November 2008 Blog Posts (93)

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I Really Need Some Kind Words, Alopecians and Non-Alopecians. Please.

I'm tired of this. I'm sick and tired of having my optimism and hope driven into the dirt by my mother. Every time I talk to her on the phone, I end up in tears. I resent her for making me feel insecure about something that I have no control over. She makes me feel like I'm not doing enough when in reality I've done so much. I feel that if I try one more procedure or method and bring her (and myself) false hopes that it'll just be wasted money and it will wear me out even more. I am still a… Continue

Added by Alexandra on November 5, 2008 at 9:30pm — 5 Comments

Cool way to tell others about Alopecia World! :-)

Did you know that Alopecia World has several cool “badges” that you can add to your personal website or blog?

You can also add these cool badges to your Facebook or MySpace page or your page on another social networking site!

Simply login to your Alopecia World account, go to this page,…

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Added by Alopecia World on November 5, 2008 at 1:30pm — No Comments

Response to Karen

A week or so ago, Karen posted the following on my wall:



Hi,



I have been reading your page for the past few months and have wanted to message you to ask a few questions. If you read my page you would see that I have a daughter who is turning five in three weeks and she has alopecia. She is now in the shedding phase and what will happen....who knows...



I have come to terms with the fact that she may have to live with this for the rest of her life and now I am… Continue

Added by Dominique on November 5, 2008 at 4:09am — 5 Comments

sigh

im still not over tommy :( it feels like ill never be. im just so sad all the time. can anyone cheer me up?

Added by Courtney on November 4, 2008 at 9:02pm — 3 Comments

Having a Bad Day :(

Oh, I HATE how this sadness and anger sneaks-up on me!! Is it PMS? Maybe? Is it normal? Maybe? Does it drive me INSANE .. You BET!! Because I have REALLY REALLY been trying to be happy! To Accept this! To be OKAY! But since Saturday night, it's not working out so well!! First I was pissy cause wearing my wig out all afternoon gave me a HUGE headache!! Then I wasn't comfortable enough to ride in my own car with nothing on my head ... You know, afraid to be JUDGED by complete strangers! Sunday I… Continue

Added by Celeste Edwards on November 4, 2008 at 3:44pm — 7 Comments

No use crying over spilt milk ..

hello,my new friends here...

this mornign, quite early, i was having a quite sad,

depressive time... i stood up, went to the bathroom,

and looked at myself, in the mirror.

first, i thought, oh-god, what a "monster" you are..

i looked at my head, which was shaved nearly-clean then,

and thought, again, who will ever find you sweet or attractive..?

i felt tears running down my cheeks.. and, though i felt that-depressive,

i took the razor and began removing… Continue

Added by Hannah Sylberstein on November 4, 2008 at 9:56am — 3 Comments

Sigh

I am getting so fed up with my head....and I feel selfish because I havent even lost all of my hair yet. The spots just keep getting bigger, and the hair keeps coming out. I am getting sick of wearing it one way to hide the baldness, but its so hard to just throw your hair the way you want and screw the spots, but then people look and ask and make jokes.....or tell you what you should do to fix it. "dont be so stressed" is what i hear most often....I AM NOT STRESSED!! Its hard to explain… Continue

Added by May on November 3, 2008 at 4:57pm — 5 Comments

no more treatments!

well, i have a doctor's apt tomorrow and i called and cxled it. i decided that i am done with everything that i have been doing to keep my hair. i am not taking injections anymore, or using foams, or creams on my scalp. i am losing more hair and it comes and goes. it seems that i am losing and growing hair and that it has nothing to do with the treatments. plus i am gaining weight from all of the steriods and that doens't help my state of mind at all either. i stopped the zoloft as well. i… Continue

Added by Jenn on November 3, 2008 at 1:12pm — 10 Comments

off with my hair - finally....

hi, my new friends here...

after several months, nearly one-and-a-half

years of suffering from loosing my hair at the

middle-upper-back-part of my head, with

more hair dropping on the floor, continuously,

i dedided, finally, to have my head shaved..

now, after i did it (not me, a friend of mine

did it, instead of celebrating "helloween" together..),

no-one would notice, i had suffered from hair-loss..

it´s a drastic change - but, at the moment, i… Continue

Added by Hannah Sylberstein on November 3, 2008 at 9:40am — 10 Comments

feeling a split personality kinda thing

hi .. i also want to lighten my heart with all of you....



i have very small family n frnd cirle ..... i have only my mother as only family member to talk , no sister n brother, n no discussion with father..he just want me to talk only "important things" ....... i have 3,4 four good frnds(no girlfrnd). ...



i saw many alopecians seems to enjoying their lives very well ..... i have accepted the condiiton .... when i am outside my home ... like in office ...i m normal ... well… Continue

Added by nrja on November 3, 2008 at 7:34am — 1 Comment

genetics

a while back, i went to a genetics doctor, cant remember what they call them.

i wanted to know more about alopecia and my dna.

i guess you could say i'm a special case, i have an identical twin sister who doesnt have alopecia.

she is also really scared about getting it! i am scared she will get it, one,because she isnt as strong as me.

and two because i like being the only one!!! haha

so the Dr said she has a 55% chance of getting it.

also i wanted to know what… Continue

Added by Alison on November 3, 2008 at 7:13am — 5 Comments

We are all Pretty and Sexy!

We just have to keep a good actitude towards life, I guess that's the key.
We can have different wigs, and wear different styles, we will still look pretty and hot.
You just have to remember, Don't let your hair make you, YOU MAKE YOUR HAIR. Even if you buy it :-)

Added by Grace on November 2, 2008 at 2:18am — 1 Comment

So Mad I didn't go as a Jack O Lantern for Halloween

What was I not getting about Halloween.....

Duh....Next year you can call me Pumpkinhead....

Hope everyone had a Happy Halloween.

Jeff

Go ahead and say it....Typical Cheesey American. LOL

Added by JeffreySF on November 1, 2008 at 12:20am — 2 Comments

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