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My story about having Alopecia

I was about 9 or 10( gr.5)when my hair started falling out. I am now 18. It was and still is very hard dealing with it. I have an under active thyroid so im pretty sure my Alopecia is caused by that because I've read places that thyroid problems can be the cause of Alopecia.In elementary school I got made fun of a lot. My mom even talked to my teacher and explained my condition so the teacher could talk the the class about it one day when I was not there, but they still made fun of me even… Continue

Added by Sarah on April 17, 2008 at 2:39am — 4 Comments

To cure or not to cure?

I keep seeing all of these adds to cure alopecia or baldness and it got me to thinking about if there was a legit cure and I could have all of my air back if I would be able to do it.I always had to tell myself that there was nothing wrong with being bald and being bald just adds some new flavours to the world but if a cure came and I took it would it be saying that I do think there is something wrong with being bald and if I took it.This left me feeling very conflicted.I started thinking about… Continue

Added by Sarah McIntosh on April 16, 2008 at 8:52pm — 10 Comments

So many like me!

I just clicked on the "members section" and could barely believe that there are over 700 members on this site!!!! Who knew there were so many people with some form of Alopecia!? I know the stats say about 2% of the population is afflicted by it, but I never knew anyone else with it while I was growing up. I wish the internet was around when I was a kid, I sure could have used this type of support when I first was diagnosed. It feels so good to be with such good company :-D

Added by Orbit on April 16, 2008 at 6:13pm — 4 Comments

You may have alopecia, but alopecia shouldn't have you

Alopecia does not define great people.

Great people define alopecia.

That's why the members of Alopecia World are encouraged to put their beautiful minds together and give new meaning to the concept and condition known as alopecia.

As the author Sheila Jacobs once declared, it's time to transform the stigma into a distinction.

We certainly can do this through our collective intelligence as well as creative and constructive responses to the challenges…

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Added by Alopecia World on April 16, 2008 at 12:30pm — No Comments

Dotty's Daily Inspirational/Motivational Reflection

Added by Dotty on April 16, 2008 at 7:59am — No Comments

The hunt begins

I'm rather excited as I am off to Trendco in Notting Hill Gate tomorrow for my first ever wig trying on session! While I love my head scarves, and have spent a fortune on them over the last few months :) I feel I need to branch out and get wig hunting! I will let you know how I get on and thanks to Sarah and Sally for pointing me in the right direction! x

Added by Kate on April 16, 2008 at 4:53am — No Comments

Pretty Alopecian women

When I see a beautiful woman that has alopecia, that keeps me going. I am newly diagnosed with AU and at this point, I just don't want it to be noticable, I want to cover it up. I'm sure someday I will accept it..and I don't look bad bald. I have seen a bunch of women here that are beautiful and it gives me hope that maybe I can look like me again. In many of your pics, I can't even tell that you have alopecia! Not that I'm saying people should hide it...but for me, right now, I need to. So if… Continue

Added by Lee on April 16, 2008 at 2:46am — 5 Comments

Sometimes I Wonder

I'm all new to this, so forgive me for not know about how to do what and what means what, haha.

For the past five years I've wondered if there were actually people out there just like me, that felt and reacted to the things the same way I do. From time to time I've browsed different sites on the internet to try and find teen or kids sites for people with Alopecia, and I never could. For some reason two days ago it just randomly struck me to look in groups on myspace for anything having to… Continue

Added by bee. on April 16, 2008 at 1:30am — 2 Comments

Sometimes You Gotta Just Laugh!

I need a laugh today and maybe you do too. Some days I wish I didn’t have the bald thing going on and some days I don’t mind it at all. How ever I feel about it I think that a person should be able to see humor in any situation. When Brittney Spears shaved her head a magazine was on our break room table with her on the front. I picked it up to have a look at the story and someone that works in our building came in the break room and said “Well Donna I think you should shave your head bald just… Continue

Added by Donna Evans on April 15, 2008 at 9:45pm — 4 Comments

NHS Choices Website

New and improved UK NHS (National Health Service) Website with link to Alopecia Awareness Website.

http://www.nhs.uk/Conditions/Hair-loss/Pages/Realstories.aspx?url=Pages/Realstoriestab.aspx

Added by Michelle Chapman on April 15, 2008 at 1:34pm — 1 Comment

My cure for alopecia

To me focusing our energies on getting to a place of self-acceptance is where the real cure is. I really don't want my self-confidence to be attached to my hair, my weight, my skin color... I don't want to go through my life with the false idea that only when all circumstances are totally lined up in my favor can I feel confident. Alopecia is probably only one of the curve balls that will be thrown at me in my lifetime.



We now have the awesome opportunity to really find… Continue

Added by Cheryl, Co-founder on April 15, 2008 at 12:37pm — 8 Comments

family history

I have had some questions concerning my family history with Alopecia. I have an aunt who has had hair loss since her youth. She is in her 70's now and years ago she told me that they never heard of alopecia and she never thought to go see a dermatologist back then. She has been wearing wigs for many years and I just assume her hair loss is alopecia related although she never pursued a diagnosis and just dealt with it all these years. I have a cousin who has alopecia areata. She was diagnosed… Continue

Added by Dina on April 14, 2008 at 4:20pm — 7 Comments

Dotty's Daily Inspirational/Motivational Reflection

Added by Dotty on April 14, 2008 at 12:31am — No Comments

The Hard Truth

As you can read in my first posting it was very hard for me to put on the wig and be brave enough to go in public for the first time. It was so traumatic and I doubt my mind has fully recovered in the almost 2 years that have past. I really would like a new hair style but I can’t bring myself to make the change because I don’t want to draw attention to myself again. My second wig was a much better fit and only cut slightly different than my first and just a shade lighter so people didn’t really… Continue

Added by Donna Evans on April 13, 2008 at 11:36pm — 2 Comments

The power of a word

Recently, within the forums here on Alopecia World, a discussion has been raised in regard to the issue of creating another word besides "bald" to describe us. It has turned out to be a most vigorous discussion, with many opinions being voiced both in favor of and against it. Apparently, the word "bald" really hits a nerve with us alopecians, and I am no exception. In one of the replies to this discussion, it was suggested that we come up with "a better word for which we can describe ourselves… Continue

Added by kastababy on April 13, 2008 at 10:21pm — 1 Comment

Dotty's Daily Inspirational/Motivational Reflection

~A Special Prayer~

God bless my friends, and bless my children too

And God there's just one more thing, I wish that you would do,

If You don't mind me asking, to just bless my 'puter too??

Now I know that it's not normal to bless a small machine.

But listen just a second, and I'll try to explain.

You see, that little metal box holds more than odds and ends.

Inside those small components, rest a hundred loving friends.

Some, it's true, I've… Continue

Added by Dotty on April 13, 2008 at 12:00am — 1 Comment

Express yourself and make friends from all over the world!

Do you know what makes Alopecia World different?

Well, it isn't different just because it is an online community. There are scores of wonderful online communities for alopecians, and these have been around for years.

The thing that really makes Alopecia World unique is that it is a social networking site like MySpace, Facebook, Xanga, and some others. However, unlike other social networking sites, Alopecia World exists to meet the support and friendship needs of alopecians,…

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Added by Alopecia World on April 11, 2008 at 3:00pm — No Comments

It's About Time I Let it Out and Let it GO.

When I was a kid my mom would wash my hair in the kitchen sink. Once when I was 6 to 8 years old (I can’t remember the exact age.) my mom found a little nickel sized bald spot on my head. Thinking it was odd she took me to the doctor. They didn’t know much but they did call it Alopecia Areata. They said most kids grow out of it but a few grow up and lose all the hair they have…and oh and by the way… no known cause and no known cure. SUPER! The word BALD was introduced to me as a child and it… Continue

Added by Donna Evans on April 11, 2008 at 12:30pm — 2 Comments

Hello.

Hello to everyone on this site. I am a single mom to the best little girl, Peyhton. She is about to turn 7 years old next month! I am starting his page for my beautiful little girl!



She was diagnosed about 3 years ago with Alopecia. It began when the fighting with her father and his then new gf(now wife)started and they began putting her in the middle of our grown up problems. It comes and goes in waves. It is just in spots on her head, but at times they have been small&few,… Continue

Added by Peyhton's mama on April 10, 2008 at 7:00pm — 2 Comments

Where I get my hair

I have had many people ask me about my hair so again I thought I’d post a quick blog about my hair and where I get it…First off thank you for all the wonderful compliments . I got my hair from Madeline's Hair Replacement in Maine where I am from. The lighter hair is a custom piece I had done about two and a half years ago. One of the owners, Ken took a plaster mold of my head and then had a hair prosthetic custom made to match my scalp....it fits great! It is completely secure, I never worry… Continue

Added by Nicole on April 10, 2008 at 10:30am — 8 Comments

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