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The Movie Grey Gardens/Alopecia

Has anyone seen the movie Grey Garden's starring Drew Barrymore? She portrays a character that deals with alopecia. The movie is quite interesting it is based of a true story of Jackie Kennedy's relatives. I think it is the first movie I've seen that shows a character that has alopecia. It was touching to see it portrayed on screen because Drew really captures what it is like to lose your hair; and how she learns to deal and doesn't lose her spirit. Just wanted to let you guys know, don't know… Continue

Added by Francie on December 24, 2009 at 1:57pm — 9 Comments

Screenwriting 410

Just a little update. Thanks for all of your support with my screenplay. I was picked to move onto the next level!! Which is Screenwriting II or SAC 410 at U of M. It is a very competitive program and in my class on 17 only 5 students were picked to move onto the next class and I was lucky enough to get picked. Thanks for all of your support and maybe someday my script with make it to the big screen and let the world know a little more about Alopecia. <3 -
Kelci

Added by Kelci on December 24, 2009 at 1:45am — 1 Comment

Gail Porter in recent news stories - what a role model!

This is a nice interview with Gail from Nov. 5, 2009, with a lot of positive comments about dealing with alopecia areata:



http://www.thesun.co.uk/sol/homepage/woman/health/health/2714727/Gail-Porter-on-what-its-like-to-be-bald.html



This link has a bunch of nice photos of Gail at a fashion/benefit event in October, with other events also:…



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Added by Mary on December 22, 2009 at 4:24pm — 5 Comments

Derm update today

I went back to the dermatologist today for a follow up after my first round of steroid shots 8 weeks ago. She said she does see a little bit of regrowth! Although it's just a little, and the other hairs are still coming out like crazy, I'm still going to go ahead and shave/buzz it all off on NY Eve. I figure it's a good way to ring in the new year, which I can't wait for. 2009 hasn't been kind to me, with a bad breakup after 9 years, the passing of my Grandfather, after his short, but hard… Continue

Added by Callie on December 22, 2009 at 10:26am — 6 Comments

Happy Holidays

Happy Holidays Everyone. I have not written in a while. All is well. Some days are better than others. I am still dealing with the alopecia one day at a time. It is so amazing how much hair defines a person. I try not to think about it but it's there...Like the big pink elephant in the middle of the room...

Added by Diane Holland on December 21, 2009 at 11:20pm — 1 Comment

Thank You, Locks of Love!!

A big snuggly thank you goes to our friends at Locks of Love for making Jordyn's xmas a little more special this year..I got the call today from Rhonda at LOL and Jordyn's real hair suction cup wig is all finished..I told her tonight and she was sooooo excited..now to tell her it will be here before xmas...should I..She has been waiting for this since we sent off the mold...Im so happy that this makes my little girl so happy to have flowing locks..now to see if she wears it..lol!!

Added by Jess (Jordyn's Mom) on December 21, 2009 at 9:37pm — 1 Comment

"Home...Away from Home"



Every now and then signing on to Alopecia World allows me to reflect.

To share, also connect with people who's life has been thrown into a spiraling pool of loss, isolation and sadness.

Where the only way to feel accepted in the outside world, is to cover up with head covering.

So here at Alopecia World we are free to shed our wigs, our hats, bandannas and head coverings, that hide our sorrows.

Here we can unwind, disrobe, to tell our stories, pains and… Continue

Added by MiNAH on January 27, 2010 at 11:43pm — 5 Comments

It's genetic afterall!

I have been doing a daily blog on another website lately but this is totally alopecia related and I'm kind of excited about this new information I thought I'd share it with my Alopecia World family! Over the last year or so I've come into contact with my biological family, I was adopted at birth and my aunt just told me the coolest thing today. Apparently I look and act very much like my grandmother in certain ways who has unfortunately passed away now but the coolest part is is that she too… Continue

Added by Carol on December 19, 2009 at 4:17pm — 4 Comments

Wigs, redux

My wigs are trimmed and styled (and in one case resized; much easier than I had anticipated and much assisted by the support and advice of Meg and Thea - thank you so much!) and ready to go!



Can't say I was overly impressed with the hairdresser who did them, though. I was left waiting for 25 minutes - for which she didn't apologise - and then she was just a bit, well, offhand with me. I had expected someone who could empathise with hairloss, maybe be a bit supportive. But it was just… Continue

Added by Cal on December 18, 2009 at 5:17pm — 8 Comments

Hairless

Well, here's another blog, this one is going to be a little bit shorter I guess.



A month or so ago I got my wig, which already mentioned in other blogs, and I still got my real hair beneath it.

A week after I got my wig I got a feeling that I would feel even better if I would shave my hair.

So I told my dad, and he got a trimmer the next day. That evening we just trimmed it.



I must say it wasn't too easy to see all the hair I had falling before my eyes. But I… Continue

Added by Lionel on December 18, 2009 at 4:30pm — 3 Comments

Head Tatoo

I was just wondering if it hurts any worse than anywhere else on your body to get a tatoo on your head? Anyone had one. I have a very small butterfly on my thigh with was a little painful, but want to pursue one on my head.

Added by Deanna on December 18, 2009 at 12:58pm — 3 Comments

To wig or not to wig

Hey everyone,



Thanks for the warm welcome. This site is great even though I haven't posted until now, I've been checking the site out and it has been a valuable support and learning tool.

I was just diagnosed with AA at the end of August. Since last month I've kept my head shaved as there's not enough hair left to do anything with. I am really not used to or digging the bald look yet, especially since my hair is dark and my skin is white. Regardless of how close I shave, It… Continue

Added by Victor on December 17, 2009 at 7:10pm — 4 Comments

Things Alopecians Like #13

Making fun of your boyfriend because he's going bald.

Added by Jill on December 17, 2009 at 7:56am — No Comments

The 12 Days of Alopecia

Okay I know we did this last year but by popular demand it's back.
You can view my past Blog(s) to see how it went last time.

So here goes...I'll start. Everyone join in and have fun!

On the first day of Alopecia Areata I recieved...
My first little bald patch on me

On the second day of Alopecia Areata I recieved...

Added by JeffreySF on December 14, 2009 at 7:30pm — 13 Comments

Beauty is...

It is said beauty is only skin deep; I disagree.

Beauty in its truest form is what you find just below the surface, in fact.

In all beings, beauty is a light that shines from within, casting a soft glow on all who are in its presence. With each layer revealed the light grows stronger, warmer, and more radiant. I believe beauty is not skin deep, but rather resides in humble purity at the very core of the soul.



Love yourself today, and shine your beauty on all who surround… Continue

Added by Seadra on December 14, 2009 at 2:11pm — 1 Comment

Dont Cry For Me Alopecia

Hello Friends,

Just a little Holiday Cheer to all of you...

Dont cry for me alopecia
The truth is I now embrace you
Dont forget the NAAF Conference
Coming up next year
If I dont see you
Just know I'm with you

Sending Happy Holiday Greetings to All

Jeffrey

PS If you would like to add another verse to the song I would love it!

Added by JeffreySF on December 14, 2009 at 12:30am — 7 Comments

Irked by the medical community

I'm taking a trial migraine drug; or was, until I found a bald spot on my head. My neurologist removed me from the trial drug -- which was working amazingly well -- but swore she didn't think there was any correlation between the drug and the alopecia.



I did some research and found out that alopecia is a side-effect in a few migraine drugs. As high as 7%! I also found that since alopecia is so "prevalent" a condition (around 0.1% of the world) that it isn't really ever considered a… Continue

Added by Paige B on December 13, 2009 at 1:26am — 2 Comments

A special present

I have the very best friend that anyone could ask for. My best friend ,Jennifer, has been there for me during my whole hair loss she was even one of the friends that offered to shave my head when I was ready. We have a friend ,Robert, that is in theater make-up and makes wigs and she asked him to make me a wig for my birthday/xmas. She talked to him first about being able to make one for me and when he said he could she had to say something to me about it because he needed to know the colour,… Continue

Added by Trixie on December 12, 2009 at 7:25pm — 4 Comments

2009 - A Year In Reflection...

Hello all my AW friends! As the year starts winding down to a close, I always get a little reflective of the year's passings. For me, I think 2009 can be summed up in the phrase "It's been a BUGGER of a year". There's no doubt in my mind that I'll be happy to see the end of '09!



Many of my close friends on AW know that in '09, not only did Alopecia Areata rear it's ugly head in July, but I also found out this year that my Blood Pressure is high. If that wasn't bad enough, the stress… Continue

Added by John M. on December 12, 2009 at 12:30pm — 10 Comments

First Post - Hooray!

If you have a huge head like I do, it is SO hard to find hats. And especially if you're looking for regular hats in Winter. Everything we saw was either too small, or too wintery.

It seems that since I've been diagnosed with AA, everyone in my family is treaating me differently. Sometimes I just want to be treated like someone that isn't losing their hair. My friends are being super-cool about it, and they actually treat me better than my family. Its a little strange, but once everyone… Continue

Added by Leah Turlo on December 12, 2009 at 11:15am — 3 Comments

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