I'm glad to chance upon this site and I've only joined last night. Guess I'll start at the beginning. I used to have a tremendous amount of hair when I was 18 (am now 46) except it was a very fine, frizzy type hair and back in the 80's, there wasn't the kind of hair products or curling iron straighteners we have today and so the only solution was to perm my hair. One day, I got my step mom to perm my hair but she pulled the curlers too tight which resulted in the perm solution literally…

Hi everyone!

I'm warming up to this site. I'm happy to have found it and wish I knew about it earlier. I'm nervous, I'm affirmed ... and I'm making sense of them together.

Thanks for being brave enough to share your stories and allowing me to see myself in those stories. I plan to share a photo soon.

Thanks (and please share all your love)

I admitted to the world today that I have alopecia and I'm proud and WOW!!! What a response. Through this I have managed to get over 20 people to sign the online petition and i dont know how many but lots of people sent in donations! A friend of mine has also set up a photo shoot, as i am an ex model, to promote alopecia awareness and raise money for Alopecia UK....I feel free and I feel like even though it was only small, i still helped the cause and will continue to do so until we find a…

In my journey of growth and learning I came across a book about Buddha nature or the Buddha way. Simply titled Buddha Nature Now. Im always wanting to take in new information of our world with an open mind.

Upon reading into part of this book it talks about oneness. Simply put we are of one within our own body, we are one with our family, our community, our country and our world. We know that our actions are felt on a small scale within our personal circle, it is harder to think on a…

im on the verge of getting a wig. i think bald is beautiful, i just dont think its the right option for me. anyways, i just have all of these questions about wigs and i cant seem to find a straight answer online.

how does a wig feel? is it itchy? do you have to wear a cap under it?

how secure does it feel? how do you keep it from blowing off in the wind? is gluing recommended? can i swim with a wig on? how did you feel transitioning into a wig? can you sleep in it? can you be…

Hey everyone

I hope you are all well. I haven't been on here in a long time.

I felt it was important I wrote this blog to let you know how I have been and how my Alopecia Universalis has 'changed'.

Those of you who read my previous blog will know that I experienced my hair loss at quite a fast pace, literally within a few months I had gone from having a tiny bald patch at the top of my head, to having complete hair loss all over my body.

My last blog in 2010 spoke…

I am not sure what this means, but I have some white hairs growing on my face and body. Is this a start of hair growing back? My scalp is feeling looser, not as tight. Has anyone else had this happen?

U.S. toymaker Mattel created a “bald” friend of Barbie doll named Ella and donated a limited quantity of the dolls to the National Alopecia Areata Foundation (NAAF).

However, the bald doll has created some controversy in the alopecia community because Ella is packaged with a wig on.

Some feel that it is not a real representation of a person with alopecia and…

It's been very hard for my son who is only 10 yrs old. how do i answer his questions?

Hi my name is Krystal and my soon to be 14yr.old daughter has A.A.she's losing her hair at a faster rate than we anticipated. I don't think the full aspect of what's to come has hit her yet and I want to shelter her from it but I know that I can't as much as I want to.when does the feeling of utter uselessness and not in control go away or at least fades and gets Better? Please help an emotionally behind closed doors mom.any and all advice welcome.

Help - anyone who has experienced this place respond.

It is almost two years since I had the little bit of hair I had left cut, shaved and I began to live my life as an alopecian (I barely had hair). Last week I developed a burning sensation on the back of my head. It looks like I have a sunburn. Initially it looked like a rash, but that went away in two days. It burns like I have a sunburn. I went to my regular doctor thinking perhaps I had shingles. I had chicken pox at 34 years of…

WOW it's suppose to be summer here in Sydney Australa. Woke up this morning and it's raining NO problem went outside and oh my goodness my poor little head is fresszing I had to come inside and get a beaney to cover it up. I don't usually feel the cold but wow my head is not used to being bare. So much for global warming!!!!!!! I hate to think what my head is going to feel like in winter. But because my hair is growing back I might have enough to keep it warm by winter. You don't realise how…

I've never "blogged" before so be patient as I must learn as I go.

I feel like I'm an outsider in Alopecia World, which saddens me because I thought here was a place where I'd find people who would be more accepting and understanding than anywhere else. Please don't misunderstand; I'm not making accusations, nor am I criticising anyone in here. I am "different" from most people with or without alopecia. I've always marched to the beat of another drum, not concerned with what others…

hi! my name is iris i have a son that has alopecia is there is onyone from nj?

I wanted to share a piece of my personal journey with Alopecia. When I need to work through things...I write. The process is healing.

Courage to Believe

Standing within a shadow of illusion

Not knowing my desir

A journey lacking fulfillent

A soul without the fire

Suddenly I realize what a waste of time

How miserable my world has been

Searching for reasons to understand

What haunts me deep within

Then I found the person within me…

Hey guys just wondering if there is any magical clinic in Australia that can do fake eyebrows and maybe even lashes that look real and last?

I have had alopecia for over a year now. I am a healthcare professional and encounter patients throughout my 12 hour shift each day. I spend the day assuring my patients that I am not sick and keep the moment light with a short explanation of AU. I have tried wigs and the most aggravating part that I cannot seem to get past, is how the hair feels against my face or when it gets in my eye. The wigs I have worn are synthetic and I was wondering if the real hair wigs felt this way. It feels…

I have lived with Alopecia Universalis since I was two years old. Without this disease, I probably would be a completely different person. I consider myself a little stronger, more compassionate, and less judgmental because of AU.

I am scared to show everyone who I really am though. I have hid underneath a wig for almost 13 years now. I'm not afraid to not have my hair on around my close friends and family, but I am very scared to walk out without it. I am trying to build up…