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Ups and downs, highs and lows

I'm feeling a bit blue at the moment and I'm not entirely sure why. I was so relieved when I shaved my head, over a month ago now. I loved having taken control and I loved getting compliments and standing out. But now I'm feeling like I can't really be arsed with it and that I'm not sure I like how I look bald. Maybe it's just that I'm dog tired generally (bring on the christmas holidays - I can't wait), I don't know, but I'm considering getting a wig and wearing it sometimes when I just want… Continue

Added by Cal on November 30, 2009 at 1:24pm — 5 Comments

If it's gonna keep coming back in patches

if it keeps coming back in patches and the spots keep joining then i dont want it.....this hair that is! lol

Added by MARGARET MCCOY on November 29, 2009 at 2:35pm — 4 Comments

Repairing a wig? Is that possible?

I have heard of sending a wig in for repair. What does that entail exactly? I have a 3/4 wig, medium or shoulder length. A couple times it has gone through what seems like a shed! I go through a couple-week period where more than a few hairs come out every time I run my fingers through it (which is often during the times I am worried about it), and there always seems to be some on my clothing and extra in the brush. I am careful of it and carefully untangle and unsnarl, but at least twice it… Continue

Added by Barbara on November 27, 2009 at 5:30pm — 5 Comments

A rant, and a rave?

Well my journey with AA has been bumpy so far. And I'm sure that has been the story for many at the first stages. I'm still adjusting, and have my good days and bad. I'm sure I'm not alone in that, and don't want to sound whiny at all, but something happened today that hurt. And I've not had to feel this way before...



But before all that, I'll start with the good. Over the past couple weeks, I've been wearing my wigs. On the very first day I wore my first one, I had an interesting… Continue

Added by Callie on November 26, 2009 at 11:21pm — 9 Comments

Wig

This morning I went to the hairspecialist, because he had wig I ordered.

Me and my dad got in the car and drove up to Utrecht which is 50 km away from here.

The roads here in this small country are a disaster.. 2 lanes that become 3 lanes and then go back to 2 lanes again 3km further ahead. That causes a lot of accidents and causes a sort of queue on the road..(dont really know the english term, file maybe?) So we drove up there, the one file after the other.

I was pretty excited… Continue

Added by Lionel on November 26, 2009 at 1:22pm — 6 Comments

A Poem to My Hairloss :)

When I touch you

It feels like you're still there,

Then I take a closer look and you're gone.

No where to be found....

Somewhere on the ground.



I'm going to ignore you.

Not love you.

Not hate you.

Just not care about you.



Maybe one day you will be back...

But love I won't lack.



I must move on.

I can't keep on.

You've gone away

Why should I stay?



I don't have a choice,

I don't have a… Continue

Added by Angela on November 26, 2009 at 3:49am — 7 Comments

8-year-old daughter diagnosed with alopecia in June 2009

Hello Everyone. I've been hanging around this past month or so and finally decided to tell "my story". I am a wife to a very great man and also have two daughters...ages 8 and 4. My oldest daughter was diagnosed with alopecia this past June 2009. It started out as a small patch about the size of a quarter on one side of her head. At first I thought that she was pulling her hair out, but then I noticed another patch on the other side of her head, and then another, and then another, etc. We were… Continue

Added by Ronda Darling on November 25, 2009 at 8:30pm — 8 Comments

I am new

i am so glad i have been told about AW. i didnt realise the condition was so common.. its so nice ot be able to share experiences with others who are going through the same thing or who have gone through it.. i am very new to this so if anyone wants to chat feel free to add me :) xx

Added by kathryn burtenshaw on November 25, 2009 at 2:41pm — 6 Comments

Pregnancy and hair growth?

Well folks I have just discovered I am in the early stages of pregnancy. This was a shock but a happy one. We have two boys 12, 11years and a girl of 6. Obviously as I am early we have decided to wait for the 12 weeks. As I am in my final year at University doing my teaching degree I am hoping the side effect to pregnancy allow me to keep up the work haha!!! Does anyone know what happens with aa during pregnancy, will my hair grow back??

Added by claire taylor on November 25, 2009 at 9:32am — 2 Comments

Why are you grateful for Alopecia World?

'Tis the season to be grateful, so we are wondering why you are thankful for Alopecia World? What brought you here? What keeps you here? Why do you tell others about our beloved community? Please let us know in your reply below. :-)

Added by Alopecia World on November 25, 2009 at 1:00pm — 32 Comments

Thanks so much

I have been a member for almost a week or so here at AW, and have to say how much I have enjoyed my time here. I've read some amazing stories, and "met" some really great folks who are inspirational in so many ways. I've told many of my friends about this site, posted links on Facebook and Flickr. Many of them have checked it out as well. It's nice to find some sort of "support" system online to help me deal with the emotions that I'm feeling while dealing with this condition.



I have… Continue

Added by Callie on November 24, 2009 at 11:16pm — No Comments

Why Not Me?

As I've shared before, my hairloss is (as far as I know) related to another health issue. 2.5 years ago, I got a rheumatoid arthritis diagnosis but in the last year my symptoms have ramped up, culminating in an ER visit in September, and a host of bizarre symptoms (where I started treatment for Lyme). I finally got into the rheumatologist today, and he gave me a working diagnosis of Lupus and began treating it. I will get labs tomorrow, but he was confident that regardless of the final… Continue

Added by Andrea on November 24, 2009 at 9:33pm — 3 Comments

I'm still Superman

It's been a while since I've blogged. Re-reading my first blog, I realized my emotions haven't changed, I'm still down about it. But, there is so much else to focus on in my life right now. For starters, after 10 years with my roommate in the same place, I am finally moving out, closer to my office. I couldn't be more excited to start a new chapter, purge myself of crap I have accumulated for a decade, and start fresh. A new roommate, a new home, a new neighborhood and a new adventure. A few… Continue

Added by Ernesto on November 24, 2009 at 7:52pm — 7 Comments

Much to be Grateful for on Thanksgiving

Hi all! Thanksgiving Day (here in the States) is quickly approaching, and I just want to spend a minute to reflect on things I am grateful for (and maybe help y'all reflect, too). This Thanksgiving I am grateful for:



-an amazing family that has supported me this year through my hair loss, my college graduation, and my move across the country. They have been there for me from day one, have always believed in me, and have taught me the skills and values it takes to be a kind,… Continue

Added by Natalie on November 24, 2009 at 5:30pm — 3 Comments

My journey...my story...my history in short!

Hello to everybody. My name is Mallory Crowner, I am 30 years old and have had some form of Alopecia Areata for the last 13 years. Here is my history in short – I was diagnosed with Alopecia Areata when I was 17 years old (1997). I was a senior in high school and honestly, I was totally devastated by this. What girl doesn’t want their hair for prom? What girl wants to be made fun of because she looks “different”? Please tell me what girl doesn’t want their hair, period. When you find her, I’d… Continue

Added by Mallory Crowner on November 24, 2009 at 11:27am — 3 Comments

Becoming worse

I am a boy, 17 years of age and I also have Alopecia Areata, as many of you on this website.

I have had it since I was 12/13 years old. In the beginning I only had one or two little bald spots on the back of my head. I had no idea what it was, until my hairdresser told me what it was, even the doctor didn't know what it was which is strange. Then the hairdressers gave me 'Nioxin' which helped and the bald spots dissapeared.



Then when I was just 15 it came back on both sides of… Continue

Added by Lionel on November 24, 2009 at 10:57am — 4 Comments

Excited

I just got the best shock of my life. My boyfriend asked me to marry him. And shockinly I accepted. I am so in love with him. I hope what they say is true. The thirds the charm. This will be my third marriage, for me. and i will only be 24. noting to brag about so please don't think i am braging. I am just EXCITED and wanted to Share

Added by stephinee L Dawson on November 23, 2009 at 11:54pm — 8 Comments

I really need some advice

My six year old daughter has had Alopecia for about a year now. At first she lost all of her hair in a 2 inch band from ear to ear. That all started to grow back until recently. She contracted the Swine Flu in September and the hair is coming out all over her head now. It is getting to the point that I cannot use my creative hairstyling techniques to cover it up. She is in Kindergarden and is terrified that someone is going to see it. She cries all of the time and I do not know how to help her… Continue

Added by Karen Johnson on November 23, 2009 at 3:46pm — 4 Comments

New case

I am a new sufferer and was writing to see whether anyone can offer me any advise or help. I was diagnosed with alopecia 5 months ago and have lost a lot of hair and am still losing hair. I have been diagnosed with alopecia Areta and told it was through stress. I am trying so hard not to be stressed however this is the biggest thing i have ever had to deal with in my lifa and am finding it a constant struggle and am stressing myself out more. I have lost a lot of hair on the top of my head and… Continue

Added by jenny on November 23, 2009 at 2:06pm — 6 Comments

Why me?

i have this problem since i was 3!! and i still hate it!! some times my hair looks like i'm going to lose it all, but other it just start to regworth, maybe that's the harest part!, because i lost my hair and then i get it back, so i become the happiest persone in the wolrd but then, it start to fall again and i become the sadest person in the world and i hate that, i'm like this since i was 3!! the last time that my hair regwroth was 2 year ago0 and i thoght that i was going get AU because my… Continue

Added by brenda j on November 22, 2009 at 11:38am — 4 Comments

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