October 2010 Blog Posts (73)

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Half of my biopsy update

Hi All, I am so depressed and con not stop crying..I am so down that I can hardly write this..My first part of the results was that I do in deed have alopecia, but it is a scarring kind and that my hair will never grow back..The other part is also devastating where she told me the dr would have to tell me the rest of the report..Scared is not even the word as to what I am feeling right now..



Has anyone been told that they had scarring alopecia and the biopsy was not conclusive or had… Continue

Added by Trish on October 12, 2010 at 10:58pm — 8 Comments

Just diagnosed

My hairdresser, who also cuts my five year old daughter's hair, found a dime size completely bald spot on August 7, 2010. This original spot has not changed at all since then, but on this past Friday I found two more. I took her to see her pediatrician yesterday and he confirmed the diagnosis. He basically told me that I must have patience as the hair could take a year to grow back or worst case scenario she could loose all hair including eyelashes and eyebrows. I was fully aware of this since… Continue

Added by Kirsten Phifer on October 12, 2010 at 3:41pm — 11 Comments

How can I make it better for my daughter?

My daughter is in second grade and she started wearing a wig to school since day one because thats what she wanted, her wigs looks very natural and stays on all day, before school started i wrote a letter to the principal and her teachers to let them know she would be wearing a wig everything was fine untill about a week ago she told me that her teacher made her talk to her class about her condition. then kids started teasing her about not having hair, My daughter says that her classmates told… Continue

Added by Saida Z. (Ariana's mom) on October 12, 2010 at 5:14am — 10 Comments

Peach fuzz

Yesterday, 10/10/10 I noticed what I've been suspecting ...I have white 'peach fuzz' on my two largest spots..I was excited, but then, I don't wanna get too excited. Figure this is just the 'cycling' of this disease..fall out, grow in, fall out, grow in. Still, I will take the times when it is not falling out when I can get them.

Added by Diana Carter on October 11, 2010 at 9:49pm — 3 Comments

I need some input SOS!

I am wanting to know about the new lace front wigs and what are your opinions on them and how natural do they look and feel.....soooo curious......I AM SPONGE!!!

Added by Lainie A Brown on October 11, 2010 at 6:47pm — No Comments

NEWBIE!

just wanted to say hello to EVERYONE!!!

Added by Lainie A Brown on October 11, 2010 at 6:20pm — 3 Comments

Happy Thanksgiving

So it is Thanksgiving in Canada today (I do live here ha). And so I am sharing some things I am thankful for:

-My son, he is the most amazing person I know

-All of my family, they are great people

-The roof over our head, the food we eat

-My fiance, he is so understanding and I am thankful

-All of my friends, you guys are the best, you help me through so much

-Where I live, that we have good schools, and so many opportunities

-Music and books

-My health,… Continue

Added by Erin on October 10, 2010 at 8:37pm — 2 Comments

My three spots!

Hi All, I just updated my photos and have shown my three spots now...They seem like they are coalacing into one big spot, how horrible is that?!!..It is so very depressing to look in the mirror anymore to try and fix my hair..I am tired of looking at myself with a scarf on..I feel ugly..I am not use to myself like this..I decided to stop using the olux foam and just let it take its course..The olux foam seems to make my head irritated and red..It seems as though when i put the foam on it stops… Continue

Added by Trish on October 10, 2010 at 3:30am — 11 Comments

Following orders but losing the battle

I do a lot of reading on this site, but I haven't written much. Now...I think it's time to change. I need to dig in and talk with others about their journeys with this disease. I thought I had 'accepted' (if you can ever really accept it) this disease and was ready to hit it head on. In the past 2 years (November will be 2 years that I noticed the first spot) I've foamed, lasored, creamed and injected my head with everything perscribed. My derm has me taking enough vitamins to constitute a full… Continue

Added by BT on October 9, 2010 at 9:48pm — 5 Comments

The new routine

It's been a while since I've been to AW, but I recently decided to open my own photography studio. Things with that are going great, already had our first shoot.



Since my last post, however, I have developed a new technique to shaving my head, which has dropped the time considerably. And this time, it's done all in the shower. This by no means is a guide, just how I preform the shave... Maybe it will help you maybe it won't. Either way, good luck shaving your head.



I run a… Continue

Added by Aaron on October 9, 2010 at 2:37pm — 5 Comments

1 year anniversary of my daughter's alopecia

Today marks the 1 year anniversary of when my daughter's hair started falling out. She told me this yesterday and wanted to contact some of the friends that helped her the most last year. She lost all of her beautiful waist lenth hair in 2 weeks. She was a highschool senior. She continued to cheer, party, do well in school and live a normal life. I shed alot of tears and have bought 8 wigs from all different makers and spent hours researching the disease. This site helped so much. Her boyfriend… Continue

Added by Karen Smith on October 9, 2010 at 10:25am — 1 Comment

Has anyone ever been affected on only one side of the head?

I have a question. Has anyone ever been affected on only one side of the head. My right side has gotten so thin, especially around the hairline and my left side is as thick as ever. No signs of alopecia on the left side. I just find it strange. It makes me wonder if it is something else.

Added by Kristi Kelly on October 8, 2010 at 11:25pm — 1 Comment

My story with AA, as it begins

I had been noticing substancial hair loss over the past several months. My hair had finally gotten very long and I loved it, but something changed. I felt like my hair wasn't getting any longer over the past few months. I thought that maybe it just was because it was thin. I found myself having to clean out a completely full brush every time I brushed my hair. It was everywhere: on the couch, all over my car, on the floor, filling up the vaccuum cleaner, and stopping up our drains. My… Continue

Added by Diana Carter on October 8, 2010 at 6:26pm — 8 Comments

Biopsy update!

Ok guys, so here I am today freaking out once again..I just called to see if my results for my biopsy are back cause now it is going on 2 weeks and a half...The women told me that my biopsy is still pending, and asked her specifically what they are looking for, and she said alopecia..I continued to ask her what else they look for and did not give me specifics, but told me that they look for a few things...My dr never told me exactly what they look for as well, which really bothers me..Does… Continue

Added by Trish on October 8, 2010 at 1:44pm — 7 Comments

Bob cut bridal hair diva

Hello everyone,
I am looking for bridal hairstyles for a bob cut wig. My best friend is getting married and i am in the bridal party. Being as how the wig is short there is not much i can do with it, but i was wondering if anyone had any suggestions on what to put in it i.e. barrettes, pins etc to make it more festive for the occasion. The wig is a synthetic monofilament wig. If you have any pics they would be most appreciated! :)Thank you in advance.

Added by soniamarry on October 8, 2010 at 7:50am — 2 Comments

My apologies to all

I posted a rather upsetting blog yesterday and I noticed today that it "mysteriously" disappeared. I don't know if someone asked that it be taken down since it was kind of a very telling blog or if the website somehow deleted it. I don't know but I want to apologize if it hurt anyone to hear how upset I am and how badly I am handling the scalp pain and not liking myself or how I look. Today was a bad day. I had to leave work and may take a few days off. I woke up this morning with a numb and… Continue

Added by Julie Koch on October 7, 2010 at 8:21pm — 20 Comments

More hair shedding! Depression is getting worse

Ok, so more and more of my hair is coming out and I am getting scared I am going to lose all of it...I have been using the olux foam as the Dr prescribed and it does not seem to be helping...It has been a month and see no change or regrowth, in fact I have gotten two more spots..Has anyone ever experienced more itchying and hair loss while using the Olux foam? Also, head seems to be red and irritated more so than before, not sure if it's from the foam or just my body...Around the patches I can… Continue

Added by Trish on October 7, 2010 at 1:01pm — 17 Comments

Alopecia sucess stories

I'm new to the site as well as new to this condition. I noticed my hair thinning rapidly a month ago and a few weeks later my fiance saw my first bald spot. After finding a few more I had my fiance shave my head.

I would appreciate hearing a few of your success stories of how your hair came back, how quickly, ect.

Thank you
Rachel :D

Added by Rachel Rei on October 6, 2010 at 8:25pm — 3 Comments

What type of hairloss do I have?

He everyone, I have had hairloss for a while now but I still don't know what I truely have. I just wanted to see what you all thought. I had very very thick hair before all of this. I started to lose it in clumps all over my scalp and I had 1 bald spot when it first started. Then the bald spot grew back but my hair continued to shed from all over. It just seems much much thinner then it did. About 9 after the hair started my eyelashes, nose hairs, vellus hairs , well hair from all over started… Continue

Added by Erin Barber on October 6, 2010 at 5:27pm — 4 Comments

Eye lubricating gel makes eyelashes grow

As I had no eyelashes or eyebrows my optician advised me to wear my glasses all the time to protect my eyes and also to use a lubricating gel at night and drops during the day. I had been using the gel for a while when I started to grow eye-lashes (now don't get too excited as they are very sparse and thin but they are eyelashes!!). I didn't connect the growth with the eye gel until I read that cosmetic companies are producing mascara with an ingredient in that is also in the gel [apparently… Continue

Added by Diana Hastings on October 6, 2010 at 5:08pm — 3 Comments

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