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Been struggling with AA for twenty years. For me it never ever quite went away. It would move around the back of my head away from my direct view where it’s easier for me to ignore. Once in a while I’d get energized and want to fight it, so I’d start a cortisone and Minoxidil treatment course where for a few months I’d get shots every six weeks. No significant improvement happens, and I’d start fretting over the impact of all the cortisone and so I’d eventually give up and stop the treatment…
ContinueI recently came across the below article in the New York Times:
"Four Women Bond Over the Beauty in Their Baldness"
A few Excerpts from the article:…
ContinueAdded by Cheryl, Co-founder on April 7, 2016 at 12:08am — 1 Comment
i feel really alone, isolated & left out.
my almost 5 year relationship hurts me because I am always to hurt.
its so hard to let someone love you when you don't love yourself.
i don't know what hurts more.
losing someone you love because of this
or
loving someone who let you lose yourself.
Added by Lishah on April 2, 2016 at 7:30pm — No Comments
I've been seeing a psychiatrist for the past few weeks because I felt like I just had too. My anxiety picked up sometime last month, it became a physical thing to me & it's not always about my alopecia (so I think). Lately I've been getting anxious in my dreams, hearing my troubled thoughts as I sleep so when I wake up I'm still anxious and being anxious is all I could think about.
I understand its an internal thing, my subconsious, my stresses and worries, dreams of suicide,…
ContinueAdded by Lishah on March 29, 2016 at 11:35am — No Comments
Has anyone gone to Mexico or the Dominican Republic to purchase the xeljanz? The name of the pharmacy where the drug was filled.. Can you buy multiple packages of the xeljanz? Thanks, margaret
Added by mrappe7@gmail.com on March 28, 2016 at 3:00pm — No Comments
I have had alopecia universalis for over a year now. My hair did grow back but it fell again.
My earlier medication consisted of betason ( steroid) tablets, tenovate cream and protopic ointment.I also do occlusive phototherapy.
As the improvement is very less, my doctor now suggested I try kenacort injections 40mg once for 3 months.
Thoughts on the injection?
Added by Ithastogetbetter on March 25, 2016 at 8:30am — No Comments
I have alopecia universalis.
I wanted to know if drinking (i.e., the consumption) of alcohol on a regular basis prevents recovery. I couldn't find any definite answers online as to whether it makes the hair fall out or not.
Please do reply.
Thanks!
Added by Ithastogetbetter on March 25, 2016 at 8:30am — 7 Comments
EGGHEADS vs A CLEARER HEAD: Mission Accomplished with Bonus Miracle
This blog, written on 9th August 2105, will be published immediately after the show is…
ContinueAdded by Sue Hampton on March 24, 2016 at 2:30pm — 1 Comment
According to an interview with Vulture that I found on Bet.com, actress Viola Davis struggles with alopecia.
Many have noted that there seems to be an error in the article: The fact that stress does not cause alopecia, but may trigger it.
ContinueViola Davis is a natural beauty, but there was a time when the actress really struggled with revealing what was…
Added by Cheryl, Co-founder on March 23, 2016 at 1:00pm — 14 Comments
Has anyone had experience with fat cells harvested from your own body and injected into your scalp to arrest and promote hair growth?
I'm going for an interview Tuesday to see if I'm eligible to join this particular study. The study is in NYC.
Added by sabrinaann on March 20, 2016 at 12:00pm — 3 Comments
Everyone keeps telling me to be positive. It will be fine. Don't worry.
But what if doesn't get better? I can't wear a wig for the rest of my life.
I'll explain more on my situation in the next post.
It feels good to find other people going through the same thing!
Added by Ithastogetbetter on March 18, 2016 at 2:30am — 5 Comments
Well, same story as last time as it is every time. It was the second week before Christmas. I ran my hand through my hair and there it is. The size of a dime, it grew and then 3 weeks later right after the new year, there was now 2. One larger than the other, like siblings. One trying to out do the other - then at the wonderful size of Almost Silver Dollars, I find a third sibling hiding at the back of my head......
Same as the other two- about the size of a dime - then the hair loss…
ContinueAdded by kat533 on March 8, 2016 at 2:30am — 4 Comments
Added by Beth on March 6, 2016 at 6:11pm — 2 Comments
My level of acceptance toward the general ineptitude of my white blood cells is as inconsistent as my motivation to study.
More often than not, I could not give a fraction of a shit that my hair is basically absent. My reasoning there is mostly along the lines of "What would be different if I had it anyway?"
Looking pretty? Where does that get me? Friends? No. A job? No. A date? Maybe, but that's really not a priority at the moment due to my innate lack of skills in that…
ContinueAdded by Cue Ball of Steel on March 3, 2016 at 1:00am — 11 Comments
Added by Jcortez05 on February 29, 2016 at 8:54am — 7 Comments
Added by Michelle on February 24, 2016 at 12:25am — 15 Comments
This might be long but I am going to speak from my heart!
I was diagnosed two years ago (March 2014) after a bad breakup. I believe that stress is what triggered the disease to manifest. I went to my doctor and was completely unimpressed by her shoulder shrug response, "you just have one of those medical mysteries...I can give you steroid injections but it's no guarantee." I was already pretty health conscious at the time and said no thanks I will figure this out on my own. She gave…
ContinueAdded by miss_melissad on February 23, 2016 at 11:30am — 2 Comments
Added by Cher0 on February 22, 2016 at 4:52pm — No Comments
I'm sort of lucky I feel. Firstly I was going to post how long it has been since I last posted.. but I realised I don't post as I don't often think about my Alopecia very much.
The only time I think about it is when it is time I look for a new wig... This one is a little past it's use by date and I'm generally bored of it. But the hardest thing is picking a new one... what style? What colour? How much will it cost etc.
This is a big decision and often feel I am wasting a lot of…
ContinueAdded by KFlame on February 21, 2016 at 3:00pm — 4 Comments
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