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New Hair

After 2 weeks of waiting and £130, my new hair top piece should arrive tomorrow. I'm quite excited but don't want to get my hopes up too much as I had to go on a description and image on a website and guess the colour so fingers cross it's suitable, I'd hate to have to send it back and wait all over again. My human hair one is really ratty round the ends now (I've had it since December 2009) and I'm sick of only having one style.



I can't find a big range of just top pieces (the ones… Continue

Added by Rachel on May 7, 2010 at 5:27pm — No Comments

Milestone

This morning I woke up and did a Britney Spears. Yes, I cut off all my hair. I am so happy and relieved I made this decision. I've never been completely bald before, and so far, it's not so bad. I want to thank the Alopecia World community for being so inspirational. I also want to thank the community at HerAlopecia.com and my family :)

Added by Jessi on May 7, 2010 at 8:32am — 4 Comments

Introduction of Sorts

I never know if people read these, nor am I ever sure how to begin but the sake of my own sanity I'm writing. Here we go...



Why am I here?



A few months ago I noticed a small bald spot forming and chalked it up to pulling hair back too tightly. In hindsight that really is a moronic excuse, but at that time I had no idea Alopecia existed nor did I think I was losing hair. Well, needless to say that wasn't accurate. I had two friends visit in March, and I was still able to… Continue

Added by Ellen Burns on May 7, 2010 at 5:37am — 4 Comments

Please keep the entire city of Nashville, TN in your prayers AW family!

Just in case you missed it on the news, the city of Nashville, TN was devastated by the flooding of the Cumberland River this past weekend. While my family and I were fortunate to have remained dry and safe, there are countless people here who have had their lives and livelihoods destroyed by the waters. Just to put it in the proper perspective, the Cumberland River -- as it flows through Nashville -- is considered to be at flood stage at 40 ft. As of yesterday, the river crested at 52 feet and… Continue

Added by kastababy on May 7, 2010 at 12:01am — 1 Comment

Coincidence? I Think Not! :)

Hello My fellow Smooth Friends :)



I enjoy reading all of your post and checking out the great pictures. I thought I would share what happened to me today. I am a full time graduate student studying to become a Nurse Anesthestist. I needed to get an MMR before I could start a new clinical site and the Health Department was just the most convient option (Glad I vote for the levy :). A mother and her daughter (age 5-6) came in an sat next to me. I could tell they were checking me out… Continue

Added by Marianne on May 5, 2010 at 6:19pm — 5 Comments

INTERNATIONAL ALOPECIA DAY is Saturday, July 17, 2010!

In April 2009, Alopecia World member Mary Marshall proposed the idea of a National Bald Out day.

Mary's idea quickly evolved into an international celebration three months later to raise public awareness of alopecia and express our pride in our bald heads.

However, due to a "National Bald Out" trademark claim filed by another member of Alopecia World (see www.uspto.gov for details), the popular National Bald Out discussion group on Alopecia…

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Added by Alopecia World on May 5, 2010 at 4:00pm — 3 Comments

Coping

Signe is 11 and on her third, and most aggressive AA loss. The first two times she was young enough that it didn't really affect her, it was much easier to cover and we just rolled with it. However, "rolling with it" has become much more difficult because of advancing age and meaner kids. It doesn't help that Signe suffers anxiety and is a perfectionist.



A few weeks ago, after months of "creative hairstyling", adjusting to hats in school and finally, a wig, Signe said she was ready… Continue

Added by Maria Jeremiason _ Signe's Mom on May 5, 2010 at 12:31pm — 3 Comments

Really odd question about ringing in the ears

I have been suffering with ringing in my ears for a couple years now. I started reading up on it in preparation to go to the doctor, and I found that tinnitus (ringing in the ears) is caused when the tiny hairs in your inner ears, which sent auditory signals to your brain, are damaged or killed. For some reason, when something happens to those hair cells, the brain perceives it as sound, and your ears ring.



Well, since I have alopecia pretty much everywhere, including inside my nose,… Continue

Added by Kari M on May 4, 2010 at 1:32am — 13 Comments

Some more progress

well the last time i wrote i was havin regrowth and i still have hair comin in, but the other day i cut the bits that are longer down so all the hair i have was about 1cm long, which then i noticed i have dark hairs comin in with the white, i was so excited to see this and hopin that its the start of my real hair comin bak :)

i now have most of my eyelashes bak and my left eyebrow which is now mostly dark hairs and my right brow is tryin to catch up altho a little slower,

i thot id… Continue

Added by lynne on May 3, 2010 at 5:51pm — 2 Comments

Too many hair options...same old decision

I believe i wrote on my page a few weeks ago about getting a topper. Well, I opted for a different set of extensions again. I think I decided to hold off on a topper out of pure fear. Deep down I feel that getting a topper or wig means that I will be giving up on hope that my hair will just decide to grow back healthy and strong. I don't know why I just can't take the plunge and do it. I see so many woman on this wonderful site with their pieces and they all look gorgeous; like they are having… Continue

Added by Krissie on May 2, 2010 at 3:48pm — 7 Comments

Happy Birthday to Me!

In a way, this whole experience feels like a re-birth. I know that I'm the same person on the inside, but it's such an outward condition. That makes me feel like a different person. I've recently started to reconnect with my friends as "Bald Brandy". They have been sooo accepting and loving. I'm lucky to have them.



The only thing that I'm worried about is my career. Before I got diagnosed with Alopecia, I was an advertising account supervisor. Since all of this has happened, my… Continue

Added by Brandy P. on May 2, 2010 at 4:46am — 1 Comment

Protect your email address on Alopecia World

The email address associated with your Alopecia World account is private and will remain so unless you choose to share it with others.

Therefore, we caution you to be wary of any request for your email address or any other contact information you have not made publicly accessible via your Alopecia World profile and posts.

You also should NOT join email lists on other sites just because you were asked to do so on Alopecia World!

If a member of Alopecia World wants…

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Added by Alopecia World on April 29, 2010 at 1:30am — No Comments

Adrenals firing WAY too much

After my hair started falling out again last fall I went back to my doctor and said if it was my stress level causing this please give me something this time...last time rest and vitamin therapy. He gave me Klonipin which has helped my adrenals from firing abnormally for small things that should not make them fire. It has been a great thing for me and I just thought I would share it with ya'll. I take 1/2 in the morning and 1/2 at night. i hope this helps someone else.

My pills are .5 mg… Continue

Added by BJ Spicer on April 28, 2010 at 10:00am — 5 Comments

Engagement Photos

A fun afternoon with a fiance who loves my bald head. Click to view the slideshow. http://bykellyandjustinproofing.com/ss/thompson0410/

Added by Jill on April 27, 2010 at 7:30pm — 11 Comments

Don't stare or tell me he looks funny!

hey everyone,

i need to get this off my chest since i have no one else to talk to. Im so sick and tired of people staring at my son...people come up to me and say wow does he have cancer!...i think thats so rude..and then today i took his meds to rite aid and someone says he looks funny bald...i dont even know what to say back to people...it breaks my heart when people just stare...if you wanna know what my son has please just ask...

Then yesterday im looking back at my wedding… Continue

Added by Shannon **Jose's Mommy** on April 27, 2010 at 5:08pm — 6 Comments

Follow Up? Burn?

I decided to cancel my follow up appointment with the doc. I certainly wasn't going to try either of the pills he suggested. Heck that was some nasty stuff. I'd have to get blood tests weekly to monitor my organs. No friggin' way! Then the pepper (capsaicin) cream; I would have to start at 0.025% and work my way up to 0.075% if that was ineffective; and at about $20 a tube. So you know what I did? I went to the grocery store and bought a small $3 tray of the hottest little peppers they had,… Continue

Added by Brandy Snap on April 26, 2010 at 7:28pm — 1 Comment

Keeping you updated :)

Thought I'd update you after my last blog post...I've been to see the head and she was really nice and said she's going to breif the staff properly at the next meeting. She even said that if I wanted to shave it i could and i wouldn't have any opposition from any of the staff...and even my mum's come round to it!! we're gonna do it tomorrow morning!! I'm so excited!! :) I'll post pics tomorrow of my first bald day out!

xxxxxxxxxxxxxx

Added by Keeley Tomlinson on April 26, 2010 at 4:57pm — 5 Comments

1 Year Bald Anniversary!

Hi all,



Yesterday (4/25) was my 1 year bald anniversary! I shaved my head one year ago and life has only gotten better from there on :) It's feels like a kind of a birthday for me, because it shaving my hair off and starting fresh was the first time I felt like the "real me" since I had gotten alopecia in 2001. Many of you may know what I mean about what a positive life-changing event the "Big Shave" can bring about. For those of you who are still struggling with the decision of… Continue

Added by Natalie on April 26, 2010 at 2:30pm — 10 Comments

WOW !

I just now thought of something . I have come so far from where I was at . It blows my mind ! I'm just like, WOW !!!! A year ago or almost a year , I thought about suicide . I felt so miserable . So alone . I thought I had no friends . That no one cared bout me . That was all lies from the Devil . I remember crying and writing in my journal and putting : I don't really want to kill myself . But I hate how I feel . I feel so alone . ( or something along those lines .) I kept thinking , I could… Continue

Added by Mackenzie on April 25, 2010 at 4:09pm — 5 Comments

Almost

There are those days when I can do little more than sit back & laugh at what life brings my way. Today was one of those days. I had taken a shower after my morning run and was preparing to clean up what few hairs remain on my face when I saw it…a hair on my previously bare eyebrow…woo hoo! I felt like an adolescent boy whose first, long awaited mustache hair had appeared as if out of nowhere. A hair, yes perhaps only one but a hair no less. Could this be the beginning of new growth? I… Continue

Added by Tony on April 23, 2010 at 12:42pm — 7 Comments

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