February 2009 Blog Posts (90)

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name-calling!

someone shouted "haha cue-ball" at me the other day....ggrrrrr.....

then today, some local idiot took the piss out of my hat.

I can't win! laughed at for being bald, laughed at for my hat. losers!!!

Added by Hayley Burton on February 21, 2009 at 7:51pm — 7 Comments

Eyebrow Tattoo...!

I'm getting my eyebrows tattooed in about two weeks and I just wanted to know what the experience is like...Does it Hurt? Is it uncomfortable?...I'm really excited about it my grandma and auntie are going to pay for it...its their birthday gift for me..I'll be 20 on 3/19! So if anyone can tell me what their experience was like or anyone that they may know experience was like please comment!

Added by Montoya Grant on February 21, 2009 at 3:31pm — 13 Comments

Today I cried

I read a story about a little girl in Mass. with Alopecia. Her cheerleading team and all the pop warner football team wore bandanas on their heads or a T on their helmets to support her during a fundraiser. One of the parents (a coach) and a player shaved their heads to support her.



I read this in the latest NAAF newsletter, and got teary-eyed. Then, I read it out loud to my husband and started sobbing. What an amazing group of people. It made me wish I had that kind of community… Continue

Added by Stephanie on February 21, 2009 at 3:14pm — 2 Comments

Well tomorrow has come and gone again...

I am still sad, stressed and depressed!

I am still confused, tired and hurt!



Sad, because I want to just hide under the covers of my sheets and sleep until my hair grows back!

And now reality has just struck… it may never grow back

I feel I can't go through another day like this…



Stressed because I have been trying to avoid going back to work,

I really do think it was the job and boss I had back in October

I blame him for all this has happening to… Continue

Added by Ursula on February 21, 2009 at 9:30am — 9 Comments

A woman's wig saves her life

Here is the link to this incredible story. Someone was shooting at this woman and the bullet was stopped by the cap to her wig. The bullet was tangeled in her hair. She said the back of her head felt hot but the bullet didn't go through.

http://www.fox2now.com/wdaf-hair-weave-bullet-story,0,3242409.story

Added by Jill on February 20, 2009 at 1:51pm — 3 Comments

Oh boy... definately need some help on this one guys...

It's only been just over a month since it's started falling out for the third time in 3ish years and almost all of it has disappeared. It surprisingly didn't hit me hard this time, suppose I'm getting used to the hair on my head falling out.



Now, this time is different from others though... very unfortunately. I am now blessed with losing my eyebrows and eyelashes... :( I am quite unhappy with that matter. They are falling out from the ends inward and inward to ends so it's starting… Continue

Added by Courtney on February 20, 2009 at 11:12am — 5 Comments

Well I’ve done it!!!!!!!

Well I’ve done it!!!!!!!



Having experienced the loss of lots of my body hair I was feeling very much the same as I did when my head hair was falling out. As such, I was tempted to use the same course of action that I had used when the hair on my head was coming out – to remove what was let so that I no longer had to see it falling out.



Well yesterday after about 60% of my body hair had gone (I was really hairy) I went to see a friend of mine who has a business removing… Continue

Added by Ray on February 20, 2009 at 5:45am — 2 Comments

ALOPECIA IS THE CAUSE OF MY DRIVE

SOMETIMES I BELIEVE THAT IF I HAD NOT COME FROM A SITUATION

WHERE CHILDREN TEASED ME YOUNG AND RISKS FEW TAKING

COMPLICATIONS WITH SOCIAL RELATIONS ALOPECIA SINCE THE AGE OF SIX

MIXTURE OF PAIN, AMBITION & BLISS

WITH A LITTLE BIT OF SAMUEL JACKSON AND TYRESE BALDHEAD MIXED

I AM LUCKY BECAUSE I AM A BLACK MAN WITH ALOPECIA WHEN PEOPLE NOTICE I HAVE NO EYEBROWS

I AM NOT NORMAL VERY UNIQUE BUT IT HAS MADE ME POSITIVE IN MY OVERALL BELIEFS

NO LONGER SCARED TO… Continue

Added by Roman Da Ruler on February 19, 2009 at 7:37pm — No Comments

Hi from Mandy!!!!

I hope everyone is doing well!! I'm sorry I've been keeping so busy with school this semester that I'm really slacking on keeping up with all my websites. School is going good though...and...as you can see...so is my hair! I have a few areas that stayed white (no pigment), but grew back nonetheless. And I have just two small bald patches on the top, but since I've started letting the hair grow, you can't hardly tell any more. Sooooo...yay! I'm letting it grow out now. We'll see what happens.… Continue

Added by Mandy on February 19, 2009 at 5:30pm — 2 Comments

crap!!!!!!!!!!!!!

ok so broke my shoulder sun and now i have to have surgery srews and plate kinda thing cuz its broke on the ball of the socket. and wont be working for like 3 to 6 months no insuaranse so have to get a loan just to have it done fairly cheap compared to the last one tho. still hopeing to make it to houston lets hope.

Added by brian kirchman on February 19, 2009 at 3:37pm — 1 Comment

THANKYOU ALL!!

Hi people, still trying to find my way around this site as you can see, a little confusing, anyway sorry only now getting back in touch with you all. It's nice to know that there is support out there, and i'm not on my own. Thankyou all for your e-mails. Much appreciated!! Sandra x
Also thankyou all for accepting me as a friend. Its the third time i've tried sending this message, it keeps ending up on my profile. Hope i've done it right this time.

Added by SANDRA JONES on February 19, 2009 at 3:15pm — 1 Comment

time to start saving

i've decided to start saving for a freedom wig, its gonna take a year, by then i'll have my health insurance coverage for wigs and that willhelp too.

can anyone tell me how much i'm looking at?

Added by Alison on February 19, 2009 at 6:13am — 3 Comments

Thank you all for your love and prayers...

Thank you all for your love and prayers...



Seeing everyone's comments brighten my day



The weather maybe nasty...

Strong winds blowing; (I used to love letting the wind blow through my hair )

There has been alot of rain; (Trying so hard to wash away my pain )

Dark clouds hovering over me the last 2-3 weeks... Trying to dampen my days



The weather may be nasty;

but my heart is strong...

Feeling everyone's love, comfort and… Continue

Added by Ursula on February 19, 2009 at 4:04am — No Comments

for my cousin who was so concerned... How are you? she asks :(

Its hard to talk when you have a big lump in your throat;

feels like I can't stop choking...



This pain, it hurts so much! I am trying so hard to let go...



I am trying my best to understand!



I am! I AM!! trying to understand WHY ME????



How can I make other people understand,

when I don't understand myself...



I am tired of being in the dark, hiding... feeling ashamed

tired of crying...

feeling so alone!



Can… Continue

Added by Ursula on February 19, 2009 at 3:50am — 3 Comments

my prescription... should I?????

I have a question, my doctor prescribe me this lotion or something...

Ratio-ectosone 0.1%
Betameth,valerate 0.1%

Directions he suggested: Apply sparingly to affected area(s) twice a day

I have read about all the side effects

Has anyone tried this... is it worth trying????

Please respond!

Added by Ursula on February 19, 2009 at 2:54am — No Comments

Here's my story

Almost six months ago I decided to take some meds to have perfectly clear skin for my upcoming wedding. The meds they gave me were very strong and caused my hair to shed. At first the docs said it would stop falling out in three months and grow back within 6 months. It didn't stop falling out. My hair just got thinner and thinner. They did a biopsy and told me the hair loss due to the meds "unmasked" a genetic predisposition for female pattern hair loss. I was devastated. I had to start… Continue

Added by Angelica on February 18, 2009 at 11:43pm — 2 Comments

it has been way too long!!!

I have been awayfomr Alopecia World for months!! Not for any good reason. Life just got away from me. So, in October I recieved my Vaccumm wig from Debbi Fuller. It has completely changed my life. I simply love it. I can't thank this site enough for leading me to her! Anyway i will post some pics of me with it. I still have some issues I think getting it ot fit perfectly sometimes. In order for it to fit right I haveto shave my head every morning. That is the only part that is tough. My latest… Continue

Added by Bigmama on February 18, 2009 at 8:52pm — No Comments

Today at the DMV

Okay get this.

I had my appointment at the DMV today and was wondering what was going to happen.

The young woman at the desk asked me "is everything the same"

I reply to her "well not quite everything"

She looked at me for a few seconds and says "Well you still have brown hair dont you"

I reply "Nope not anymore"

We laugh hahaha and btw change my weight from 185 to 200 as well more chuckles

Time to get your picture taken along with a new… Continue

Added by JeffreySF on February 18, 2009 at 8:21pm — 3 Comments

Inspiration

I wrote this when I was in a dark place and it helped me a lot, hopefully it might help someone here too x



I used to know a little girl

Folks always used to stare

They wondered bout the little girl

The one who had no hair



She tried so hard to fit right in

Like them she tried to be

Kids laughed and joked and taunted

But her hurt they could not see



She never let her feelings show

She kept them locked away

This carried on… Continue

Added by Donna on February 18, 2009 at 6:30pm — 8 Comments

Interview on Hack

Hey All,

I recently did an interview for an Australian radio station Triple J about my experiences of having alopecia, and about choosing not to wear a wig.

You can listen to it (and see some photos) at: http://www.abc.net.au/triplej/hack/notes/s1706065.htm

Thought it'd be a great way to get some more exposure for the condition!

Cheers!

-Dominique

Added by Dominique on February 18, 2009 at 5:01pm — No Comments

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