November 2009 Blog Posts (102)

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My Daughter...

My daughter, Mikayla, has what started out as Alopecia Areata, but looks as if it is progressing towards Totallis. She is dealing with it very well...much stronger than I probably would. She is in the 7th grade this year, and this is her first year of public school, and a fairly large one at that. She's always been at a smaller private school. She is involved in the band, and LOVES school. She is currently wearing a synthetic wig, because she is not comfortable enough to go "natural", and we… Continue

Added by Matt (Mikayla's Dad) on November 11, 2009 at 3:46pm — 2 Comments

I'm still around

I've not posted on here for a while as just been busy working and keeping my head down. I have been for numerous tests lately as it was thought I might have had Lupus (runs in family and also causes hairloss) but no they think I have fibromyalgia/ME but there is damage to my muscles so dunno what's going on. As for the hair well I have one or two strands on one eyebrow, a few lashes on the other and not much else. I just dont care anymore...ok that's a lie but I just have to get on with… Continue

Added by elaine on November 11, 2009 at 2:42pm — No Comments

Greetings!

I am new here on this website but I am NOT new to Alopecia. I have been diagnosed with autoimmune Alopecia. I have pretty much had it all my life but it got really bad my Junior and Senior years in high school....which you could imagine was rough.



I have been completely bald now for 12 years with some hair on my body and limbs....which is funny because I have more on my body and none on my head. I have 1.5 eyebrows right now but one eyebrow is growing back thanks to the good ole… Continue

Added by Eric Dane Mattson on November 11, 2009 at 12:12pm — No Comments

Bye Bye Brows

Since I began regrowing eyebrows and lashes at the beginning of 2009 (after being AU for about a year), I've been telling myself not to get too emotionally attached to them. Though they never grew in completely, it's been really nice to have my bio-looking brows again, and all my friends have noticed and commented. The brows are visible in the Bald Lady Drumming photos I put up in August.



But now, the signs are clear: I haven't had to pluck areas underneath the brows for a few weeks,… Continue

Added by Mary on November 11, 2009 at 11:18am — 15 Comments

Aprendiendo

¡¡Voy a escribir mi primer post!!
Tengo FAGA o AGA o alopécia androgenética, cada vez tengo menos y más fino, a veces uso productos como nanogen para disimularlos, pero ya estoy harta, pica y voy manchando la almohada...
Estoy harta de probar productos y ni el minoxidil me funciona...
¡¡Pero soy muy feliz eh!!
Estoy esperando una bonita peluca de pelo natural, será la primera que use, tengo un poco de miedo y no sé cómo voy a explicar mi cambio pero ¡lo haré!

Added by Kat on November 11, 2009 at 3:37am — 1 Comment

Biopsy

I just read Sue Helaine's blog post, "To Biopsy or not" and was so inspired. Thought I would share my own story because through sharing and story we heal.



I didn't even know there was a biopsy. So, that's how my tale begins!



Confusion:

I started noticing serious changes in my hair 3 years ago. I remember getting out of my friend's hot tub, the hair on the nape of my neck was wet from the bubbles. I went in the bathroom, looked in the mirror and had my first serious… Continue

Added by Alicia Duncan on November 10, 2009 at 11:09pm — 1 Comment

Please, your prayers...please

i have been out of site for a few months, I guess when my son's girlfriend developed some horrific neurological problems due to a malfunctioning shunt, I totally forgot about my own issues (AU). Right now, sweet Jenae is spending her fourth week in the hospital; she is having complication after complication due to a replacement of a shunt she has had since childhood. Just when things start looking up, the shunt clogs and she is rushed into surgery. The last surgery has really knocked her bad. I… Continue

Added by brenda kay on November 10, 2009 at 10:00pm — 4 Comments

Consultation Nightmare

First, I am so thankful that I have been connected with Alopecia World. I have so much background information and insights that today, which could have been a little disheartening, turned out to be Just Another Day.



So, I went to a local Hair Spa (I know, I know) that specializes in Reprieve Hair. (smaller filler-type hair systems). I had never seen one. I didn't think I would be a candidate but I wanted to start small and work up. I won't go into long details but the person there… Continue

Added by Alicia Duncan on November 10, 2009 at 9:40pm — 1 Comment

Has anyone tried using Aminexil?

Hi ya'll, I
m surfing the net and came across a product called, Aminexil. It is a leave in treatment that claims to keep what hair you have dense and help growth. Has anyone tried this?? Thanks for the feedback..
Melissa

Added by Melissa Harris on November 10, 2009 at 8:09pm — 3 Comments

Anyone going to the 2009 Let Your Hair Down Charity Event where Kayla Martell will be speaking this Friday, Nov 13?

I am so sorry I have not been on here in a while and than you for reminding me that it is important to check in and let everyone know we are ok. Kayla is doing great and going to college in Arlington, VA at Marymount University. We are so excited to see all our friends and Alopecia supporters this Friday at the "Let Your Hair Down Charity Event" in New Jersey. Matt and Donna Hakim and their two beautiful daughters really put on a SUPER FUN EVENING! The food is also out of this world. I was so… Continue

Added by Rhonda on November 10, 2009 at 6:00pm — No Comments

Been a while

I havent been on here in probably the last year..Alot has happened. After all the stuff i dealt with with my molar pregnancy and chemo, a month later, i found out I was PREGNANT!! :) I had my beautiful baby girl August 20th. She is my world. She changed the way I look at myself and the world. My alopecia is not what defines me. I am an amazing mother, girlfriend, daughter, granddaughter regardless of my alopecia! I have beyond happy with my life!! My little girl Peyton Faith has made my life so… Continue

Added by Chelsea McGee on November 10, 2009 at 4:38pm — No Comments

Are there any good wigs out there that are not Vacuum?

Hi there ya'll! Question, is there anyone on here that has had a good experience with any wig that is not a vacuum wig? I am still receiving treatments and still have 2/3 of my hair, so I'm not ready yet to shave my head. On the other hand, am willing to buy a wig that is not a vacuum wig, but still looks really close to one for now. Has anyone had a good experience with any other kinds of wigs other than the vacuum?? Thanks for any feedback!! Melissa

Added by Melissa Harris on November 10, 2009 at 4:23pm — 6 Comments

Dyeing Hair After Alopecia

My mom has had alopecia for the past year and her hair is now starting to grow in. Her only problem is that it's growing in grey, she by no means wants to be picky as any hair is hair to her now, however, she is not ready to face the signs of aging. We are trying to explore our options, and were wondering if dying the hair would make it fall out again or what? We really have no idea and neither does her doctor so any help is greatly appreciated!

Added by Stacey Ringham on November 10, 2009 at 1:27am — 2 Comments

Alopecia totalis :(

Im 26 yr old guy....I have alopecia for 6+years.....Nw doctors saying it is alopecia totallis.........I lost my eyebrows and hairs throughout the body...But i am not totally bald now....partially hair is exist in head (around 60% in head) .....Is there any possible to regain my natural hair in full head and eyebrows as well ? .....Or not possible ??.....Can someone suggest me....I was totally depressed bcoz of this problem.....

Added by jebaraj on November 9, 2009 at 11:23pm — 1 Comment

Locker Room Discussion

Good morning fellow AW'ers! I have a quick story to share: this morning while I was in the gym locker room the lady next to me asked if I was undergoing chemotherapy. (I don't wear my wig at the gym, just a baseball cap over my bald head, and I'm certainly not shy about going bald in the locker room.) I smiled and said that no, I don't have cancer, but I have alopecia. She said "Oh" and then I realized that she probably didn't know what alopecia was! I forget that alopecia is a somewhat unknown… Continue

Added by Natalie on November 9, 2009 at 11:00am — 4 Comments

To biospy or not

I sent this response along to one someone questioning "To biospy or not" ... I think as part of my own therapy to heal from some of the the emotional pain of my Alopecia, it would be helpful to keep some of my responses in "A personal blog" as well, it will help me look back to see the progress that I plan to make from an emotional level. I need the support now more than ever and if I chose to ignore everything I'm feeling, about my condition, (which for me, of course is impossible because the… Continue

Added by Sue Helaine on November 9, 2009 at 4:28am — No Comments

I will miss you Brandy

One of my best alopecia friend from AW passed away in July. A friend of hers told me that today.

I will miss our conversations Brandy.

Your friend, Roger.

Added by Roger on November 9, 2009 at 4:02am — 6 Comments

So proud!

I just want to say how proud we are of our son Nathan. He's probably at about 30% hair loss at the moment, or a little more, and rarely does he leave the house unless he's got a hat (which he now wears at school all the time) or a bandana (thanks to Canteen, we help both them and us at the same time). However, last Friday, I noticed that he was playing with the kids at an after school club that I help run, and there was no sign of either hat nor bandana to be seen. But there he was, confident… Continue

Added by Judith on November 9, 2009 at 12:41am — 1 Comment

Autoimmunity Research Foundation

http://autoimmunityresearch.org/



The Autoimmunity Research Foundation is a 501(c)3 charity whose educational efforts are focused on letting Health Professionals, and the public, know the cause of Th1 chronic inflammatory disease. Many chronic conditions, including Sarcoidosis, RA, MS, PTLDS, Chronic Fatigue Syndrome CFS/ME, Fibromyalgia, and Parkinson's, are succumbing to treatments based on our molecular description of inflammatory… Continue

Added by MiNAH on November 7, 2009 at 8:44pm — No Comments

How to compliment someone with alopecia?

As a non-alopecian, I'm curious: If people would like to compliment your "look," how would you like them to do so? I mean, if it's specifically your "hairstyle" or lack thereof that they like, what's the best for them to tell you this without offending or upsetting you?

Added by rj, Co-founder on November 6, 2009 at 11:21pm — 13 Comments

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