All Blog Posts (5,825)

Cannabis oil for alopecia?

There has a been a lot of hype about cannabis oil for the treatment of cancer in the media of late. In fact, I've seen many shows on it on CNN by Dr Sanjeep Gupter where it has literally saved children s lives.

A friend has recommended it to me for Alopecia but i cant find much research about its success rate with auto immune conditions.

Have you heard anything or had any success? Thoughts? I mean,if they are using it to treat cancer successfully, surely it could work for…

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Added by Kim on February 23, 2015 at 1:30pm — 20 Comments

God gave us this disease

The way I see it is that God gave us alopecia to help us learn and grow, he finds that it is necessary for us to have alopecia to learn, and he knows that we are strong enough to handle it, if we weren't strong enough he would not have given it to us. He knows who we are and knows everything that we can handle, some people may have this trial and have a hard time over coming it, others may have an easy time over coming it. EVERYONE HAS TRIALS... It is part of life, it is time that we realize…

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Added by Jessica Hoschouer on February 19, 2015 at 8:00pm — No Comments

If pizza were a man, would you date him?

No matter how dire the circumstances may be, it’s not always easy doing what’s right for you. Ten years ago, I woke up with an autoimmune disease called Alopecia Universalis. A crescent-shaped bald spot appeared behind each of my ears literally over night. Within a year, I lost every hair on my entire body and it’s been pretty much gone ever since.

I've also been searching for a cure ever since. I've gone to several doctors, tried homeopathy, and experimented with my diet. The only…

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Added by Rosanna on February 17, 2015 at 1:00pm — 7 Comments

Dreaming of hair

I've had dreams where I was delighted that my hair had grown back, dreams where I just had long hair again, dreams where I "came out" as having lost my hair, but last night's was a new variation. I dreamed that my hair was just as it is now, and that I was out doing my dream business with no cover on my head. In the dream it was all very easy, as if weird hair was no big deal. A friend in the dream did get me past a security guard by saying, "Stress is bad for her, it makes her hair fall…

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Added by GardenJess on February 16, 2015 at 1:19pm — 2 Comments

Son has AU-apple Cider Vinegar?

Hello everybody...I have a 4 year old son who has Alopecia Universalis. My family and I had never heard of this condition until my son started losing his hair. In the beginning I was in denial because my son loves being outdoors playing with our animals and I thought he had picked up bird mites (we have a lot of chickens he always wanted to be around). Right before his hair loss his head was full of dandruff that concerned me, but the doctor said it was nothing to worry about...a couple weeks… Continue

Added by Trusting in God on February 15, 2015 at 4:08pm — 5 Comments

Why does NOBODY know about alopecia?

I have only had alopecia for around a year, but I went from having just a very small bald patch to losing 90% of my hair. I feel that it does not get enough attention in the medical world because every doctor I have gone to has told me (It could be caused by stress, it could be hereditary, it could be caused by this, it could be caused by that, it could be cured by this, it could be cured by that, etc. ......) I am so thankful that my hair loss is not caused because of treatment for cancer…

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Added by connerelizabeth on February 15, 2015 at 3:30pm — 7 Comments

10 years of alopecia areata

Hey ladies.

I have decided to start a blog of my journey of suffering from alopecia areata. It has been 10 years since I first discovered my hair loss. I was only 13 when I was at home one day doing my hair when I found a bold spot the size of a tennis ball. I kept it to myself for a month or so before I told my middle sister and made her promise not to tell anyone. I first went to the doctors and then a dermatologist and I tried home remedies and everything you could think of. Within…

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Added by Jewelzy on February 15, 2015 at 6:00am — 2 Comments

My alopecia has prepared me for this

As my 50th birthday approached, I occasionally thought about the fact that much was about to change for me. I struggled with the thoughts of impending possibilities such as weight gain, wrinkles, aches and pains, and the gradual waning of my physical abilities. But I also thought about my journey with alopecia over the past 24 years.

With alopecia the questions were…

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Added by Cheryl, Co-founder on February 13, 2015 at 3:30am — 9 Comments

Ear infection

I have alopecia totalis and now because I have no hairs in my ears I have an ear infection which does not seem to be going away.  It is like I have been swimming and there is water in my ears and it can be difficult to hear, is this a common thing does anyone know?

Added by Caroline on February 9, 2015 at 5:00pm — No Comments

Reasons society doesn't talk about alopecia?

I was asked a question by a friend of mine who has her own over 50s blog. Her last blog was about women's hair going grey and her next blog will be about women losing their hair. Until she met me she'd never heard of alopecia. I too had never heard of it before I got it. Then I read somewhere that there are more people with alopecia than there are people with red hair. To me that was amazing.

I would love to hear others thoughts about why alopecia isn't well known. Is it because most…

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Added by Pat on February 6, 2015 at 8:36pm — 8 Comments

Makeup tutorials for alopecia!?

Hello everyone! So i've been really interested in starting a youtube account and making makeup & hair tutorials! I've been watching different girls on youtube since i was 14 like michelle phan...I LOVE HER. But i also noticed that there isn't really a beauty guru that has alopecia or specializes in makeup that has to do with hair loss ( let me tell you there is a HUGE difference ). As my life goes on, my makeup and hair talents have grown tremendously. Also i am a working stylist and…

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Added by Isabelle O'Donnell on February 6, 2015 at 6:09pm — 3 Comments

Baffled and confused

Hi All,

I would love for some input and recommendation.

- End of Sept notice quarter size patch.

- Received corticosteroid.

- Mid Dec, scalp became very itchy, flaky, and sore mainly on top center.

- Noticed the patch double in size.

- Following days, hair was coming out in clumps washing, dry combing, and even randomly.

- Went to another dermatologist on Christmas Eve and received corticosteroid shot and got blood work done just to ensure…

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Added by nappylee222 on February 4, 2015 at 10:30pm — 1 Comment

Hair Club for Women

Does anyone have experience with the Hair Cub for Women?  Specifically the non-surgical hair replacement.

 

Thanks,

 

Jami

Added by Jami on February 2, 2015 at 7:29pm — 2 Comments

Frontal fibrosing alopecia - help

Good afternoon. My name is Lori, and I have been losing hair for close to 5 years. It started in 2010 as a tiny patch above my ear - that my hair dresser saw. Then that got bigger, and the same thing happened on the other side (above ear). I am still to this day, able to "hide" it, as I have a bob haircut, and unless the wind blows, or my hair is wet - you cannot see it. Recently, I went to my derm, and asked if she thought it would stop. She said I had some follicular erythema along the…

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Added by Lo on January 26, 2015 at 3:30pm — 4 Comments

Hair growth :)

So a few months ago I wrote a post saying that I was seeing results for my hair loss. I was diagnosed with AA by my dermatologist and my regular doctor a few months after I saw the little patches.This happened December 2013. Soon I lost easily 80 percent of my hair over the months that passed, and I am sure I would have lost more if I hadn't started my meds. As I mentioned before I had gone to my regular doctor and the dermatologist, both whom performed a series of test by drawing blood to rule… Continue

Added by wiz on January 25, 2015 at 2:16pm — 3 Comments

Whirlwind week of highs and lows, wins and losses

So, where could I possibly start?

Having never been to a naturopath before, I took the advice of a friend and sought out a very well known one in my area. In the month I waited for my appointment, anyone I mentioned it to seemed to have heard of him and his silky skills. I got more and more excited as the appointment approached, which coincided with repeated trips back to my hopeless GP as we went through the process of blood tests and him delivering results in a monotone, emotionless…

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Added by Aly on January 23, 2015 at 5:00am — 2 Comments

Well here I am again

At 21 I thought my hair would've been back by now. For the last 7-8 years I've mostly ignored the problem or pretended I didn't care. Reality is, I do care. I also wonder if my condition is in the way of having a relationship. I see many girls my age either married, engaged, or at least with someone, while I'm left alone. It really takes a special kind of guy to deal with our issues inside and out.

Basically the past 5 years have been hell, medically speaking. From my hair loss, 3…

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Added by Rita on January 20, 2015 at 11:30am — 7 Comments

New to Alopecia World

Good afternoon, Everyone!

My name is Rebecca, 23, and I am new to Alopecia World. I thought making a blog post would be a great way to get started and to meet other people who are living life with alopecia. All of my life, I have always had long and beautiful hair. Before leaving the house, the one thing that had to be perfect was my hair.

I first noticed my hair loss starting around mid August of 2014 and was officially diagnosed with AA in October of 2014. My hair loss…

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Added by rebeccasuelin on January 18, 2015 at 2:30pm — 8 Comments

Chronic telogen effluvium after IUD birth control and stress

I wanted to start off saying I had the biggest head of thick coarse hair that i always took for granted. I was the one who would walk into a hair salon and everyone would argue you take her no you take her, it just was so thick you could see every cut mark made with their scissors everyone tried thinning my hair with the…
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Added by Hosch on January 4, 2015 at 10:30pm — 2 Comments

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