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Skydiving!

Something to cross off the things to do before I die list....I jumped out of a plane! And I did it bald - you can check it out some photos on my page. I was kind of nervous about wearing nothing on my head, as I was with a group of people some of whom I had never met before, but who all work at the same hotel. But I am so glad I did, because guess what?! No one cared at all or even seemed to notice! And it was so great for me, because i didn't have to worry about my wig, or whatever else I… Continue

Added by Karina Louise on July 16, 2009 at 1:44pm — No Comments

WIGS!!!!!!!!!!!!!!!!!!!

Why are wigs so freakin expensive?? I went today to have a consultation for a new wig (my first). Of course I want one that looks natural... Long story short, I found one that I want, of course it is the most expensive one and has to be custom made!!!! So, now I have to figure out how I'm going to come up with $3000 for my hair!!!!! Oh I wish money grew on trees!!

Added by Beth on July 16, 2009 at 1:28pm — 4 Comments

New Pics of my bald spots

Anyone else like this, all on the bottom, moving… Continue

Added by Jennifer on July 15, 2009 at 12:21pm — 4 Comments

Stupid Hats

Am I the only one who gets compliments on wearing hats all the time. Whenever I take my daughter to school, or go somewhere before I do my workout and shower. I just throw on a hat. I looks like ugly strands of hair underneath a hat. I look in the mirror and want to BREAK it. I hate hate hate wearing hats. I have to wear them at the river, camping, when its windy. Then...... I gets compliments. Other mommys at school, or whatever. They say, "you always look so cute with your hats all the time.… Continue

Added by Jennifer on July 15, 2009 at 12:08pm — 13 Comments

Bye Bye, Eyebrows

Within the past 4 days I have noticed that my eyebrows are quickly disappearing from my face. This is hitting me a little bit harder than I thought. You see, when I finally shaved my head this past April and got a beautiful new wig, I felt like a brand new person! After finally reaching the stage of acceptance those few months ago, I have been the happiest and healthiest I have felt in ages!



I believe that alopecia is the most empowering thing that has ever happened to me. I had a… Continue

Added by Natalie on July 15, 2009 at 10:46am — 3 Comments

Sorry it's so long!

Hi Everyone!



I haven't been on here in soooo long!! I have been really busy....



Updates:



Well, my hair (my 2 spots) have completely grown in, and I stopped using the lotions/creams months ago. I haven't seen the derm in a looong time, because I don't think I need to anymore. No more new spots have occured. I am tempted to get excited that my alopecia areata was a one-time stressed induced event, but I am not going that route yet. Every once in awhile I get… Continue

Added by Amy on July 15, 2009 at 9:04am — 4 Comments

Hair Dye?

I really want to dye my hair but I don't know if it will make my alopecia worse and I don't want to try it without some input. What do you think.

Added by Rayne on July 15, 2009 at 1:52am — 2 Comments

HELP

Ok... so I thought I could handle this.... cant handle this....... Iwant to be free to walk around just as I am BALD... why is it such a big deal... and why do i do things to my self to make it worse... I am eating like a cow.... locked away isolation is killing me.......... I need HOPE. I need FAITH I NEED SUPPORT... any newyorkers out there? I am in Stanen Island.......

Added by jayne c on July 14, 2009 at 10:38pm — 2 Comments

I'm Back

Haven't been on here in a long while! I will try to come on here as much as possible. I met a new friend that lives close to me. She is married to a friend I went to school with. She has totalis. She connected me to someone who makes wigs custom. So I am going to make an appointment with her, and check out wigs. My extensions are very hard to hide now. Still have hair on the top of my head, but its bald all the way to the 2 skull bones on the top of your head.

I'm here for those who feel… Continue

Added by Jennifer on July 14, 2009 at 6:53pm — 1 Comment

eyelashes

totally gutted, i have just noticed 2nite that on 1 eye my eyelashes r thinnin out in the middle, dont know wat to do, i have found it hard not havin any eyebrows, my hair on my head is still growin but other parts r still fallen out, how confusing is this alopecia, so pissed off now, thot i was gonna keep them but it was to gd to be true,

goin to collect my wigs 2moro so hopefully the fringe s long enough to hide, i hate this hairloss its bloody awful to deal with, im really tired and… Continue

Added by lynne on July 14, 2009 at 5:50pm — 10 Comments

Getting sympathetic looks is one thing...

but having a card posted through your door is another. A mother of a boy I used to go to school with posted a card through my door this morning saying the family was thinking and praying for me and that God would heal me. I'm assuming she has seen me out and about in a headscarve but still most people know I have alopecia. I don't know what to say as it looks like she thinks I have cancer or something but it would be rude if I tried to correct her and she'd actually known I had alopecia. I'm… Continue

Added by Lyndsey Pitchford on July 14, 2009 at 4:07pm — 6 Comments

No where to go for national bald out.

Hey guys... I was just sitting here thinking... sunday is national bald out day (Now International Alopecia Day) and I have no where to go. Maybe I'll go visit a friend or a family member or maybe I will venture to the store bald and see what kind of reactions I get. lol. I'm not really sure what exactly we are supposed to do for national bald out day. Any suggestions?

Added by Kristen Viveros on July 14, 2009 at 9:30am — No Comments

Update!

Hello Alopecia World!



I'm finally back online after a long hiatus. My life got very hectic, very quickly. Starting this past January, I picked up a second job at the school paper doing layout and design. At the same time, I embarked on a 10-week adventure with Lightsaber Club which resulted in a lovely 12-page article for my Intro to Reporting class. It was so much fun and so crazy how passionate the club members were about lightsaber dueling! Going into spring quarter at the end of… Continue

Added by traci on July 14, 2009 at 3:09am — No Comments

If I were my brows and lashes...where would I be??

They're gone, except for the odd random lash or brow. I miss the brows especially. Since January of this year I have pretty much lost every hair on my body. Everything below the waist, I say so long and farewell...but for everything above the neck...ouch...this hurts. I have two great wigs and my GI Jane look, but wondering if anyone has the name of any brands of eyeliner or brow pencils that don't erase when you waterski, jog etc. Life keeps going...and is going well, hair or no hair. More… Continue

Added by Jennifer Krahn on July 13, 2009 at 7:23pm — 7 Comments

I don't think I Can

Now that my deadline is fast approaching I'm nervous and don't think I can go out without my wig. If I can't go out on Sunday I am going to feel like a big failure. Awwww what do I do.

Added by Roslyn on July 13, 2009 at 7:01pm — 11 Comments

Bluesfest Backstage Diary #1

Last night was amazing.



I always have fun volunteering at the Ottawa Blues Festival that's held every year for a week and a half in July. This is my 3rd year as backstage hospitality, and I have to say it is the most interesting job that there is! Basically, I have to set up and take down dressing rooms, prep food trays, and, sometimes make fresh lemonade from scratch among many other special requests that I get! This also means that I get to meet and talk with the artists who play… Continue

Added by Cara Gooding on July 13, 2009 at 4:38pm — No Comments

carnival

so the carnival went great used double-stick tape or watevever its called! but it went great didnt fall off and everyone thought i shaved my head for spencer(a local teen with cancer!so sad!!!) but anyway that was good but i just shaked my head and went to hang out with my friends though later i told them i had alopecia but still i had a great time! thanks to everyone who helped me with this situation.

Added by Nikki Mans on July 12, 2009 at 8:40pm — No Comments

Hello

I just want to say "Thank You " to all the people/friends that wished my Happy Birthday today, I had a great day by the lake today and now having a glass of wine with my partner. Perfect way to end the day

Added by Janie on July 11, 2009 at 10:16pm — 3 Comments

Biopsy

Hi Everyone, I saw my new Dermatologist yesterday, I really liked her. She ordered a boat load of blood test, thyroid, ANA (autoimmune) CBC, the works, depending on the blood test results she may do a scalp biopsy.

Has anyone had one? If so what can I expect?

She also wrote out a RX for Betamethasone Valerate (the spell alert came on for that one, lol) lotion, twice a day.

If you have used this, how did it do for you?

I am getting to the point I'm really tired of trying… Continue

Added by Pamela Rosse on July 11, 2009 at 6:23pm — 5 Comments

My second sighting of someone like me

I've been busy with getting my house in order for a party I'm throwing on the 18th of this month..



Last night, I was in a super Wal-mart taking back an unbella stand and as I was looking around.. I passed by this young boy who just happened to be bald and no eyelashes, eyebrows and he was just watching the tv screen that was showing the current cartoon dvd release..



I wasn't sure to approach him or not.. the don't talk to strangers thing.. maybe hes… Continue

Added by Tnabugg on July 11, 2009 at 3:14pm — 7 Comments

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