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Hair Piece (Bonding)

I will be receiving my hair system any day now. I will be bonding and maintaining it myself. Wow, I'm excited and frightened at the same time! Wish me luck!

Added by Debbie Berry on July 7, 2011 at 5:53pm — 5 Comments

I'm a wigaholic!

My name is Allie, and I am a wigaholic. I've been obsessed with wigs for a year and 8 months. I should join a support group. :) I do not want to say how many I have at the moment. Those who wear synthetic wigs know they don't last forever, so in my defense, I need new ones occasionally when one wears out.



I love the different styles and colors. When I find a style that I really like, I want the wig in blonde, brown and red! There are three wigs that I have in two colors each. I… Continue

Added by Alliegator on July 7, 2011 at 12:00pm — 23 Comments

Why shaving your head is liberating

So your hair has started to fall out in patches and you`re trying to hid the evidence of your Alopecia. Its tiring, overwhelming, and just pain upsetting. All us have been there. So when your world is spinning out of control and you feel like you have no say in how your body functions what do you do?



In my life I have had my head shaved twice... once when I was 12 by my mother and once by my self when I was 19. When my hair first started to fall out in grade 6 I did everything to… Continue

Added by Kate anderson on July 6, 2011 at 11:00pm — 1 Comment

Conference photos

There is now a long slide show of fantastic photos on the foundation site. Go to Events, then Annual Conference, then look at bottom left to click on 2011 conference photos.

Added by Tallgirl on July 6, 2011 at 1:00pm — 3 Comments

Lucky in love

Good morning :)



Yesterday was my first post ever and it was such a great experience that i couldn't help but post again this morning.... I know its 10am, but Im a huge night owl and was up pretty late working on my bike.



A comment made on my blog yesterday got me thinking about love and Alopecia. One commenter said that "i was lucky yo have a boyfriend who adores me" they also added "why wouldnt he?" Of course those of us, like that lovely person, know that there is no… Continue

Added by Kate anderson on July 6, 2011 at 1:00pm — 6 Comments

Anyone wearing "Audrey" by Rene of Paris?

I'm thinking about purchasing it but not sure since it's not a mono top. Any input is appreciated! Thanks :)

Added by Sophia on July 6, 2011 at 10:00am — 9 Comments

Pennsylvania anyone???

Good Morning, I was just wondering if anyone lives close to me near the Wilkes Barre/ Scranton area?

Added by Debbie on July 6, 2011 at 5:27am — 3 Comments

Give the World some credit :)

Hello everyone,



Never posted on a site like this before but I figure I should give it a go.



Maybe a little background is a helpful. I have had Alopecia all my life... haven't we all? My hair started to fall out when I was 11 and over the years has grown back and all fallen out again. I've tried almost everything (light treatment hasn't really excited me enough to bother with yet) but nothing has seemed to work.



So you might be wondering what the point of my post… Continue

Added by Kate anderson on July 6, 2011 at 5:05am — 13 Comments

AUDITIONS FOR A FILM ABOUT A GIRL WITH ALOPECIA!

Hello all,

If you ever follow my blog you see that I am in the pre production process of a film I wrote called Beauty Queen. If you are from Michigan or close by we will be holding auditions this week! I'm not sure if more spots are open but we are looking for someone to be a head double for the lead character of Alex, along with many extras for the pageant scenes. Information is listed in the link below. The film is called Beauty Queen.…

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Added by Kelci on July 6, 2011 at 1:05am — No Comments

Once again

It Has been about 3 months to the date that I last signed in and stated, I saw some small loss and missing eyelashes. Today, I went to the dermatologist for a follow up,. I decided to take a break from the treatments. There has been no regrowth, no eye layers remain on my right eye, and I have a small pony tail out the top of my head. I can let it down and still wear a wide headband/wrap, which is a plus. However, I'm really pretty freaking sick of it. This is the third time I have gone thru… Continue

Added by Bigmama on July 5, 2011 at 9:00pm — No Comments

Clobex spray

Hi all! I have been living with AA for 23 years and I swear by injections but decided to try a less painful route and my doctor got me to try Clobex spray. I am just curious of anyones experience with it? Any results or side effects you were or were not happy about?? I also want to know if anyone had any opposite effects like hair loss? Last thing I need is to boost my AA ahead/behind whichever way you look at it. Thanks :)

Jenny

Added by Jenny on July 5, 2011 at 8:30pm — 2 Comments

Wigs, wigs, wigs

Can anyone out there recommend a short natural synthetic wig that has a monofilament top? If you are like me, you have probably purchased more wigs that you don't like than those that you do. I am just beside myself as to shopping online and trying to decide what would work best for me. I have some wigs that I have never worn that I would be more than willing to sell at a very low price if anybody would be interested in buying. Just let me know.

Added by Ktownnana on July 5, 2011 at 7:00pm — 14 Comments

Needing more support right now

Well, I haven't been on here for the longest time, but I find myself needing more support right now since I am very close to losing all of my hair. For a while, I had been experiencing so much regrowth that I was becoming very hopeful that this "worst case" of alopecia was over. The top of my head started growing in pretty thick even though the bottom half of my head was still pretty much bald. However, I was optimistic that I might actually have my own hair for my wedding next September.… Continue

Added by Nikki on July 5, 2011 at 12:30pm — 4 Comments

My first post

I started a discussion...and it started me thinking.

I am continually amazed by this site, which, after posing a heated discussion not 24 hours ago, has already filled 5 internet pages with encouragement, stories, and advice on my issue of HIDING under a hat and how to be free. I have struggled my whole life to find commonality with women (and man) in this; my friends all understand, but from an outsiders view, but they still lovingly style their hair each morning, and complain of having… Continue

Added by Emily Naples on July 5, 2011 at 9:30am — 5 Comments

Alopecia Areata Fact Sheet

I just found this online from the national foundation. I do not know the date this was created.



What is alopecia areata? Whom does this disease affect?

 Alopecia areata is a common autoimmune skin disease resulting in the loss of hair on the scalp and elsewhere on the body. It usually starts with one or more small, round bald patches on the scalp and can progress to total scalp hair loss (alopecia totalis) or complete body hair loss (alopecia… Continue

Added by Tallgirl on July 5, 2011 at 9:28am — No Comments

News

Hello to all, last news:c'est is a disaster, after the fibromyalgia, the disease of bottom dow, the universal alopecia, the prediabetes and a goitre, I have been supposed to be 3 weeks at the hospital for a sarcoïdose I'm fed up I cannot it any more and then I suffer, so physically as morally diseases after which the medicine does not know how to look where the search does not make any progrée. but why I?

Added by coccinelle on July 5, 2011 at 4:57am — No Comments

The cruel world

Yesterday I went to the store for some food. Suddenly an older foreign woman is flipping me her finger. I look around and it takes a second before i realise it is really me she means. Then she starts screaming - racist! bla bla bla, fu-ing racist bla bla... ehh, I am so surprised that I can´t get a word out. She walks away.



Then she comes back after a minute - and starts screaming again... then she says cancer? and points at my bald head. -" if not - racist! bla bla… Continue

Added by Helena Wenzin on July 5, 2011 at 1:33am — 13 Comments

Do you shave your head or have someone do it for you?

Just wondering.....does anyone out there shave their own head or do you pay someone to shave it? If you do shave, do you use a razor or a barber set of clippers?

Added by Ktownnana on July 4, 2011 at 10:00pm — 17 Comments

Finally back home - missed Alopecia World!

I wanted to post a short blog just to let you know that I didn't fall off the face of the earth, or abandon AW. I was travelling for 7 weeks in the UK (I posted a blog from there about meeting a bald woman at the airport in London), and then right after I got home, I took off for a week at my annual Balkan music and dance camp. So, I've had very infrequent Internet access for the past two months. I arrived home yesterday and am slowly catching up on everything.



This was my second…

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Added by Mary on July 4, 2011 at 1:30pm — 11 Comments

FREEDOM

HELLO SISTERS OF ALOPECIA WORLD...



I THANK GOD FOR THIS SITE THAT HAS BEEN AN ECOURGMENT. I ONLY BEGAN TO WEAR MY BALDNESS ON THIS FRIDAY. I FELT SO FREE WITHIN BECAUSE I WAS EMBRACING WHAT GOD HAS GIVEN TO ME. HE TRULY GAVE ME HAIR BUT FIVE YEARS AGO IT BEGAN TO DISAPPEAR. I WORE THE WIGS, THE WEAVE AND TRYING TO CONTINUE TO OBTAIN THE LOOK I WAS ACCUSTOMED TO. I AS A WOMAN DID NOT GO WITH MY HAIR UNDONE. BUT, GOD ALLOWED ME TO REALIZE THAT HAIR DOES NOT A CHRISTIAN MAKE. HE LOVES… Continue

Added by jean on July 3, 2011 at 10:26pm — 4 Comments

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