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I have Alopecia Areata but at this time it is in remission but now because of other autoimmune diseases and Parkinson's and stress from a death of a very close friend my hair is falling out all over my head from the root. I can see the root ball and also pustules on scalp and what looks like grains of sand here and there. My hair is so thin now it is just wisps of long hair very thin also like those who have had chemo. I have tried antibiotics, antifungals, given to me by Derm but nothing is…
ContinueAdded by itzmejudy on June 7, 2016 at 2:05pm — No Comments
Hi all,
I was on the radio this morning sharing my alopecia journey. If interested click on the link, scroll to the 1pm showtime and move the audio cursor to 1:30pm. I am on the show from 1:30 - 2pm.
Added by Jennifer Krahn on May 24, 2016 at 4:00pm — No Comments
I am living with my alopecia areata, without wearing wigs since 2011. I have no issue being bald in the world. I am glad living free of the "when-will-I-lose-my-hair" nightmare. I am a musician and am photographed often. I see in my photos that I am washed out; one big beige ghost-like blob.
Does anyone out there have any tutorials or info on learning contouring with make up for those of us who don't wear wigs and live bald in the world? I am certain that the correct makeup will help…
ContinueAdded by Lili Añel (aka Eulalia) on May 23, 2016 at 9:30pm — 3 Comments
Added by autumn on May 16, 2016 at 2:30pm — No Comments
Hi all. My son was diagnosed with alopecia Totalis in the beginning of April 2016 he's 2 1/2 years old. I'm noticing some regrowth without any meds but it's almost like peach fuzz texture and white in color. Does anyone no why it's looking like this??
Hi, I am based in London and am now looking to wear a wig. I cannot stand to see my sorry face in the mirror anymore without hair. Have looked at wigs before in various shops, but have left in tears. Anyone who knows of a good wig shop or supplier, I would love to hear from you.
Added by Vicki on May 1, 2016 at 1:39pm — 11 Comments
Hi there beautiful people!
My testimony with alopecia and maybe how this going to help you. First of all I’ve been suffering from alopecia, one third of my life. I know how hard it is to deal with it, and I want this to stop just like you. They say it’s is incurable but sending people into space. We cannot wait for them to come up with a cure. If they does it’s okay, but ‘m not going to wait for that.
I feel a great responsibility helping those who are also suffering from this…
ContinueAdded by David on May 1, 2016 at 6:30am — 4 Comments
Been struggling with AA for twenty years. For me it never ever quite went away. It would move around the back of my head away from my direct view where it’s easier for me to ignore. Once in a while I’d get energized and want to fight it, so I’d start a cortisone and Minoxidil treatment course where for a few months I’d get shots every six weeks. No significant improvement happens, and I’d start fretting over the impact of all the cortisone and so I’d eventually give up and stop the treatment…
ContinueI recently came across the below article in the New York Times:
"Four Women Bond Over the Beauty in Their Baldness"
A few Excerpts from the article:…
ContinueAdded by Cheryl, Co-founder on April 7, 2016 at 12:08am — 1 Comment
i feel really alone, isolated & left out.
my almost 5 year relationship hurts me because I am always to hurt.
its so hard to let someone love you when you don't love yourself.
i don't know what hurts more.
losing someone you love because of this
or
loving someone who let you lose yourself.
Added by Lishah on April 2, 2016 at 7:30pm — No Comments
I've been seeing a psychiatrist for the past few weeks because I felt like I just had too. My anxiety picked up sometime last month, it became a physical thing to me & it's not always about my alopecia (so I think). Lately I've been getting anxious in my dreams, hearing my troubled thoughts as I sleep so when I wake up I'm still anxious and being anxious is all I could think about.
I understand its an internal thing, my subconsious, my stresses and worries, dreams of suicide,…
ContinueAdded by Lishah on March 29, 2016 at 11:35am — No Comments
Has anyone gone to Mexico or the Dominican Republic to purchase the xeljanz? The name of the pharmacy where the drug was filled.. Can you buy multiple packages of the xeljanz? Thanks, margaret
Added by mrappe7@gmail.com on March 28, 2016 at 3:00pm — No Comments
I have had alopecia universalis for over a year now. My hair did grow back but it fell again.
My earlier medication consisted of betason ( steroid) tablets, tenovate cream and protopic ointment.I also do occlusive phototherapy.
As the improvement is very less, my doctor now suggested I try kenacort injections 40mg once for 3 months.
Thoughts on the injection?
Added by Ithastogetbetter on March 25, 2016 at 8:30am — No Comments
I have alopecia universalis.
I wanted to know if drinking (i.e., the consumption) of alcohol on a regular basis prevents recovery. I couldn't find any definite answers online as to whether it makes the hair fall out or not.
Please do reply.
Thanks!
Added by Ithastogetbetter on March 25, 2016 at 8:30am — 7 Comments
EGGHEADS vs A CLEARER HEAD: Mission Accomplished with Bonus Miracle
This blog, written on 9th August 2105, will be published immediately after the show is…
ContinueAdded by Sue Hampton on March 24, 2016 at 2:30pm — 1 Comment
According to an interview with Vulture that I found on Bet.com, actress Viola Davis struggles with alopecia.
Many have noted that there seems to be an error in the article: The fact that stress does not cause alopecia, but may trigger it.
Continue
Viola Davis is a natural beauty, but there was a time when the actress really struggled with revealing what was…
Added by Cheryl, Co-founder on March 23, 2016 at 1:00pm — 14 Comments
Has anyone had experience with fat cells harvested from your own body and injected into your scalp to arrest and promote hair growth?
I'm going for an interview Tuesday to see if I'm eligible to join this particular study. The study is in NYC.
Added by sabrinaann on March 20, 2016 at 12:00pm — 3 Comments
Everyone keeps telling me to be positive. It will be fine. Don't worry.
But what if doesn't get better? I can't wear a wig for the rest of my life.
I'll explain more on my situation in the next post.
It feels good to find other people going through the same thing!
Added by Ithastogetbetter on March 18, 2016 at 2:30am — 5 Comments
Well, same story as last time as it is every time. It was the second week before Christmas. I ran my hand through my hair and there it is. The size of a dime, it grew and then 3 weeks later right after the new year, there was now 2. One larger than the other, like siblings. One trying to out do the other - then at the wonderful size of Almost Silver Dollars, I find a third sibling hiding at the back of my head......
Same as the other two- about the size of a dime - then the hair loss…
ContinueAdded by kat533 on March 8, 2016 at 2:30am — 4 Comments
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