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My first blog post!

This will be a GREAT place for me to vent, dispense advice and put in writing all of my musings and ponderings. Feel free to leave comments!



Today is about my current musings and ponderings:



I read a quote once that "those who mind, don't matter - and those who matter, don't mind". Not only does this apply to alopecia, but to many other facets of our life, whether it is our personality quirks, past indiscretions or current situations. It helps to reflect on this truth when… Continue

Added by Andie on September 29, 2008 at 1:21pm — 2 Comments

My New EyeBrows

I finally got them!!! It was so nerve racking! The following day, every time I looked in the mirrior all I saw was EYEBROWS, HELLO!!!!!! I cried all day. I hated them! Then yesterday, I started to get used to them a little more and I definetly fell better now. They are a big scab right now, so they are still too dark. But, as soon as the scab goes anf they lighten, I'm sure I wil be happy. Its actually nice to look in the mirror and see myself with eyebrows on after a shower, usually there is… Continue

Added by Jennifer on September 29, 2008 at 10:17am — 7 Comments

in need of friends

just need to talk to people who know and understand alopecia

Added by Karen on September 29, 2008 at 6:06am — 4 Comments

updatee

wow, sry i havent checked in in such a long time! i've been soooo busy its not even funny. well, to start off with, spencer dumped me. but im not sad. i wanted to dump him. but i was scared and he beat me to the punch. then, his ex-best friend asked me out. and i dumped him. he was going waaay to fast. i mean he said "i love u" the first day we went out!!! and then he kissed me the second. after that, all he wanted to do was make out! but the day before i broke up w/ him, i told him about my… Continue

Added by Courtney on September 28, 2008 at 11:20pm — 1 Comment

Karen and New Life Hair + eyebrow/lash recommendations

Last week, Karen Peterik from New Life Hair came to my house to talk about the Vacuum Sealed Freedom Wigs. She was amazing. Talking with her was really great. She was so helpful. We decided to hold off for a little while. I am still starting out with this whole process (5+ weeks) and am having patches of regrowth. I am still having new patches develop, but some new regrowth. But, those hairpieces were AMAZING! So light and natural. I could not beleive… Continue

Added by Rachel on September 28, 2008 at 4:00pm — 2 Comments

My story

I grew up in a loving family with two parents who exuded love everywhere we went and two brothers who eventually grew up to be my mentors, my champions and my best friends.



We were rather poor, but my brothers and I never doubted for a second that our parents loved us and were proud of us. And their love for us was never more clear than when we needed them. My brothers were quite accident prone and spent a lot of our childhood in emergency rooms with sliced open hands or broken… Continue

Added by Stephanie on September 28, 2008 at 3:56pm — 4 Comments

About Nicky

Nicholas Peyton (Nicky) was born in June 2001, he is the youngest of 5 children. Nicky had beautiful dark brown hair, and smiled almost instantly. He was a healthy newborn. When he was 2 weeks old he was put in the hospital with a high fever, it lasted several days, we never did know what it was. Nicky began loosing his hair. I was not alarmed because my other two sons lost thier hair as babies to. Nicky had GERD (reflux) really bad, they switch his formula several times. His hair quickly grew… Continue

Added by Carrie & Nicky Johnson on September 28, 2008 at 10:30am — 3 Comments

Tattoo on Eyebrows and Eyeliner!

I know so many people have posted about this subject before but here I go..lol



I want to get both tattooed on because I know the chances of my hair coming back is very slim. I was told to wait to get it on because you are still growing until about 22 years of age. Well I am 19 and I have decided to wait on the eyebrows but I want to get the eyeliner done soon.



I get tired of my eyeliner always running and having to worry about itching my eye and the eyeliner coming off. I… Continue

Added by Brianne on September 26, 2008 at 5:10pm — 11 Comments

Ready for Liberation

I REALLY want to get off of this rollercoaster ride (constant shedding) and shave my head. My family and friends do not understand. They just see what looks like normal hair (admittedly alot thinner) and think I am overreacting. My question to them is, "how long do I have to suffer before I can liberate myself"? I know they mean well, but they are all really starting to hurt me. My best friend actually laughed at me when I told her I was thinking about shaving my head. She thinks I should… Continue

Added by Laurie on September 26, 2008 at 1:42pm — 9 Comments

Hair Again

I am now experiencing a really weird feeling. I now have hair again.



I cannot believe that it has all come back. I have not shaved my head for a month now and I have more hair than I would have thought possible in such a short period of time.



The last time I shaved was on the Saturday evening of the August bank holiday. I shaved at about 1800 hours as I was going to our friends’ 25th Wedding Anniversary party. As always with a big night out I wanted a really close shave… Continue

Added by Ray on September 26, 2008 at 1:00pm — 8 Comments

Alicia's new hair!

On Friday, Sept. 19th we went to the Hairclub and received Alicia's new hair! It looks great! They did order her hair piece to have "wave" in it, which was probably not the best, since her hair is straight as a board! But, I can flat iron it and condition it and it still looks great! She loves it, which is the most important part! They were super nice at Hairclub and I would recommend them to anyone.



Alicia is starting to lose hair on the opposite side of her head from where the hair… Continue

Added by Buffy, Alicia's Mom on September 26, 2008 at 10:34am — 1 Comment

New groups in Alopecia World

We recently created several new support groups here on Alopecia World.

These groups are named after the most common forms of alopecia and are meant to provide alopecians who have the same condition with a way to connect, share information, and provide direct support to one another.

Here are some names of the new groups:

1) Alopecia Areata

2)…

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Added by Alopecia World on September 26, 2008 at 1:00am — 1 Comment

Honoring Alopecia Awareness Month?

Hello to everyone that glances at my post!

I am wondering....What have you done, if anything, to help raise awareness about Alopecia in your community, school, circle of friends or family etc. etc. How have you felt doing this and how do feel that others have responded?

I'd love to hear about how We as Alopecians try to enlighten others. Hopefully your answers will inspire more us to spread the word about our unique situation.

Keep smiling you guys!

Added by Orbit on September 25, 2008 at 4:42pm — 2 Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on September 25, 2008 at 8:55am — No Comments

Instant message members of Alopecia World

For the past few weeks, we have been testing a new instant messaging program on Alopecia World.

By all accounts, this simple program, called WHO-IM is working just fine. So, we're writing to let all members know about it.

It's located in the right column on every page in Alopecia World.

If you wish to chat with a member who's online AND has the program enabled, simply click the image or photo that represents that person.

To see a couple of other options, click…

Continue

Added by Alopecia World on September 25, 2008 at 12:00am — 4 Comments

How do you sort your pictures?

Can anyone tell me how i can arrange my photographs on my page so that they appear on the slide show in the order that I want them to?

I use the sort button but the slide show still shows them in the originla order. as some of th shots show the progression of my Alopecia I would like thme to run in the order of the hair loss.

Regards

Ray

Added by Ray on September 24, 2008 at 8:46am — 5 Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on September 24, 2008 at 8:36am — No Comments

Things Alopecians Like #6

A timeless hairstyle. Looking in a photo album 20 years from now, no one will ask, "What were you thinking with that hairstyle?"

Added by Jill on September 24, 2008 at 8:33am — 4 Comments

Love You Mean It

Hello fellow Alopecians,



I've been going through a rough patch this past week and I haven't been able to keep up on the here and now on the Big AW.



I was selected and chosen for jury duty. My service is now completed for another year,

A little piece of advice frome me to you...Don't drink & drive. You could hurt someone for starters and for seconds nobody looks good in orange. lol



I feel as I have neglected myself and my second family...that would be… Continue

Added by JeffreySF on September 24, 2008 at 1:10am — 7 Comments

I passed my road test

Ok so I'm twenty years old and just now taking my road test. May seem pathetic to some but, until now I didn't feel I was truly ready. I took it, and omg I was so so so so nervous. The good thing though is it was actually really easy. I even took the car for spin on my own after I passed. I drove to the park, then to target. I love the feeling of independence, I almost wish I would have taken my road test sooner. But alas it doesn't matter now. Anyways I was wondering if I could get any feed… Continue

Added by ☆Joseph Giallombardo☆ on September 23, 2008 at 2:30pm — No Comments

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