Hi everyone, if feels so weird typing right now but, I just wanted to vent about my condition. I have alopecia universalis and I HATE having this condition. I know that may be typical of everyone else that has this condition but, again, I'm venting. I've had alopecia since I was about 21/22. It has been a devastating journey. I've told myself a thousand times It doesn't matter if you have hair or not you are still beautiful and then other times I walk past myself in the mirror and I can't…

I have decide to take charge.

Although I have no control of what hair is going to fall out I do have control of what I can do about it.

I realize that no matter what I will be beautiful .

This Wednesday I am going to start taking control of my hair. I am not going to shave my head but I am going to cut my hair super short and change my style of hair all together. I feel like this is the next step and that this will make me feel better about the whole situation. I am not…

It has been a while since I have been on the site. The holidays and school took me away for a while but things have settled down again and I intend to do a lot more posts on Alopecia World in the coming months.

I have much news to share, where shall I start. . . .

It was a wonderful holiday season for me, one of the best in years. I had a house full of people for about two weeks straight and I loved every moment of it. Anyone that knows me knows that I love the holidays…

I have been getting Kenalog 10 ( injections of steroids) for about the past 5 months. I go every month on the exact day. I have notice only in spot hair growth, however every time I go I also notice 2-3 new bold spots and some older ones just spreading. I get sick every time I get the injections ( head hurts, nausea, dizzy) I just cry, not to mention the side effect of the dents in the skull ( Atrophy) . I started to get panic attacks and major anxiety that led me to the ER. I am now taking…

Hello,

I am wondering if anyone has taken this blood test and what your numbers were.  It is a test for inflammation.  My daughter was a 12.4. Normal is a 0.0 to a 4.4.  Clearly she has silent inflammation, a very dangerous condition that is becoming chronic for her.  After many blood tests, this is the only abnormality showing up.  I believe the inflammation is causing the autoimmunity.  I an curious if anyone else is having this experience.  The name of the test is the C…

Hi everyone,

I am from Australia Melbourne, 30 years old.

i decided to write on this blog to talk about my progress.. i have had alopecia since august 2015. The sizes of my patches vary and i am lucky that i can hide them well. however my hair is thinning so not sure how long that will last. anyways! I had a miscarriage in september and beleive that stress was the factor and the trigger of alopecia..

After the miscarriage i went to…

Hello,  We are in the process of bloodwork.  It has been a year and I refuse to accept that my daughter will never have hair again.  

Throughout our journey I have recently had much bloodwork done.  My daughter's results showed extreme infammation in her body.  Her C reactive Protien was a 12.2.  This confirms that she is indeed inflammed.  Silent inflammation of course if very bad news for long term health: cancer, stroke, diabetes, on and on.  

We are doing an…

Hey has anyone tried acupuncture and found positive results back?? I've been doing it for a month now, so I'm just curious..

I'm 18 years old and have been suffering from Alopecia for about 3 years. I still have a full head of hair (except for a patch on my right temple) but I have struggled to keep my eyebrows intact for the duration of the 3 years. I also am unable to grow any facial hair anymore and have very little body hair. My dermatologist recently gave me a prescription for a medication called Mycophenolate Sandoz (Mycophenolate Mofetil 500mg). I've taken oral immunosuppressants before (cortisone tablets…

Or rather... Don't hug me unless you're just actually giving a hug for the sake of giving a hug or if you're someone I love.

I love giving hugs and getting hugs. I meet a new friend? They get a hug. I see my family? They get a hug. Even my mom's co-workers got hugs.

But what I don't like are pity hugs. It always seems to shock me what people will say to me when they ask: "Can I give you a hug?"

Stupidly I always fall for it. Because I like hugs. I like the warmth and the…

Hello everyone,

How is everyone doing? No I'm facing a difficulty. I don't know what I want to study(That's right no complaining about my alopecia! Despite having alopecia universalis everything is great.)! Right now I'm in my last year for my IT Degree. Ofcourse I will finish this. I just don't know what I should do after I finish.

I could work for awhile, but taking a break from studying sounds like a bad idea..

I was thinking about physiotherapy. I love the humanbody…

I really would like to dye my hair to get rid of my grays. The last time i dyed it was about a year ago. Since then my hair worsened and then repaired itself for the most part as far as my alopecia is concerned, but I don't want to hurt the progress with harmful dyes. Any suggestions?

P.S. I'm sorry if I sound vain, but I hate the gray! I know I can't be the only one who thinks this way, right?

This is all getting a bit much for me, I recently shaved my head, which doesn't bother me because I always got plenty of looks anyway, but the years and years of not having my hair, always getting stared at and always feeling out of place in friend groups, I was messaging a friend the other night, we both feel comfortable enough to talk about our problems and when I confessed to them about how I felt, I literally burst into tears and started crying, I just started wondering why it had to…

Anyone ever tried Denise Russo's Top Secret Haircessory? I bought an expensive topper and had it dyed to match my hair but am finding it somewhat bulky at the top; any way to remedy this? I believe it looks somewhat natural-just seeking opinions.

Thanks,

Kim

I'm just seeking feedback about Lexapro and hair loss. I'm considering a return to it as my depressive/anxiety symptoms are much greater in need of attention than my hair. Just having slowed from a nine month massive shedding, I'm apprehensive to try a medication that might launch another shed, but also desperate to relieve this horrible anxiety and oppresive sadness. Any insight would be greatly received.

Does anyone tell me how to dye a human hair wig, please? I got a wig in 1B colour but my hair colour is darker.

I just received my new, custom made wig today.  

It is simply gorgeous!

I have a small head, and this wig fits perfectly.

The unique colour I chose turned out perfect.

It has european human virgin remy hair.

It is the best quality wig I have ever owned.

It arrived in 28 days.

The prices are in USD; even with the current CDN exchange rate, it was still a good deal.

With several emails back and forth, Melesha (who is located in…

In past couple of years, I have gotten few dime and quarter size bald spots around my head.  These got little bit bigger and bigger.  By coincidence or by stress induced, late last year, after my father's passing, I've lost 90% of my hair in weeks.  I've treated with routine steroid shots; but the hair loss continued until pretty much "pure" bald.

After one of the visits with my local dermatologist, she suggested to visit a doctor at Johns Hopkins University Hospital in Baltimore.  So…

I am looking for someone who can assist with a custom-fit human hair wig for my daughter who is an active person.  I have dealt, in the past, with a person in Houston with poor results.  Please share any helpful information you might have regarding wig professional in central Texas.  Thanks.