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alopecia problems medication related?

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A few months ago I started losing my hair on my face, and two prominents patches on my head soon followed. Then hair disappeared on the top of one of my hands, and a patch from my neck and back soon thereafter, then a part of my eyebrow disappeared as well. White hair, though, was noted in these areas, and never did go away. Primary MD ran labs, everything was within normal limits. Went to rheumatoid MD to rule out and auto-immune ailments, which she did rule out. One doctor… Continue

Added by JIM DOWNEY on July 9, 2008 at 5:36pm — 8 Comments

Owner of a Lonely Heart

Just an update:

So I only wore my wig to work for a week. It was long enough for me to feel uncomfortable. While the new wig made me feel very pretty, I just couldn't stand the feeling of wearing it all day long! I'm away from home for 11 hours a day including my commute and by the end of the day it was just so dang hot and uncomfortable! So I've been wearing bandanas to work now. I feel so much better and more like myself this way. In a way I felt like wearing the wig was just not… Continue

Added by Mandy on July 8, 2008 at 4:15pm — 8 Comments

i know im beautiful, but i still have a problem..

so i have had au now for about 7 months.. i know my hair is probably never going to grow back and i am slowly feeling a little better about it every day.



but i still need some advice.



i feel so body concious around people who dont know about my condition and i dont know how or if i should even tell these people. i dont just want to be like "hey guess what? i dont have any hair." but at the same time when i meet new people i want them to know who i really am. im not trying… Continue

Added by Amanda on July 7, 2008 at 9:57pm — 8 Comments

Independence Day...

Saturday was my day of Independence, after having AA for more than 40 years, I decided to shave my head bald, thus freeing myself from wigs, weaves and haircovers. The feeling was exhilarating, it was a celebration of all that I am, especially, a "free bird". My 4 daughters, my son, 3 grand daughters and 2 son-in-laws were all a part of the celebration, each taking a turn to cut strands of hair from my head before my son, shaved it bald. I will post before and after pictures shortly. My bald… Continue

Added by Linda on July 6, 2008 at 2:03am — 7 Comments

What is Alopecia World to you?

Alopecia World member Willow recently wrote us and gave our beloved community a wonderful compliment. She wrote, "I think your web(site) is a miracle to some people, a helping hand to some, but it's an extended family to us all."

We are grateful beyond words that Alopecia World has come to mean so much to so many people. Not just the more than 1,200 amazing individuals who are now registered members, but also the thousands of…

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Added by Alopecia World on July 6, 2008 at 1:00am — 16 Comments

Down - but getting optimistic

So, I recently broke up with, for a second time, the man whom I thought was 'the one' - this time ... I completely blame myself. I won't go into details, but I acted atrociously and now follows the shame and the guilt that should.



Along with these feelings, of course, comes the kick you when you're down 'alopecia is a terrible thing to have' thoughts - you know - the feelings you get when you don't want to inflict your appearance on other people, and you can't seem to drag yourself… Continue

Added by Dominique on July 4, 2008 at 8:13pm — 1 Comment

My First Anniversary with Alopecia & My First Blog...Fast Forward Second Anniversary

Hello Friends,



It has been a wonderful year indeed. Unexpected and unpredictable.



It was an unusually warm and clear summer night in San Francisco. A night full of laughter and celebration with friends. It was July 4th 2007.



After the smoke and embers cleared I awoke and went off to work. But there was a suprise waiting for me. Something different. A small circle on my head appeared before me. I thought what is this? Had an ember of my Independence fallen upon… Continue

Added by JeffreySF on July 20, 2009 at 8:00pm — 14 Comments

Dancing in the rain

The steam rose from my second cup of coffee as I sat at the table composing the day’s “to do” list. The day was far too new for the sun to have risen. Nevertheless, the skies were bright with the anger of the approaching storm and the house echoed with the resounding claps of thunder. The door from my youngest daughter’s room swung open and out strode my sleepy eyed princess into the kitchen. Fourteen going on 30, still a child but not. The thunder, her nemesis from childhood, had rocked her… Continue

Added by Tony on June 30, 2008 at 11:55am — 2 Comments

NAAF and Alopecia World-class members

This year, I was honored to attend my first NAAF annual conference. Of course, I owe the privilege to the phenomenal woman of my dreams, my lovely fiancée Cheryl Carvery. She has attended and participated in the conference for 17 years, and this was the first time she asked her mate to accompany her. I'm delighted that I did because, not only was the conference itself great, but it simply made each of my days there to meet and…

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Added by Alopecia World on June 28, 2008 at 11:00am — 4 Comments

Second Opinion.

Ok I know that a second opinion is not going to come out as the doc saying it’s all just a bad dream that is not such thing as Alopecia. But I have decided to get a second opinion because of the first derm we went to. The nerve of some people, this derm as so SO rude you wouldn’t believe it. Our first visit was no help at all, the doc walked in and said "yep its alopecia. looked at me and said I just wanted you to know that because she is under the age of 18 and she has alopecia there is a 100%… Continue

Added by Jennifer and Alieena on June 26, 2008 at 2:57pm — 8 Comments

It happened again.

I went to the store to return a movie to one of those movie vending machines and I saw her again. She was coming out with her kids and S.O. and I was getting out of the car (that my S.O. was driving with the kids in the back). I wanted to say something or wave, but I just smiled. Time seemed to move too slow and both families appeared to be staring into the bizaro world of each other.

Sigh
CAR

Added by Carmella on June 26, 2008 at 12:28am — 2 Comments

Grrr...frustrations

It's only been 3 days of wearing a wig to work and I'm already sick of it! LOL. I mean...I like it and it makes me feel pretty...but geesh! It's one thing to wear it for a couple hours out to the bar or out with friends...it's quite another to wear it around allllll day at work! 11 hours is a long time! For a wig, mine is VERY comfortable. Fits perfect without slippage and it's pretty light. But after wearing it for 11 hours...man...that's a long time! It gets pretty toasty in here and my head… Continue

Added by Mandy on June 25, 2008 at 3:59pm — 5 Comments

Louisville, Kentucky

Dear all, since this site is about diversity, below, you'll find my impressions about the NAAF conference, first in French, which is my first language and after in English.



************************************

Louisville, Kentucky. Pour la majorité des gens, cette ville, ce n'est qu' une ville quelconque aux États-Unis. Pour moi, cette ville est l'endroit où, pour la première fois, j'ai eu le sentiment de faire partie de la majorité. Pour la toute première fois, ma pelade ne… Continue

Added by Diane on June 24, 2008 at 2:25pm — 12 Comments

More wigs, please

I'm getting so much into wigs and I look online for the craziest things. I wish I could afford at least one more wig. Yesterday I got one wig from Ebay with really long hair. That might be the new style for my wedding in august.



When I go to the wigs store I'm in the best mood and I want to try on all different kinds and styles. Short hair, long hair, curly hair etc. The sad thing about it is that all other people who come into a wig store are not in a good mood. They all have… Continue

Added by Zoe on June 24, 2008 at 3:30am — 2 Comments

Question about working with kids

As I said in my previous blog, I am teaching gymnastics to kids this summer. It is kind of like a camp and there are mixture of different kids every week, some come back for more than one week. The kids are mostly between the ages of 7 and 10. I've gotten some questions about my hair, if I'm really bald, or if it will come back. I have no problem answering the kids questions when they ask. I tell them basically what alopecia is and that there is no certainty that I'll every have hair again.… Continue

Added by Kristen Ridenhour on June 20, 2008 at 4:48pm — 7 Comments

Question about Vacuum Wigs

Hi, I was thinking of getting a vacuum wig. I heard they fit secure and cannot be pulled off. Well that's what I hear anyway. I work at at special needs school, I work with 7th-8th grade children with severe behavioral problems, some with mental illness as well. My job can get pretty rough and physical and I was trying to find a wig that could not be pulled off or come off during a crisis. They love to go for the hair. Do you think that type of wig would hold up or is there something else out… Continue

Added by Denise on June 20, 2008 at 10:30am — 5 Comments

Patience

Week 2 since I shaved. Life goes on. What was once considered change is now the accepted norm. Yet, the thought still lingers…how much longer will this continue? The German philosopher Friedrich Nietzsche once penned "If we have our own why of life, we can bear almost any how." The ‘how’ is self evident…my ‘why’ is my two teenage children.



Good times or bad, I need be a positive role model for my children. I dare not wax impatient for fear of the unintentional lesson provided.… Continue

Added by Tony on June 19, 2008 at 12:05pm — 2 Comments

Going out whilst bald

Well last week i went with my friends into Birmingham town centre minus my headscarf and we had a great night, everybody in the pub was staring at me as obviously you dont see a bald girl often but i let it go over my head and thought i will be bald and proud and thats what i did, i think that night helped me realise that i am still the same person just minus my hair and ive excepted that now..

Like everyone with alopecia i have my up days and down ones but being around people who care and… Continue

Added by claire on June 18, 2008 at 3:20pm — 6 Comments

Dating Whilst Bald part one ....

Well i have to say ive had some shocking experiences over the last few weeks whilst dating and i feel its only fair that i share them with you.



Well two weeks ago i went to a alopecia uk meeting at a local pub and met a man who was there with his friend and noticed that we were a group for hairloss so he came over and we began chatting (he had alopecia totalis), and i gave him my number and we agreed to speak later.

Over the next week e chatted on the phone for hours and agreed… Continue

Added by claire on June 18, 2008 at 2:00pm — 5 Comments

This is starting to get really real...and it's scary

I know we all have good days and bad days. Well this is one of my first real bad days. I've been able to stay very positive through this process but I think that was just because I could still hide by pulling my hair into a ponytail. This morning I was like 45 mins late to work all because I was having such a hard time getting my hair to cover my spots. I still succeeded, I suppose, but if anyone were to really look at my head they would see that one worst spot appearing through very thin.… Continue

Added by Mandy on June 18, 2008 at 1:59pm — 12 Comments

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