All Blog Posts (5,829)

1 year old losing hair

Anyone else experience this with their children. It's shedding everywhere and dr said its normal. I am freaking out cause my husband and I both have hair loss. Does anyone else seem to think it is stange that we all have hair issues. I am starting to think its our apartment or water. I don't know what to think anymore.

Added by Michelle on February 20, 2013 at 6:26pm — 3 Comments

It's rude to stare

Some people should really be reminded of their manners, from curious looks to downright stare fest, seriously. I have been getting this a lot lately. Yes, I am bald. Yes, I’m a woman. No, it wasn’t by choice that I’m bald. No, I’m not on Chemotherapy. Yes, those are extra-bald patches you see scattered all over the backside of my head. Yes, it’s a disease; and before you give me that look, no, it’s not infectious. It’s Alopecia Areata. Google it. Get over it.

I would say I found out…

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Added by IcedBit on February 20, 2013 at 5:00am — 6 Comments

Regrowth

Well my hair is growing back at a very rapid pace no bald spots just lots of hair don't like the colour grey and white though Hey but it's hair

Added by Annette on February 19, 2013 at 4:38pm — 15 Comments

It does come back sometimes!

Hey everyone, just dropping in to let everyone know that my hair did come back. Not perfectly, but beggars cant be choosers hey! Took 2 years though and still haven't got my facial back

Added by Shane Beard on February 18, 2013 at 7:12pm — 1 Comment

Cortisone injections are working to treat my nails

Hi - it's been a while since my last post about my nails that were lifting away from the nailbed. I've found something that seems to work - - although I have to say, it's pretty extreme. On two of my most affected nails where the nail had almost completely lifted away from the nail bed, I've received a cortisone injection at the cuticle line. Painful, but it seems to work. Next time, I'll apply some numbing agent the dr. prescribed before my next appointment.

Added by JMEL on February 17, 2013 at 1:00am — 3 Comments

Baby Let Your Hair Hang Down is now available on DVD and Amazon VOD - finally!!

Hi Everyone!

I am so so so so excited to be able to write on here to tell you all that the film that I have been talking to so many of you about over the years is finally on sale. My documentary - BABY LET YOUR HAIR HANG DOWN - about my journey with Alopecia Areata is available for you to watch. You can buy a DVD or download it from Amazon VOD.

The link to the film is here:…

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Added by Georgia Van C on February 16, 2013 at 9:45pm — No Comments

Re-Growth

Hi Everyone. It has been one year this month since I first lost all my hair and posted on Alopecia World.

I am happy to say it is growing back in. I still have a few small bald spots and the new hair growth is baby fine.But I will take what I can get.

I do want to say thank you to everyone on this sight for the support, it has really helped me cope.I did not feel so alone!!!!.…

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Added by Klo on February 16, 2013 at 4:58pm — 4 Comments

Question

Does anyone know of this treatment research? Is it old, new? I was just searching around and found it.…



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Added by Ryan on February 15, 2013 at 11:54pm — 2 Comments

Twitter

Hey Everyone! I've decided to take a new step in embracing my beautiful bald head and started a twitter account. It's called Bald_Sarah. What I'd really like to do is start raising more awareness in our community. I would appreciate it greatly if you could follow this account in hopes more people will see it. I'm also creating a new hashtag #nohairdontcare

If you don't want to follow me, use this hashtag! lots of people have told me it's really funny. That's actually where I got the…

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Added by Sarah Bitar on February 12, 2013 at 8:42pm — No Comments

Feeling quite melancholic about my hair loss...and also feel alone

I'm glad to chance upon this site and I've only joined last night. Guess I'll start at the beginning. I used to have a tremendous amount of hair when I was 18 (am now 46) except it was a very fine, frizzy type hair and back in the 80's, there wasn't the kind of hair products or curling iron straighteners we have today and so the only solution was to perm my hair. One day, I got my step mom to perm my hair but she pulled the curlers too tight which resulted in the perm solution literally…

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Added by Meloncholy on February 12, 2013 at 4:30pm — 2 Comments

I'm warming up to this site

Hi everyone!

I'm warming up to this site. I'm happy to have found it and wish I knew about it earlier. I'm nervous, I'm affirmed ... and I'm making sense of them together.

Thanks for being brave enough to share your stories and allowing me to see myself in those stories. I plan to share a photo soon.

Thanks (and please share all your love)

Added by Ann on February 11, 2013 at 9:00pm — No Comments

I shared this with facebook today and the reponse was amazing! MUST READ

I admitted to the world today that I have alopecia and I'm proud and WOW!!! What a response. Through this I have managed to get over 20 people to sign the online petition and i dont know how many but lots of people sent in donations! A friend of mine has also set up a photo shoot, as i am an ex model, to promote alopecia awareness and raise money for Alopecia UK....I feel free and I feel like even though it was only small, i still helped the cause and will continue to do so until we find a…

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Added by Vicki Sampson on February 10, 2013 at 6:00pm — 2 Comments

Today will pass

In my journey of growth and learning I came across a book about Buddha nature or the Buddha way. Simply titled Buddha Nature Now. Im always wanting to take in new information of our world with an open mind.

Upon reading into part of this book it talks about oneness. Simply put we are of one within our own body, we are one with our family, our community, our country and our world. We know that our actions are felt on a small scale within our personal circle, it is harder to think on a…

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Added by Bald and Fabulous AKA Terri on February 9, 2013 at 2:00pm — No Comments

Wig help please:)

im on the verge of getting a wig. i think bald is beautiful, i just dont think its the right option for me. anyways, i just have all of these questions about wigs and i cant seem to find a straight answer online.

how does a wig feel? is it itchy? do you have to wear a cap under it?

how secure does it feel? how do you keep it from blowing off in the wind? is gluing recommended? can i swim with a wig on? how did you feel transitioning into a wig? can you sleep in it? can you be…

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Added by neverthoughtidenduphere on February 8, 2013 at 2:00am — 5 Comments

Total regrowth

Hey everyone

I hope you are all well. I haven't been on here in a long time.

I felt it was important I wrote this blog to let you know how I have been and how my Alopecia Universalis has 'changed'.

Those of you who read my previous blog will know that I experienced my hair loss at quite a fast pace, literally within a few months I had gone from having a tiny bald patch at the top of my head, to having complete hair loss all over my body.

My last blog in 2010 spoke…

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Added by Sarah McA on February 7, 2013 at 9:00am — 4 Comments

Very light blond hairs growing

I am not sure what this means, but I have some white hairs growing on my face and body. Is this a start of hair growing back? My scalp is feeling looser, not as tight. Has anyone else had this happen?

Added by Denise T on February 6, 2013 at 2:00pm — 1 Comment

New “bald” friend of Barbie causes controversy

U.S. toymaker Mattel created a “bald” friend of Barbie doll named Ella and donated a limited quantity of the dolls to the National Alopecia Areata Foundation (NAAF).

However, the bald doll has created some controversy in the alopecia community because Ella is packaged with a wig on.

Some feel that it is not a real representation of a person with alopecia and…

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Added by Cheryl, Co-founder on February 5, 2013 at 11:00pm — 54 Comments

How to explain to a 10 yr old?

It's been very hard for my son who is only 10 yrs old. how do i answer his questions?

Added by Iris Mendez on February 5, 2013 at 1:00pm — 6 Comments

My daughter

Hi my name is Krystal and my soon to be 14yr.old daughter has A.A.she's losing her hair at a faster rate than we anticipated. I don't think the full aspect of what's to come has hit her yet and I want to shelter her from it but I know that I can't as much as I want to.when does the feeling of utter uselessness and not in control go away or at least fades and gets Better? Please help an emotionally behind closed doors mom.any and all advice welcome.

Added by Krystal on February 3, 2013 at 12:30am — 4 Comments

Bald and burning scalp sensation

Help - anyone who has experienced this place respond.

It is almost two years since I had the little bit of hair I had left cut, shaved and I began to live my life as an alopecian (I barely had hair). Last week I developed a burning sensation on the back of my head. It looks like I have a sunburn. Initially it looked like a rash, but that went away in two days. It burns like I have a sunburn. I went to my regular doctor thinking perhaps I had shingles. I had chicken pox at 34 years of…

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Added by Lili Añel (aka Eulalia) on February 2, 2013 at 2:18pm — 8 Comments

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