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Sulfasalazine works! My daughter received the "cured" stamp! Please read this!

My daughter was diagnosed with AA when she was three and progressed to totalis about a year and a half ago. After many treatments that didn't work--everything from natural to rogaine to creams, DPCP, (the only thing we did not do was steroids or shots, she was too young) we found out about the drug sulfasalazine and it's positive effects on alopecia patients. We started her on this treatment a year ago and she now has a full head of hair! She also has all of her eyelashes and almost all of her… Continue

Added by Katie Beth on April 7, 2009 at 9:03am — 8 Comments

HELP.. Wig advice, synthetic that is going REALLY frizzy.

I knew when I bought this wig that it was a cheap synthetic wig, that being said, I still thought that it would last more than a week. I have only been wearing it for a week, maybe two and only on the days that I have gone out to do things in the afternoon/evening with friends, maybe 5-6 times. The back part now feels stringy and looks like half of the hair is broken and really frizzy. Walking up to me you would not really notice it but it feels horrible and gets knotted really easily and I end… Continue

Added by Tenille Gee on April 6, 2009 at 11:31pm — 5 Comments

My son kyler, who just turned 2 in december was diagnose with alopecia about a month and a half ago. I was giving him a haircut and I notice 2 very small spots. My doctor told me what it was and that…

My son kyler, who just turned 2 in december was diagnose with alopecia about a month and a half ago. I was giving him a haircut and I notice 2 very small spots. My doctor told me what it was and that's it! no other info.I felt helpless.Very soon and very fast he got more spots and quite large. Today he is about 1/2 hair missing. I have been looking more into this disease and looking to talk to other parents with small children going through the same as I. So feel free to tell me your… Continue

Added by Christine Messner on April 6, 2009 at 2:25pm — 9 Comments

Thanks for the Big Welcome

Thanks to everyone who has sent me a message of welcome to Alopecia World. I know I'm going to feel 'at home' here.



Now all I have to do is find a way to support my sons who seem to have been affected by my alopecia more than I have! My oldest is worried that I might become ill again as Lupus is ever present. He was quite young when my illness was at its worst and it was a traumatic experience for all of us.



My youngest (who wasn't even a twinkle in my husband's eye during… Continue

Added by Julie on April 5, 2009 at 11:50am — 2 Comments

Got wiggy with it...at least I tried some on.

So I went wig shopping (hear the "psycho movie" song in background). What an odd experience. I dealt with someone who wasn't doing this very long and went to a store that had very little in terms of selection, but it was okay. Here were the overall feelings.



1) I didn't bawl like I thought I was going to...instead, I just opened my mind to the idea and tried on different cuts, colours etc.



2) I laughed (never expected that!!)...the lady put an "old lady" wig on me since it… Continue

Added by Jennifer Krahn on April 5, 2009 at 10:19am — 5 Comments

calm waters

i'm in this spot where i think i'm not worried about alopecia and lupus or even getting pregnant, i have work which is going well, our finances are better, renovating a bit. its all happening.

a few niggling feelings like doctors appointments i have to make and things still to do.



yesterday i looked in the mirror and saw a spot on my face that looks like its lost pigmentation... i wonder if thats because of lupus. and i have to go see a fertility specialist. but the doctor… Continue

Added by Alison on April 5, 2009 at 7:36am — No Comments

My story so far....

I was diagnosed with alopecia when i was 20 years old and it was the worst feeling in the world. I watched my hair fall out in clumps and did not know why. I use to have such long thick beautiful hair that my mom was always jealous of. I was so broken up when my doctor told me it was just going to keep falling out. I tried for a long time to cover up the spots with makeup and everything i could think of. Finally it got to hard to cover it up and i had cut me hair as short as i could. I remeber… Continue

Added by Danielle on April 5, 2009 at 4:32am — 2 Comments

Coming to terms with it...

I've had Lupus (SLE) for about 20 years now and I've had hair loss before. I've never worried about it because I've always thought that my hair would grow back and it did. For my 40th year (8 years ago) I wanted to do something that would mark the beginning of my 40s so I started growing locks. It has been a long journey and just as my hair was starting to look as I would like it, in comes Alopecia Areata!



No problem, I thought. My hair will grow back it always does but this isn't… Continue

Added by Julie on April 4, 2009 at 3:30pm — 1 Comment

Having a bad week.

I just want to say that, out of the millions of pictures on here, you are all absolutely beautiful.



I had an extremely traumatizing experience a few days ago. A very dear friend of mine. A lady who, many years ago, used to babysit me and my sisters became ill. She has been in a care facility for a number of years but this was far worse. She was in pain, losing weight rapidly. She was approximately 5ft 8in and by the end weighed approximately 75 lbs. I had the horrible experience of… Continue

Added by Tenille Gee on April 3, 2009 at 8:54pm — 2 Comments

i'm tired of thinking about my hair (or lack thereof)

when i think about how much energy i have exhausted on this issue, it drives me insane. as much as i try to carry on with my normal life, it's always in the back of my mind. for example, every time i have an occasion to see a friend whom i haven't seen in a while, i can't help but dread having to tell them and going through the whole sordid story (i feel like it's too obvious not to address it.) it's like breaking up, feels cathartic to tell all of the details at first to anyone who will… Continue

Added by Paula on April 2, 2009 at 1:51pm — 5 Comments

A Roller Skating Story

We decided to visit my son and his family in Pennsylvania Lancaster.. There was a

big group of us going down there at least 20 people .. Well we all planed to go roller skating just to have a Lil fun know there is 25 of us going. So we go to the place we pay are way in and skating we went even my husband put skates on LoL.. Any way when l was skating l was having problems with my left skate so l went back to get a second pair at this time l see my husband and my sis talking to one of the… Continue

Added by Nitza on April 2, 2009 at 2:57am — 5 Comments

show and tell....

Well I showed my boyfriend my patches. It was hard. Really really hard. Sure I joked about it, but deep down I was scared.



Now that I've shown him? I am SO relieved!!!! It's like a huge weight has been lifted. :) He said it looked like there was regrowth in the one spot. But he is new to looking at them, so I asked the ex. (Yeah, we still live together, THAT is a cozy arrangement. LOL) He said no, it looks the same, but it hasn't grown any. However, the other has gotten larger since… Continue

Added by Michelle on April 1, 2009 at 1:00pm — 2 Comments

Don't look down!!!

I sent out a few resumes yesterday and already today I got a call for an interview which I also had today. I have to say the interview went quite well, my resume apparently indicates that I'm an interesting person and I was in his top 25 out of hundreds which he chose. At the end of the interview he told me he was impressed and all in all I'm quite confidant that I will hear from him again.



I did wear my wig to the interview and was somewhat self conscious about it before and after… Continue

Added by Carol on March 31, 2009 at 10:05pm — 2 Comments

I am BLESSED!! All thats wrong with me is that I am losing my hair.

I have been reading a lot of posts with people who are having a really hard time lately with low mood and dealing with people questioning them and stuff. I want to tell you all about recent experiences in my life.



One month ago, my boss had a beautiful baby girl. She was born, perfect, happy healthy baby girl. Within 24 hours the nurses discovered something was wrong. They did blood work and discovered her blood sugars were Dangerously high. After further investigation, they realized… Continue

Added by Tenille Gee on March 31, 2009 at 9:41pm — 4 Comments

Stop the Insanity...ARGHH

Alright hair...do what you must.

I'm tired of the burning, the itching and the amount of hair I'm losing all over. I just want it to end. Either stop shedding or grow...this is getting frustrating. I'm going to be shopping for wigs this week and some hats and scarves. I'm ready to buzz it off although everyone keeps telling me to wait a bit longer and enjoy what I have. I get that...just stop coming out then.

I'm prepared for God's plan with or without hair...it's the process that's… Continue

Added by Jennifer Krahn on March 31, 2009 at 6:14pm — 5 Comments

Ok, now on to wigs

Has anyone tried the vaccum wigs and are they any good? Has anyone ordered human hair wigs over the internet and been pleased with there hairpiece? Can you recommend any sites that have great human hair at reasonable prices. I have gotten 2 wigs from a specialty hair salon and they are very pricey. Ordering wigs over the internet is a little bewildering. Suggestions please! Thanks!

Added by Andrea Wasserman on March 31, 2009 at 3:52pm — 3 Comments

Just getting started

Within the last two weeks I have finally started to wear the wig that I bought a year ago to work, my thought was once I start wearing it I can never go back. Most of the people at work didn't even notice that it was a wig, I finally decided because I was getting so many wonderful comments to tell people that it was a wig because they were wondering how I had straightened my hair and a few saying they wanted their hair to look like that... I laughed and said, well, I bought it at The Bay...… Continue

Added by Tenille Gee on March 30, 2009 at 10:52pm — 6 Comments

How it all started...

On Feburary 21, 2009, I woked up that day and started brushing my hair and a clump of hair came out. I realized that something must be very wrong, but didn't think much of it. Then I shampooed my hair, after I was done, my whole bath tub was filled with my hair. I ran down to my kitchen, and started to cry infront of my parents. It was such a scary experience, because since I was very little, I was very conscious about my hair. Like brushing my hair 100 times a day to make it silky and… Continue

Added by Carol Yuen on March 30, 2009 at 8:45pm — 6 Comments

Concealers

Anyone used a skin concealer on a shaved head to mask up the dreaded circles with any success.
Please let me know cos i'm getting so desperate.
Kenny

Added by Kenny j on March 30, 2009 at 3:42pm — No Comments

Alopecia grrrrs

Although I have bad hair days, my bad hair days consist of me wishing people were more accepting and tolerant rather than wishing my hair would grow back. As some of you may be aware of, I am looking for another job at the time and everyday that I go into my current job I hate it more and more. Everyday the balony grows and discrimination becomes more and more evident. I didn't get the sales job I was meant to have - everything I've done in my past, careerwise, has led me to that job. Their… Continue

Added by Carol on March 29, 2009 at 6:31pm — 8 Comments

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