All Blog Posts (5,829)

Anthralin Cream 2016

I am curious if anyone still gets anthralin cream prescibed, if it helps your hair regrowth, and side effects you have experienced.

Added by Beth on March 6, 2016 at 6:11pm — 2 Comments

It comes in waves

My level of acceptance toward the general ineptitude of my white blood cells is as inconsistent as my motivation to study.

More often than not, I could not give a fraction of a shit that my hair is basically absent. My reasoning there is mostly along the lines of "What would be different if I had it anyway?"

Looking pretty? Where does that get me? Friends? No. A job? No. A date? Maybe, but that's really not a priority at the moment due to my innate lack of skills in that…

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Added by Cue Ball of Steel on March 3, 2016 at 1:00am — 11 Comments

Elevated ANA

Do any of you have elevated ANA? Mine started out mildly elevated and now is very high but I've been tested for several diseases and al negative .. I did however, notice when I attempted gluten free my ANA was at its lowest.. I went back to gluten and it has been consistently elevated .. I also had extremely low vitamin D and was under a ridiculous amount of stress and had just had major surgery 3-4 months before I lost my hair so I'm not quite sure which triggered it but was curious if any of… Continue

Added by Jcortez05 on February 29, 2016 at 8:54am — 7 Comments

How to find the courage to go out bald and stop hiding behind the wigs?

Hello fellow alopecians! Been stalking some of your pictures and sexy bald heads and I'm inspired to want to show the real me to the world too. Thing is I know that if (for example)I take the bus to work tomorrow without a wig I predict that there will be one or perhaps a few moments where I will feel very self-conscious. And that's what stops me. I want to know how some of you found the courage to finally step out and what steps did you take? How did you do it? Did you go drastically say "from… Continue

Added by Michelle on February 24, 2016 at 12:25am — 15 Comments

Healing naturally

This might be long but I am going to speak from my heart!

I was diagnosed two years ago (March 2014) after a bad breakup. I believe that stress is what triggered the disease to manifest. I went to my doctor and was completely unimpressed by her shoulder shrug response, "you just have one of those medical mysteries...I can give you steroid injections but it's no guarantee." I was already pretty health conscious at the time and said no thanks I will figure this out on my own. She gave…

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Added by miss_melissad on February 23, 2016 at 11:30am — 2 Comments

Topical steroid experience?

So at the moment my Alopecia is very minimal and I was prescribed a topical steroid known as derma-smoothe... Has anyone tried this? If so what were the results? Did you experience any side affects? If so please specify?
Thanks!

Added by Cher0 on February 22, 2016 at 4:52pm — No Comments

That time again

I'm sort of lucky I feel. Firstly I was going to post how long it has been since I last posted.. but I realised I don't post as I don't often think about my Alopecia very much.

The only time I think about it is when it is time I look for a new wig... This one is a little past it's use by date and I'm generally bored of it. But the hardest thing is picking a new one... what style? What colour? How much will it cost etc.

This is a big decision and often feel I am wasting a lot of…

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Added by KFlame on February 21, 2016 at 3:00pm — 4 Comments

Any luck with Dithro Cream

I would like to know if anyone has tried and had success with dithro cream?

Added by Yessi on February 18, 2016 at 12:24am — 1 Comment

Has anyone ever had an auto immune blood test???

Has anyone ever had an auto immune blood test???

Added by Nat on February 17, 2016 at 11:59pm — No Comments

Has anyone had success with a clean diet? Does anyone know what causes alopecia? Is it auto immune and do you get multiple of them? I'm so scared!! Any advice would be great.

Has anyone had success with a clean diet? Does anyone know what causes alopecia? Is it auto immune and do you get multiple of them? I'm so scared!! Any advice would be great.

Added by Nat on February 16, 2016 at 9:56pm — 4 Comments

My story

Hi. My name is Hannah. I've had alopecia since I was 6 years old, so 11 years now. That first year, I lost EVERYTHING... No eyebrows, no eyelashes, no hair. We decided to do wigs for a while. But I HATED the wig I had. It was itchy, hot, would move around, and looked completely fake. Well on it's own, my hair started to come back in. A completely different color than before. I had blond hair when it fell out and now I had Brown hair coming back in. Around age 12, I had super thin hair because… Continue

Added by Hannah on February 12, 2016 at 6:08pm — 6 Comments

Prednisolone info

So I've recently started taking Prednisolone tablets again (the last time I took it was back in mid 2014) and was just wondering if anyone knew the time it took to take effect. The last time my AA was much worse (barely had any eyebrows and had quite a few noticeable patches) and by the end of the treatment I had full regrowth. 

This time around, my AA is in a much better place (but still not the greatest) and I'm starting to get worried as I'm two weeks into the treatment and only…

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Added by Jack on February 6, 2016 at 7:00am — 18 Comments

Toppers

I hope this question isn't far fetched but I've started wearing toppers and it makes my scalp so sore. I feel it pulling at my hair all day and aside from how it looks, I'm thinking about the discomfort. My question is are they supposed to hurt and pull? Surely there is a less painful way to conceal diffuse hair loss. Any input would be great.

Added by ataloss42 on February 5, 2016 at 10:41pm — 7 Comments

Need help! So many questions regarding wigs

Hi. I have recently lost my hair over 4 months. Its not coming back. I am distraught. I am having a very rough time wearing wigs esp. synthetic. I purchased a human hair wig and its pouring rain today. I was afraid to wear it outdoors. I wore a bandana and I look awful. This is pushing me over the edge. How do you cope with this? It broke my heart to take off my hair last night and put on a stand. This is making me want to die. I cannot go bare as I have scarring and its not for me. On th?e…

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Added by Dianna 845 on February 3, 2016 at 5:00pm — 34 Comments

Alopecia Areata

Ive gotten alopecia for the past year and I went to a dermatologist 3 months ago, she prescribed some oral meds for 10 days and also shampoo and a spray, these here worked very little.  I have a follow up appt in 2 days and she is supposed to do steroid injections now, does anyone know if these here will work?  Ive never had this and a year ago it started with a small circle behind my head, now its two large ones and 4 small ones on my beard.  I don't want to waste my time and money on some…

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Added by alexgarcia on January 28, 2016 at 8:00pm — 2 Comments

Low Dose Naltrexone May Help So Many

My 7 year old daughter will be starting LDN this week.  This drug does wonders for autoimmune conditions by blocking endorphins through the night.  The body then releases an overabundance of endorphins the following day to compensate. The endorphins heal inflamation (of course anyone with alopecia is inflammed.  C Reactive protien blood test will confirm this) and balance the immune system, targeting the true problem, rather than a temporary toxic drug.  There are no side effects, not…

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Added by pterese on January 27, 2016 at 11:44pm — 2 Comments

Just catching up

First I'd like to say Happy New Year ( I know I'm like a month late) I haven't added a blog post in a while and I thought I would go ahead and get it over with.

Everything has been great with me lately I'm doing amazing in school, I have started hanging out with better people and I like who I am and who I am growing up to be. I'm going to turn 18 soon and that’s such a big step and I cant wait. I have started taking biotin vitamins and in the last few weeks my nails have strengthened…

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Added by McKenzie Anne on January 23, 2016 at 3:00pm — 1 Comment

Venting

Hi everyone, if feels so weird typing right now but, I just wanted to vent about my condition. I have alopecia universalis and I HATE having this condition. I know that may be typical of everyone else that has this condition but, again, I'm venting. I've had alopecia since I was about 21/22. It has been a devastating journey. I've told myself a thousand times It doesn't matter if you have hair or not you are still beautiful and then other times I walk past myself in the mirror and I can't…

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Added by rshakiyla on January 22, 2016 at 7:56pm — 4 Comments

Taking charge

I have decide to take charge.

Although I have no control of what hair is going to fall out I do have control of what I can do about it.

I realize that no matter what I will be beautiful .

This Wednesday I am going to start taking control of my hair. I am not going to shave my head but I am going to cut my hair super short and change my style of hair all together. I feel like this is the next step and that this will make me feel better about the whole situation. I am not…

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Added by Brie on January 18, 2016 at 9:30pm — 9 Comments

Will I have alopecian babies?

It has been a while since I have been on the site. The holidays and school took me away for a while but things have settled down again and I intend to do a lot more posts on Alopecia World in the coming months.

I have much news to share, where shall I start. . . .

It was a wonderful holiday season for me, one of the best in years. I had a house full of people for about two weeks straight and I loved every moment of it. Anyone that knows me knows that I love the holidays…

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Added by Kristie "IronDoll" Howard on January 18, 2016 at 4:30pm — 23 Comments

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