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Considering the head shave

hello all



I'm new to this site, but have had AA for almost 18 years now. i have always treated my AA with the steroid injections, due to the face that is the only thing that ever worked for me. untill now, i've always been able to cover my spots with my own hair by simply changing hairstyles. now however, i have some really large spots that can no longer be covered aside from with a baseball hat. my problem occured due to the fact i'm leaving for a cruise in a couple of days, and i… Continue

Added by Amie on September 11, 2009 at 9:10am — 6 Comments

Cheap wigs

hey, i want to know if anyone can help me get cheap wigs. i got one that was about $400 and i dont think it was worth it. i feel like if i only wear that, that it'll go bad real quick. so i just want to find cheap ones so i can beat on it.

just a little help please

Added by alyssa on September 10, 2009 at 6:18pm — 5 Comments

Hoping to learn some things

I have been daignosed with alopecia 20 years ago, I also happen to be an HSP a highly sensitive person. I am constantly in conflict with my environment. Hopefully i will learn one or two things from all you courageous people. I am lacking a support system here in the States. My husband is there once in a while??? Even though i am a very strong person well my shell is at least, inside i am very vulnerable and fragile...it gets hard sometimes-(

Added by Sofia on September 10, 2009 at 12:15pm — No Comments

Overwhelmed with joy!

My cousin JT (who is basically me in drag) told me before he went to Dragon-Con this past weekend that he was going to shave his head to support me during Alopecia Awareness Month. I just laughed it off, because he's never done it. Well, I just posted the picture -- he did it!! All I could do was call him and just cry on the phone, because I was so overcome. Literally, nobody has ever done anything like that for me in all the years I've lived with alopecia.



Somehow, thank you just… Continue

Added by kastababy on September 9, 2009 at 7:24pm — 7 Comments

I've broke down.

Plain and simple.

I've lost the control I once thought I possessed.

Added by Sarah on September 8, 2009 at 3:00pm — 2 Comments

Scalp burning, pinching, itching

have been having this Scalp burning, pinching, itching.....mostly burning for about a month now. I had a Bout with it about 2 years ago that lasted for many months, then again about a year after that but it did not last as long maybe only 2 - 3 months. It just left when I had it befor, no explination. I have also been to diffrent doctors and they all have no idea. I was put on diffrent antidepressants that only made me very sick, I am not depressed I am normally a very happy person except when… Continue

Added by Jody on September 8, 2009 at 12:27pm — 2 Comments

I feel stupid

Found my first spot back in June a day after my birthday! Since then it has got bigger and while there are no other spots my hair continues to come out.....thinnning i guess. Have been to the doctor and am now halfway through my 3 month wait to see a specialist. They are all certain it is alopecia. In the beginning i didn't let it get to me, i thought well at least im not sick right? But in the past couple of weeks its all got to me and I find myself starting to cry and unable to stop! It might… Continue

Added by Gretchen on September 8, 2009 at 12:45am — 6 Comments

Why not just have "selective" (chosen) exposure?

I just bare it in certain places, not in others. Why does it have to be all or nothing? It's your head. You get to choose where and when and with whom and for how long you will feel comfortable!

Added by Tallgirl on September 6, 2009 at 9:14pm — No Comments

Another new derm

Took my son to the derm yesterday for some better answers. She ordered the tests that I wanted and said we could do the biopsy whenever I was ready. I went ahead and held off on the biopsy for now only because I'm scared it will encourage another spot to start. His last spot started from a major head bump. He had a huge knot after the bump, its actually still there 2 months later, plus the new spot that started where he bumped his head. So because of that I'm afraid for now. She did say that… Continue

Added by Jennifer on September 5, 2009 at 1:07pm — No Comments

Fix what's in your head to cure what's on it

Hello very interesting news about the treatment of alopecia. CBT (cognitive behavioural therapy) is helping many with alopecia. Although stress is a most probably a contributing factor to alopecia; ongoing stress or more specifically situation related stress- anxiety is a big obstacle why hair takes time to regrow. This anxiety state adds to our unwell health and increases our stress hormones stunting hair growth.



If we feel quite self conscious and avoid doing things as of alopecia… Continue

Added by carl on September 5, 2009 at 5:39am — 1 Comment

1st bald pic. Ahhhh!

A short background. I went completely bald in 7th and 8th grade when I first lost my hair. I got my first wig in high school and have worn one ever since. Although I'm pretty open about my friends knowing about my AU, I only go bald in the privacy of my own home and only in front of a select few.



Anyway...recently on facebook I reconnected with a lot of old friends from grade school. Today I noticed one of those people posted some pictures of all of us back in grade school days and… Continue

Added by Jill on September 4, 2009 at 6:42pm — No Comments

Struggling

I am suffering from postpartum depression, I'm obsessing over my son's hair loss, and when I'm not obsessing over him I freaking out over the biopsy I have to have next week. Why me? What did I do to deserve this. Its like God telling me I was too happy in life and was getting too comfortable with things going well. So haha joke is on me.



Its all I can do to get in the shower each day. I drag myself out of bed and walk downstairs with my stomach in my throat that there will be a new… Continue

Added by Jennifer on September 4, 2009 at 12:17pm — 5 Comments

Nervous! TO shave or NOT to shave with the wig?

I just bought a wig (human hair) but its monofiliment I am not sure that is the best wig to get .... is it easy to wear do i shave my head with it? or do i leave hair so i can pin it in.. if so should i cut my hair short. ... Kinda freaking out because i wish i had someone with me that knows and has gone through this already to help me! My family is being supportive finally but, they don't know what is best or whatever!









please help me figure out if i should shave my… Continue

Added by Ann Laurie on September 4, 2009 at 11:34am — 6 Comments

The other side of fear

The first time I left the house without my wig I literally stood at the door with my hand on the knob totally frozen for about five minutes. I knew once I walked out that door everyone would not only know my “secret,” but would now see it. There was a big difference between telling and showing somebody my alopecia.



To this day, I am still sometimes surprised that I opened the door and walked out of the house. I remember my heart was pounding and, I wanted to run back…

Continue

Added by Cheryl, Co-founder on September 4, 2009 at 12:00am — 4 Comments

How to deal with this?!

I have no idea. I wish I knew. My friends don't understand. All I hear is "its just hair". I hate hearing that. I know its just hair. I know I should be grateful that their is nothing seriously wrong with my child, that he is still healthy. But I'm angry and sad. I want to know how to get past the anger and the sadness and learn to live with the fact that my child might lose all of his hair. I want to look at him and just see him and not see the new hair loss. Not feel that pit of my stomach… Continue

Added by Jennifer on September 3, 2009 at 11:30am — 3 Comments

Losing eyebrows....HELP!

I am starting to lose my eyebrows in addition to my hair :(. Does anyone have any suggestions as far as replacement for eyebrows??

Thank you
Donna

Added by Donna DeHoog on September 3, 2009 at 10:56am — 5 Comments

Vacuum wigs

Does anyone have any experience with vacuum wigs? Are they hot? Do they truly stay on your head? Do they look natural? What about the part line? Can you wear them without bangs and still look natural?

Thanks!!!!
Donna

Added by Donna DeHoog on September 3, 2009 at 10:54am — 1 Comment

My year of growth seems to be coming to an end :( ?

OK everyone.....I need a pick me up!!!!!!!!!!!!!! I think my free ride with the new hair growth maybe over. I had to go off the methotrexate for 3 weeks this summer due to high ALT and AST numbers (liver function enzymes)

I have been back on and off it for the last couple of weeks, trying to watch the liver numbers. In the last 2 weeks my hair has been thinning steadily and I have about 10 or more crop circles ranging from dime to quarter size.....had kenalog shots two weeks ago in the… Continue

Added by Kim Culberson on September 3, 2009 at 1:34am — 1 Comment

Never ending story!

Well..Its been a while since I got on here, but I wanted to update my stuff! I did have three spot and they were getting bigger and bigger and then I had cortisone shots and the clobetasol gel! Well, the shots made my scalp way too thin and he said that I could not have any more shots for at least two years! So then it was a waiting game to see how it would turn out. The hair started growing back really fast and good! I was so excited! But last night I was looking in the mirror and saw a spot… Continue

Added by Misty Boggs on September 2, 2009 at 11:23pm — 4 Comments

Empower myself

I told my family... friends, and anyone who wants to know in my life that I have Alopecia and I got this back... and I thought my fellow prisoners of Hair would apreciate it!



(Adam Deming)



Lol, as if you need hair to be beautiful. You were, you are, you will be.



So shave it off with defiance, as if you were overthrowing the repressive Hair government whose power seat rests atop your crown!



Storm the castle gates with torches and pitchforks, letting… Continue

Added by Ann Laurie on September 2, 2009 at 3:14pm — 8 Comments

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