Are there any parent of children with alopecia that live in Pensacola, Fl? My daughter, who is just 16 months old was recently diagnosed with this condition and I am activley trying to seek out support. It's very heartbreaking to witness this happening to my little girl, although she has no clue of whats happening to her at this time. I still feel concern for her and her future with this condition.

So my husband and i are taking my 7 year old daughter to Disney World in april and im not sure what i can wear on my head that wont fall off on rides! Yes i can tape my wig on but its going to be Hot! open for suggestion!! WE are still un sure if we are going to the water parks yet and if we do that what should i wear there??

I was only 8,

Am i normal?,

Is this bad ?,

i asked myself,

Im ugly !,

Digusting !,

a dissapoinment to everyone !,

i told myself,

Everyone will hate me !,

Ill get bullied !,

Left out !,

So i thought,

People stareing,

Judging me as if they know me !,

I (thought) I saw ,

BUT I WAS WRONG SOOOO WRONG !!!!!

im normal and its not bad,

Im not ugly or disgusting or a disapointment to anyone !,

Im pretty sure…

This is a quick little post. I just wanted to share an experience that I had yesterday. Now that today is a new day.

Yesterday when making my way around town, I experienced the stop and gawk that comes with embracing my baldness. In fact while walking into the gym 2 young girls almost tripped and felled down while walking backwards, staring with their jaws open. Most days this type of thing doesnt effect me, but as we all know, we have not so great days. I tapped into my inner…

My husband and I were recently on a cruise and I noticed a girl wearing a wig (I have "wigdar"), she had no eyelashes or eyebrows. I immediately came to the conclusion that she must have alopecia too. I wanted so badly to walk over and ask but how do you start up a conversation like that? When I finally got up the nerve to go over and start talking to her, my husband got so mad and said that I should just leave her alone. He said she may be trying to forget that she has it and might get…

I get tingling on spots on my head and the next day that spot is bald. I have older bald spots that have regrown and some have regrown only white hair. I see there is no actual cure... the more I research. I'm dissappointed and unwilling to try the gimmick crap. Today I read a womans comments she put on her fb and it brought me to tears... because today is my first wig day.... my goodness.... I love myself... struggle too much... too soft hearted... I was so nervous I was sweating and…

So, my FB account got hacked into by someone in Israel. Strange, I know.I hear it's happening more often now. So I scheduled a complete deletion and I don't mind because out of the 180 something friends I have on there I never felt as comfortable talking about what's really going on. It was all so very superficial and vague. On Alopecia world we are all so real and raw. Pretty priceless. So thank you all for having the "ganas" to be on here and share your story, love and support. It means…

These last few months i've been dealing with the fact that i have alopecia areata which has been a challange but everyday it seems to get a little bit easier for me. But i do have to admit its been real hard for me being 16 years old and having to face this throughout high school. My grades are really going down from all the worring and stress hopefully i pass my classes so that i can pass the classes. I'm always smiling and laughing as though my world is perfect but i just cant fake it…

Hi folks , my daughter has asked me to share her video with you, she talks about her alopecia her and how it has effected her life. Hope you enjoy and please comment , the support really does her the world of good ..thank yous! xx

Hello beautiful people. So, I fell for it. This really cool stylist who cuts my sons hair kept saying to me: You know, The formula for Nioxin has really improved you should try it. Being tired of covering up my head with hats and scarves I thought, oh hell why not. So,$45 dollars later for the shampoo and conditioner. Then $27 more for the scalp treatment. Plus $37 for the follicle booster. And last $10 for this oil from India promising new hair growth. I gave it all a try. Each night after…

A blind man does not leave his home without his seeing-eye dog in order to prove to him self or to others that he has accepted his condition and that he is self-confident. An “above the knee” amputee does not leave his home without his leg prosthesis (false leg) in order to prove to him self or to others that he is not a fake. Alopecia is an autoimmune disorder just like any other health related condition. Wearing a wig versus not wearing a wig or a head cover is not an indication of ones:…

Here's what I shared with my 509 FB friends:

"My hair is falling out and I have finally come to terms with the fact that it is only going to get worse. Despite my hopes and efforts over the past few years, it’s not going to grow back. I’m tired of trying to conceal it, spraying chemicals on my hair, teasing it, trying to make it in to something it is not, worrying about whether or not people can tell. So, the next time you see me I’ll be wearing a wig. It’s not because I’m going through…

Well knew it wouldnt last long, I had a full head of regrowth since last year and it was back to being extremely thick and getting longer by the day and it felt amazing. I had 2 proper haircuts this year and my last was just yesterday, but i have found a little bald spot at the side of my head :( and my hair seems thinner at top. I am totally gutted and praying it is just a wee set back and it will not fully fall out. I havent coped well with my hairloss when it first fell out 3yrs ago and…

Yesterday, I went to the dermotologist for my 4th "round" of cortisone shots on my already sore scalp. Tears streamed down my face while I was being injected. The nurse stopped, put her hand on my shoulder and apologized for the pain. Taking a deep breath and wiping my sad eyes, I said, "It's not my head that hurts...It's my heart."

Hi, I've been lurking on this site for a while now and thought I'd share my story. It's the same as lot of people on this site. I have female pattern baldness. Yah!!!! Lucky me! I believe my hair actually started falling out when I was a teenager but I didn't really notice, I'm 34 now. I always knew I didn't have great hair but I thought confidence is sexy so I just accepted that this was the way my hair was and went about my life. Then I went off the pill, you can guess what happened next.…

Hi all,

Its been a long time since I ve blogged.The last time I did, it all came out very positive, but today not so much. Anyway after a lot of thought and encouragement from my mom and my hubby I finally summed up the courage to shave my hair off, totally!! I have very scanty hair , but the little I had I grew long because for a long time now I wanted to donate my hair to locks of love. Wierd right?! Anyway when I had that little hair some how it was a little easier to conceal the…

I am 48 years old and had AU since about the age of 12.I grew up in one of the poorest countries in the world where my problem is not something to complain about.My greatest challenge now is the fear of not being able to cope in case it happens to my kids,still I know we'll be fine.My story is very colourful and I've never shared with anyone even with my wonderful family ,I just got on with it.I would like to share my story now 'cause ,well why not?It's about time isn't it

So I was spacing the other day, and I was really depressed. I was just thinking about my past, when I was younger, when I lost my hair, all the drama I've been through, etc. Then I came to think, "Why am I constantly always thinking about the past?" Well, the past never goes away, it's always in the back of our minds somewhere. Lurking, waiting, haunting, for a right moment to come forward and remind us the things we want to forget. It sucks sometimes. Then I thought, "There is no way to…

I just think it's funny that Alopecia comes up as misspelled every time I type it on the Alopecia World website...I'm constantly rechecking to make sure I've spelled it correctly....and alas....correct indeed.