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If I Had a Million Dollars

Baby fuzz. Say the words and hearts start melting. See that soft, fine hair on an infant’s head and your hand automatically reaches out to touch, pat, or pet. Oohs and ahhs and a drawn-out “aw” spontaneously slip from your mouth.



Now imagine that same soft, fine hair on the balding head of a grown woman. On me.



In my world, talks of baby fuzz mean I have a spot of new hair growth. My baby fuzz is soft, but not cute. Certainly not ooh-and-ahh inspiring or aw-worthy. More… Continue

Added by panuelo girl on August 3, 2009 at 4:26pm — 2 Comments

Alopecia in "major" motion picture?

I refer to it as "major" because I don't know who any of the people mentioned in the article are (other than Richard Jenkins.) It appears though it will be a film for regular theatrical release.

http://www.newsinfilm.com/?p=19497

I do wonder though what "Alopecia Universales" as it is referred to is. It sounds like the name of a company that sells alopecia related products not just here on Earth but at outposts throughout the galaxy.

Added by Donna on August 3, 2009 at 1:37am — 3 Comments

how and when it all falls out...

So I've been having a difficult time with my Alopecia as of late. Started with one patch in Oct 08 and now it was 3.. the first of the ones i noticed has a lot of regrowth, but the hair seems to be falling out from all over.. more of a difussed state.. is this normal?? I know i may lose all my hair but what of the regrowth in one area... is that just false hope? also, does anyone ever get painful areas on their scalps? not just tingling but an area when you press down it feels… Continue

Added by JenNy on August 2, 2009 at 5:41pm — 5 Comments

Getting used to things....

Well, so in the past 3 months, I've discovered that wearing a wig is not too traumatic an experience. I screwed up the courage to start wearing the first one I've bought (the bob cut one) to work at the end of April, and I was just absolutely bowled over by all the compliments and comments everyone had! I think I had the biggest ego of my life that day! (Which honestly, I very much enjoyed as I have not had an overabundance of self-esteem in the last many years).



However, I had a… Continue

Added by Jenn on August 1, 2009 at 5:56pm — 11 Comments

hair loss

for the first time audrey has lost all her hair except 1%. we took her wig od and everything just fell off, her hair had been comming in, she's fine except my youngest was so shocked seh ran arounf the house screaming, i couldnt help but cry, but i know god has already healed her.christ paid the price on the cross and alopecia has no place in this world, so now im praying more for every one with alopecia, not just my duaghter.

Added by agnes faux on July 31, 2009 at 10:19pm — 2 Comments

THANK YOU

Hello Mina ,
thank you for the input , whilst i'm new to alopecia condition i do not intend to wear a base ball cap , i only wore a hat when it was cold being back in Jan/Feb/Mar , it was a stylish hat NOT A BASE BALL CAP LOL , now summer here i wear nothing , mind you it feels strange when its raining and the drops of rain hit one's bald head .

Paul

Added by Paul Williams on July 31, 2009 at 6:14pm — No Comments

Alopecians in CT?

Looking to hear from others with Alopecia in CT? Feeling sad and want to vent/share information. I'm not sure what is ahead for me...

Added by Lynn on July 31, 2009 at 4:50pm — 1 Comment

Glad To Be Here

Hi, My name's JOSH.



I just want to start by saying this website truly is wonderful. I don't know why I never joined Alopeciaworld.com before. It's like Facebook or Myspace for bald people! (only I think this is a little cooler) I've been a member for less than 24 hours and many of you (whom I have never met) have welcomed me, and I can't tell you how much that means. The close-knit community that alopeciaworld seems to promote is very cool and once again I'd like to state how much…

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Added by Josh Richards on July 31, 2009 at 2:00pm — 3 Comments

Favorable facade!

Every day, no matter how many years go by....it's the Cliche (over used expression) which becomes nonsensical. I shrug it off in revolt these days....."hmmmmmm"

My own quietness, observation of ignorance and awareness, is to the nth degree. When all the while, deep within the psyche of their intellectual perception, they're so busy judging our external facade.

After all...if it's what's on the inside that counts......then why are they…

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Added by MiNAH on July 31, 2009 at 6:30am — No Comments

Terry Gallagher - An inspiration from heaven



"Terry Gallagher - An inspiration from heaven" has been posted on my blog, it reads "Hello everyone, Terry Gallagher is a loving husband to Mimi, a great father to three beautiful children (one adorable girl with alopecia), a coach, mentor and a very dear friend of mine is diagnosed with colon cancer on 7th January 2008. Terry and family have ever since beaming like a great lighthouse in a world of turbulence, trials and suffering, not shining… Continue

Added by Joshua on July 31, 2009 at 6:30am — No Comments

Out & Proud

As of Wednesday last week I have ditched the wig and am wearing my bald head with pride. So far the response has been great. All was revealled at work fo the first time on Monday and everyone couldn't believe it but then said how much better and more confident I look!
Walking in to my local shop, meeting my friends at the pub, playing hockey, anythng - I'm not bothered about people seeing the real me - Best decision I ever made!

Added by Emily Horsley on July 30, 2009 at 10:06am — 8 Comments

A Famous Alopecian??

Hey all: It occured to me that a famous bear, second only to Smokey T. Bear, may have been an Alopecian. His name was Fuzzy Wuzzy. Does anyone know what he's doing these days?

Added by John Killion on July 30, 2009 at 8:31am — 3 Comments

A positive alopecia moment - such a relief!!

I recently started working again as a Night Auditor for a swanky boutique hotel in downtown Nashville, and based on past experience when I went to my interview I brought my "alopecia essentials" kit: a letter from my dermatologist explaining my need to wear wigs, hats, and scarves; a printed copy of the Americans with Disabilities Act; and a business card with my lawyer's name and phone number, and my godmother's name and phone number (she works for the EEOC.) My boss was very pleasant during… Continue

Added by kastababy on July 30, 2009 at 6:45am — 9 Comments

Opening up a discussion about the recent Bald Girls Do Lunch on the Today show on July 27, 2009

I would like to start a blog about the Bald Girls Do Lunch segment on Today!!!! I would like to hear how all of you felt about the way the ladies handled the interview. I would appreciate all comments - good and bad!!!!

Thanks and looking forward to hearing from anyone!!!!

Added by Cheryl Ann Avens on July 29, 2009 at 6:04pm — 5 Comments

I want a new name for my variety of AA

I had AA for 7 years, then I progressed to AT - no scalp hair, but everything else still there. Then, it quickly went to AU. In the past few months, I've started growing hair again, but ONLY on my face. I have eyebrow patches, lashes in the center of my upper eyelids, nose hair, and peach fuzz in places on my cheeks and chin. But, there's not a single, tiny hair anywhere else on my scalp or body.



So, I think that there needs to be a name for when you have hair only from your eyebrows… Continue

Added by Mary on July 29, 2009 at 4:38pm — 15 Comments

First hair cut sense I found first patch!!

Hello, I had my first hair cut sense finding my first patch in feb this year.
It was a spur of the moment decision. My patches are growing back and I have new re-growth all over, so it was really good to get it tided up. I was very nervous at first as you can still see the patches (even though there is re-growth) and was nervous all thru the hair cut, but Im very happy i did it :0)

Added by Bel on July 29, 2009 at 12:59am — 1 Comment

elimination diet stopped my hair from falling out

Hello all,

I hope that this information will be helpful. I had aa once 14 years ago. I had a couple of small patches on the back of my head, I got the cortisone shots and it went away within a year. 2 months ago I noticed a patch on the side of my head. I went to get the shots but they weren't stopping the hair from falling out. Everyone kept telling me to relax and that stress probably caused this. But I didn't feel stressed out and that just didn't ring true to me. My hair falling out is… Continue

Added by tara on July 28, 2009 at 9:30pm — 14 Comments

Ever heard of Clouston Syndrome?

Hello,

Visited with a new Derm yesterday here in CA. I didn’t technically go to see him for my Alopecia – I went to discuss my extremely dry, itchy, cracked palm on my right hand. He told me that I had Keratosis Palmaris, gave me a steroid shot and prescribed me some ointment. He advised me that although they weren’t connected in anyway, the meds may also help the Alopecia.



Naturally, I’ve been reading all I can online and have found a link between this and Alopecia called… Continue

Added by Dana on July 28, 2009 at 6:17pm — 1 Comment

2nd dermotologist appointment

so my second time wasnt much better.... i went to the same mean dermotologist who still insisted i had trichmillia and let me tell you guys i no im 100% positive i dont pull my hair out 100% positive. she said it looks like trichmillia and that she want me to have a biopsy and no way i mean no way am i letting her do that to me. maybe if i trust ed the doctor but not her, so my mom thought i should do it but i said no it would hurt a lot and i dont trust my doctor so my mom said i was going to… Continue

Added by Nikki Mans on July 28, 2009 at 5:19pm — 5 Comments

life has changed in 9 days

This is Lynns husband here

i cannot believe the difference in Lynn since BALD OUT 2009 ONLY 9 days ago and joining Alopecia World

Lynn would tell me off if i left the front inner door open incase any caught a glimps of her - curtains had to be closed and she never went into the garden without something on her head - this week she has done so much wigless and people didn't fall down or gasp -it's given her new life ,she holds her head up and smiles at people not worrying about wind… Continue

Added by Lynn Herrod on July 28, 2009 at 1:35pm — 6 Comments

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