Featured Blog Posts – March 2011 Archive (58)

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Help?

So I've blogged something similar to this before, but I really need some of my alopecian sisters to help me out, if you can.

I'm writing a piece of theatre about alopecia. I want to tell the real stories of people living with alopecia, who have it now, who have had it, whose children have it. I want to tell your stories. If anyone's interested, I would really live to hear from you (and thankyou so much to those I have heard from already). I want to know about when you first found your… Continue

Added by Georgia Gardner on March 20, 2011 at 7:00am — 6 Comments

Babies, arguing, and hair lines

Well my hair line in the front is now gone =/



I came out to another person the other day...Why do they always argue...They always come back at me that it is caused by stress...and bleaching my hair too much...Do they really not understand that I have been to a Dr. They never trust me when I tell them it is a condition. They always blame it on me and my life style. Bad eating habits...wearing hats...even after I explain it to them...They keep arguing. It makes the whole coming out… Continue

Added by Lindsay on March 19, 2011 at 2:57am — 9 Comments

Bummed about losing hair again

Well, it will be 2 years Gluten Free in June and 6 weeks ago I started to lose my hair again at an increased rate. I'd had a couple small patches here and there but was able to do the injections to get them to grow back. It's kind of depressing and I'm not really sure what other avenue to go. My patch has developed on the back of my head and seems to be about 4 or 5 in vertical by 3 or so in wide. Man, I thought I'd really found a source to help with the hair falling out. My derm was even… Continue

Added by Amanda on March 19, 2011 at 12:33am — 3 Comments

Hair care

Hello all my bald and beautiful people! I just wanted to ask if any of you know of any great and inexpensive products to use on your head that help prevent sun damage, dandruff and dryness? I use olive oil hair lotion but not sure if that is best? Also, what is a great way to shave your head? I have clippers and I shave mine myself but it doesn't even out the shiny bald areas...I am thinking about going shiny bald and am not feeling the whole razor idea...but a girls gotta do what a girls gotta… Continue

Added by Shalonda TheSho Randolph on March 18, 2011 at 7:26pm — 8 Comments

Well it was nice while it lasted

Well I've had about 4 months of regrowth and had a real funky still going on. I still had one patch on the side of my head but in the place that lots of girls are shaving for fashion at the minute and I have a tattoo on it so it looked like I did it on purpose. But this week I've had 2 stressful uni work deadlines and low and behold two little circular patches have appeared which I can't hide because my hair isn't long enough yet. Besides I have never had a flare up of alopecia that has not led… Continue

Added by Lyndsey Pitchford on March 18, 2011 at 1:59pm — 2 Comments

The makings of a full regrowth

I woke up the other day to hair!
I looked in my mirror and saw that my entire head was covered with fine no pigment hairs. Its a start :D

Added by Rachel Rei on March 18, 2011 at 11:58am — 3 Comments

A lil update - my lashes are finally going

SO my lashes are finally going. I say finally like I was expecting this. In many ways, I was. And in many others, I was hoping that they would at least stay because knowing myself, I knew I would have to learn how to finally apply false eyelashes and man am I having a hard time with it. It was funny when I couldn't get them to look even!One up, one down! So anyways, but I think I'm finally getting the hang of it and am not as panicky when I apply them. If not, I find drawing on a thick line,… Continue

Added by Clara S. on March 17, 2011 at 5:24pm — 2 Comments

Alopecia is getting into my dreams

Im grinding my teeth in my dreams,

i cant ever remember them,

i wake up drowned with sweat,

Feeling like ive been through a fight and relieved to have woken up,

turn the pillow over and try to find a dry spot without waking anyone,

soon as i instigate a movement, she turns to give me space--

How does she,a normal woman get the strength to get through this,



7 out of 10 nights this is the case ,

Im up now writing this so she can get a bit of… Continue

Added by pat j madden on March 15, 2011 at 10:20pm — 5 Comments

Ah, this emotional roller coaster! I have a question!

Hi all, I hope you are doing well..So I wanna give an uptake on my progress of my hair..My hair seems to be growing in in the spots that were bald and coalaced into one big spot due to the injections..Now it seems that since my hair is growing back I am getting new spots in the same area, but different spots..It also seems as though I have diffuse Alopecia on top of this AA..I am losing an enormous amount of hair and I am not sure where I am losing it from..Whether it be from the two bald spots… Continue

Added by Trish on March 15, 2011 at 4:17pm — 14 Comments

A stranger looking back at me in the mirror

So it has been about a month since I got my wig(my first one). I feel much more confident, but at times it feels like there is a stranger looking back at me in the mirror or in pictures. I used to take pictures of myself in the morning (every morning) and send it to my bestie, but I just don't like the pictures cuz it doesn't really look like me.



I am not questioning my decision at all, but just wondering if anyone else had this feeling in the beginning?



I know it has to… Continue

Added by Julie G on March 15, 2011 at 9:43am — 6 Comments

Shampoo, conditioner, and techniques

Hey guys,

Well when I bought my wig, I asked the guy how to care for and clean them and he wouldn't tell me. He just told me to bring it back to him and pay $30 every time I need it washed....Well that's not going to happen because that's a lot of money that will add up, and he is about an hours and a half from me....So I am having to google my way around figuring how to keep this thing nice.

So any advice you guys have I would GREATLY appreciate it =)

Best brands and types of… Continue

Added by Lindsay on March 13, 2011 at 7:23pm — 9 Comments

Coming out bald!

I had my "coming out" for lack of a better term last night. One week ago yesterday I had what was left of my hair buzzed off. Alopecia claimed most of the hair on my head.



I am a singer/songwriter. I had a gig yesterday at Philadelphia's premiere listening room, The Tin Angel. I opened for Vance Gilbert. I've played the Tin many, many times, but never without hair. While I've been walking around bald for one week, this was the first time a large amount of people who both were fans… Continue

Added by Lili Añel (aka Eulalia) on March 13, 2011 at 5:24pm — 13 Comments

Dunno!

I dunno, I really don't. I'm a little confused right now as to what my body is trying to do. I have had AT for almost a year and a half. (gees its gone quickly now that I think about it). Had my ups and downs for about 1 year. I must say I have been extremely good for about 4 months now. Changes?? From having no body hair at all head to toe, I am seeing it re-appear. My under arm hair, from none, to white, to dark & having to shave again. White and dark leg & arm hairs appearing in… Continue

Added by Patricia on March 13, 2011 at 5:02am — 4 Comments

Ugh

I am soo tired of people complimenting my hair and then when i say "thanks" they follow it up with "its so shiny hard to believe that's not a wig" SERIOUSLY!?! I mean even if you suspected it was a wig why would you say that or ever ask a stranger a question like that? to me it just seems rude. I am tired of my "hair" being shiny. I am tired of not feeling like i am normal. I dont feel I should have to tell people, its not really anyones business. I had a situation last weekend where my… Continue

Added by Jennifer on March 11, 2011 at 10:05am — 6 Comments

Tell me your story

I was thinking about everything and wondering when it is that everyone noticed their first patch. Did it appear after a traumatic or stressful event? Was it completely out of the blue? Tell me your story.

Added by Jessica on March 10, 2011 at 6:23pm — 17 Comments

My 7 y/o

Hello, everyone. I am new to this, and am hoping to get a lil more info and some help about ALopecia.. About 9 months ago, my 7 y/o daughter Kaylie, starting losing her hair. SHe now has about 4 bald spots all over her head the size of golf balls. But its compelety bald, with no hair folicals at all!! ANd they are expanding in size rapidly!



We fianlly got into see a specialts on this past Tuesday. She wants to do a biospy on my daughters head, along with starting her on steroid… Continue

Added by charlene williams on March 10, 2011 at 1:15pm — 7 Comments

Afraid

Why am I sooo afraid to tell people that I have known for pretty much my whole life, people that I used to school with

Family, cousins, friends... the list goes on.

I HAVE ALOPECIA, yep, that means I am bald, I have no hair, head to toe, yep BALD.

Yet, people I am meeting now, I have no issues with telling them. That once I do tell them, I feel a whole lot of relief.

A relief that i think, hmmm are these people staring at me, can they tell I'm wearing a wig?

Shittt, I… Continue

Added by Patricia on March 10, 2011 at 6:09am — 7 Comments

Does my 6 year old have it too?

I was diagnosed with AA in May of 09. I received injections and my hair has partially grown back. I can cover pretty well and don't wear the scarves anymore. My Grandmother had Universalis but not until her 70's. Last night I noticed a bald spot on my 6 year-old son's head. It's only about the size of a dime. I called my dermatologist. Am I over reacting?

Added by Margaret Lilly on March 9, 2011 at 11:49am — 3 Comments

Mini-Mes

You know the scene in the movies where the mini mes sit on your shoulders speaking in your ears????

Lately I have found that is what Im experiencing.

Its like one moment Im loving my bald look, I have a nice shaped head, and I like the smoothness. Shaving was the far better option as oppose to living like I was.

But in the very next breath, I get all sad.....I really have no hair. I will run my hands over my head and there is nothing. There really is nothing. Maybe for a little… Continue

Added by Bald and Fabulous AKA Terri on March 9, 2011 at 7:14am — 4 Comments

My little girl

My little girl (who is 2) woke up yesterday fine. 9 hours later when I picked her up from daycare she had a bald spot that was fairly noticeable...The doctor tells me it is Alopecia... I am unsure about everything...I sit here and ask myself what causes this and will her hair come back or will it keep getting balder.. I dont know what causes this and I feel so lost...Is there a cure? what tests will they do?? I need to know answers and nobody can help me....Next week she is going to a… Continue

Added by Melissa(Breanna's Mommy) on March 8, 2011 at 11:38pm — 5 Comments

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