

Added by Sue F on May 27, 2009 at 1:30am — No Comments

coincidence or not?????

I am a 57 year old bald hairdresser. I recently have come "out of the closet" with my disorder. I have been fortunate enought to find a collection of realistic wigs and to master the art of glueing and painting on my facial hair. I can't say that i am thrilled about having no hair, but i have always tried to find the bright side to a bad situation, so you could say that i am coping.



Today, I totally by chance came upon 2 new clients who both were suffering the affects directly and… Continue

Added by brenda kay on May 26, 2009 at 10:20pm — No Comments

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