Featured Blog Posts (3,064)

Houston is so Close

So again I havent had much of a chance to update on here much, I did throw up a few pictures of me teaching from this past semester at college and also some pictures out with my friends. I figured since my picture before had me with eyebrows I should change it, because I dont have them anymore.



So I keep finding or having people "tag" me in photos from the past. It's so much of a shock to see how much I've changed, and sometimes it makes it hard for me. I've tried to stay away from… Continue

Added by Drew on June 22, 2009 at 8:30pm — 5 Comments

Touching Tears

I'm not one to "blog" very much, but I feel this deserves proper attention. I had just received my sister's wedding invitation, and in lieu of gifts they each picked a charity. My sister picked the NAAF. Although I did know about this.... (and I cried when she told me)....... seeing it on the invitation just put a big ol knot in my throat ....... and yes, made me cry all over again. So, I thought I would share my sister's thoughtfulness with you all! Have a Wonderful Day!!! I am sooooooooo… Continue

Added by Jennifer B on June 22, 2009 at 3:25pm — 4 Comments

Hit an all time low!

This is only my second time on alopecia world, but I need support more that anything! I was looking at a photo of me

in February and I had most of my hair then , now 4 months later I only have a few strands left. I wear a hat every day, and am going to see about getting a wig this week but its the last thing I want to do. I hope it will improve my confindence as I am usually so outgoing and such a sociable person.

I hope hoping for that 'miracle' cure and the trichologist thinks it… Continue

Added by kathryn ccombs on June 22, 2009 at 9:37am — 4 Comments

just venting

Well I'm headed to work and my head is itching and has sore spots. I really don't know if thats normal. My spots are getting bigger and it is so frustrating that nothing is working! I am wondering if the cortisone shot are just a waste of my time. I have to go back in 2 weeks and get more! Well I guess I'll slip on my hat and head off to work!

Added by Misty Boggs on June 22, 2009 at 9:04am — 6 Comments

Reincarnation

Reincarnation. A rebirth of sorts. Over the weekend, I got to reinvent myself, on the outside anyway, as I once again shaved my head rather than deal with the daily fall out. I know full well that what’s on the inside won’t change much except for that initial period of anxiety and awkwardness as I go out in public. The butterflies will pass in short order. Been there, done that, no t-shirt but lots of hats and bandanas.



The change in appearance presents its’ own opportunities. I’ll… Continue

Added by Tony on June 22, 2009 at 6:48am — 3 Comments

The Sisterhood Fraud

This seems to come up a lot here on the site (and in my life). Here's what I wrote in my personal blog recently. I thought it would be good to share with you all, to see your thoughts.





It happened again.



I am shopping at Macy’s when a curly-haired brunette catches my eye from across the circular clearance rack.



“Chemo?”



“No,” I hold her gaze. “Alopecia.”



“Ah. I know alopecia. Your hair will grow back.”



In my alopecia… Continue

Added by panuelo girl on June 21, 2009 at 3:13pm — 2 Comments

eye lashes and eye brows

Hi everyone...

I have a question about those who lost their eye lashes and eye brows. When you lost them did you lose them all at once or was it gradual? Could you tell you were losing them? Also, when you started to lose them did you have any hair on your head or any fuzz where hair growing in? Once you lost your eye lashes and eye brows did they ever grow back? The reason why I am asking this is because I have AA since I was four and only hair on my head. The other day I noticed some… Continue

Added by Dame on June 21, 2009 at 9:30am — 3 Comments

"Just curious"

Ok..My daughter is 6 years old and I was fixing her hair so I could take her to gymnastics and I found about a quarter size spot in the back of her hair. I feel so sad for her. When I went to the doctor last week I asked him about it and he gave me some gel to start using on her hair twice a day...but he said that it was unusual to see a mother and daughter with AA. Does anyone know if that is unusual? She is very supportive of me though and she always says,"mommy if you lose all of your hair… Continue

Added by Misty Boggs on June 21, 2009 at 12:26am — 5 Comments

People have no boundaries

I am back in NY for the summer to complete my masters degree and be done with school officially. Just like last summer I have been wearing a scarf around my head and have not been wearing my wig as it's too much bother and gets too warm. I have now, just this week, had two different people come up to me and ask me if I am "receiving treatment".



I think this is so horribly and unbelievably rude. 1) no i do not have cancer 2) when and where did people learn that this was socially… Continue

Added by amanda~ on June 20, 2009 at 9:00pm — 6 Comments

Still rollin'

I have my travel plans for Alopeciapalooza set up now and I'm so pumped for my workshop! I have some more work to do to set everything up and all but it's all good! I also got this email this morning from my website and the Toronto group is in the works of setting up CANAAF (Canadian Alopecia Areata Foundation) and they'd like me to sit in on one of their meetings. I'm hoping they'll let me be as much a part of this as I can be because this is what I've been hoping for for quite some time. I… Continue

Added by Carol on June 20, 2009 at 3:13pm — No Comments

Always someone worse off

Wow. Yesterday I found out that a friend of ours that we haven't seen since Christmas has been diagnosed with breast cancer, had a double mastectomy, and is going through chemo. Her husband shaved her head for her and her little boy shaved his too. What great souls kids have. Anyway, when I said my prayers last night, I prayed especially long for her, and then asked forgiveness for me being such a selfish person worrying about my own hair falling out while this woman is fighting for her life. I… Continue

Added by Bonnie Ajan on June 19, 2009 at 1:06pm — 3 Comments

I hate people!

Seriously, I am honestly trying really hard to form to form a support group here in Winnipeg. And not having ANY success. its like no one has it, but I know there are a lot in Winnipeg with the disease because our dermatologist says he sees more and more people each month being diagnosed but everyone is damn well hiding. I want for my daughter to meet other kids and have only ONE honest person intrested in this group and meeting, thank you Christine! I have met others through the support group… Continue

Added by Tracy on June 19, 2009 at 12:25pm — 7 Comments

Got a new hat!

Just finished my A level exams yay!

Just thought I'd post what happened to me today. Went into a shop selling t-shirts and the like with slogans about the area with live in. I saw a cap saying 'Shropshire Lass' on it which I thought would be funky for University as I'm goin quite far away. I didn't have my wig on and I think the woman must have thought I was ill because she said they were £10 but only £5 for me and without me saying anything she then offered me the pink one in the window… Continue

Added by Lyndsey Pitchford on June 19, 2009 at 11:30am — 1 Comment

Exercise?

Ok, so last week I saw a different doctor at my GPs, after my blood tests came back clear.

So I wanted to discuss my options with him.

So i asked if I could see a dermatologist and he said i could do, I asked about steroids he said they wouldnt help.

So I asked about accupuncture, and he said that was useless too, so I tried asking about caffeine based potions and minoxodil he said they dont work. He said all that will help is exercise.

Maybe he thinks this will help with my… Continue

Added by christina on June 18, 2009 at 11:44pm — 3 Comments

Oprah got it wrong...

I love me some Oprah, I do. She struggles with her weight. I struggle with my weight. She motivates people. I motivate people. She has a passion for sharing information that can help us improve our lives. I have a passion for sharing such information (though I’ve done it on a much smaller scale). When Oprah ran a marathon, I wanted to run a marathon. And I did run a marathon. Because Oprah inspired me. Because Oprah made me think it was possible.



Oprah usually gets it right. But for… Continue

Added by panuelo girl on June 18, 2009 at 3:01pm — 18 Comments

bald dreams

i have been having these weird dreams about bald girls i have no idea what they mean. ill tell you guys a few

Last night -I WAS IN A BIG BLACK ROOM AND ALL I COULD SEE WAS BLACK UNTIL SUDDEMLY A REALLY TALL BALD GIRL CAME IN AND I FREAKED OUT AND I STARTED RUNNING BUT ALL THERE WAS WAS BLACK SO I DIDNT GO ANYWERE.



WEDENSDAY- I WAS AT A BIG FANCY HOTEL AND TWO BALD GIRLS CAME UP AND TALKED TO ME THEY WERE VERY NICE BUT THEY SHAVED THERE HEADS BECAUSE THEY DIDNT LIKE HAIR I… Continue

Added by Nikki Mans on June 18, 2009 at 12:20pm — 3 Comments

Internal Dialog

I do understand..cause when I'm not thinking and walk by a mirror...I still after 30 years get a gasp..a shock and revolt feeling like a freak too!

Even though I had hair long ago and the last time was when I was 14 years old...I still remember the feeling..sitting in a car or bus, just with my head near the window..enjoying the wind blow in my face and through my long beautiful hair.

Just today..i looked in the mirror and thought..where does all that positive energy come from, which… Continue

Added by MiNAH on July 7, 2009 at 3:11pm — 5 Comments

What's up?

Well I just held another support meeting and it went well. It was a small turnout but that was okay because someone new to the group needed some in-depth attention and all the right people were there for him - coincidentally. I'm going to go ahead with plans for an afternoon in the park on National Bald Out day which I will add to the events (soon I hope). Other than National Bald Out day (Now International…

Continue

Added by Carol on June 17, 2009 at 10:30pm — 2 Comments

Wednesday 17th June 2009

Hi :)

Thought I should update my blogging, as I haven't written for a while, and I have had quite an interesting day!



Went back into school today for the first time in a good few weeks (Oh the life of a student on study-leave!!) Had to set up my art exhibition in the art room, which was a bit of a palaver, but at least it's done now!! What a relief. Although I had forgotten what the little scum bags in the younger years are like. unfortunately there was a class of year 9… Continue

Added by Lizzie on June 17, 2009 at 5:00pm — 1 Comment

GMTV Appearance with Lorraine Kelly and Dr Hilary Jones

Hi All!

Hope you are all well. Just to let you know I was on GMTV with Lorraine Kelly and Dr Hilary Jones today talking about alopecia, hair loss and wigs.

Check out the video at https://www.youtube.com/watch?v=9rFHri0HynM

I'd love to know your thoughts!!

Love Michelle x

Added by Michelle Chapman on June 17, 2009 at 7:00am — 3 Comments

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