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looking for new scarf

Hi everyone. Good Morning
I am looking for a new scarf. i want one that fits like a doo rag but has long ties so that ties go down my back, Does anyone know where i can find one of these. I have looked and looked but can not find one. can anyone help me ?

Added by Amy on November 9, 2008 at 9:14am — 4 Comments

twin alopecians

hey there,

i find it fascinating that there are so many alopecians that are twins. I am an identical twin and for so long i thought that there was very few twins that had alopecia. now i read there are heaps of you! and some even loose their hair at the same time!



my twin doesn't have alopecia but has that anxiety about getting it. i can say for sure it has been difficult for her to see me loose my hair and my identity with depression. it was really hard for me as we always had… Continue

Added by Alison on November 8, 2008 at 9:30pm — 1 Comment

new hear

trying to make friends

Added by kay kay on November 8, 2008 at 9:07pm — No Comments

Just another day

I like the cold weather.....I can wear my hair down and throw a hat on....not worry about the wind blowing my hair so my spots will show... I went to my doc yesterday...I told her my hair was still coming out and asked if she knew anything that can be taken while pregnant....i was referred to a dermatologist. I almost dont see the point of going... more blood work more test, will it really help or is it just a waste of my time?

uugh

on a happy note.... WE GOT A PUPPY!!! he is sooo… Continue

Added by May on November 8, 2008 at 8:42pm — No Comments

If someone here who can help me with something.

I am a college student, and in my english class, I have to write a informative essay. So I have to leave my emotions out of it. I chose to do mine about alopecia. Nearly every one I have came across, has never heard about it. I would like to write about it, because I have it, and this is my oportunity to teach people about it. I am going to attach it at the bottom. I don't need help writing it, I am just hoping that if I left some important information out, that some of you may know, and could… Continue

Added by StAsHiA on November 7, 2008 at 10:58pm — 3 Comments

Should I have a baby?

Oh-my-god..

today, this morning (friday morning, here in Germany..), my husband

surprised me with asking me, maybe to cheer me up a little?, in a

very sweet way, if there was a "chance for us" to have a baby..

We had discussed this "question" several times, and so-far, he

always had said, he might feel it´s "too-early" for us to think about

it ... in a more-serious way than just like "romantic dreams"..

and today, this morning, he said, "you are so beautiful,… Continue

Added by Hannah Sylberstein on November 7, 2008 at 9:49am — 8 Comments

relief

i've recently found a way to vent about my problems without telling anyone the extent of it. MUSIC MY SAVIOR! i wrote 3 songs! all about tommy. it really helped. ill think about posting them, but they're pretty ammature. i doutb they're very good. i don't even think u could call them songs. i don't have any music for them. at the moment they're just poems i add music to in my head. ill be writing more just cuz it helps so much. i write down exactly how i feel at that moment and nothing else.… Continue

Added by Courtney on November 6, 2008 at 10:25pm — 1 Comment

My journey with AA

Hi all. I have decided to keep a journal about my AA journey - as much for myself as anything eles as things always seem less of a issue when I've got them written down. Please feel free to add your thoughts and ideas because I feel that this journey is going to be just as much about the people I encounter as the issues I face. Anyways here goes.



Friday 24th Oct 08 - After a few weeks of losing hair by the bucket load and putting it down to summer shedding, my shampoo and what ever… Continue

Added by Karen on November 6, 2008 at 10:06pm — 3 Comments

i mean really whats the point

grrrrrrrr i think im just going to hang it up and quit trying to date or meet some one. i think i meet some one who does not care about me being hairless and they dont really as friends. it seems like when im talking to girls and looking in there eyes all i can think about is what i look like thro theirs. thought i was over the confidence issues or being self consious i am just not with women it seems......i feel alone and depressed this sucks

Added by brian kirchman on November 6, 2008 at 10:51am — 5 Comments

Nicky's new school

Nick started his new school today. He goes to a private Christian school a stone throw from my work. We just could not get him adjusted in his last school. His self esteem had gotten better, but some teasing still persisted and the staff just wouldn't deal with that in a effective manner. Which I truley believed caused Nicky to be a "class clown", thus causing some of his negative behavior.



He went into his new classroom today, which was 14 other children from the ages of 8-16, they… Continue

Added by Carrie & Nicky Johnson on November 6, 2008 at 8:29am — 1 Comment

Egyptian Goddess??

Things have been quite interesting at work lately as far as my alopecia is concerned. Last week I finally spoke to the store manager about not wearing my wig to work anymore and she has no problems with this at all but we agreed I whould wear a scarf at least so that the public won't feel uncomfortable - I understand this and although it isn't completely fair, it is a customer service job and I can't let discomfort stand in the way of my own progress.

So, on Halloween I wore my bright red… Continue

Added by Carol on November 5, 2008 at 10:14pm — 8 Comments

Not A Good Day

So as I said in my previous blog, im starting to lose my eyelashes..

I looked closely Im loosing more hair on one eye than the other. GREAT. What am I supposed to do when I have no eyelashes on one eye and some on the other? I hate this. I hate that Im going through this. My hair is falling out in clumps, which it's never really done before, the process of me losing my hair has been pretty slow. What am i doing to do? How do I live life like this?

I dont understand how one day I have… Continue

Added by Chelsea McGee on November 5, 2008 at 9:51pm — 7 Comments

I Really Need Some Kind Words, Alopecians and Non-Alopecians. Please.

I'm tired of this. I'm sick and tired of having my optimism and hope driven into the dirt by my mother. Every time I talk to her on the phone, I end up in tears. I resent her for making me feel insecure about something that I have no control over. She makes me feel like I'm not doing enough when in reality I've done so much. I feel that if I try one more procedure or method and bring her (and myself) false hopes that it'll just be wasted money and it will wear me out even more. I am still a… Continue

Added by Alexandra on November 5, 2008 at 9:30pm — 5 Comments

Cool way to tell others about Alopecia World! :-)

Did you know that Alopecia World has several cool “badges” that you can add to your personal website or blog?

You can also add these cool badges to your Facebook or MySpace page or your page on another social networking site!

Simply login to your Alopecia World account, go to this page,…

Continue

Added by Alopecia World on November 5, 2008 at 1:30pm — No Comments

Response to Karen

A week or so ago, Karen posted the following on my wall:



Hi,



I have been reading your page for the past few months and have wanted to message you to ask a few questions. If you read my page you would see that I have a daughter who is turning five in three weeks and she has alopecia. She is now in the shedding phase and what will happen....who knows...



I have come to terms with the fact that she may have to live with this for the rest of her life and now I am… Continue

Added by Dominique on November 5, 2008 at 4:09am — 5 Comments

sigh

im still not over tommy :( it feels like ill never be. im just so sad all the time. can anyone cheer me up?

Added by Courtney on November 4, 2008 at 9:02pm — 3 Comments

Having a Bad Day :(

Oh, I HATE how this sadness and anger sneaks-up on me!! Is it PMS? Maybe? Is it normal? Maybe? Does it drive me INSANE .. You BET!! Because I have REALLY REALLY been trying to be happy! To Accept this! To be OKAY! But since Saturday night, it's not working out so well!! First I was pissy cause wearing my wig out all afternoon gave me a HUGE headache!! Then I wasn't comfortable enough to ride in my own car with nothing on my head ... You know, afraid to be JUDGED by complete strangers! Sunday I… Continue

Added by Celeste Edwards on November 4, 2008 at 3:44pm — 7 Comments

No use crying over spilt milk ..

hello,my new friends here...

this mornign, quite early, i was having a quite sad,

depressive time... i stood up, went to the bathroom,

and looked at myself, in the mirror.

first, i thought, oh-god, what a "monster" you are..

i looked at my head, which was shaved nearly-clean then,

and thought, again, who will ever find you sweet or attractive..?

i felt tears running down my cheeks.. and, though i felt that-depressive,

i took the razor and began removing… Continue

Added by Hannah Sylberstein on November 4, 2008 at 9:56am — 3 Comments

Sigh

I am getting so fed up with my head....and I feel selfish because I havent even lost all of my hair yet. The spots just keep getting bigger, and the hair keeps coming out. I am getting sick of wearing it one way to hide the baldness, but its so hard to just throw your hair the way you want and screw the spots, but then people look and ask and make jokes.....or tell you what you should do to fix it. "dont be so stressed" is what i hear most often....I AM NOT STRESSED!! Its hard to explain… Continue

Added by May on November 3, 2008 at 4:57pm — 5 Comments

no more treatments!

well, i have a doctor's apt tomorrow and i called and cxled it. i decided that i am done with everything that i have been doing to keep my hair. i am not taking injections anymore, or using foams, or creams on my scalp. i am losing more hair and it comes and goes. it seems that i am losing and growing hair and that it has nothing to do with the treatments. plus i am gaining weight from all of the steriods and that doens't help my state of mind at all either. i stopped the zoloft as well. i… Continue

Added by Jenn on November 3, 2008 at 1:12pm — 10 Comments

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