November 2010 Blog Posts (65)

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Join the newly formed 'Single Parents with Alopecia' group!

If you are a single parent diagnosed or treated for Alopecia, who has school aged children, join the Single Parents With Alopecia Group to hear others stories, share your own, vent, seek emotional support, get or give tips & advise, encourage others, make friends, or at the very least realize you're not alone.

If you plan on joining, you may choose to reply to this blog so others on this site will know!

The body follows the mind,

Elizabeth

=)

Added by Elizabeth on November 18, 2010 at 8:00pm — No Comments

Trying to cope

Well I have tried to avoid being open about my disease because I am so ashamed of it. But then I decided today to do a google search for alopecia and stumbled across this website and decided to join. I can't find a pyschiatrist that is seeing new patients so I guess this will have to do for now because I am going insane. I think I just need to write and get all the horrible things spinning through my head out "on paper".



I first discovered what my dermatologist at the time called "a… Continue

Added by Erin on November 18, 2010 at 3:58pm — 12 Comments

Faces of Beauty

Today, 11/18/10, my picture is featured on Faces of Beauty. Faces of Beauty is on a mission to celebrate the incredible and unique beauty in all of us. The hope is that Face of Beauty will help start a revolution of men, women and children learning to love themselves just as they are! Do YOU believe that you are truly beautiful? Join the movement! Since I obviously don't know how to add the link to the website,… Continue

Added by Angie W. on November 18, 2010 at 3:30pm — 2 Comments

Hello, I need help!

Hello All,

I'm in a sticky situation, let me explain: I'm not completely bald, i have hair, it will grow and the tons of bald patches will start to disappear but they never fully go away, they're always visible (which gives me false hope-just my luck) so, my hair is really short right now, it's starting to fall out again, it's messy, it itches, and it makes me feel so disappointed when it falls out. However, i don't want to shave it off, because i feel like maybe, possibly there could be a… Continue

Added by SutraHuh on November 17, 2010 at 9:16pm — 9 Comments

So miserable!

Hi guys, I have been trying to focus on school rather than on my hair seeing as finals are right around the corner...I am absolutely miserable about my hair, I think I have been in a state of denial for quite some time now...I am not sure I can find my way with this...I fly off the handle to friends and family without even wanting to and feel bad afterwards..I know there is nothing in this world they can do to help me, but I dont even know what I wanna hear anymore, I mean words that will even… Continue

Added by Trish on November 17, 2010 at 5:30pm — 15 Comments

Wish I knew what was wrong with my hair

Ever since I had my second child in 2001 I have told my family and doctors that my hair is thinner on the right side. It is a lot thinner around the hair line on that side. My family and doctor always told me that my hair was fine and I was imagining things. Well this summer I went through a little shedding period. Of course the shedding was mainly from the right side. How strange. Anyway I went to a derm who said that the hair was thinner on that side but it wasn' t bad. She said it was… Continue

Added by Kristi Kelly on November 16, 2010 at 10:51pm — 2 Comments

The Meaning of True Love

It is sharing and caring,



Giving and forgiving,



Loving and being loved,



Walking hand in hand,



Talking heart to heart,



Seeing through each other's eyes,



Laughing together,



Weeping together,



Praying together,



And always trusting



And believing



And thanking God



For each other...



For love that is shared



is a beautiful thing--



It enriches… Continue

Added by Dotty on November 16, 2010 at 7:45pm — No Comments

When do I know it's time to give up?

For the pas 2 years I have been getting the very painful kenalog steroid injections so that y hair can grow back. I have not lost all my hair just yet and I have been told by my doctor and his staff that I am one of the many lucky people who have this disease that still have this amount of hair. I have tried wearing wigs, at home treatments, taking vitamins, cutting my hair shorter to give it more volume and so on..... At time I wish that all my hair will finally fall out so I can finally… Continue

Added by ENEDID CASTILLO on November 16, 2010 at 7:37pm — 2 Comments

Dotty's Inspirational/Motivational Reflection

WHEN I'M AN OLD LADY

By ~ Joanne Baxter ~





When I'm an old lady, I'll live with my kids,

and make them so happy, just as they did.

I want to pay back all the joy they've provided,

returning each deed. Oh, they'll be so excited.



When I'm an old lady and live with my kids.



I'll write on the wall with reds, whites and blues,

and bounce on the furniture wearing my shoes.

I'll drink from the carton and then leave it out.

I'll… Continue

Added by Dotty on November 15, 2010 at 10:11pm — 1 Comment

Alopecia due to circulation continued....

1) RIP position is on the back not the sides or stomach....it's a natural position...

2) Infant SIDS tells parents not to place their infant on their stomach...it interferes with their breathing and circulation, leading to death.

3) The fetal position is being curled up on the side. This restricts circulation and blood flow.

4) Like a water hose is twisted or bent to increase water pressure, the body reacts the same way.

Laying on your stomach with your head turned to the… Continue

Added by Elizabeth on November 15, 2010 at 4:53pm — No Comments

"I like that hair cut"

So I know a lot of you get the cancer question a lot, but I keep getting the "I love your hair cut" and "wow, I would NEVER be that bold to cut off all my hair!" Well my hair was down to the middle of my back not too long ago, and if it was up to me, I wouldnt have this hair cut! A delivery driver just came to my work, NEVER seen him in my life, and the first thing he says is, "Hey...I like the hair cut". I guess I should feel good that people actually like me looking like Sinead O'Conner with… Continue

Added by Tamara on November 15, 2010 at 2:16pm — 13 Comments

Faking it

In August I was admitted into the hospital because my blood pressure was through the roof, while in the hospital my head began to itch uncontrollably in the same spot and I noticed that my hair was shedding all over my pillow. I did not think anything of it and until I noticed that my hair had fallen out in that same spot it was itching in all the way down to the scalp. Since then the hair in the top of my head has started to fall out and it constantly itches. I have never in my life been so… Continue

Added by LaShonda Brown on November 15, 2010 at 12:00pm — 5 Comments

About to crawl outta my skin!

I am not doing well at all. I woke up an hour ago because of my RLS (Restless Leg Syndrome), my legs twitching and moving. I can't sleep, & I am so exhausted. My nerves have felt like they are crawling all over me! I have been on medications for depression, anxiety, & panic disorder for some 16 years. I can't remember the last time I felt good. Started out a month ago with allergies to a cat, & the anxiety of helping out a young lady that ended up living in my home with her… Continue

Added by Diana Carter on November 15, 2010 at 8:45am — 6 Comments

Exposure

Okay. I tried it. I went to poetry potluck/reading today with safe church people at a private home and, fortified with Bravery Juice, read my 10-stanza poem (which I wrote during the church service...shhh) about coming out with my bald head. I took the wig off at stanza #5. Applause came at the end, but, surprisingly, there were no questions from the uninformed few about what condition I even HAVE! I kept the wig off, and the rest of the readings just went on with no hoopla.… Continue

Added by Tallgirl on November 15, 2010 at 1:00am — 6 Comments

"Mom, can I get this hair brush for my birthday?"

So it's been about 3 months since I first noticed my daughter's hair coming out/thinning. Her pony tail is getting higher and higher. It now begins about 4" above the nape of her neck and about 2" above her ears on both sides. Dr. said it is probably good that she wears a pony tail and a hair band every day or she'd probably be pulling from the top of her head too. Right now if she wears her hair down you can't really tell that there's hair missing. I think trich is so interesting...the pulling… Continue

Added by Sandi Walmsley on November 14, 2010 at 2:16pm — 6 Comments

Hair regrowth

so since having my baby eric who is now 3 months old! my hair has been growing really well. i shaved it a few times to get it to grow in more evenly. i probably should have just left it.



i am now taking silica and some vitamins that were on that show today tonight just to see if that makes it grow better or helps it to grow.



i'm wanting it to all come back or not at all. i find it easy to wear a wig. i have never had so much hope before though. it has never grown back even… Continue

Added by Alison on November 14, 2010 at 6:38am — 7 Comments

I'm free!

I went out today since 630 am and wore my half wig all day long even slept in it for a few hrs ..The whole time I kept thinking is it moving? Can you tell? Why is she looking at my hair???? I hope no one see the big spot I have above my ear thats creeping up towards my face..It was sooooo uncomfortable!.When I finally got home at 1 am I took it off and said Uhhhhh Im free!!! This is the first time I ever said this to myself!!! It felt sooooo good to not have that thing pulling at my hair and… Continue

Added by Aliennation on November 14, 2010 at 3:18am — 3 Comments

My first alopecia meeting

WOW!! What a blessing! My first meeting was today, and it was amazing! I got to meet lots of new friends, and there were Alopecians there from children to adults. Our guest speaker was Tracey Casey-Arnold, an Alopecian for 36 years, since the age of 6, who has her own business called Whatever It Takes. She recommended a book to us called 3 seconds, and spoke of how it takes 3 seconds to fuel your passion. We need to all find what our great passion is, and to embrace it! We can all change… Continue

Added by Diana Carter on November 14, 2010 at 12:03am — 8 Comments

Encouragement to some special friends

To all my friends here on AW, but a special shout out to Kimberly & Trish...because we started this journey together, and we are in this together. I just wanted to send special encouragement.



So many others I could mention, I love you all! I hope that you can view the song here, cause I don't know how to post it to my music section :( Thanks to you ALL.



I am hoping you can open the link from here to hear the words.… Continue

Added by Diana Carter on November 12, 2010 at 2:41am — 8 Comments

First thing first

I am soooooooooooooooooooooooooooooo happy that this site is a part of my world now! What a blessing! What a beautiful, beautiful blessinng! To know that there are so many people I share a story with is DIVINE :) .



Before I came across this site I thought I was gonna have to battle this one out alone in my room. It is so crazy and sad to think that I didn't believe there was anyone who would be able to understand what I was going through-- CUH-RAZY! But this site has showed me the… Continue

Added by C. Nicole on November 11, 2010 at 8:55pm — 7 Comments

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