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Ayurvetic Oil Treatment

Hi Everyone, I started ayurvetic herbal oil treatments last week. I ordered my oils from an Ayurvetic Naturopath in India - Dr. Rohit Shah of the Alopecia Treatment Center. I'm not likely to see results for

4-6 months, if it's going to work at all. If I start seeing results, I'll show everyone my 'before and after' pictures. This is my last treatment option; I've decided against DCP. If this doesn't work, I'm going to allow myself to go gently and happily bald. The happy part will likely… Continue

Added by Cheri A on April 11, 2011 at 7:46pm — 14 Comments

A comforting hug!

Saturday I had taken a nap knowing my sisters and their hubbby;s and baby was coming over so I thought ok I best take sa nap, I askd my husband to wake me up so that I may put on a hair peice to look normal, did he wake me up?? NOPE! They all came in the door and yelled "wake up sleepy head" A good thig I had on thi velvet pink turban which is quite pretty and comfy , I explained to my husband as i was upset, why dint you wake me? of course he said I looked too peaceful to disturb, and my… Continue

Added by Lisa-Lynn Marini on April 11, 2011 at 4:10pm — 2 Comments

Was it destiny or just luck?

This I just can't figure out?? Why is it I have had to deal with alopecia areata now for almost 17 years, I just recently find this great website with people just like me (have never met anyone else with this condition before), and now in the last two weeks...I now have alopecia universalis? Yes, it's almost all gone now.



Because knowing there are so many people out in this world also dealing with this condition, I feel I'm handling this better then I would have. Don't get me… Continue

Added by Hope on April 10, 2011 at 12:26am — 13 Comments

Soul Surfer

Heyy, everyone I recently saw Soul Surfer and it inspired to look at things in a different perspective, so I figured I would tell you how and maybe it would inspire some of you guys too. :)

When I was nine I was at my home town Pawleys Island, SC, I was just enojoying a beautiful day in the place I love, the ocean, when some pretty big waves pulled me under, I was thrown onto jagged rocks with no control over where I went, of course I was only nine so I wasn't stong enough to fight them. I… Continue

Added by Rachel Taylor on April 8, 2011 at 10:10pm — 1 Comment

Will there ever be a cure for aa?

loosing every single hair.........

Added by manuel j. torres on April 8, 2011 at 6:42pm — 3 Comments

From happy to sad?

How the hell does that happen?

I felt great postng my nee photos of myself to show who I really am, but today I feel OMG what the hell was I thinking??

I woke up this morning had my shower looked in the mirror and all of a sudden I felt like sigorney weavor in Aliens and I was so disapointed in myself. I hve asked myself what did I ever do to deserve this? am I being punished for something wrong I have done?

Good Lord I hate these feelings I just want to wak up everyday and feel… Continue

Added by Lisa-Lynn Marini on April 8, 2011 at 8:17am — 4 Comments

I am finally doing it

i finally found the corage to smile in my new me photos. I'm finding it nice to finally be able to have the courage to show my family how I look and it feeels great.

Added by Lisa-Lynn Marini on April 7, 2011 at 7:05pm — 4 Comments

Question

I've been wearing a hairpiece for a year and a half now. I have two beautiful human hair wigs that I love and use wig tape. However, I still find myself in situations I don't know how to address and would love some advice.



I haven't been to an amusement park since before my hair fell out. My physics class is going to an amusement park next month, and I'm worried that my hairpiece will fall off on a ride. Has anyone gone to an amusement park with a hairpiece? Will I be able to go on a… Continue

Added by Lauren W on April 7, 2011 at 5:24pm — 5 Comments

Viva Las Vegas???

I was just curious if there was any one going to Viva Las Vegas? It would be soooo cool to meet some other alopecian's at this event. Let me know:)

Added by Kris Fenchel on April 7, 2011 at 10:16am — No Comments

Hi and where I am at

Hi everyone, I am Cynthia or Cindy for short. I love books, so it is no surprise I am a librarian^^;



I probably had Alopecia starting late last December or very early this January. I have had three appointments with the dermatologist so far. We did steroid shots the first two times. Not fun, and they haven't helped. I have probably lost 1/4 to 1/3 of my hair since January. I have recently started wearing scarves, headbands, and hats full time. This could easily change soon since my… Continue

Added by Cynthia Smith on April 5, 2011 at 4:38pm — 3 Comments

No matter what they say!

Don't look at me Every day is so wonderful Then suddenly It's hard to breathe Now and then, I get insecure From all the pain, I'm so ashamed I am beautiful no matter what they say Words can't bring me down I am beautiful in every single way Yes, words can't bring me down So don't you bring me down today!!



I have listend to this a few times now whenevr I felt like I had to cry from just looking at myself in the mirrior seing a bald me feeling vey ugly.

Once I heard this song las… Continue

Added by Lisa-Lynn Marini on April 5, 2011 at 7:59am — 2 Comments

When the hair finally grows back...?

When the hair finally grows back why does it take so long to actually grow in length. Is that part of the alopecia? Does it always grow out like baby hair and thicken and grow slowly. How did your new growth come in?
Thanks.

Added by Supportive Mom on April 4, 2011 at 5:00pm — 3 Comments

Uncomfy!!

I had a wonderful week-end with my neice Saturday and the next day zi hade my younger sister over for dinner which meant ,'wig time again" I noticed towards the ed of the evening I was getting severe headaches, pain from my wig in my forehead and I kept trying to adjust it. When y sister said to me" We are all family here why dont you jst take it off and continue to ave fun,we wo't judge you in anyway, you are who you are and I stil love you.

Those kind words nearly made me cry, however I… Continue

Added by Lisa-Lynn Marini on April 4, 2011 at 8:12am — 2 Comments

Here we go again

A few weeks ago, I commented that my hair was probably thicker than it had been in a year. Well, it's falling out all over the place--again! New spots, more spots. I have a steroid foam I could use on the spots, but I'm not sure if I'll use it. I don't really care...okay that's not entirely true. Not sure if I'm starting to accept it (AA), or if I just have a bit of an attitude today! :)

Added by Michelle on April 3, 2011 at 11:00pm — 2 Comments

Revlon Scorpio wig

I was wondering if anyone has the Revlon Scorpio wig and what are your thoughts. It has been named one of the best wigs of the year and I am considering buying it.

Thanks Wendy



target="_blank">http://www.bestwigoutlet.com/Wigs-Scorpio.htmland what are your thoughts.

Added by Wendy on April 3, 2011 at 10:18pm — 4 Comments

I finally found a miracle eyeliner!

Ever since I started wearing makeup, I've always had difficulties with my eyeliner and it has gotten worse since I was diagnosed with AU 4 years ago. I never realized that eyelashes catch some of your makeup and prevent it from oozing down your face! I've tried all kinds of different eyeliners and have even gotten it tattooed on. The tattoos were great when I first got it done, but they've faded to a dark grey and don't look all that great anymore so I'm back to drawing over them. Just about… Continue

Added by Kendal Rauh on April 3, 2011 at 10:19am — 3 Comments

I wish I had the balls!

I wish I could walking around with my wig off and feel good about myself. I see all these girls on here going out without anything on their head. I wish I had the balls to do that, I would feel like people are talking about me and I can't stand it when people look at me... Guys have it easy, they can pull off not having hair and walking around. Girls, not so much, people see a girl with no hair and they just look at us like we are not human. I really wish it didn't bother me that people look at… Continue

Added by Jessica on April 3, 2011 at 12:00am — 4 Comments

The best thing one could hear

I asked my partner if he loved me even though I was BALD?
The Response was Your are not bald but hair less. You are my hair less German... and I love you...

Added by terry koepsel on April 3, 2011 at 12:00am — 2 Comments

I love you my bald and beautiful sista!

This post is dedicated to my beautiful sister, Brenda.



I lost all of my hair. It took about 3 years, but the end came quickly. I don't know if it's universalis or totalis or whatever, I don't really care. It's all gone. But that's fine now.



It was when my sister started losing her hair that I felt sick inside all over again. My sister had THE hair. Beautiful, naturally curly, she is talented at creating styles and being complimented all the time on how awesome her hair… Continue

Added by Becky on April 2, 2011 at 10:24am — No Comments

Newly diagnosed and looking for experience

I am mom of 14 month old Anthony who, over the last 3 weeks, has lost all of his hair. We confirmed today what we suspected was alopecia areata, in his case totalis, and are doing blood work to confirm there are not any further issues. The doctor wants to treat him with steroids and this was initially alarming to me...giving a baby steroids (not that his petite 20 lb frame couldn't use some bulking). I asked about side effects and they didn't really have an answer, nor have I been able to find… Continue

Added by Heather Ramon on April 1, 2011 at 6:54pm — 14 Comments

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