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a long overdue update

well my hair is all but gone, what grows back is white which is no biggie, losing my eyebrows and eyelashes too, but im not really down about it, i been pretty positive through this whole experience but the change is a little hard to get used to, on the non-alopecia end of it i have been working a lot, went and saw the band 311 in concert back in june and it totally rocked, well people i wish i had more to say but i don't. everyone have an awesome beginning of the week cause we will all be… Continue

Added by Paul on August 10, 2009 at 12:25am — 1 Comment

HELPP!!

i have AA and most of my hair is gone and my doctor wants me to take steroids by mouth :( what should i do? has anyone had any experiance with that drug , by mouth???
My auntie took them by mouth and it made her body shape change and gave her facial hair! should i take them?? or not?

Added by sarah bradley on August 9, 2009 at 6:07am — 5 Comments

stepping out of my comfort zone

so i joined a gym. i need to get healthy and fit as well as focus on myself more. so i thought i would join a gym, something i never ever thought i would do. in fact i use to fear it.

i was scared when i joined. i looked at a womans only one first, it was beautiful!!!

but expensive and no one i knew goes their, nothing would push me to go.

so i joined the one all my friends goto, way cheaper and got 5 personal training sessions to help me on my way.

i went and got a cap, a… Continue

Added by Alison on August 8, 2009 at 3:27pm — 9 Comments

Come listen to a story about a man named Jed.

Come and listen to a story about a man named Jed.

Poor mountaineer owned the hair upon his head.

But then one day he was shootin' at some food,

and out fell his hair right down to the root.



Bald, that is. Chrome domed. Cueball style.



Well the first thing you know ole Jed is combing air.

Kinfolk said, "Jed you been hitting Nair?"

Said, "Dermatology is the place you outa be."

So they loaded up the truck and they moved to… Continue

Added by John Killion on August 8, 2009 at 9:35am — 3 Comments

WHY DOES YOUR BALD SPOTS SWEAT SO MUCH.

I have never sweat so much in my life, the bald spots sweat to much. Please help anyone have the same problem.

Added by JUDITH on August 8, 2009 at 1:56am — 3 Comments

HCK (Hairclub for kids)

hck is wonderful place to get wigs you pick the color they measure your head then they send it off when it gets in they just glue it on and every6 to 8weeks they take it off and glue it back you get four free wigs a year if your under 18

Added by Destiny on August 7, 2009 at 6:12pm — No Comments

Don't order from mylash!

So I have been on a search lately for good false bottom lashes since it is so hard to find ones that look natural. I have some lower lashes but they are never quite all there and have no pigment. I gave mylash.com a try because I'd read about it in discussions on the site and ordered the "sultry lower lash." I received this first order two days later which was impressive because it was shipped across the country. I really liked the lashes too, they were comfortable and natural (not too long),… Continue

Added by Hannah on August 7, 2009 at 5:44pm — 1 Comment

going swimming?

Hi all,



I've never posted a blog on here before, but I've become increasingly desperate for contact with fellow alopecians (I so hate that word), so I'm going to try to get on here more often. (PS. You all are beautiful -- every last one of you! Just scanning the pictures gives me so much more confidence in myself.)



So my question is this: what do those of you with some, but not all, of your hair do when you go to the pool? We're taking our kids to the pool next week and I… Continue

Added by Carrie on August 7, 2009 at 4:38pm — 5 Comments

Two week update... good and bad

That's me been using the Dermovate cream for two weeks now.



The good news... on my 2 biggest patches I can see some white fuzzy hair coming through. My wife tells me that the patch on the top of my head has even longer white fuzz (but I can't see it very well). No dark hair yet but I'm keeping everything crossed.



The bad news... I can see the start of 3 possible new patches, 2 of which are really close to the patch on the top of my head. That makes 7 patches on my head now… Continue

Added by Robert on August 7, 2009 at 4:33am — 2 Comments

Regrowth!!!

all my hair has grown back and is very thick it looks cute lovin my hair

Added by Destiny on August 6, 2009 at 10:43pm — 3 Comments

A Poem: Fuzzy Wuzzy was a Bear.

Fuzzy Wuzzy was a bear, and Fuzzy Wuzzy liked his hair.

But then one day he tripped and fell, into a pool of woman's Nair.

Now Fuzzy Wuzzy -- once so fair, was Fuzzy Wuzzy who had no hair.



So Fuzzy Wuzzy went on a tear, or sat around in his underwear.

Either way he didn't dare, go out in public without his hair.



So Fuzzy Wuzzy was a bear and Fuzzy Wuzzy had no hair.

And try as might he could not care, about anything other than his hair.

So everyday… Continue

Added by John Killion on August 6, 2009 at 10:48am — 12 Comments

Bad day turned to bad couple weeks

After having been bald for more than 6 years you would think that I would finally have accepted my hair loss but apparently I haven't (even though I thought I had). As some of you guys know I recently graduated high school and in a few weeks I will be starting college. All of these milestones have released a whole rush of bad feelings and thoughts towards my alopecia that I had thought were almost completely gone, which has really freaked me out. I guess it started on the day of my college… Continue

Added by Dielle on August 6, 2009 at 1:30am — 4 Comments

coloring hair

Hi all-- I have a question.
I have about 3-4 inches of regrowth, of course it is pure white. Have any of you tried to dye your white hair, did it take???
Thanks
Kenra

Added by ken on August 5, 2009 at 8:12pm — 4 Comments

It's hard to hold it together sometimes

A few weeks ago I went to a neighborhood Bunco. I was excited. It would be nice to hang out with everyone all in one place since we were all scattered during the summer. I tried to fix my hair as best as I could. I've come to peace with wearing barrettes, even though at the age of 37, I wish I didn't have to. I'm not trying to be younger than my age....but lately I've been having less confidence in looking the way I do and how my peers view it. Only a few know. OK, none really. If I go without… Continue

Added by Georgie on August 5, 2009 at 3:34pm — 7 Comments

HOSPITAL

I'm going to have major surgey this month. They send me some paper work what i could take with me one item on the list say i cant have a wig on. I dont go no where with out my wig its my confort blanket to outside world. I ask the doctor about the problem he said nobody will realy pay attention whats on or off my head. but i will its like back in school i still worry what people will say.

Added by Tamika Joseph on August 5, 2009 at 2:19pm — 7 Comments

Early morning encouragement!

I really like working in the hotel industry, because there's never a dull moment on my job -- and sometimes I get inspired and encouragement from the most unlikely sources.



For example, my hotel houses layover crews from Delta Airlines. A lot of the pilots and flight attendants come in on the same flights pretty regularly, so the opportunity is there to get to know them. And as always, the opportunity is always there to educate them about alopecia.



The past three mornings,… Continue

Added by kastababy on August 4, 2009 at 9:35am — 3 Comments

Annoyed at my head right now

So I am heading to a music festival in BC this weekend, which is very exciting! It's a very open and accepting environment, people wear crazy costumes, go naked or whatever...



I had mentioned long ago that I would go bald the whole weekend because it would be easier and people would probably not blink an eye at a bald chick there. My friends are not going to let me take my wig (except my bright pink one!)



Which is all good and well, except that I have a lot of regrowth on… Continue

Added by Karina Louise on August 3, 2009 at 11:50pm — 2 Comments

Need Help With Wig Alternatives, Please :)

So I was diagnosed with Alopecia Aerata this month. My hair is falling out pretty fast. Every time I shower, I get 1/2 a weeks hair in the drain and on the comb. It's falling out in plugs and clumps. I'm a nurse and I wear my hair in a short pony all the time. I'm having a hard time hiding the bald spots. I'm low maintenance and I've never "dressed" my head before, but now I need some quick solutions! Can you please lead the way....thank you!

p.s. I love looking at all your pictures! It… Continue

Added by Karen on August 3, 2009 at 11:24pm — 8 Comments

montreal or toronto

can anyone suggest a place that sells wigs that 'don't itch'.
i tried what they called a lace...it was coarse and itchy!

Added by dinainmtl on August 3, 2009 at 9:21pm — No Comments

ANY & ALL HELP ACCEPTED, IT'S ADMINISTRATIVE LAW JUDGE PRESENTATION TIME

Monday, August 10th I go before Medicare's Administrative Law Judge, the hearing I requested was for a cranial prosthesis/wig coverage. The initial request for a wig/cranial prosthesis from my Dermatologist in January was denied.

Medicare, (shame on them & their neanderthal attitudes regarding cranial prosthesis) I am so frustrated, with them, according to one denial letter, in order for a wig to be covered it must,

stand up to repeated use,

mainly be used to serve a medical… Continue

Added by Pamela Rosse on August 3, 2009 at 9:03pm — 8 Comments

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