September 2010 Blog Posts (72)

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What if we had a Alopecia party line.

yes! or Not!

Added by NORMAN ABBOTT on September 5, 2010 at 12:18am — 5 Comments

Voluntary hairloss

Nothing warms my heart more than someone wanting to shave their head to support people with medical hairloss. I was thinking of a simple enough event I could hold in honour of alopecia awareness month. Needless to say my time is running short for planning an event but if not in September, it will be done at least in time for me to fundraise for my missionary venture to Guatemala in February. My issue comes not from planning an event but from an extraordinary request from my 9 year old daughter.… Continue

Added by Carol on September 4, 2010 at 10:26pm — 15 Comments

BIG GIANT STEP

Well tonight I took the plunge and grab the clippers. After my mom and I went wig shopping and wearing it all day, I got home and took it off and looked in the mirror and decided enough is enough. I cant continue to see myself in a negative light. So when I went to the barn to do the night feed for the horses, I grabbed the clippers. I was shocked to see how much hair I actually have lost from the alopecia and it definitely brought to light how much I was hurting myself by trying desperately to… Continue

Added by Bald and Fabulous AKA Terri on September 3, 2010 at 11:56pm — 3 Comments

The old lady in Walgreens

Today I went into walgreens & was headed to the bathroom when I met this old lady . The bathroom door is locked where you have to have a code to get in . ( which I think is stupid , especially when you feel like you're going to pee your pants . lol ) But anyways , I met her & she didn't know how to get in , so I went and got the code . We got in ( this sounds like some kind of top- secret mission . ) & we were talking and when I was getting ready to leave , she asked me if I was… Continue

Added by Mackenzie on September 3, 2010 at 11:30pm — 5 Comments

Life in the bald lane

Well, it's been a while since I've shaved and I've been out about it for most of that time (can't wear wigs in this heat!!). Mostly I'm just bald (I only wear hats/bandannas when I'm in the sun or I'm cold). Friends and family have been supportive and wonderful, but I keep having dreams about my hair falling out, or my wig having no hair... stuff like that - I suppose I'm grieving subconsciously... for the loss of my hair, and the feeling that no matter how good I might look otherwise,… Continue

Added by Amy on September 3, 2010 at 8:57am — 8 Comments

Shaved my head!

So I was going to wait until saturday, but last night I was in the bathroom brushing my hair and a HUGE glob fell out. I just couldnt deal with it anymore. So I grabbed the clippers, and now Im bald!! My mom came and helped me with it, to make sure I didnt miss anything. When it was all gone, I couldnt help but smile! I havent cried once and I dont think I will. Im more than OK with the fact that Im bald! Jeremy (my boyfriend) shaved his head last night too, so I cant wait till he gets here… Continue

Added by Tamara on September 3, 2010 at 8:14am — 9 Comments

Afraid

So... I can admit to myself and will now admit to someone else, that my focus on the treatment, triggers, diet for my daughter is in part, just a way for me to push the emotion out of it. As I sit here by myself with the rest of the family in bed, I feel so stupid for crying but lately, I can't make the feeling go away. I don't want to mess it up. I really don't.



I'm just so afraid. Afraid that my unconditional love won't be enough. Afraid that I'm going to do the wrong thing or say… Continue

Added by Cari on September 2, 2010 at 12:07am — 3 Comments

Hair today - gone tomorrow!

Well, ALL of Troy's hair has grown back in! Next problem? Well everybody has to comment -reinforcing that hair is SO important. It is always nice to give a compliment-dont get me wrong. But some people just dont get it and go "over the top" gushing about his regrowth. You think they would learn after watching the cycle. They have seen it time and again but, still they treat him like he has done "something good, or amazing" by growing his hair back-somehting he has no control over- so when his… Continue

Added by Tanya Reid on September 1, 2010 at 10:53pm — 8 Comments

Hair regrowth in my daughter

Just wanted to give you an update on what is going on with my daughter. We have her appointment with the dermatologist on September 14th, I have noticed a lot of regrowth in her bald spots. She used to have about 15 to 16 spots and one of the biggest one was very visible, but now it is growing hair and all the other spots are growing also. I don't want to get all my hopes up,or say oh she doesn't have alopecia. As I have already accepted that their is a possibility that she can have alopecia. I… Continue

Added by Marissa L. on September 1, 2010 at 10:48pm — No Comments

Comfort

Even if we each feel like the odd duck out sometimes, we must admit that there are places, people and situations we love that make us forget we even HAVE alopecia. Family cabin around the fire? Reunion at an old favorite hang-out with familiar childhood pals? Coming home to a cozy evening with music known-by-heart, and singing like on stage? Sleeping in and then yakking on the phone Saturday morning? Coffee shop with newspaper? Eating homemade pies with aunts? Fess up. Where, what, whom is HOME… Continue

Added by Tallgirl on September 1, 2010 at 9:58pm — 4 Comments

I want to get a new tattoo

I was thinking about getting a new tattoo, something about this new phase in my life. I have come up with, Bald and Beautiful Woman in Italian, Donna Calva e Bella. Now to decide where I want it placed.

Added by Julia S on September 1, 2010 at 5:23pm — 5 Comments

Alopecia Awareness Month

I did it... I posted a status on my Facebook telling every one of my friends on there that I have Alopecia. It said:



"In support of Alopecia Awareness Month, I am coming forward to say that I have a form of Alopecia. I want to spread awareness about this as much as I can. maybe one day when another young girl gets diagnosed, she will know she isn't alone. I'd like to say thank you to the people close to me who have given me support over the years! Thank you to the women that have… Continue

Added by Alliegator on September 1, 2010 at 2:23pm — 12 Comments

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