All Blog Posts (5,826)

If You Are Happy, Tell Your Face and SMILE

We humans walk around so consumed by our thoughts and emotions. We often times don't realize how we are presenting ourselves to the world.

As a bald head wearing alopecian I often find people looking at me, when I look back at them they seem very uncomfortable at first.  The thing that I have found that helps to ease this situation the most is to flash a "big ole" SMILE at them.  This works on all ranges of people children to grumpy old men.

Have you ever noticed that when…

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Added by Kristie "IronDoll" Howard on November 14, 2015 at 3:27pm — 4 Comments

Belittling My Alopecia

Hello Everyone! I need to vent...

Not only am I loosing my hair, my image, my self-worth, my sense of femininity, at 29, but no one seems to understand. I finally told my mother after several months and she said "well, things like cancer happen as you get older. Its not that bad. It could be worse." My sister in law is belittling the situation too. I feel like no one is LISTENING. Just HEAR me. This is HARD. I know it would be hard for them if it happened to them too!

I needed…

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Added by Veronicasteele on November 10, 2015 at 12:02pm — 8 Comments

A little update

Well... I shaved my head again. I was a little sad about it, but I feel like it's all for the best.  Whenever I shave my head and go back to wearing wigs I feel that I'm taking back control.  It's the way I cope with alopecia. I hate that when my hair tries to grow, another spot forms.  I decided I didn't want to deal with it anymore. So right now I'm back to wearing my wigs. 

Earlier I was thinking about how much things have changed over the past few years.  Last year I started…

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Added by Mackenzie on November 9, 2015 at 11:17pm — 2 Comments

Anyone else angry about this?

Have recently been diagnosed with alopecia areata. it has not improved my life at all and has made me a more hateful, resentful person. Anyone else angry about this?

Added by michellelc23 on November 6, 2015 at 11:47am — 1 Comment

Still do not have the courage to accept my baldness and just uncover and let go.

 

When my oldest son asked me to let him see.  I hesitated but I pulled off my wig and I looked at him, he just stared as if he did not believe what he was seeing but he was very supportive with me and he said well one day when I get a lot of money I am going to send you to Bosley I promise you momma. How sweet of him. I know that day is far away. I just need to find something that will give me confidence like a wig where I can feel like my own hair, can…

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Added by helen30 on November 6, 2015 at 10:00am — 1 Comment

Clueless in N.C.

Greetings!  I am newly diagnosed with frontal fibrosing alopecia, and had no idea what it even was.

I am curious if anyone on here has experienced this same type of alopecia, and what I can expect?   I feel as if I am sort of dancing in the dark here...

comments or advice welcome

Elizabeth

Added by ElizabethRYT on November 3, 2015 at 9:00pm — 4 Comments

Raising awareness

Ok, ive never blogged anything before unless it was for a school project but I just feel the need to vet now because unless I release some of these thoughts I'm going to go mad.

Ok so I'm originally from Ireland and ive come to Liverpool for university, ive suffered from alopecia arearta I think its called for about 8 years or so now and I'm only 18. I find that there is tremendous pressure on just regular kids to socialize and have relationships and party etc. the standard "Uni…

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Added by jcampbell13a on November 2, 2015 at 1:26pm — 1 Comment

Something I read that prompted me to join

I am responding to a woman named Rose who felt her husband was not as attracted to her since AU.  I am 67 years old and have been married for 33 years. Two years ago, I developed AU---probably from the death of my dear sister which took me by complete surprise---I don't  know if that was it but it happened after her death. My husband has always thought I was beautiful, but wasn't very verbal about it.  Around the age of 60 he became very vocal about how he felt about my attractiveness---it…

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Added by lake lady on November 2, 2015 at 9:22am — 4 Comments

Feeling torn

I have not blogged in a really long time. I just need to vent. Back in August of 2013 I cut/shaved all my hair off for the second time. My hair was very thin and my bald spots were growing. I was sick of losing hair and was ready to take control of my alopecia. It was a good thing I did because in December of that year I had a large bald spot on the top of my head. I wore wigs from 2013 til May/ June of this year. Back in April/ May I noticed I had very few bald spots and decided to try to…

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Added by Mackenzie on October 29, 2015 at 12:30am — 4 Comments

Halloween

That moment when you decide to be Rapunzel for Halloween. I'll update how this goes... A bald Rapunzel, who woulda thunk?

Added by Jessica Hoschouer on October 27, 2015 at 7:16pm — 1 Comment

How alopecia has turned me into a coward

Hi Everyone,

First and Foremost im kind of glad(and sad in another way) to have found and be a part of platform full of Humans who think,feel,behave and have suffered the same way as i did..

Im Santhosh a 25 Year Old Graduate from India and I've been Suffering from Alopecia for Nearly 15 Years now,Ive lost my Eye Brows & Eye Lashes(Albeit not Completely but there are Circular Patches plenty of them infact) and Has Started to Lose Hair in Patches on My Scalp off…

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Added by Santhosh on October 25, 2015 at 2:00am — 7 Comments

Revelations of an Alopecian (a journey into self-acceptance)

I wrote this blog post on my art website about a year ago, and having just discovered the Alopecia World website, have decided to share it here for fellow alopecians.  Any comments are welcome.

This post is a departure for me, in that I normally limit my musings to those directly related to the subject of art or teaching. But to some extent, my art has always…

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Added by Dreambird on October 23, 2015 at 4:35pm — 3 Comments

What are the safest wig tapes?

Dear Alopeciaworld members,

I started wearing a hair system just one month ago. My dad was horrified when I told him as he is worried about the long term health effects of wearing adhesive on my scalp on a daily basis. I have also become concerned, and have started doing research.

I came across some postings and other websites and have taken notes on what chemicals and brands to avoid. Since many of you have done tons of research, can you please tell me what tapes you…

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Added by Kasia on October 18, 2015 at 4:00am — 2 Comments

First Experience

For the first time in the 15 years that I have had Alopecia Universalis I started to grow hair. It started a few months ago in July, I noticed a little stubble here and there on my head I kept an eye on it not wanting to get too excited because I do have a condition that refuses to let hair grow. A few weeks passed and it kept growing in to these "fuzzies" , so I decided to take pictures of its progress. Now more weeks have passed and the once stubble had turned into short strands of hair in…

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Added by McKenzie Anne on October 17, 2015 at 11:30am — No Comments

The Bulls at the School

So here I am upset at a situation.  Upset at peoples reactions.  My daughter who is in 5th grade and just entered the middle school and age of hormones has just faced the cruelty of people.  My daughter was diagnosed with Alopecia 3 years ago.  She did not let it make her frown.   She did not let it make her think she was anything less.  The way she explained her condition was "my hair is allergic to my head".  Positive and confident she was until today....

  Lunch time comes.  A few…

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Added by alohagirl on October 14, 2015 at 11:35pm — 11 Comments

Bald is Beautiful

My daughter is working on her Gold Award in Girl Scouts. Her topic is Bald is Beautiful. She chose this because her cousin (my niece) has Alopecia. She developed it when she was 2 and is now 8 years old.

Does anyone here live in the Somerset County NJ area?

She could use some input on support groups in the area.

Thank you in advance.

Added by doreenann on October 12, 2015 at 11:40am — No Comments

Regrowth!

It seems a bit crazy to be excited by one, tiny, half inch long brown hair, a hair so inconspicuous that I thought at first it must have come from our new kitten, but there it is among the white hairs. And as I stared at the top of my head, losing and then refinding that minuscule hair, I realized that the sides are undeniably filling in more. I know it is a bit far fetched at this point, but I can almost imagine getting a hair cut, a short, close to the head hair cut. And the funny thing…

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Added by GardenJess on October 9, 2015 at 8:30pm — 1 Comment

Spots painful?

are the spots in alopecia areata supposed to be pink inflamed and painful? mine hurts when I move my hair... is that normal?

Added by michellelc23 on October 7, 2015 at 7:26pm — 3 Comments

Are there any answers?

OK, so the doctors I have talked to are as mystified as I am. My hairline has receded and there is a band of hairless white skin from above my ears (no hair around my ears). ear to ear. I lost my eyebrows and body hair first, then my hairline thinned and receded. There has been no inflammation or scarring. Yes, I am postmenapausal and have been on HRT but I'm not alone in my family. My 91 year old aunt has the same pattern baldness. So, you would think it's just an age thing (I'm 66)…

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Added by Maz on October 6, 2015 at 9:14am — 13 Comments

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