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my birthday was pretty tight!

a friend (who really likes me, and may have caused this "stress" in the first place) wrote me four songs.

all bout me. one about my pants. haha. really good punk/ska stuff. but the guys who got together and actually performed the song was really ironic. made me feel kind of like shit. maybe one day i'll explain the whole story.

i had a huge party thrown for me last night with a really good turn-out of people. lots of kegs were lost..

then. my friend tried killing himself. he took… Continue

Added by tat on February 7, 2009 at 2:25pm — 2 Comments

Completley Frustrated

I am so totally annoyed!! There is NOTHING for support for kids with Alopecia in Manitoba, Canada. Its not fair! Its like no kids in this city/province have Alopecia or what? All my daughter wants is to get to know someone who shares this same disease and make friends with someone who understands and its impossible. How do we do it? Send a flyer to everyone in Manitoba? Ugh. Sorry to rant. Although Im in the process of creating a support group, and finding other kids with the disease... Im just… Continue

Added by Tracy on February 6, 2009 at 2:44pm — 5 Comments

Where do you get good wigs?

this is cool! I have never done this before & I am so happy to find people out there who have Alopecia. I got is at the age of 16 (High School) & that sucked! The I went for treatments & then my hair came back until I was 33 & I am now 37.I guess its not all that bad.I love the fact that I dont have to shave anymore too! Smooth like a baby's ass!
The toughest for me is where do you find good wigs? My insurance doesnt cover this at all?

Added by GENNY on February 6, 2009 at 12:51pm — 2 Comments

How has being bald affected you???????????????

How has being bald affected you? That is if it has affected you. Mind you I do think it must have even if it is only the fact that you notice how cold it is much more now than when you had hair.



Many of the websites for Alopecia document how many people are stressed about having Alopecia and that they desperately worry about their hair growing back. I must admit that when I first had alopecia I was concerned about the situation but once I shaved my head I stopped worrying and found… Continue

Added by Ray on February 6, 2009 at 12:08pm — 2 Comments

Five patches...Those were the "OLD" days!!

So...I was looking back into my older blogs and noticed my last one is Titled "Five Patches and Counting"...

Well...That was soooo last year! LOL.

After I shaved my head - It looked a lot worse then I originally thought. I think I counted around 16 small patches. I still have the first large one on the top of my head, but a bunch of smaller ones have joined the army.

But...I tried doing a "pull" test last night with some tweezers (since it's too short to pull with my… Continue

Added by Christie on February 6, 2009 at 8:00am — 2 Comments

As of February 5, 2009....more patches

This one has already been treated but recently grew bigger...

Just found this one today...





Among other things....my Dr. increased my synthroid to 100mcg from 88mcg. I'm also weaning off of zoloft. I started 2 weeks ago and I am so happy to be doing this. Despite the hair loss, I think that I am at a stable point in my life. I hope that by getting off of zoloft (it's been 3.5 yrs.) I can… Continue

Added by Georgie on February 5, 2009 at 11:59pm — No Comments

thank you

Thank you all for your warm wishes regarding my birthday... the big 40 seems fine so far!!!!
Only one problem I have no hair to hide my wrinkles - :-)))))))

Be strong!!

ANGELA

Added by Angela Jackman on February 5, 2009 at 9:35pm — No Comments

TV for alopecia

At 04.00 am I found a new spot. It wasn't there last week. And first I said a lot of ugly words, cursing my stupid hair. (something I do when I find new spots). But this morning when I woke up it felt okay. It's so weird because ever since I found this site I have been staring to accepte the fact that alopecia is a part of my life. (5 years after I was diagnosed!)

Because I felt so good about it I wanted to read more about it online (earlier I didn't want anything… Continue

Added by Johanna on February 4, 2009 at 3:12pm — No Comments

wig??

I am looking to get a new wig over the internet. I went last time 2 hours away to find a salon to get one, and I spent 400.00, and looks ratty after one month. Are there any brands that anyone knows of that are precut and shaped, so I don't have to make a 2 hour trip to get it cut? Oh ya, and a piece of advice---- if you are wearing a wig, don't try and broil anything---that is how mine got so ratty :)
Thanks
Kenra

Added by ken on February 4, 2009 at 3:05pm — 4 Comments

Round Two - One Month In

Well it is now just over a month ago that I shaved my head for my second bout of Alopecia. How time flies!!!!!!



What I have noticed this time around is that my patches are much less visible as it seems that my hair falling out was much more a case of thinning rather than just large patches. There are a couple of large patches but in the main the bulk of the hair that fell out was very definitely a thinning of my hair whereas the first time I shaved my head there was a lot of big… Continue

Added by Ray on February 4, 2009 at 6:15am — 3 Comments

Bald scuba diving

I'm heading out (pun intended) next week for my first scuba diving trip since losing all my hair exactly a year ago, and I wanted to let everyone know I won't be in Internet contact for a few weeks.



As I've been doing at home for many months, I'll be bald the entire trip, except when I need a scarf or hat on my head for warmth or sun protection. I anticipate that my bald head will be a subject of interest for a very short while at the dive resort and on the boats with the other… Continue

Added by Mary on February 4, 2009 at 12:42am — 10 Comments

Oh My God!

I've been altering my life bit by bit since I got alopecia. First, it was no meat or dairy ,then no gluten or eggs, excercising everday too.

Just recently I went off the birth control pill the doctor prescribed to regulate some girl troubles. I went through some terrible withdrawl from having virtually no hormones, and now things have gotten better. So good infact I've gotten some regrowth, Small patches of sparse hair. That hair wasn't there before, I'm sure of it.

I'm not getting… Continue

Added by Amber Lounder on February 3, 2009 at 1:24pm — 3 Comments

Random Meeting

So i headed to Las Vegas for the super bowl and UFC fight this weekend. And one of my friends got us in a club at a diffrent hotel. So we are dancing having fun and i see this bald head in the crowd. I see them all the time but this was for sure a alopecia bald head. I was like cool some one else with alopecia is here. a little but later i see him again and i'm like wait i this face but wasnt sure why. Then ding he regonizes me too. I knew him from the NAAF conference in DC 2 years ago. We sat… Continue

Added by Jennifer on February 2, 2009 at 8:35am — No Comments

steroid creams: good or evil?

So. I'm turning 20 in two days.

a few weeks ago i thought my hair stopped falling out around the patch, finally..

i was stoked!

but i guess i was terribly wrong... the last few days it's been falling out around the bottom like crazy!



i decided to stop using the fluocionide steroid cream... i have a gut feeling that it may be the cause.

i haven't developed any new patches or thinning... but what's next? what's the score here? when is my hair gonna stop falling out?… Continue

Added by tat on February 1, 2009 at 2:11pm — 2 Comments

A lot going on

I don't know if it's a blessing or a bad thing, but over the last several months, I've kinda' put my alopecia in the back of my mind (as much as I could) to focus on the holidays and work... And a bout of stomach flu.

I just haven't had much time to sit and do anything but work.


I got a new wig from Revlon, and I LOVE. It. I'll post pictures soon, I promise.

Added by Stephanie on January 31, 2009 at 1:55pm — No Comments

New Dermatologist :-)

I went yesterday to a new derm due to ins changes. I like her, and she said this: my 2nd spot will probably respond well to treatment since the other one is almost completely grown back (it's about 4 inches long). She said she is giving me a new cream/gel which is a Category 2 on the strong scale, my other cream she said was like a 6 (1 being the best). She also said that due to my age of onset and the circumstances surrounding the hair loss, it is highly unlikely I will lose all of my hair. So… Continue

Added by Amy on January 31, 2009 at 1:14pm — No Comments

25 Truths About Me.

I decided that this would be the perfect opportunity to practice being transparent. A good friend was recently transparent and revealed a lot of truth about himself. I'm just gonna be honest with who I really am. muhahaha.



1. I am the biggest crybaby. I cry over everything and about everything. A leaf falls and I cry.



2. I am a people pleaser and will run myself into the ground just to make somebody happy. I commit to things i cannot do and struggle with telling people the… Continue

Added by Amber on January 31, 2009 at 10:30am — 1 Comment

New to Alopecia World!!

Hi Everyone...

I'm new to alopecia world and I'm open to making new friends and hearing everyone's story...Add me as a friend...I would love to share my journey with alopecia with you all....!!!

Added by Montoya Grant on January 30, 2009 at 10:24pm — 3 Comments

Bathroom crying

Today was I really great hair day. Otherwise not so good.



Came to school where I have work-practice on the schools TV-station. All the editing rooms were taken, the girl who is suppose to help me with the things we filmed didn’t want to and I had a Italian test that went really bad. Nothing was going smoothly and in the middle of it I started to think back to high school and probably one of the worst things that happened there. And I feel I have to get it out… Continue

Added by Johanna on January 30, 2009 at 11:57am — 3 Comments

Health conditions, related to Alopecia or not???? And dealing with daily pain.

Hello everyone......Just out of curiosity, I have had some health issues over the years, and was just curious as to if anyone else has had them as well, and if there are possible links to alopecia.

I know alot of the things that have happened to me was hereditary (im not such a great speller...lol) Firstly was the hysterectomy. I had endomitriosis, as did my mother and grandmother, and all of us ended up with the hyster. by the age of 26. This one still saddens me! Dont get me wrong, I… Continue

Added by Theresa on January 30, 2009 at 11:24am — 4 Comments

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