I have recently been diagnosed with FFA and have learnt a lot from reading members' posts - thank you everyone, especially Debs for the very useful factsheet.

Alongside my hair loss (eyebrows and about 1.5 cm at hairline so far), for the last 9 months or so I have been suffering from tingling of the soles of my feet.  Blood tests have not identified anything, and I just wondered whether it might be linked to the FFA.  Has anyone else experienced this?

Hi All,

Who's going to the NAAF Conference this year?

Hoping to meet lots of new people there.

NAAF's always a good time!

June 25th-28th 2015 in sunny Southern California.

www.naaf.org

Some doctors are now prescribing Xeljanz (Tofacitinib) for Alopecia, with great results. Problem is it's cost. It can run upwards of $2k per month or $24k per year, and most insurance plans won't cover it because its not yet a recognized treatment for Alopecia. But the more people who try it and get results, the more likely the medical community will recognize it as a legitimate treatment and insurance companies may start covering the cost. I urge everyone to discuss with their…

here we go again! round 2. I was in a domestically abusive relationship about 5 years ago it kicked off hair loss it was extreme stress at its worst!!! a year after the relationship ended i noticed my hair texture was changing, it felt weird so weird i would keep running my hands through it the density of it changed, it felt weak and fake then came the shedding :( i was so miserable it shed all the time i could not take it anymore i figured hey i will shave it and it will grow back. I shaved…

How long does it take for hair to grow back in the different patches on average? I've found things that say 3 months? I know this condition is unpredictable. I just feel lost in not knowing what is normal progression. My daughter had one very small spot in the end of November that grew to a quarter in January over night. It was then unchanged until the end of March when it again grew. This time much larger and again over night. That same time frame the center of the large spot has minimal…

I currently am using DCP .05% for nearly 2months, little improvements(used it ages ago too and had a full recovery) tho this time nothing definite of yet. I heard my friend had a very good result with hydrocortisone cream 1% so thinking of adding this with my treatment... :)

IT WORKED, praise the LORD :)

About 6 months ago I was diagnosed with PCOS - Polycystic ovary syndrome.  About three and a half years before that I started losing my hair in patches and it resulted in total loss all over my head.  This happened twice within one year.  Prior to that I went off birth control and was hospitalized for a terrible staph infection.  All my life I have suffered from Chronic Fatigue which was flaring up during my alopecia outbreaks.

Since then I am happy to report and…

In February I was diagnosed with FFA however I noticed my hair falling out in great numbers last summer. In early January before I was officially diagnosed I began an experiment with diet. I tried an elimination diet for about six weeks and around the third week I noticed my hair loss decreased dramatically. I have done some online research about this and found out that gluten may be the culprit to my autoimmune disorder likely triggered by stress (since I've gone back to school at the age…

I'm currently 16, yeah I'm a teenager that's what makes this worse. I struggle constantly with everything going on in my life and I blame it on alopecia. I wonder and ask God everyday why me? Why put more stress on me other than a normal person. I wish people wouldn't judge me or look at me different. I want my hair back, I would feel so normal and happy. I'm not gonna lie but I blame alopecia for everything, I guess you can call it a cover up, but it's one thing I believe that makes me…

Hi everyone

I bought a border terrier for my children in November 2014 ,all was well until feb when i startted losing my hair in small circles within 4 weeks 70% of my hair & beard had gone ,i went to the doctor's & also paid to see a specialist but was told it just happens & maybe i was stressed (im not at all) i told them the only thing that had changed in my life & environment was the introduction of a dog ,as a child i was never exposed to dogs…

Need help friends who can share there experience with alopiciae... I'm soooo tired:()(
I don't feel confedance any more.. :(((

First of all may I say "Ouch" when it comes to the injections in your head. I am going to a new dermatologist for the first time and am looking for other solutions besides getting shots in my head. As these were very painful it was the first and last time I will be getting injections in my head.

Any thoughts or suggestions on other treatments and or alternative treatments! Please get back to me! I would rather be bald than go through that…

I had been bonding for 3 years and just recently noticed that when I detach/reattach I no longer have to shave the top of my head.  I always thought that one day, maybe when I retire I'd stop wearing hair and just cut my hair really short like Annie…

Hello,

I live in Phoenix Arizona and I'm searching for an opportunity to become more involved in the Alopecia community here in AZ. I have had a very positive experience growing up with Alopecia and I want to share my experiences with others in my community. I have developed a way of thinking that I think may benefit someone struggling with Alopecia, male or female. I can even share some of my experiences with anyone who wants to hear them. I would love to at least be someone…

JUST SOME WORDS

Don't wanna be the victim,

Don't wanna play the part,

My false sense of self is tearing me apart.

I'm done telling myself lies

I'm done hearing myself cry,

The way i lived my past wont be the way that I die.

I didn't waste those years for nothing,

I didn't give'em away for free,

the things I've hated about myself,

they aren't really me.

I guess I did it to see how bad it hurt,

I guess I lit it to see how bad it…