January 2010 Blog Posts (69)

To wig or not to wig

I don't really enjoy using the the wig. I find that it uncomfortable. I always feel like it going to fall off or someone's going to pull it off. I used to be able to not wear a wig because I had enough hair to cover but now it can be noticed. So I am considering shaving off what's left and just being natural. My mother thinks i should invest in a different type of wig that will fit better. Am not sure what to do. Any ideas ?

Added by chani trav on January 19, 2010 at 9:44am — 9 Comments

Negative

I figured if i start off by listing all the things i hate about alopecia, then it can only get better right? Sure i can learn to accept it but maybe i just want to go on hating it for a little while longer.



Things I hate about Alopecia



1. I cannot wear my hair in a high pony tail.

2. My hair style of choice is a low pony tail or a loose plait

3. I feel i cannot get my hair trimmed because i don't want to go to the hairdresser

4. The way it grows back… Continue

Added by Nicole on January 19, 2010 at 2:00am — 11 Comments

Fall hard, come up strong!

Hey you guys, It's been a while since i have talked to you guys. but since i got the human hair i have gotten my life back. But when i shaved my head last year it felt better getting a fresh new start just like the new 2010! But my hair has been growing back over time and most of my bald spots are covered now and its looks nicer then it ever did.
Well you guys its time to go.
See you next NAAF meeting(:
So remember when you fall hard make sure you come back strong!

Added by Aja Eliazar on January 18, 2010 at 10:51pm — 1 Comment

Hurry, don't wait! Limited time offer!

Beautiful People,



If Madison Avenue ever created a slogan for life, that should be it. One of the things I learned through dealing with Alopecia (and having my husband suddenly drop dead of a massive heart attack), is that you can't wait until things are perfect -- or even better -- to meet life full on. If you do, you will always be waiting instead of living, and life is short. Like art, your passions are revealed in the process, not the product.



An analogy (and example)… Continue

Added by Marie on January 18, 2010 at 4:00am — 9 Comments

Regrowth Update

I thought that it was about time that I updated my regrowth blog. I'm really happy to say that the regrowth of hair on my head has been pretty impressive. I've gone from having 20+ patches to them all filling in. Some have still to thicken up a bit.



This is the patch on the back of my head near my crown.





This is the first patch which appeared a year ago. Strangely, it has been the slowest to fill in. It is still filled with… Continue

Added by Robert on January 16, 2010 at 12:20pm — 11 Comments

I'm stoked!

Friends,



I just found out that the Minnesota Center for Book Arts has selected one of my pieces, "Autotomy", for their Quantified Aesthetics exhibition that will run from March 12th to June 20th. MCBA is the largest book arts center in the nation, and I couldn't feel more validated!



THANK YOU! The confidence I have gained from being a member of this online community has contributed greatly to my artistic endeavors. As always, I urge you to go out there and find something… Continue

Added by Marie on January 15, 2010 at 7:37pm — 7 Comments

Que lo que people how ya are you

Check out the new Marina pic on my page, and also full page Marina comics are coming soon Cojelo Suave people

Added by ROCKSTAR: ROCKY MANUEL MARTINEZ on January 15, 2010 at 2:03pm — No Comments

Alopecia in Switzerland

Hi there I was just wondering if there are any with Alopecia living here in Switzerland? I am South African and living here 1 yr already and think it would be nice to hear from you if so. Peharps we could start our own Breakfast mornings or have get togethers like the AW in the States. Look forward to hearing from you soon.

Added by Farial Michaelsen on January 15, 2010 at 11:24am — 3 Comments

You Can All Get an Honorary Degree (Alopecia Universalis)!

I know many of you have had this illness for a while now. Sometimes you feel like you've become an authority. Well, like many others who've spent years in their particular industry -- you've all become SMB (subject matter experts) in your field of Alopecia. :)



You are entitled to: http://www.newagemedia.ca/au/au_degree.jpg



Print one and hang it on your wall -- only a few people around the world have earned one. You… Continue

Added by Drakes on January 14, 2010 at 2:25pm — 3 Comments

Hairpieces

Has anybody ever bought a wig from Best Wig Outlet? I found a really cute human hair piece, Sepia - HB Prom, and it was a really really good price for Human hair. I am so leary about buying online. I have one now that I got thru an area salon. It is supposed to be human hair and it was rather pricy. To put it bluntly, I hate it. I haven't had it a year yet even and have only been able to wear it in a ponytail. It is supposed to be human hair, but it seems to "rat up" in the back just like some… Continue

Added by Mary Sarra on January 14, 2010 at 2:00pm — 5 Comments

Treatments

Hello World,

I'm just wondering if anyone in Alopecia World as tried the DPCP, as a treatment to get their hair to grow. If so did you experience any side effects.

Thanks Crystal

Added by Crystal on January 13, 2010 at 10:43am — 2 Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on January 13, 2010 at 12:43am — No Comments

Has anyone ever worn the forever young wigs??

Just wondering if anyone here has worn the forever young wigs and what do you think about them....they are low priced and I bought one called "you sexy thing"...lol...but it is very pretty and was wondering about the other ones and what you all think about them??

Added by Casee on January 12, 2010 at 11:01am — 2 Comments

Update - I hope this gives you hope!

Hi Everyone!!



I have thought long and hard about updating on Alopecia World - I didn't want to upset anyone with my good news...but then thought...HEY...If this could give even one person a bit of hope...it's very much worth it!!



The good news is that I have 100% complete regrowth. I shaved my head on January 24th 2009, and by October 2009, the last patch had grown over.



One year later, I am patch free and just waiting for my hair to grow long again. I still… Continue

Added by Christie on January 12, 2010 at 9:24am — 10 Comments

Such a relief!

I feel like this community has taken a huge weight off my shoulders. For so long, I felt like I was the only one dealing with this. I'd seen women losing their hair on hair transplant tv commercials, but never really gotten to talk to anyone dealing with the condition. It's such a releif to talk to people who understand and can let me know what to expect down the road. It also really helps to see women on here who have everything I want-husbands, children, and successful careers, and didn't let… Continue

Added by Andrea on January 12, 2010 at 9:20am — 6 Comments

My First Day of College

Welp... after almost 6 years I finally did it!!!! I started back to school today after graduating from HS in 2004. The past few years going back to school has been so scary for me for some reason... I even started the financial aid process and got accepted into like 3 or 4 different schools and never followed through!! I had once again planned on going back way before this November when my alopecia started and was of course falling back into my same routine of doubt. I was so scared and nervous… Continue

Added by Anna Thomas on January 11, 2010 at 5:57pm — 4 Comments

New Growth!

Okay, my hairloss was about 80-90% due to my Lupus. I have now been on Plaquinel since Nov 23 and a Biotin/Fish Oil regimen since Nov 1. The first picture shows the peak of my loss before I noticed that I didn't seem to be losing and the second picture is today. Just Friday I thought I saw 1/2" hairs among the 2-3" hairs. My mother looked and sure enough she saw a lot. So I got the rest of my hair shorn to 1" to even it out. I tried to duplicate the exact lighting so it shows the same but you… Continue

Added by Andrea on January 11, 2010 at 4:02pm — 4 Comments

Treatment options

What sort of treatment are you guys finding effective. What levels are your Medical Insurance providers covering your treatments? I have seen some International Medical Insurance that cover at 100%. I think it would be great for everyone to post what they are trying and what sort of success they are having. Any tips or advice welcome.

Added by Cindy Fallsen on January 11, 2010 at 2:30pm — No Comments

Back from the dermatologist...


My hair's growing back. I can finally get off the cortisone treatment. As for the acne side effect from the medicine, I get to start another medicine. Yippee! Be strong, have hope. =D

Added by Sofia on January 11, 2010 at 12:27pm — No Comments

Here goes my RANT!

Here goes my RANT! please take it for what its worth, no more no less, I am a repair technician, I fix things for a living, therefore find it difficult to except my medical Doctors disheartening prognosises concerning the very obvious autoimune desease alopecia totalis that I have been plagued with as incurable due to lack of knowledge on there part. Basically all four docs said in not so many words you got and autoimmune desease we no nothing about, good luck with that, see ya would not want… Continue

Added by George Ortiz on January 11, 2010 at 8:07am — 7 Comments

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