All Blog Posts (5,829)

Make the best of things :)

A month from now will make a year that I was no longer able to hide my alopecia & chose to cover it with wigs. Last spring I had a head full of hair & the promise from doctors that the two itty bitty patches hidden underneath all my thick hair could be taken care of. They were wrong, my alopecia had different plans & abruptly made an even bigger appearance as it quickly diffused over my whole head. I was always the girl who kept my hair long, I hated even going to get my ends… Continue

Added by Melissa on June 20, 2015 at 10:11pm — 1 Comment

Happy personal post for me c:

I had a spiritual awakening.

I notice my soul more than my appearance.

I am bald and I am beautiful.

So happy that this is the year, I'm so glad it has come. After 8 years, finally, I've been able to look in the mirror and not feel disgust. I am still bald, but I am still living and kickin. I'm not gonna let it bring me down anymore, 8 years is too long to be hating myself. 

I've grown to love who I am on the inside, not the outside.

I am different and I…

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Added by Lishah on June 20, 2015 at 2:30pm — No Comments

I'm going backwards

I feel like I am going backwards right now and I feel like this is a place where I can articulate and discuss these feelings. 

Last summer I had got to my peak of acceptance for my alopecia. I was happily alternating between my many wigs, scarfs and going bare headed, which I was particularly enjoying the freedom of with my new found confidence. I had another tattoo on my head (I already had one) and had come to a point of seeing alopecia as a quirky part of my identity. 

Then…

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Added by Lyndsey Pitchford on June 16, 2015 at 12:21pm — 2 Comments

Pregnancy and alopecia

I've recently had a baby and through out my pregnancy my hair started coming back!!! But since giving birth it's started to fall out again! Had this happened to anyone else? And have you tried to take pregnancy hormones like eatrogen through medication to stimulate the follicles? Desperate

Added by sarah bradley on June 15, 2015 at 9:30pm — 2 Comments

Is it normal that I have suffered alopecia for 28 years and it doesn't get better!

Actually is getting worse and worse. My doctor thinks that is my stress level which is little higher than normal so he diagnosed me with Xanax, it keeps me calm but my hair is completely disappearing from every part of my body, now, I DONT HAVE THE LEFT EYEBROW and I feel like crap. My husband tells me that I'm beautiful, my daughter has 11 and tells me that I'm as beautiful outside as I am inside and I seriously appreciate it BUT I DON'T BELIEVE IT!!! I know for some I'm dramatic but I refuse… Continue

Added by Kitty on June 14, 2015 at 5:36pm — 4 Comments

I'm officially "out" at work!

Thursday night I was really feeling the effects of work stress. My hairline was all inflamed and itchy. I didn't sleep well, and the next day was really hot. I couldn't face painting on my damn eyebrows. I decided to let it all hang out on Friday. I pushed the hair back revealing my hairloss, and went to school sans brows. I was really self conscious at first. I work at a school, and I didn't know what the kids would say. They can be brutally honest at times. So when they asked, I told them… Continue

Added by Chris on June 13, 2015 at 7:50pm — 2 Comments

The Shaving Ritual: Induction into the Cult of Bald

I've noticed that the dominant narrative on AW is one of all or nothing. Whether one has bald spots all over and only a few strands of hair holding on, or one just has a couple of spots that can easily be concealed, she is admonished to just shave it all off rather than worrying or obsessing about it all falling out. This is usually done with the rationale of "taking back control", control being an inherently illusory concept. Once one does the ritual shaving they are a de facto initiate into… Continue

Added by Dominique Cleopatra on June 13, 2015 at 10:05am — 4 Comments

So why does it matter?

So my hair at the front and sides has gradually - oh so gradually - disappeared. And my hairbrush is forever having to be stripped bare. And for the first time in my life I have to use hairspray, just to hold down the carefully arranged styling to cover the seeming acres of flesh. Why does it matter? I am still the same person. I am 64, not young and needing to prove a thing. Who looks at older women in any case? We are universally invisible. So why should I care?

But I do. I care…

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Added by DeniseC on June 13, 2015 at 5:45am — 7 Comments

Just received positive biopsy for Lichen Planopilaris

I am kind of lost for words…..  The nurse called and left me a voice message telling me I do have Lichen Planopilaris, that's it!  Prescribed Minocycline but have not received any other information from the doctor.  Thankfully, I found this site!!!  Thank you to everyone for sharing your story, advice, and support!

p.s. Does anyone know of a Specialists in Albuquerque, NM? 

Added by LDW on June 11, 2015 at 3:30pm — 1 Comment

Everyone's coping mechanism is different - although hard - ACCEPTANCE

Happy Thursday! I have not been on the site for awhile. I have eyelashes, brows, etc. I am 59 years old/young.  In this pic I am wearing a wig OR I call them my "Girlfriends".   I have been dealing with my alopecia for several years.  Last June and in memory of my BFF losing her fight to the Big C I shaved it OFF.  So this month is my anniversary. I watch her fight so hard.  She never knew about my condition and so I shared it with her. I had not shaved my head…

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Added by SouthPAW on June 11, 2015 at 1:00pm — 1 Comment

....and the sun will shine again!

Hello My Fellow Hair Challenged Friends,

Yes-I have a story. We ALL have a story regarding how and when it began. My alopecia started 16 years ago, I was 25 and noticed two hairless spots on my otherwise hairy head. My derm diagnosed me swiftly and coldly; injections began. Regrowth, fall out, repeat. And then one day it became clear that mine was a losing battle. A Freedom Wig came, and eventually tattooed eyebrows...Although I detest them, I'm known to put on false lashes now and…

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Added by julie on June 11, 2015 at 12:25pm — 1 Comment

Femininity

I think the best option for any person with hair loss is to do what feels good to them, no one has the right to dictate to anyone how they should feel.

We as a society are so quick to point out to women that we need hair to make us feel feminine, sadly most

people don't realize that femininity comes from within, it's about being true to yourself, finding your inner

strength and self respect and being proud of who you are inside. Then and only Then will your outer self be…

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Added by Perfectly, Imperfect on June 11, 2015 at 10:00am — 1 Comment

Has anyone ever been kicked out of a place for hiding your head by wearing a head covering?

I have been wearing a nice beanie to cover my AA patches in between shaves.

I don't go out in public with a wig though I've been seriously considering 1 lately.

I just cover my head outside.

I was kicked out of a courtroom today because I would not remove my head covering in front of a room full of strangers.

I was mandated to "take it off or go pay the fine for the ticket". They wouldn't even grant me an audience with the solicitor in the hall way.

I paid…

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Added by Deejay on June 10, 2015 at 6:00pm — 27 Comments

Finish strong beautiful baldness

Presently, I am dealing with some huge challenges that make me feel like I am running a marathon, but I am determined to finish strong; even if tears are streaming down my face.

I was at the beauty shop talking with a woman about covering up this bald patch, and pricing hair pieces. She told me I have beautiful hair. I was choked up with emotion, and quietly said, "thank you" fighting back tears, and left. I was taken by surprise with the emotion seeping up from within me. I felt…

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Added by Kitra on June 9, 2015 at 12:30am — No Comments

Eyebrows

My eyebrows are all gone except for a few stray hairs. I do a pretty good job painting them on for work, but it's time consuming. I just stopped wearing them to the gym. I just took up dragon boat paddling, and I'm going browless to that. I think it was harder to lose my eyebrows than my hair. I used to have beautiful eyebrows...

Added by Chris on June 8, 2015 at 8:30pm — 4 Comments

Caitlyn Jenner

So the first thing I noticed about Caitlyn Jenner's photo shoot was her long gorgeous hair. I wondered if it's her natural hair or if she bought it (and if she did where did she buy it?!) I also noticed with interest that she chose long flowing hair because in our culture, like it or not (and I don't like it!) long hair is associated with femininity. 

I could identify with her in some ways. I am having some very nice professional photos made this weekend of me with no wigs, nothing on…

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Added by Bridgid Weber on June 3, 2015 at 11:30pm — 37 Comments

I'm done with sad

I'm interested in what coping rituals people use. I have a nightly bathroom mirror "face off" where I REALLY look at myself, and dare myself to be more than just "ok" with it. I'm considering some kind of undercut and just embracing it. I'm an aging, GEN X punk girl. I just want to stop hiding it all together, and just put it out there, right in everyone's face.

Added by Chris on June 1, 2015 at 9:00pm — 18 Comments

"Rules of the game"...Take 20

I've had alopecia for 10 years now.  The past five have been alopecia universalis.  This school year, I changed school districts to be closer to home.  It turned out to be a much less stressful job and very fulfilling.  Two or three months ago, we started noticing "peach fuzz" on my face and part of my head.  When I had alopecia areta, it was common for fuzz to come and go, so I didn't think much of it.  But it hasn't gone anywhere this time, and it is getting longer.  My sidewalls are still…

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Added by Bonnie on May 30, 2015 at 6:41pm — 1 Comment

Hair loss can quickly become a obsession

As I sit here writing my first thought down on the Alopecia network, my cat trying to get me to get off the computer so she can have all the attention, I wonder , is God trying to tell me something? I still can remember the day when I was 16, my mother took me to see a endroconologist (if thats how you spell it) because I was experiencing abnormal hair growth where hair should be growing on my body, acne, and (surprise) hair loss.

"Your hair is thinning." He said. No, duh.

It…

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Added by Dragongirl on May 29, 2015 at 9:34pm — 1 Comment

My very good no hair day

I did it! I went out to Panera with my 28 yr old daughter with nothing on my head! We had a bad storm and I had on my really good wig today. So I decided just to go in "topless". And life went on. The girl behind the counter looked a little wide eyed at me but I just looked straight into her eyes and gave my warmest smile. She asked how I was doing and seemed stunned when I said, "I'm doing great, how about you?" I do think I look better with hair, but I also think I look better with makeup. I… Continue

Added by Bridgid Weber on May 26, 2015 at 11:37pm — 4 Comments

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