In four days I will be leaving from Ontario, Canada to go to Nebaj, Guatemala on a mission trip. I may sound like some crazy religious person but I won't lie when I say it is God's will that I am going there. Ever since I felt I wanted to go, everything has fallen into place and I feel compelled - I have to do this! What made me want to post though was the fact that some of us with alopecia (especially newbies) are so absorbed with our hairloss and changing image that we tend to lose focus on…
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Added by Carol on January 15, 2011 at 1:17pm —
4 Comments
Anyone here in an EMT or paramedic with alopecia?....if so, what's your experience ?.....do you wear wigs, ect?....I would greatly appreciate your feedback because I just startted my first day of class
Thanks
Casee
Added by Casee on January 15, 2011 at 7:56am —
3 Comments
What does this mean for you? What weight do you put on all the other aspects of your life, and which ones give you your personal sense of success, comfort, pride, and satisfaction? Some of us have trouble trying to find balance, especially after mishaps in choices. The immediate reaction to hair loss can also take one's mind off the bigger picture. In this time of economic changes, what thoughts are on your mind about what you really need in life? Please tell an unbalanced Libra (me!) how one…
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Added by Tallgirl on January 14, 2011 at 4:51pm —
11 Comments
My most recent Blog - an update to my daughter's condition.
I paid almost a
million dollars for my daughter’s new hair – well maybe not quite a million, but close!
TIMELINE:
August 2010
I first noticed her eyelashes were missing and assumed that because I have alopecia that so did she.…
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Added by Sandi Walmsley on January 14, 2011 at 12:46am —
2 Comments
Well I had the day off today; kids are in school, hubby at work, so I decide to do some heavy cleaning. I came across some pictures of Alex before he started losing his hair and I realized that I didn't remember what he looked like with hair. It was only 8 months ago when he started losing it---- why cant I remember him with hair? For the last eight months, I have shown only signs of disappointment with the condition of Alopecia, but now I am angry...... Why??? Why Alex??? Not that I wish it…
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Added by Debra (twin mom) on January 13, 2011 at 11:40am —
3 Comments
Although AlopeciaWorld.com was launched on March 7, 2008, today is also a very special day in the life of our beloved community.
Today, January 13, is the birthday of Cheryl Carvery-Jones, whose life inspired the founding of AlopeciaWorld.com not only because she has alopecia, but more so because she has a heart for…
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Added by rj, Co-founder on January 13, 2011 at 9:00am —
56 Comments
Im pretty excited about going to an Alopecia Specialist soon. Dr. Lynn Goldburg in Boston, MA. She has such a high success rate. I just hope it all works out. I have 2 new wigs from Christmas and they are wonderful, I've found that I actually like the cheaper material wigs better than the expensive ones. They seem to look more natural and come in fun colors and styles. My confidence was broken in early December when me and my Fiance broke up, we both said a lot of hurtful things but end it…
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Added by Rachel Rei on January 12, 2011 at 9:44pm —
No Comments
Oh well.. How come i never bump into any nice guys who are willing to date me even when im wearing a wig.
I look good in wig. But when they knew im wearing a wig.. Their facial expression just gone twisted and never date me out ever again.
Depressed..
Added by sarahlee on January 9, 2011 at 11:46pm —
8 Comments
Yesterday, on my way to my monthly appointment to clean and reattach my integration system I had two humorous moments of clarity.
1.
I'm sitting in my car, and I pull off my headband-earmuff thing to go inside. My hair stands straight up. "Man, i knew this thing would give me hat hair," I say to myself. Then I burst out laughing. When my biggest problem is "hat hair," as apposed to "no hair," life is pretty good.
2.
Im in the appointment and I'm waiting for…
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Added by Andrea on January 9, 2011 at 9:18am —
5 Comments
So I have NO idea what happened, but my patchy barely there hair that I shaved off, has grown in so think and I have only 1 bald spot! Every morning I wake up with bed head and have to wet it to make it stay down, and it feels AMAZING that I have to do that. I am still missing the tail-end of my left eyebrow, but I don't even care about it! I have HAIR, I have A LOT of hair!! I haven't gone to the dermatologist, I haven't done anything. I know there is still that chance that it will fall out…
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Added by Tamara on January 7, 2011 at 10:30am —
26 Comments
It's been a great few months since I started shaving my head; hiding the disorder was more trouble that it was worth. It seems as though every few times I shave my head I alter my technique ever so slightly (I'm looking for the "perfect" shave). Recently, however,
I have been finding more and more difficulty in shaving my head. Actually, scratch that. What I mean to say is recently my head has been disagreeing more and more with the…
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Added by Aaron on January 6, 2011 at 12:00am —
10 Comments
i have now decided its time to try get myself a freedom wig as im still unsure what my hair wants to do. its bn growin for a bit but very sparse and only a couple of area's changed colour but then it hasnt changed for ages so thought i might shave it off and save for a new wig. just a couple of questions if anyone can help... if getting a freedom wig can you get it any colour you want and how much do the wigs start from? im starting to hate the acrylic wigs now as they dont last at all and i am…
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Added by lynne on January 4, 2011 at 8:00am —
13 Comments
I just want to tell all you teens out there not to give up. Embrace your beauty; it is in the eye of the beholder anyway. My youngest adopted daughter lost all her hair - totalils, almost a year ago. She had to give up competing in gymnastics, but got involved in colorguard at high school. She will be in the Rose Parade tomorrow. I am so proud that she has not let this stop her. If you watch, she is in the Upland High School colorguard, they are 96 out of 97 tomorrow, or for some of you,…
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Added by Debbie Haynes on January 1, 2011 at 1:14am —
2 Comments
hi everyone nad happy new year, i was just wondering if alopecia was passed down to your children. It would be great if someone could tell me thanks.
Added by Dylan on December 31, 2010 at 6:42pm —
4 Comments
Well, I have been noticing the hair on my arms is now almost completely gone..weird. I even thought of sticking some tape to my arm, just to see if there was anything there for it to pull on...I am not sure when it left me, but it's not there anymore...my arms are bald...with the exception of a stray hair here or there. Wow! I am amazed at all of the little surprises that comes with Alopecia...and I am no where close to having AU...guess that's why I was so surprised. Guess I won't have to…
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Added by Diana Carter on December 31, 2010 at 10:34am —
6 Comments
I did something today I never thought i would do....I spent the entire day without wearing my hair...the catch is: I had an exam to take in DC for work today! I was out and about without my hair...And I Loved It! Don't get me wrong, I would rather wear it than not, simply because of the fact that I prefer my look with hair. I just didn't want to do it today. I feel so trapped by it; does that make sense? I waste so much time on hiding and getting myself ready that it makes life so exhausting.…
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Added by Krissie on December 30, 2010 at 7:22pm —
1 Comment
I started losing my hair when I was 16. I was devastated over a small round patch missing from the side of my head. I am now 25 and currently have one patch that has started to regrow, another that is perfectly smooth right next to it, and my eyelashes on one side have fallen out. (I may have like five or so left in the very corner) I don't understand it. I used to be able to go months without any patches appearing, but now i'm lucky if a new one hasn't begun before the previous one even starts…
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Added by Rachell on December 30, 2010 at 1:49am —
5 Comments
i bought one wig...about $100. but you could really see the part area...there were little short hairs that were noticable.
i bought a different wig...$400...from a local store that specializes in them. i didn't go get fitted or get one made for me...even though i have found that service is available here. i'm just not sure what's worth it money-wise. which wig to buy????? this one's part is much better. it has a clear area in the scalp's front that looks more…
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Added by Maryann on December 30, 2010 at 12:30am —
11 Comments
I'm getting married in 9 months and don't konw what to do about my makeup. I'm getting my hair done by the place that i get it from, but makeup is a diff story. I can't get past felling embarassed to have someone see me "naked" NO ONE has ever seen me w/o my eyebrows and at least thick eye liner on (not even my fiance). I was going to do my own but I have no idea how to do eye shadow and the that jazz, its my wedding day and I want to look amazing, but I know i'll be mortified having my makeup…
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Added by lorraine b. on December 29, 2010 at 5:06pm —
5 Comments
I wanted to ask everyone to please help find a cure for our disease.
Please fill out a questionaire and donate a blood sample to
www.naaf.org/site/PageServer?pagename=research_registry
This is our hope for a cure.
Happy New Year!!!
Jeffrey
Added by JeffreySF on December 29, 2010 at 1:47am —
4 Comments