March 2013 Blog Posts (49)

Wearing hats

Hello again, I have been weaaring hats to school since I was in first grade and now I am in sixth grade. Anyway yesterday I had an hat on and this boy who is in the same grade as me walks up to me and says "No hats in school." Then I just looked at him for a few seconds and then said "Do you really want to go ther?" This just shows how used to my alopecia people at my school are like a few months ago my friend had her hair done really cute and she said to me "I can do it to your hair…

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Added by Jessica Hoschouer on March 19, 2013 at 9:00pm — 4 Comments

Alone forever

I have had Aloepecia since I was 11-12yrs old, just before starting highschool (how many of you can guess how much I enjoyed highschool?)

Anyways, I've never had regrowth to the point I dont feel the need of

wearing my wigs anymore, I have woren Lcae wigs starting around the age of 15 yrs old.

I feel that because of my age of when it started that I never got a chance to enjoy life or highschool and my peers like others did. You don't realize how much lack of confidence you…

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Added by CocoB on March 19, 2013 at 2:00pm — 1 Comment

Scholarship opportunity!

The This Is Me Foundation is very excited to announce we will be giving two national scholarships to graduating high school seniors in the US who have/had alopecia and are pursuing advanced level education! Please contact us at info@thisismefoundation.com to receive an application. We will be awarding 2 $500.00 scholarships that will be sent directly to the student.

Added by This Is Me Foundation on March 19, 2013 at 10:30am — 1 Comment

Estrogen deficiency hair loss

Has anyone lost their hair due to severe estrogen deficiency and tried HRT to regrow their hair?

Added by suffering on March 19, 2013 at 12:57am — 3 Comments

Beware of fair weather friends

In my thirty-eight years on this planet I have seen friends come and go. Living with a shameful disease like alopecia I have seen a fair share mostly go. I can admit to myself a lot of that was due to not wanting anyone close enough to know my shameful secret. I have gotten better at picking my friends over the years, as we all do as we get older. Or so I thought. Coming out of the shame of alopecia three years ago I found a set of friends that welcomed my new found energy. These friends…

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Added by Bald and Fabulous AKA Terri on March 17, 2013 at 7:52pm — 4 Comments

DPCP in the US

Dear all,

my dermatologist has told me a few good things on DPCP (Diphenylcyclopropenone). I have read a few studies on its effect, and it seems worth a try despite the itchiness - like 40% of the times it has "considerable effects"

Does anyone here know how to get it in the US? It is not FDA approved, but I have also seen a lot of posts of people having used it.

Any tip helps!

Thank you ,

Guillem

Added by griambau on March 17, 2013 at 7:06pm — 1 Comment

Do you ever wish you could blame your alopecia for something?

That is how I feel tonight. My alopecia struck me 6 years ago at the age of 35. It came 2 years after my second child was born. My thyroid was not being treated properly and I was depressed. In fact, depression has lurked in and out of my life for as long as I could remember. I have spent a lot of time trying to understand my situations in life. To this day it is unclear to me why I was handed the life I got. I know that sounds scary but if you were in my shoes you would question it almost…

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Added by Georgie on March 17, 2013 at 1:30am — 1 Comment

That's life

Hello to all my friends at Alapecia world. A friend gave me a magazine a couple of weeks ago because she had bought 2 the same called (That's Life).Of course I read it from cover to cover. There was a section that said tell us your story so I thought ok I will tell them about my hair loss. Didn't hear anything and to be quite honest I had fogotten that I had even written to them. Well I recieved a call from the Magazine the other day sent them some photo's of when I was loosing my hair, and…

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Added by Annette on March 17, 2013 at 12:30am — 2 Comments

Wig organizing advice

HI HI - So, I just moved into a new apartment and I have now been wearing wigs for a bit now. I am starting to accumulate more and more wigs - but I have not been able to find a good way to store them. I only have 1 wig stand and tend to find myself just lying others on tables or a empty wine bottle. This cannot be good for them ... Please share your lovely secrets on organizing and storing your hair pieces...I would love some new ideas :)

Added by KStew on March 16, 2013 at 10:00pm — 1 Comment

Finding courage & adventure: Dear TSA, Please don't require me to remove my wig 0.o

I have always been a traveler. I love everything about new places, from finding a random movie theater in Wisconsin to eating at a great restaurant in Puerto Rico. I love just people watching. I would pack my bag, throw on my wig, and jump in my car/get on a plane. I'm that free-spirited, get up and go with just a small bag type.



Well, one of the things I started to notice was that as our country cracks down on national security, TSA/Airport personnel were starting to check for…

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Added by Ann on March 16, 2013 at 12:00pm — No Comments

Acceptance

I think that the hardest thing about Alopecia is accepting it. Sure, we can slap on a wig, hat or turban to hide ourselves within society, but to actually accept hair loss and who we are with it is an achievement not all obtain easily.

Marketing and media have influenced society in becoming a place only for those of beauty, and have successfully painted a picture of what they claim — perfection looks like. This has caused a chain reaction in billions of people, setting out to become…

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Added by Amy-Rose on March 15, 2013 at 7:12pm — 14 Comments

Finding courage & adventure - Being young, hot, & an alopecian, Part 1

It will be four years in December since I shaved my head. Attempting to balance school, beauty standards, shame, and being in an emotionally and mentally abusive relationship, finding self-acceptance while having alopecia has not been easy. After one huge argument with the guy I was dating, I decided I just needed to be free. While the option should have been to break up with this guy forever, I decided to buy a pair of clippers and loose myself of the beautiful natural hair that I often…

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Added by Ann on March 15, 2013 at 4:00pm — 1 Comment

Pro basketball player with alopecia

hello! maybe you guys already know the basketball team piston has a player that has alopecia. they will be playing in NY in april and we could buy tickets and meet him. any information go to naaf for more inf.

Added by Iris Mendez on March 14, 2013 at 8:30pm — No Comments

Feeling low

It's been a week since I found out I have Alopecia Areata and just over a month since I discovered the bald patch on my head. During the first couple of weeks while I was waiting to see the dermatologist, I spent practically all of my time researching possible causes of patchy hair loss. It came down to Alopecia Areata as the most likely cause, followed by the mirena iud, some kind of vitamin deficiency, hormonal imbalance, or even cancer.. I was in a panic, but I was determined to find out…

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Added by Braya on March 14, 2013 at 7:30pm — 6 Comments

Hair Direct

Has anyone ever ordered a hair system from them?

Added by Dominique Cleopatra on March 13, 2013 at 1:16pm — 2 Comments

Alopecia areata + Pregnancy hormones

Between AA and hormones my hair is thinning out more and more everyday. I'm barely 6 weeks pregnant and I couldn't be happier over our newest addition to our family but already the hairloss from the changes in my body is noticeable. I have 3 spots of AA and now the thinning makes them harder to cover up. I'm worried of how bad it's going to get. The stress of my husband deploying again specially after being so close to losing him last time and having to give birth and care for a newborn and…

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Added by Zayuri Sams on March 11, 2013 at 3:00pm — 1 Comment

Do people really care to hear about awareness?

To be honest I haven't had the best experiences with people in general when it comes to them finding out I'm different... from lack of hair. Who would have thought that people would mock and humiliate someone because they are bald or are in the process of accepting ones hair is falling out and getting thinner every day. I felt comfortable about telling a friend Ihave knows for 6 years that I wear a wig and that my hair was falling out. I kind of thought it was obvious because I wear different… Continue

Added by Al on March 11, 2013 at 1:56pm — 7 Comments

Alopecia awareness! Portland, OR, photo shoot

Hello Everyone!

First of all I would like to apologize for not being on the site more often. You are all wonderful people with interesting and inspiring stories to tell.

A little about me. I was diagnosed with Alopecia 10 years ago when I was 15. Its been a tough road for me and my loved ones. For the past month I have been walking this crazy earth without a hair piece and have been feeling pretty confident about it. Still some ups and downs. Now, I have tried this 3 times…

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Added by Camille Reinecker on March 10, 2013 at 10:30pm — 2 Comments

My LDS ward

Today I attended a church meeting and one of the other members asked me to share about my alopecia. I told her I would so I told them about how our Heavenly Father can help us through our trials. After I finished one of the other girls commented on how bright and happy I always am so I encourage all of you to do the same. we can be kind and happy to those around us.

Added by Jessica Hoschouer on March 10, 2013 at 10:18pm — 4 Comments

Losing my eyebrows and eyelashes

Well, after 9 years I am losing my eyebrows and eyelashes. It is so heartbreaking. I don't know if I'll be able to handle it mentally
What should I do? Tattoo eyebrows on? Pray for a miracle? I don't know.
I need some support.

Added by christy murphy on March 10, 2013 at 2:30pm — 4 Comments

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