I wrote this blog post on my art website about a year ago, and having just discovered the Alopecia World website, have decided to share it here for fellow alopecians.  Any comments are welcome.

This post is a departure for me, in that I normally limit my musings to those directly related to the subject of art or teaching. But to some extent, my art has always…

Dear Alopeciaworld members,

I started wearing a hair system just one month ago. My dad was horrified when I told him as he is worried about the long term health effects of wearing adhesive on my scalp on a daily basis. I have also become concerned, and have started doing research.

I came across some postings and other websites and have taken notes on what chemicals and brands to avoid. Since many of you have done tons of research, can you please tell me what tapes you…

For the first time in the 15 years that I have had Alopecia Universalis I started to grow hair. It started a few months ago in July, I noticed a little stubble here and there on my head I kept an eye on it not wanting to get too excited because I do have a condition that refuses to let hair grow. A few weeks passed and it kept growing in to these "fuzzies" , so I decided to take pictures of its progress. Now more weeks have passed and the once stubble had turned into short strands of hair in…

So here I am upset at a situation.  Upset at peoples reactions.  My daughter who is in 5th grade and just entered the middle school and age of hormones has just faced the cruelty of people.  My daughter was diagnosed with Alopecia 3 years ago.  She did not let it make her frown.   She did not let it make her think she was anything less.  The way she explained her condition was "my hair is allergic to my head".  Positive and confident she was until today....

  Lunch time comes.  A few…

My daughter is working on her Gold Award in Girl Scouts. Her topic is Bald is Beautiful. She chose this because her cousin (my niece) has Alopecia. She developed it when she was 2 and is now 8 years old.

Does anyone here live in the Somerset County NJ area?

She could use some input on support groups in the area.

Thank you in advance.

It seems a bit crazy to be excited by one, tiny, half inch long brown hair, a hair so inconspicuous that I thought at first it must have come from our new kitten, but there it is among the white hairs. And as I stared at the top of my head, losing and then refinding that minuscule hair, I realized that the sides are undeniably filling in more. I know it is a bit far fetched at this point, but I can almost imagine getting a hair cut, a short, close to the head hair cut. And the funny thing…

OK, so the doctors I have talked to are as mystified as I am. My hairline has receded and there is a band of hairless white skin from above my ears (no hair around my ears). ear to ear. I lost my eyebrows and body hair first, then my hairline thinned and receded. There has been no inflammation or scarring. Yes, I am postmenapausal and have been on HRT but I'm not alone in my family. My 91 year old aunt has the same pattern baldness. So, you would think it's just an age thing (I'm 66)…

I found out I had female pattern baldness last year, at age 19. I had been losing here for years and could not figure out why. I struggled a lot with finding out that there was nothing I could do to fix this when I was diagnosed last year. As time went on I was reassured by my boyfriend that he would love me no matter what and that consoled me. I started to think about it less because I knew my family and him would accept me regardless. Now, after 4 and a half years with him, he has broken…

Hi all - I was wondering if anyone was from the KW area - I am just experiencing my first bald patches that are fairly hidden for now - not even sure when to expect more - or if this is it. My GP was useless - read my diagnosis from a book and gave me steroid cream. My naturopath is adjusting my vitamins  - indications this is probably thyroid issues? I just want to connect with someone who is going through this - as I think that would be the best resource.

I have excepted this can…

Sasha mother wrote me and said:

"This is my gorgeous girl sasha aged 4, the way she handles her alopecia is inspiring and brave and makes me so proud to be her mummy.

My wee girlie is currently in a competition to be Once Upon a Tutu calendar girl on Facebook I am hoping people could please vote for my gorgeous girl.

To vote go to…

Hello everyone! My name is Grace and I am currently a Sophomore in High School. In my school, we do a lot of research, and this year I am doing an Independent Research Project with something that is closer to me personally and that I can relate to. I have Alopecia Universalis and have had no hair since I was almost 3. I was wondering if gender and the age that we lost our hair at has any correlation with our self-esteem. It would mean a lot if you would take the survey that I post below :).…

I have AU when people ask what this is I simply say my immune system doesn't feel that I need any hair. People often reply "no hair... anywhere..." and I answer "none". This results in a ration of statements like "you are so lucky you don't have to shave." No bad hair days for you, no hair in your moth when the windows open or you go on a boat. No worries about dying grey hair. No hat hair in the winter no sweat head in the summer or when you work out.

Well let me just say this... I…

I've used NAC for three months now and hair began to regrow...I will keep you posted over the months

It all started when i was 20 years old going to college everyday as any other student running for assignments, research papers and projects.Establishing and maintaining good work relationships is the key to a positive workplace and personal success- believing so i did participate in a lot of college activities which gave me a chance to be well known at my environment and have a wide personal network.

One day i noticed a bald spot on my head, it was not of a big deal back then, but in…

I was diagnosed with alopecia areata last February. All started with a patch and eventually I had around 7 patches.I had a lot,really a loooot of hair so even I had so many patches it was not visible.I started to use corticoid creams and although there was some growth it was really slow.I decided to have the cortisone injection and after two doses the hair start to grew really quickly.I believe the trigger was stress so I am trying to control that.At the moment most patches are completely…

Hello Everyone!

My name is Michelle and my 2 yr old was diagnosed with alopecia at the age of one. I was devastated I could not stop crying! I have two other family members who have it and they both have universalis and although she was diagnosed with areata deep down I knew it would turn to universalis and i was right because soon after my baby started loosing her eyelashes as well!!! I remember the dermatologist being so rude and cold when she told me my baby had this and all…

I have been battling alopecia areata since 2013. Through trial and error of many products and treatments I have finally found something that works and the results are unreal! That bad patch was the size of a dime in 9/2014 and grew to tennis ball size by 1/2015. Check out my page to see the before photos! These results were through the help of my dermatologist and a company with advanced holistic treatments that specializes in alopecia. 

NOW...Photo taken 8/2015. My patch that seemed…